Spring 06_rd 5/24/06 12:48 PM Page 1 NEWSLETTER Volume 14, No. 1 CHILD NEUROLOGY SOCIETY 35th Annual Meeting Program Preview Wednesday, October 18 7:45 AM – 8:15 AM Historical Descriptions of SMA 7:30 AM - 5:30 PM Victor Dubowitz, MD, NEUROBIOLOGY OF DISEASE PhD, FRCP, DHC IN CHILDREN SYMPOSIUM Hammersmith University London, UK Spinal Muscular Atrophy 8:15 AM – 8:45 AM Supported by grants from the Clinical Classification and National Institutes of Health Disease Heterogeneity (NIH grant 1 R13 NS40925-01), Barry Russman, MD Families of Spinal Muscular Atrophy, Oregon Health & Science the Claire Altman Heine Foundation, Inc., University 35th Annual and the Child Neurology Society. Portland, OR Meeting CME ACTIVITY 8:45 AM – 9:30 AM Moderator: Bernard L. Maria, MD, October 18-21, 2006 Modern Diagnosis and MBA, Jeffrey Edwin Gilliam Chair and Management Executive Director of the Children’s Davis L. Lawrence Convention Tom Prior, PhD Research Institute, Medical University Center/Westin Convention Ohio State University of South Carolina, Charleston, SC Center Hotel Columbus, OH AND Pittsburgh, PA 7:30 AM – 7:45 AM Susan Iannaccone, MD Introduction and Statement of Goals 9:30 AM – 9:50 AM Bernard L. Maria, MD, MBA Question and Answer Session CLINICAL NEUROLOGY OF SMA Moderator: Susan Iannaccone, MD, FAAN University of Texas Southwestern Medical Center, Dallas, TX Continued on page four In This Issue President’s Letter 35th Annual ACNN News Personal Registry 2 4 Meeting 7 8 Spring 06_rd 5/24/06 12:48 PM Page 2 PAGE TWO CHILD NEUROLOGY SOCIETY From the President Springing Forward to Fall t is hard to believe, with spring having There are, of course, a number of others Ibarely arrived, that preparations are well working hard behind the scenes this year and underway for the annual fall meeting in every year. Foremost among these are the Pittsburgh scheduled in mid-October. Final CNS Awards Committee, chaired this year by ACCME approval of the scientific program, Philip Pearl, and charged with selecting the Ann Tilton, MD followed by distribution of registration Sachs, Hower, and Young Investigator Award CNS President information via regular mail and on-line recipients, and the Scientific Selection registration for the meeting will all unfold Committee, chaired by Gary Clark. Gary’s over the course of the next month. This appointment, like each of his predecessor’s, year’s meeting offers an exciting scientific is for two years. The two year rotation of program in what truly is an exciting venue. chairs on this committee, bolstered by the As everyone who has been to Pittsburgh in extraordinary multi-year commitment and recent years knows, it is a remarkably vibrant collective wisdom afforded by its 12-14 and inviting “renaissance city,” much committee members, strikes a much needed different than the city you may remember or balance of continuity and originality. Gary’s may only have read about from decades ago. two-year appointment gives him the creative A hearty round of applause goes out to Mary license and flexibility to design an educational Curry and Roger Larson for the very extensive curriculum on a larger canvas than one year and largely invisible preparatory work they would afford; what can’t be scheduled this year perform year-round to ensure the success of in a tight three-day framework can be planned this and every CNS annual meeting. Mary’s for the following year; breakfast seminars that comprehensive oversight of the annual “show” well this year, based on attendance meeting goes back to the very first gathering and survey feedback may “grow” into a full in Ann Arbor in 1972. Roger’s work with the scientific symposium next year; ideas generated scientific program committee and with by the many Special Interest Group meetings exhibitors dates back to the Halifax meeting scheduled during the annual meeting may be in 1988. With next year’s meeting set for pitched to the Scientific Program Chair and/or Quebec City and the following year Committee on-site or in correspondence soon scheduled to be held in Santa Clara, they are after; well-thought out and clearly articulated currently setting their sights on the 2009 suggestions entered in the post-meeting on- meeting, all the while maintaining their focus line survey regarding prospective sessions or on the innumerable background details speakers may spark a “conversation” that bears requiring immediate attention to ensure the fruit, if not the next year, then in subsequent success of this year’s meeting, a meeting first years as Gary passes on to his successors the envisioned three or four years ago. resources and insights gained from two years on the front line. EDITOR CORRESPONDENCE John Bodensteiner, MD Child Neurology Society Printed in St. Paul, MN 1000 West Cty Rd. E, Suite 290 Published Quarterly MANAGING EDITORS St. Paul, MN 55126 Mary Currey Tel: 651/486-9447 I Fax: 651/486-9436 Printed on Recycled Paper Roger Larson [email protected] 50% Post Consumer Waste www.childneurologysociety.org 50% Recycled Fibers Spring 06_rd 5/24/06 12:48 PM Page 3 PAGE THREE