School of Clinical Medical Sciences Paediatric and Lifecourse Epidemiology Research Group Report 2002-2004 Contents Foreword.............................................................................................................................................4 The Paediatric and Lifecourse Epidemiology Research Group ...................................................5 Introduction........................................................................................................................................6 Who we are .....................................................................................................................................6 What we do .....................................................................................................................................6 Staff List (Past and Present)..............................................................................................................7 Academic Research Staff...............................................................................................................7 Support Staff...................................................................................................................................9 Research Students ........................................................................................................................10 External Roles and Responsibilities ...............................................................................................11 Local, National and International Roles and Responsibilities.................................................11 Research Projects 2002 - 2004........................................................................................................14 Paediatric Epidemiology..................................................................................................................15 Cancer Epidemiology...................................................................................................................16 North Cumbria Community Genetics Project DNA Bank.......................................................18 An Integrated Genetic and Epigenetic Research Programme to Investigate the Role of Folate in the Health of Children .................................................................................................19 The Regional Maternity Survey Office (RMSO).......................................................................20 Perinatal Mortality in the Northern Region, 1982-2000: Contribution of Changing Maternal Risk Factors .................................................................................................................22 The Northern Congenital Abnormality Survey: A Collaborative Survey of Congenital Abnormalities in the Northern Region.......................................................................................23 Chronic Granulomatous Disease Registry.................................................................................24 Re-admission to Hospital within the First 28 Days of Life.......................................................25 A Controlled Follow-up Study to Determine Whether Community Acquired Pneumonia Poses a Risk for the Development of Chronic Respiratory Disease in Childhood .................26 Langerhans Cell Histiocytosis Survey (in association with the BPSU) ..................................27 Pre- and Post-natal Exposure to Particulate Matter and Pregnancy and Infant Outcomes: an Historical Cohort Study (1961-1992) [PAMPER]................................................................28 Cryptorchidism and Hypospadias for the North of England...................................................29 Child and Adolescent Mental Health .........................................................................................30 Families and Communication Training and Support (FACTS) – Evaluation of Parent Group Training for Pre-School Children with Suspected ASD...............................................32 International Molecular Genetic Study of Autism Consortium (IMGSAC) ..........................33 Development of Parent-Reported Outcomes of Early Intervention for Children with Autism: the Well-being in Autism Index ...................................................................................35 Establishment of a Registry of Children with Autistic Spectrum Disorder in North East England – Daslne ..........................................................................................................................36 The Development of Diagnostic Algorithms for Autistic Spectrum Disorders in Primary and Secondary School-Aged Children .......................................................................................37 “Will it Ever Stop?” Repetitive Behaviours: A Neglected Area of Early Autism Research.38 Randomised Study of an Age-Paced Parenting Newsletter (Baby Express) in North Tyneside 2002-2006 ......................................................................................................................39 Cerebral Palsy and Intrauterine Growth in Multiple Births: A Study Based on Data from the European Network of Cerebral Palsy Registers .................................................................41 Quality of Life and Childhood Disability...................................................................................42 Study of the Participation of Children with Cerebral Palsy Living in Europe [SPARCLE]43 Life Expectancy in People with Cerebral Palsy ........................................................................44 2 Development, Implementation and Evaluation of a National Injury Prevention Training Course............................................................................................................................................45 International Survey of Child Road Safety ...............................................................................46 Evaluation of the National Child Pedestrian Training Pilot Project .....................................47 Regional Life Skills Initiative Feasibility Study into the Establishment of Regional Safety Centre for Tyne and Wear .........................................................................................................48 Kerbcraft Road Safety Training Video......................................................................................49 Laser Schemes ..............................................................................................................................52 Evaluation of the WHOOPS Introductory Certificate in Home Safety and Voluntary Training Course ...........................................................................................................................53 Evaluation of the Dealing with Disadvantage Project ..............................................................55 Evidence and Guidance Collaborating Centre Prevention and Reduction of Accidental Injury in Children and Young People, aged 0-24 years ...........................................................56 Health Evidence Network Synthesis: What Works in Preventing Unintentional Injuries in Children aged 0-14 years and Older Adults, aged 65 years and over?...............................57 Models of Paediatric Services in Other Countries....................................................................58 Carbon Isotope Breath Analysis in Tests of Gastrointestinal Function in Children............59 Children with Long-Term Disability in the former Northern & Yorkshire NHS Region – a Scoping Study for the North East Public Health Observatory................................................61 How do Toddlers’ Feeding Behaviour Problems Relate to Growth and Earlier Feeding.....62 Lifecourse Epidemiology .................................................................................................................63 The Newcastle Thousand Families Study ..................................................................................64 The Impact of Place of Birth on Insulin Resistance and Reproductive Function in Premenopausal Pakistani and European Origin Women ........................................................68 The Biological Pathways Linking Socio-Economic Status and Health: Socio-Economic Status, Health and Ageing ...........................................................................................................69 Stroke Incidence Study for the Hai District and Dar-es-Salaam, Tanzania..........................71 Palliative Care in Parkinson’s Disease.......................................................................................72 Action on Non-Communicable Diseases in Sub-Saharan Africa.............................................73 The Prevalence of Parkinson’s Disease in North Tyneside and North Northumberland: a Population-Based Study of Epidemiology, Service Use and Anticipated Care Need ............74 Pilot Study: Long-Term Sequelae of Radiation Exposure from Computed Tomography Scans on Children ........................................................................................................................75 PLERG Research Grants 2002-2004..............................................................................................76 Publications.......................................................................................................................................78 2004 publications..........................................................................................................................78