Resource Pack Global Health Ethics 2018 Overview This resource pack was curated by the Global Health Education and Learning Incubator at Harvard University to highlight select key resources on the topic of ethics as it relates to global issues of health. Resources in this pack address topics such as the common ethics standards used in clinical and health research and research administration (including public health), bioethics in global health policy decision making, ethical fieldwork and communications in public health across different cultures, sexual and reproductive health ethics, health care justice, and the role of anthropology and religion in shaping questions of ethical principles and practice. The selected multidisciplinary materials may be suitable for students at the undergraduate college and public health graduate school levels. The pack includes basic reads in foundational resources such as international codes, as well as books and chapters, articles and reports, web portals, multimedia, and related teaching materials, including case studies. Learning objectives and supporting materials for use in pedagogy will vary depending on course goals and audience. This resource pack includes: • Basic Reads: Ethical Codes and Research Administration Standards • Reports and Books • Articles, Chapters, and Briefs • Web Portals and Organizations • Multimedia and News • Teaching Materials and Case Studies This resource pack was developed by Susan R. Holman, MTS, PhD, for the Global Health Education and Learning Incubator at Harvard University in 2018. The Incubator’s educational materials are not intended to serve as endorsements or sources of primary data, and do not necessarily reflect the views of Harvard University. Visit http://repository.gheli.harvard.edu/repository for additional teaching tools and updates. Last updated: 8/10/18. This resource is licensed Creative Commons Attribution-Non Commercial-NoDerivs3.0Unported [email protected] 617-495-8222 Global Health Ethics: Resource Pack Selected Resources – At a Glance BASIC READS: ETHICAL CODES AND RESEARCH ADMINISTRATION STANDARDS Resource Portal. Federal Policy for the Protection of Human Subjects (Common Rule). U.S. Department of Health & Human Services 1991. https://www.hhs.gov/ohrp/regulations-and- policy/regulations/common-rule/index.html. Resource Portal. The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. Department of Health, Education, and Welfare, National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research 1979. https://www.hhs.gov/ohrp/regulations-and-policy/belmont-report/index.html. Report. Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects. World Medical Association 1964. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical- principles-for-medical-research-involving-human-subjects. Report. Nuremberg Code. Citation 1947. http://www.unesco.org/new/en/social-and-human- sciences/themes/bioethics/international-bioethics-committee/reports-and-advices. REPORTS AND BOOKS Report. International Bioethics Committee. Report of the IBC on Big Data and Health. United Nations * Educational, Scientific and Cultural Organization 2017. http://www.unesco.org/new/en/social-and-human- sciences/themes/bioethics/international-bioethics-committee/reports-and-advices. Report. WHO Guidelines on Ethical Issues in Public Health Surveillance. World Health Organization 2017. http://www.who.int/ethics/publications/public-health-surveillance/en. Book. International Ethical Guidelines for Health-Related Research Involving Humans. Council for International Organizations of Medical Sciences, World Health Organization 2016. https://cioms.ch/shop/product/international-ethical-guidelines-for-health-related-research-involving- humans. Report. Van Bavel B et al. Student Guidelines for Ethical Fieldwork Overseas. Development Studies Association Ireland, Irish Forum for Global Health 2016. https://globalhealth.ie/resources/student-ethical- guidelines. Book. Galarneau C. Communities of Health Care Justice. Rutgers University Press 2016. https://www.rutgersuniversitypress.org/communities-of-health-care-justice/9780813577661. Report. Global Health Ethics: Key Issues. Global Network of WHO Collaborating Centres for Bioethics, World Health Organization 2015. http://www.who.int/ethics/publications/global-health-ethics/en. Book. Selgelid M, Rappert B, eds. On the Dual Uses of Science and Ethics: Principles, Practices, and Prospects. Australian National University Press 2013. https://press.anu.edu.au/publications/series/centre- applied-philosophy-and-public-ethics-cappe/dual-uses-science-and-ethics. Book. Davis A et al. Study Guide for Institutional Review Board: Management and Function. Jones & Bartlett