MAKING PREVENTION A PRIORITY ANNUAL REPORT -2017- MAKING RECOVERY A REALITY Contents 1 VISION MISSION AND VALUES 2 AIMS AND OBJECTIVES 3 THE BUTTERFLY EFFECT 4 CHAIR’S MESSAGE 5 CEO’S MESSAGE 6 OUR YEAR IN ACTION 8 GROWING UNDERSTANDING AND REDUCING STIGMA 10 OUR STAFF IN ACTION 12 ADVANCING THE KNOWLEDGE BASE 14 ACTIVITIES AND EVENTS 16 IMPROVING TREATMENT AND SUPPORT 19 STRENGTHENING THE VOICE OF LIVED EXPERIENCE 20 YOUR VOICES 22 BOARD AND COMMITTEES 26 FINANCIAL OVERVIEW 28 SUSTAINING US 31 THANK YOU Board of Directors David Murray AO (Chair) Joanne Cook Anne Doherty Anthony Peter Gill Catherine Mary Happ Associate Professor John Richard Newton Professor Susan Jessica Paxton Paul Salteri AM Michael Same Christine Elizabeth Morgan (CEO) BUTTERFLY FOUNDATION ANNUAL REPORT VISION, MISSION, VALUES VALUES Compassion Commitment The Butterfly Foundation’s vision is to live in a world that celebrates health, well-being and diversity. Integrity Collaboration Butterfly is dedicated to bringing about change to the culture, policy and practice in the prevention, treatment and support of those affected by eating disorders and negative body image. Excellence Initiative 1 BUTTERFLY FOUNDATION ANNUAL REPORT AIMS AND OBJECTIVES We use a collaborative approach to identify, build and facilitate strategic partnerships to: Educate and connect the community to assist in excellence and consistency in the culture of care. Encourage hope Promote and help-seeking positive body image through education and associated healthy and awareness. behaviours. Operate a financially Increase access sustainable for all sufferers and national foundation carers in Australia for future to effective treatment generations. and support. Facilitate the development of effective models of prevention and care for people at risk. 2 BUTTERFLY FOUNDATION ANNUAL REPORT THE BUTTERFLY EFFECT SNAPSHOT OF OUR REACH IN 2017 85,000 9,000 young people reached contacts made through Butterfly to Butterfly’s National Education Services Helpline ED HOPE 2.4M 3.5M reached through people reached through Butterfly social media Butterfly’s two major channels annual awareness campaigns 1.2M 2,400 page views members of of NEDC website the NEDC reached with the latest information 3 BUTTERFLY FOUNDATION ANNUAL REPORT CHAIR’S MESSAGE In pursuing its mission over the last year, the Butterfly Foundation has never been busier, and yet the need for the work that we carry out has not diminished. Deloitte’s prevalence modelling infers that Australia • Eating disorders being included in the would have added another fifty thousand to the Fifth National Mental Health Plan, with a growing number of people with an eating disorder. commitment to inclusion of the National With suicide up to 31 times more likely to occur Agenda focus in implementation plans; for someone with an eating disorder, it remains • The Medicare Benefits Schedule Review unacceptable that only one quarter of Australians Taskforce to consider improved coverage for with an eating disorders are in treatment. “safe integrated treatment for eating disorders Butterfly seeks to bring about change to improve that address all aspects of the illness, including the current situation for people with eating physical, psychological, behavioural, nutritional, disorders. Like treatment itself, tackling the occupational and social needs”; and symptoms of the issue, without getting to the • The commitment of further funds to underlying causes, will not solve the problem. Real address eating disorders specific workforce progress in the eating disorders field demands development. significant, concrete change. That is why, in 2017, Butterfly launched the ground-breaking National The Butterfly Foundation is making sure these Agenda for Eating Disorders 2017-2022, which developments are but the beginning. We are outlines the policy changes required to establish committed to bringing about the changes that a minimum effective level of evidence-based care are needed by every Australian affected by an that is accessible for all Australians affected by eating disorder. eating disorders. Our work could not be possible without the Although there is so much to achieve, there are generous support of our donors who we encouraging signs that our work is having an thank most sincerely. I would also like to thank impact. This year, primarily as a result of Butterfly’s my fellow directors for their commitment to work, we have seen: Butterfly and the work of the Board. Our CEO, • The Federal Minister for Health acknowledging Christine Morgan together with her leadership the immense, debilitating impact of eating team have made very significant progress this disorders on individuals and families; year for which we thank them wholeheartedly. DAVID MURRAY AO, CHAIR