University of Dundee Enhancing Gypsy, Roma and Traveller peoples’ trust McFadden, Alison; Siebelt, Lindsay; Jackson, Cath; Jones, Helen; Innes, Nicola; MacGillivray, Stephen DOI: 10.20933/100001117 Publication date: 2018 Document Version Publisher's PDF, also known as Version of record Link to publication in Discovery Research Portal Citation for published version (APA): McFadden, A., Siebelt, L., Jackson, C., Jones, H., Innes, N., MacGillivray, S., ... Atkin, K. (2018). Enhancing Gypsy, Roma and Traveller peoples’ trust: using maternity and early years’ health services and dental health services as exemplars of mainstream service provision. 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Mar. 2020 Enhancing Gypsy, Roma and Traveller peoples’ trust: using maternity and early years’ health services and dental health services as exemplars of mainstream service provision Final Report September 2018 Authors and affiliations Alison McFadden1, Lindsay Siebelt1, Cath Jackson2, Helen Jones3, Nicola Innes4, Stephen MacGillivray1, Kerry Bell2, Belen Corbacho2, Anna Gavine1, Haggi Haggi1, Karl Atkin2. 1 School of Nursing and Health Sciences, University of Dundee 2 Department of Health Sciences, University of York 3 Leeds Gypsy and Traveller Exchange 4 School of Dentistry, University of Dundee Contact: Dr Alison McFadden [email protected] 1 Contents List of Tables and Figures ........................................................................................................................ 6 List of Appendices ................................................................................................................................... 7 List of Abbreviations ............................................................................................................................... 8 Plain English Summary ............................................................................................................................ 9 Scientific Summary ................................................................................................................................ 10 Background ....................................................................................................................................... 10 Aims and objectives .......................................................................................................................... 10 Methods ............................................................................................................................................ 11 Results ............................................................................................................................................... 12 Stage 1 (Literature reviews). ......................................................................................................... 12 Stage 2 (Online consultation) ........................................................................................................ 13 Stage 3 (Case studies) ................................................................................................................... 13 Stage 4 (Cross-sectoral workshops) .............................................................................................. 13 Recommendations ............................................................................................................................ 14 Conclusion ......................................................................................................................................... 14 Chapter1: Background .......................................................................................................................... 15 Size of the Gypsy, Roma and Traveller population in the UK ........................................................... 15 Health and health service uptake of Gypsy, Roma and Traveller people ......................................... 15 Trust and Community Engagement .................................................................................................. 16 Policy context .................................................................................................................................... 17 Chapter 2: Study aims and overview of methods ................................................................................. 19 Study aims ......................................................................................................................................... 19 Study objectives ................................................................................................................................ 19 Overview of methods ........................................................................................................................ 19 Phase 1: Literature reviews ........................................................................................................... 19 Phase 2: National online consultation .......................................................................................... 20 Phase 3: Case studies .................................................................................................................... 20 Phase 4: Cross-sectoral workshops ............................................................................................... 20 Stakeholder Advisory Group ............................................................................................................. 20 Public and patient involvement in the research ............................................................................... 20 Chapter 3: Literature reviews ............................................................................................................... 23 Review 1: Gypsy, Roma and Traveller access to and engagement with maternity, child health and dental health services ....................................................................................................................... 23 Introduction .................................................................................................................................. 23 Methods ........................................................................................................................................ 23 Findings ......................................................................................................................................... 24 Summary ........................................................................................................................................... 32 2 Review 2: A systematic review of reviews of how trust has been conceptualised within health care contexts ............................................................................................................................................. 34 Introduction .................................................................................................................................. 34 Methods ........................................................................................................................................ 34 Findings ......................................................................................................................................... 35 Summary ....................................................................................................................................... 43 Review 3: Realist synthesis of approaches to community engagement involving Gypsy, Roma and Traveller people ................................................................................................................................ 45 Aims .............................................................................................................................................. 45 Methods ........................................................................................................................................ 45 Findings ......................................................................................................................................... 46 Summary ....................................................................................................................................... 54 Analytical framework ........................................................................................................................ 56 Chapter 4: National online consultation ............................................................................................... 57 Aims .................................................................................................................................................. 57 Methods ...........................................................................................................................................