Publishers 2006. http://www.jblearning.com/catalog/0763738662. Book. Bankert E, Amdur R. Institutional Review Board: Management and Function: Second Edition. Jones & Bartlett Publishers 2005. http://www.jblearning.com/catalog/9780763730499. ARTICLES, CHAPTERS, AND BRIEFS Article. Haddad S et al., eds. Ethics and Global Health. BMC Medical Ethics 2018; 19(Supplement 1). https://bmcmedethics.biomedcentral.com/articles/supplements/volume-19-supplement-1. Article. Reynolds L, Sariola S. The Ethics and Politics of Community Engagement in Global Health Research. Critical Public Health 2018; 28(3): 257-268. DOI: https://doi.org/10.1080/09581596.2018.1449598. Article. Hummel P et al. Rapid Qualitative Review of Ethical Issues Surrounding Healthcare for Pregnant Women or Women of Reproductive Age in Epidemic Outbreaks. Epidemiology and Health 2018; 40: e2018003. DOI: http://doi.org/10.4178/epih.e2018003. 2 This resource is licensed Creative Commons Attribution-Non Commercial-NoDerivs3.0Unported [email protected] 617-495-8222 Global Health Ethics: Resource Pack Article. Fourie C. The Trouble With Inequalities in Global Health Partnerships: An Ethical Assessment. Medicine Anthropology Theory 2018; 5(2): 142-155. http://www.medanthrotheory.org/read/10589/the- trouble-with-inequalities-in-global-health-partnerships. Article. Chapman AR. Evaluating the Health-Related Targets in the Sustainable Development Goals From a Human Rights Perspective. The International Journal of Human Rights 2017; 21(8): 1098-1113. https://doi.org/10.1080/13642987.2017.1348704. Article. Hurlimann T et al. Ethical Issues in the Development and Implementation of Nutrition-Related Public Health Policies and Interventions: A Scoping Review. PLoS One 2017; 13(2). DOI: https://doi.org/10.1371/journal.pone.0186897. Article. Allum N et al. Religion and the Public Ethics of Stem-Cell Research: Attitudes in Europe, Canada, and the United States. PLoS One 2017; Apr 20. DOI: https://doi.org/10.1371/journal.pone.0176274. Article. Rozier M. Religion and Public Health: Moral Tradition as Both Problem and Solution. Journal of Religion and Health 2017; 56: 1052-1063. DOI: https://doi.org/10.1007/s10943-017-0357-5. Article. Levin J. Partnerships Between the Faith-Based and Medical Sectors: Implications for Preventive Medicine and Public Health. Preventive Medicine Reports 2016; 4:344- 350.https://www.sciencedirect.com/science/article/pii/S2211335516300845. Article. Kotalik J, Martin G. Aboriginal Health Care and Bioethics: A Reflection on the Teaching of the Seven Grandfathers. American Journal of Bioethics 2016; 16(5): 38-43. https://www.tandfonline.com/doi/full/10.1080/15265161.2016.1159749. Article. Sallans RK. Lessons from a Transgender Patient for Health Care Professionals. AMA Journal of Ethics 2016; 18(11): 1139-1146. http://journalofethics.ama-assn.org/2016/11/mnar1-1611.html. Chapter. Velji A, Bryant JH. Global Health Ethics. Chapter 21 in Markle W. et al. Understanding Global Health, Second Edition. McGraw-Hill Education 2014. Pages 463-486. https://accessmedicine.mhmedical.com/content.aspx?bookid=710&sectionid=46796922#57940501. Article. Washington DA. Critical Race Feminist Bioethics: Telling Stories in Law School and Medical School in Pursuit of “Cultural Competency.” Albany Law Review 2010(72): 961-998. http://commons.law.famu.edu/faculty-research/117. Chapter. Kleinman A. Writing at the Margin: Discourse Between Anthropology and Medicine. Chapter 3: Anthropology of Bioethics. University of California Press 1995. Pages 41-67. http://oxfordindex.oup.com/view/10.1525/california/9780520209657.003.0003. Brief. Emanuel E et al. Research Ethics: How to Treat People who Participate in Research. Clinical Center Department of Bioethics, National Institutes of Health n.d. https://www.bioethics.nih.gov/education/pdf/FNIH_BioethicsBrochure_WEB.PDF. WEB PORTALS AND ORGANIZATIONS Web Portal. Global Health Fieldwork Ethics: Values, Realities, and the Right to Health. Health and Human Rights Journal 2019; 21. https://www.hhrjournal.org/submissions/call-for-submissions-upcoming- issues/#fieldwork. Web Portal. Global Health Ethics. World Health Organization 2018. http://www.who.int/ethics. Resource Portal. Integrating Ethics in Infectious Disease Outbreaks. World Health Organization. https://extranet.who.int/ethics. Resource Portal. Bioethics Information and Resources. National Institutes of Health Fogarty International Center 2018. https://www.fic.nih.gov/ResearchTopics/Pages/Bioethics.aspx. Web Portal. National Institutes of Health Department of Bioethics 2018. https://www.bioethics.nih.gov/home/index.shtml. Resource Portal. National Institutes of Health Clinical Center: Patient Recruitment Ethics in Clinical Research