Alzheimer's Society Annual Conference, Tuesday 22 May 2018 Taking action on dementia Time Title Speaker 9am Registration, exhibition, posters and refreshments 9.45am Welcome and housekeeping Fiona Phillips – Journalist and Broadcaster, Alzheimer’s Society Ambassador 10am Introduction to ASAC 2018 Jeremy Hughes CBE, CEO Alzheimer’s Society 10.15am The Dementia Statements one year on – rights and the Three Nations Dementia Working group Members of the Three Nations We know that the rights of people affected by dementia in many areas across healthcare and wider Dementia Working group society are not being upheld. One year on from the publication of the new Dementia Statements, this session explores how talking about rights is fundamental for achieving necessary change for people affected by dementia. Professor Sir Simon Lovestone, 11.00am Dementia – Big problem; Big Data – Big solution? Professor of Translational 1 ASAC 2018 – last programme update 19.04.18 Globally researchers are coming together to take on dementia, pooling their data and using the power of Neuroscience, University of big data sets to address key unanswered questions. Professor Sir Lovestone will give an overview of Oxford what is big data and where does the data come from. He will look at how data is continually being reused to advance research and improve care, through examples of using medical records in research; ethics and governance. 11.30am Refreshments, exhibition, posters and networking 11.50am Parallel Sessions Session 1 Session 2 Session 3 Session 4 UKDRI: conquering dementia Younger people with dementia Getting emergency care right Caring for carers through research Chaired by Adrian Ivinson, Chief Chaired by Tessa Gutteridge, Chaired by Sean Bone-Knell, Chaired by Bob Kahn and Peter Operating Officer, UK Dementia CEO, Young Dementia UK Director of Operations, Kent Fire Riley, Carers and members of Research Institute and Rescue Service Alzheimer’s Society Research Network. Speakers: Speakers: Jane Pritchard, Speakers: Sarah Voss, Associate Speakers: Consultant Admiral Dr Adrian Ivinson Professor in Emergency Dr Jane Fossey, Associate Nurse, The Good Care and Critical Care, The Director of Psychological Professor Chris Shaw, Group Associate Director, UK University of the West of Services , Oxford Health Donna Chadwick, DRI England, Bristol NHS Foundation Trust National Development Courtney Shaw, Sadhia Parveen, Alzheimer’s Dr Nir Grossman, Manager, The Young Alzheimer’s Society PhD Society Research Fellow, Research Fellow, UK DRI Dementia Network student, University of University of Bradford Professor Sarah Tabrizi, Jackie Tuppen, Bradford Gill Livingston, Professor of Director of Huntington’s Speciaialist Practitioner Helen Pocock, Senior Psychiatry, University Disease Centre, and Admiral Nurse, Research Paramedic, College London University College Dementia UK South Central Ambulance London NHS Foundation Trust Zoe Elkins, Head of Care Strategy, The Good Care Group 2 ASAC 2018 – last programme update 19.04.18 1pm Lunch, exhibition, posters and networking 2pm Parallel Sessions Session 5 Session 6 Session 7 Session 8 Dementia Research Leaders Hidden Voices: Seldom heard Out with the old and in with the Dementia Friendly Business PhD showcase groups new, the key to achieving lasting results from your Chaired by Charlotte Matier, Chaired by Katherine Gray, Chaired by John McHugh, training spend Director of Development, Research Grants Manager, Composer, Royal Liverpool Alzheimer’s Society and Emma Alzheimer’s Society Philarmonic Orchestra Chaired by Raj Kapoor, Head of Bould, Programme Partnerships Training and Consultancy, Project Manager, Alzheimer’s Speakers: Speakers: Alzheimer’s Society Society. Isabel Castanho, Katrina Forsyth, Alzheimer’s Society PhD Research Associate, Speakers: student, University of University of Manchester Claire Surr, Professor of Speakers: Exeter Kellie Rostron, BME Dementia Studies, Leeds Mike Finnegan, Head of Lucas Kraft, Alzheimer’s Family Support Project Beckett University Customer Experience, Society PhD student, Coordinator, Mary Isabelle Latham, Senior HSBC University of Sussex Seacole House Lecturer, Association for Ruth Poole, Speciality Pippa Collins Alzheimer’s Dementia Studies Director, Celesio UK Society PhD student, University of Worcester University of Wendy Grosvenor, Southampton Lecturer Older Adult Care, Emma Broome, University of Surrey Alzheimer’s Society PhD student, University of Nottingham Julia Schumacher, Alzheimer’s Society PhD student, University of Newcastle Suzanne Hill, Alzheimer’s Society PhD student, University of Bradford Jennie Gabriel, 3 ASAC 2018 – last programme update 19.04.18 Alzheimer’s Society PhD student, University of Dundee Connor Richardson, Alzheimer’s Society PhD student, Newcastle University 3.10pm Exhibition, posters, refreshments and networking 3.30pm The Cost of Dementia Martin Knapp, Professor of Social Professor Martin Knapp presents the latest research from the London School of Economics on the cost of Policy, London School of dementia to the UK, updating the figures last published in 2014 and exploring just what the costs related Economics to the condition and its management are to the UK’s economy and society as a whole. 