BUTTERFLY FOUNDATION 4 BUTTERFLY FOUNDATION ANNUAL REPORT CEO’S MESSAGE It has been another challenging but rewarding year for the Butterfly Foundation. We have made real progress in our advocacy work and continue to reach increasing numbers of people. In 2016-17, significant numbers of Australians the beginning of the next stage. Those with connected with us through our awareness eating disorders must have access to affordable, campaigns, the ED HOPE National Helpline, our evidence based treatment irrespective of where schools and community prevention programs, they live in Australia. We have a long way to go. the National Eating Disorders Collaboration, local community fundraising events, our appeals, the The Butterfly Foundation team is inspiring. They collaborative At Home With Eating Disorders are committed to our vision and to ensuring conference for carers, our In Memoriam day, our that the voice of those with a lived experience story telling workshops, our support groups and is heard and included at all levels of our work recovery programs - and so much more. from advocacy and awareness through to service design and delivery. We are indebted Notwithstanding our activity and reach, we are to the leadership of our Board and the input aware of how much work still lies ahead. As I of our Advisory Committees. They, together write this, in November, I can look back and with our volunteers, community fundraisers, see that our achievements this year are based philanthropic supporters, donors, grantors and on the hard work of previous years – building corporate sponsors, enable us to continue our relationships with those with a lived experience work. and the sector more broadly, developing the evidence base, consolidating our advocacy and Recovery from an eating disorder is possible strengthening our services. and we are working to make it more frequent. Our core commitment is to provide support and This year we have welcomed the commitment hope for anyone who is affected, at each and of the Federal Minister for Health to improving every stage of illness, including families, carers the system for those with eating disorders. That and friends. As we maintain our focus on driving commitment is critical to bring about systemic for system, policy and service improvement we and real change. We have come to the end of hold strongly to our relationships with those the beginning in that eating disorders are now with a lived experience. Their courage, strength recognised as serious mental illnesses. We ‘have and vulnerability is our true inspiration. a seat’ at the policy table. However, this is only CHRISTINE MORGAN, CEO BUTTERFLY FOUNDATION 5 BUTTERFLY FOUNDATION ANNUAL REPORT OUR YEAR IN ACTION SUPPORTING TREATMENT TARGETING EARLY INTERVENTION Butterfly formally opened The Butterfly Youth Intensive Outpatient Program the new specially designed facilities for the was launched; a specialised, innovative program Eating Disorders Intensive Program for Adolescents aimed at targeted early intervention for at Butterfly House in partnership with the Sydney young people showing signs of highly Children’s Hospital Network. disordered eating/subclinical eating disorders. SECURING GOVERNMENT SUPPORT DISSEMINATING NEW RESEARCH Butterfly secured Federal Government support The findings of the Insights in Recovery research, for expansion of the Butterfly National Helpline conducted by the Butterfly Research Institute (BRI), ED HOPE from February 2018, and for building were published and disseminated for use national workforce capability through the NEDC. by practitioners across Australia. ESTABLISHING FOUNDATIONS ENGAGING WITH COMMUNITIES FOR CHANGE Butterfly Prevention Services The Federal Minister for Health launched delivered workshops, seminars and peer group the first National Eating Disorders Agenda activities using a whole community approach (2017-2022), a milestone document focusing on to reducing risk factors and building the priority issues that need to resilience against negative body image be addressed nationally, developed and eating disorders. by Butterfly with sector-wide collaboration. 6 BUTTERFLY FOUNDATION ANNUAL REPORT OUR YEAR IN ACTION ENGAGING WITH CARERS AMPLIFYING VOICES Butterfly collaborated with FEAST Butterfly’sMAYDAYS for Eating Disorders to deliver the third Australian Eating Disorders annual awareness campaign turned up the volume Conference for Families and Carers, providing the on the voice of the lived experience, so that the latest information, recovery stories, workshops plight of consumers with eating disorders and networking opportunities. reached millions of ears Australia-wide. BUILDING LOCAL PARTNERSHIPS BUILDING STATE-BASED SUPPORT Butterfly reached out to regional areas, Butterfly delivered