ANNUAL REPORT 2015 STRIVING TO WORK changing the lives of people with disabilities Inside the QR CODES Throughout Kessler Foundation’s 2015 Annual Report are QR codes, which you can use to find more information on grants, publications, research, and employment initiatives. To access this information, download a QR code scanner or reader app on your mobile device. Open the app and place your mobile device over the QR code. Scan the code here, or visit http://kesslerfoundation.wix.com/2015-annual-report. About Kessler Foundation Kessler Foundation, a major nonprofit organization in the field of disability, is a global leader in rehabilitation research that seeks to improve cognition, mobility, and long-term outcomes, including employment, for people with neurological disabilities caused by diseases and injuries of the brain and spinal cord. Kessler Foundation leads the nation in funding innovative programs that expand employment opportunities for people with disabilities. For more information, visit KesslerFoundation.org. Our Vision Kessler Foundation leads the way in linking science and grant-making so that people with disabilities can lead more productive, independent, and fulfilling lives. Our Mission The mission of Kessler Foundation is to improve quality of life for people with disabilities through discovery, innovation, demonstration, application, and dissemination. Annual Report Staff Contributing writers: Carolann Murphy, PA, Dana Hawkins-Simons, MS Photographer: Joan Banks-Smith Photo contributors: Carolann Murphy, Karen Nolan, Richard Titus Graphic Design: Joan Banks-Smith 2 2015 Kessler Foundation Annual Report President’s Letter 4 Rodger DeRose Highlights Advances that Changed the Lives of People with Disabilities At–A–Glance 5 Reporting Foundation Financials and Outreach Program Center 6 Learning about Work from People with Disabilities Kessler Society 8 Supporting the Foundation’s Mission Rehabilitation Research – 10 The Continuum Preparing People for Productive Lives through Research In the News 14 Highlights of Foundation Stories in the Media Donor Highlights 16 The Baird Family Legacy, Liz Lowenstein, Robotics Innovation, Stroll N’ Roll 2015 Corporate Directory 19 2015 Kessler Foundation Annual Report 3 Dear Friends, The year 2015 marked an important milestone—the stroke, and our robotics research involving testing 25th anniversary of the Americans with Disabilities exoskeleton-assisted walking in adults with recent Act. We celebrated that anniversary with the Kessler strokes. Dr. Gupta’s team filmed our scientists at Foundation National Employment and Disability work in our research-dedicated facilities—the Rocco Survey, the first survey of its kind. What made Ortenzio Neuroimaging Center at Kessler Foundation, this survey unique? The respondents—more than and our state-of-the-art Gait Lab. In the business 3,000 people with disabilities—provided valuable media, we were pleased to be named—yet again— information on their personal experiences with among the “Best Places to Work in New Jersey” and employment. “Best U.S. Nonprofits to Work For.” Also, we are proud to announce that the Foundation was ranked #5 in And what did we find? Work is important to people Fortune Magazine’s new national list - with disabilities. Almost 69% are striving to work. “Best Workplaces for Recent College Graduates”. Those who are already in the workplace are seeking more hours, or better jobs. Some are actively job- These successes are only achieved through the hunting, and others are preparing by getting the concerted efforts of our management team, our training, education, and rehabilitation they need to directors, and our Board of Trustees. With their succeed in the workplace. And so, in this report we guidance, 35 new employees were hired to support share how the Foundation’s activities support the the rapid growth in research activities in 2015, and majority who are “striving to work” through research plans were finalized for a move to substantially larger that identifies obstacles to leading full and productive space. Every department met its budgetary goals, lives, scientific advances that restore function, and more than 50% of our research proposals were and collaborative programs that provide ways to awarded. We remain committed to ensuring that 100% overcome obstacles. of your donations fund our initiatives and change the lives of people with disabilities. Foundation scientists were awarded more than $9 million in 2015 for research projects aimed at We encourage you to stay informed about the finding new ways to restore function to people Foundation’s many activities by liking us on Facebook recovering from catastrophic illnesses and injuries. and following @KesslerFdn on Twitter. You can also A major increase