3.45pm Counting the cost Kathryn Smith, Chief Operating Kathryn Smith will present Alzheimer’s Society’s response to the new data from LSE and the implications Officer, Alzheimer’s Society for care and support for people affected by dementia 3.55pm Address by the Minister of State for Health and Social Care Caroline Dinenage MP, Minister of In 2018, the government is holding its review of the Prime Minister’s Challenge on Dementia 2020 and State for Health and Social Care leading the development of a Green Paper on social care reform. Caroline Dinenage MP, Minister of State for Health and Social Care, will address the conference on the continued commitment of the government and Department of Health and Social Care in meeting the needs of people affected by dementia to 2020 and beyond. 4.15pm Fixing the System: panel discussion and Q&A from the audience Martin Knapp, Professor of Social Policy, London School of Building on the day’s key sessions and the theme of rights, our panel of experts and thought leaders will Economics present their views on and discuss how the current system needs to be fixed, in order to both understand what people affected by dementia need and what, and how this can be delivered in a way that meets Glen Garrod, President, those needs as they have been expressed through the Dementia Statements. Association for the Directors of Adult Social Services The session will also include an opportunity for questions from the audience 4 ASAC 2018 – last programme update 19.04.18 Kathryn Smith, Chief Operating Officer, Alzheimer’s Society Alistair Burns, National Clinical Director for Dementia and Older Peoples’ Mental Health, NHS England Fiona Phillips – Journalist and 4.55pm Recap of the day and closing remarks Broadcaster, Alzheimer’s Society Ambassador 5pm Drinks reception sponsored Surrey Cricket Club on the Kia Oval Terrace Professor Bart De Strooper, Director, UK Dementia Research Jeremy Hughes in conversation with Professor Bart de Strooper Institute Jeremy Hughes and Professor Bart De Strooper will discuss the latest advances in dementia research Jeremy Hughes CBE, and how close we are to meeting the G7 ambition of identifying a treatment that can slow down dementia CEO Alzheimer’s Society by 2025 Alzheimer's Society Annual Conference, Wednesday 23 May 2018 Time Title Speaker 8am PhD student breakfast – invitation only 9.15am Registration, exhibition, posters and refreshments 9.45am Welcome and housekeeping Charlie Webster, Sports and Television Presenter (Invited) 10.00am Alzheimer’s Society ambitions in support, society and research Dr Doug Brown, Chief Policy and 5 ASAC 2018 – last programme update 19.04.18 Research Officer, Alzheimer’s Society 10.20am Greater Manchester – putting dementia first Warren Heppolette, Executive Lead Strategy and Systems After its historic devolution deal Greater Manchester became the first city region to gain control of its Development, Greater Manchester health and social care budget. Dementia has been set as an early priority by the Greater Manchester Health and Social care Partnership Health and Social Care Partnership (GMHSCP) and Alzheimer’s Society have been working closely with Dementia United, Greater Manchester’s dementia transformation programme to ensure people Rachel Volland, Senior living with dementia’s voices are heard. Implementation and Improvement Lead - Dementia United Devolution opens up many exciting opportunities and in this session you will hear from key Greater Manchester decision makers about where we’ve come from, what lies ahead and how we can continue Nicky Timmis, Engagement and to work closely together. Alzheimer’s Society are championing people affected by dementia in Greater Participation Officer, Alzheimer's Manchester and this session will also show how we are putting their lived experience at the forefront of Society our work. 11.00am Meeting the therapeutic challenge in Huntington's disease and other forms of dementia Professor Sarah Tabrizi, Director of Huntington’s Disease Centre, In 2017, Professor Tabrizi and colleagues announced groundbreaking results of an early phase study University College London towards treating Huntington’s disease. Professor Tabrizi will tell more of this exciting new approach, and how the knowledge