The goal, for Gary and for his committee, afforded attendees to review the 150+ is to weave a coherent program abstracts selected from the roughly 250+ choreographing some of the best new work abstracts submitted each year, will ensure the being done on the bench top with the best continued vitality of the CNS Annual Meeting. new practices being developed and offered to our patients in the exam room and at Quickly, on a separate topic: in my last letter I bedside. As any past chair of the committee discussed work done by representatives of the can attest, this is a truly daunting and CNS and the CNF to clarify their relationship draining responsibility, all the more so given and move toward bringing the two entities the growing diversity of sub-specialty and their separate but complimentary missions interests within our subspecialty of child closer together. This is an important and neurology. Recognizing this growing attainable goal for the next two years. Under diversity of interests and needs, and the the sage direction of Carl Crosley, a task force limited framework the annual meeting meeting in Chicago earlier this month made provides to meet them, we are moving significant progress toward meeting this goal. toward development of a program Sincerely, committee with a better balance of representation from the full spectrum of “bench top” to private practice neurologists that make up the Society’s membership. This, along with the splendid opportunity Ann H. Tilton, MD NEW WEB RESOURCE FOR EPILEPSY RESEARCH OPEN FOR BUSINESS Go to: http://www.epilepsyresearchresource.org Spring 06_rd 5/24/06 12:48 PM Page 4 PAGE FOUR CHILD NEUROLOGY SOCIETY 35th Annual Meeting Program Preview continued from page 1 Wednesday, October 18 continued 2:35 PM – 3:05 PM Use of Animal Models in 9:50 AM – 10:20 AM Preclinical Testing Break Arthur Burghes, PhD Ohio State University MOLECULAR MECHANISMS IN SMA Columbus, OH Moderator: Christine J. DiDonato, PhD Northwestern University 3:05 PM – 3:35 PM Chicago, IL Human Trials Kathryn Swoboda, MD 10:20 AM – 10:50 AM Molecular Mechanisms in SMA 3:35 PM – 3:55 PM Charlotte Sumner, MD Question and Answer Session National Institutes of Health Bethesda, MD FUTURE DIRECTIONS Moderator: NINDS Program Director, 10:50 AM – 11:20 AM Jill Heemskerk, PhD, Bethesda, MD SMN Function in the Cell Stephen Kolb, MD, PhD 3:55 PM – 4:50 PM Hospital of the University of Pennsylvania Panel Discussion Philadelphia, PA Darryl De Vivo, MD, Columbia University, New York, NY 11:20 AM – 11:50 AM John T. Kissel, MD, Ohio State University, SMN and Neurodevelopment Columbus, OH Christine Beattie, PhD Mary Schroth, MD, University of Wisconsin Ohio State University Hospital, Madison, WI Columbus, OH Sakamuri V. Reddy, PhD, Medical University of South Carolina, Charleston, SC 11:50 AM – 12:20 PM Douglas Kerr, MD, PhD, The Johns Hopkins Animal Models of SMA Hospital, Baltimore, MD Christine J. DiDonato, PhD 4:50 PM – 5:00 PM 12:20 PM – 12:40 PM Closing Comments Question and Answer Session Bernard L. Maria, MD, MBA 12:40 PM – 2:05 PM 6:00 – 8:00 PM Lunch Opening Reception TRANSLATIONAL RESEARCH 8:00 – 10:00 PM Moderator: Kathryn Swoboda, MD Movement Disorders University of Utah Salt Lake City, UT 8:00 – 10:00 PM Independently Staged/ 2:05 PM – 2:35 PM Accredited Satellite Symposium Search for Active Compounds Sponsored by UCB Pharma Christopher E. Henderson, PhD Columbia University New York, NY Spring 06_rd 5/24/06 12:48 PM Page 5 PAGE FIVE Thursday, October 19 3:30 – 5:30 PM Platform Session 1: Malformation and 7:00 – 8:30 AM Tumors of the Developing Nervous System” Breakfast Seminar 1: Drooling Organizer: Peter Blasco MD, Child Development & Platform Session 2: Epilepsy and Rehabilitation Center, Portland, OR Epileptic Syndromes Breakfast Seminar 2: Epilepsy Case Moderated Poster Session: Epilepsy Management Edward Novotny, MD, Yale University, Doug Nordli, MD, Children’s Memorial Hospital, New Haven, CT Chicago, IL 6:00 – 10:00 PM: Breakfast Seminar 3: RVU’s and You Independently Staged/ Carmela Tardo, MD, Children’s Hospital of Accredited Satellite Symposium Louisiana, New Orleans, LA Sponsored by Abbott Pharmaceuticals 9:00 – 12:00 NOON Symposium II: Presidential Symposium: Cerebral Palsy Organizer: Ann Tilton, MD, President, CNS Friday, October 20 Speakers: Leland Albright, MD, University of 7:00 – 8:30 AM Pittsburgh, Pittsburgh, PA Breakfast Seminar 4: Neurologic Janice Brunstrom, MD, St. Louis Children’s Manifestations of Inborn Errors Hospital, St. Louis, MO of Metabolism Terrance Edgar, MD, Marshfield Clinic, Marshfield, WI Organizer: Amy Goldstein, MD, Mauricio Delgado, MD, Texas Scottish Rite Hospital, University of Pittsburgh, Pittsburgh, PA Dallas, TX Breakfast Seminar 5: Feeding Dysfunction 12:00 - 1:30 PM Organizer: Brian Rogers, MD, Oregon Health Poster Session 1: A, B, C, D Sciences University, Portland, OR 1:30 – 3:00 PM Symposium III: Neonatal Neurology Breakfast Seminar 6: Neurology of and Music Organizer: Frances Jensen, MD, Famous Musicians: In Words Children’s Hospital, Boston, MA Organizer: Phillip L.