in funding for our work in human view our educational and entertaining videos on performance and engineering research has YouTube, and listen accelerated advances made through internal and to our exciting new external collaboration. A new research grant has podcast series, enabled us to explore ways to help individuals with “Inside Kessler spinal cord injuries return to work as soon as possible. Foundation” on SoundCloud. The Foundation’s grant-making continues to be a national example of innovation by funding sustainable programs, including social enterprises, faith-based initiatives, and public-private partnerships. In 2015, we awarded $2.3 million to employment programs in the New Jersey area, and in Illinois, Florida, Missouri, and Maryland, to prepare people for the workplace by providing job training and education, and connections with employers. Rodger DeRose Foundation research was widely recognized in professional and consumer media throughout the year. One example was an online video series by the renowned medical journalist Dr. Sanjay Gupta, which highlighted our cognitive research in MS and 4 2015 Kessler Foundation Annual Report Dollars Invested in Research and Programs Since 1999 to improve the lives of people $165 Million One of only 8 centers invested in with disabilities rehabilitation research in the U.S. with federally funded Model Systems for Brain and llars Spen In 2015 Do t 8 Spinal Cord Injury. $14 Million 84% invested in mission related rehabilitation research One of only 14 TBI Model System centers, the Northern 16% administrative NJ Brain Injury System serves overhead 100 new patients each year Since 1999 and follows 1,500 with 14 chronic TBI. $36 Million invested in grants for employment One of only 16 SCI Model System In 2015 centers, the Northern NJ Spinal $3 Million Cord Injury System serves more invested in employment than 120 new patients each year and other 16 and follows 1,500 with chronic SCI. grants Google Device Searches media-related pieces generated for print, online news and video, broadcast TV, podcasts, scripts, and 12,000 6,000 63,000 Mobile searches 306 in-house brochures. Tablet searches Desktop searches in 15 1,500 with year and follows 400 SOCIALseconds MEDIA POSTS TWEETS SUBSCRIBERS AUDIO TRACKS 21 821 286 posted in a 6 498 month period ENGAGEMENT FOLLOWERS VIEWS PLAYS 10K 3.3K 9.6K 545 Likes/Shares/Comments VIEWS VIEWS MIN. WATCHED LISTENERS Spinal Cord Injury new patients each in 80 new patients 24each 310Kand Traumatic 1.7M year and follows14.6K countries 2015 Kessler Foundation Annual Report 5 In June 2015, we announced the LEARNING findings of an important new report—the Kessler Foundation ABOUT National Employment and Disability Survey. More than 3,000 WORK FROM respondents from across the country shared their experiences PEOPLE WITH and aspirations, dispelling many common myths about people with DISABILITIES disabilities in the workplace. The findings are striking—nearly 69% of people with disabilities are taking at least one of the following actions: 12.7% are working working, seeking a better position or more hours, and are looking 29.9% for new work 7.9% are working previously actively job-hunting, networking with family and and not looking worked and are for new work looking for work friends, or getting the necessary rehabilitation, education, and job training to prepare for 43.6% 69% 0.8% employment. “We learned that work is previously never worked worked and are Striving and are looking not looking for to Work for work important to people with disabilities,” said work John O’Neill, PhD, director of Disability and Employment Research at Kessler Foundation, and co-author of the survey. “Despite the challenging environment of today’s workplace, the survey shows that many are successfully overcoming obstacles to finding and maintaining jobs. While challenges persist, this survey has reframed the dialogue about disability and employment to focus on the progress being achieved, rather than the challenges to be overcome.” The Kessler Foundation survey was funded by a $500,000 grant to the University of New Hampshire National Employment 2015 & Disability Survey Institute on Disability, whose experts conducted the survey and analyzed the results. Ongoing analyses are extending the impact of the re- port on the decision-making process of policymakers, legislators, and philanthropic and advocacy organizations. SUPPORTING STRIVING FOR WORK Through targeted philanthropy, the Foundation connects people with disabilities who are striving to work with employers committed to diversifying their workplaces. In 2015, the Foundation awarded more than $3 million to help people with disabilities transition to competitive jobs. Overall, the Foundation has distributed $36 million