1 1 2 3 4 DRAFT Intellectual and Developmental Disabilities Nursing: 5 Scope and Standards of Practice, Third Edition 6 2020 7 For Public Comment 8 © 2020 American Nurses Association – CONTENT ONLY FOR PUBLIC COMMENT DO NOT CITE OR REFERENCE 2 9 Contributors 10 The American Nurses Association (ANA) thanks those who contributed their valuable time and talents to 11 development of Intellectual and Developmental Disabilities Nursing: Scope and Standards of Practice, 12 Third Edition. This resource builds on and replaces previous editions entitled Intellectual and 13 Developmental Disabilities Nursing: Scope and Standards of Practice and the original Statement on the 14 Scope and Standards for the Nurse Who Specializes in Developmental Disabilities and/or Mental 15 Retardation . The terminology has changed over the years and is reflected in each edition of the scope 16 statement and standards of this specialty nursing practice. 17 The authors of Intellectual and Developmental Disabilities Nursing: Scope and Standards of Practice, 18 Third Edition, include: 19 Cecily Betz, PhD, RN, FAAN, Chair 20 University Center of Excellence in Developmental Disabilities 21 Children’s Hospital Los Angeles 22 Task Force Member, IDD Nursing: Scope and Standards, 1st, 2nd edition 23 24 Jennifer Adams EdM MSN RN ACCNS-P CPN CNE 25 Society of Pediatric Nurses (SPN) representative 26 27 Karen W. Burkett, PhD, APRN, PPCNP 28 Leadership Education in Neurodevelopmental Disabilities (LEND) 29 Cincinnati Children’s Hospital 30 31 Wendy Chouteau, DNP, APRN 32 Division of Neurology/Neuromuscular 33 Cincinnati Children’s Hospital 34 35 Louvisia “Lou” A. Conley M.Ed, Ed.S 36 Boling Center for Developmental Disabilities 37 38 Eduardo del Rosario, PhD student, FNP-BC 39 The Barbara H. Hagan School of Nursing 40 Molloy College 41 42 Jean Farley, DNP, RN, PNP-BC, CRRN 43 Georgetown University, School of Nursing 44 45 Veronica Feeg, PhD, RN, FAAN 46 The Barbara H. Hagan School of Nursing 47 Molloy College 48 49 Laurie Fleming, RN, MPH, NCSN 50 National Association School Nurse (NASN) Representative 51 52 Michelle S. Franklin, MSN, FNP-BC, PMHNP-BC 53 Duke University School of Nursing © 2020 American Nurses Association – CONTENT ONLY FOR PUBLIC COMMENT DO NOT CITE OR REFERENCE 3 54 55 Carolyn Graff, RN, PhD, FAAIDD 56 Boling Center of Excellence in Developmental Disabilities 57 58 Marilyn Krajicek, RN, EdD, FAAN 59 University of Colorado Denver College of Nursing 60 Task Force Member, IDD Nursing: Scope and Standards, 1st, 2nd edition 61 62 Rebecca Kronk, PhD, MSN, CRNP, FAAN, CNE 63 International Association of Nurses in Genetics representative 64 65 Lindsey Minchella, MSN, RN, NCSN, FNASN 66 National Association of School Nurses New Hampshire Director 67 68 S. Diane Moore, BSN, RN, CDDN 69 Developmental Disabilities Nurses Association (DDNA) representative 70 71 Wendy M. Nehring, RN, PhD, FAAN, FAAIDD 72 Chair, Task Force IDD Nursing: Scope and Standards, 1st, 2nd Edition 73 74 Teresa Savage, RN, PhD 75 Department of Women, Children & Family Health Science 76 College of Nursing, University of Illinois 77 Task Force Member, IDD Nursing: Scope and Standards, 1st, 2nd edition 78 79 Nhu Tran, PhD, RN 80 Academy of Neonatal Nurses representative 81 82 Susan Van Cleve, DNP, RN, CPNP-PC, PMHS, FAANP 83 National Association of Pediatric Nurse Practitioners (NAPNAP) representative 84 85 ANA Staff 86 Carol Bickford, PhD, RN-BC, CPHIMS, FAMIA, FHIMSS, FAAN — Content editor 87 Erin Walpole — Project editor 88 89 The American Nurses Association will approve the scope statement and acknowledge the standards of 90 practice and professional performance of Intellectual and Developmental Disabilities Nursing: Scope and 91 Standards of Practice, Third Edition, as defined herein. Approval is valid for five (5) years from the first 92 date of publication of this document or until a new scope of practice has been approved, whichever 93 occurs first. 94 95 About the American Nurses Association 96 The American Nurses Association (ANA) is the only full-service professional organization representing 97 the interests of the nation’s 4 million registered nurses through its constituent/state nurses associations 98 and its organizational affiliates. The ANA advances the nursing profession by fostering high standards of © 2020 American Nurses Association – CONTENT ONLY FOR PUBLIC COMMENT DO NOT CITE OR REFERENCE 4 99 nursing practice, promoting the rights of nurses in the workplace, projecting a positive and realistic view 100 of nursing, and lobbying the Congress and regulatory agencies on healthcare issues affecting nurses and 101 the public. 102 103 About Nursesbooks.org, the Publishing Program of ANA 104 Nursesbooks.org publishes books on ANA core issues and programs, including ethics, leadership, quality, 105 specialty practice, advanced practice, and the profession’s enduring legacy. Best known for the 106 foundational documents of the profession on nursing ethics, scope and standards of practice, and social 107 policy, Nursesbooks.org is the publisher for the professional, career-oriented nurse, reaching and 108 serving nurse educators, administrators, managers, and researchers as well as staff nurses in the course 109 of their professional development. 110 © 2020 American Nurses Association – CONTENT ONLY FOR PUBLIC COMMENT DO NOT CITE OR REFERENCE 5 111 Overview of the Content 112 113 Essential Documents of Professional Nursing 114 115 The American Nurses Association (ANA) has been the vanguard for nursing practice for more than a 116 century. The Code of Ethics for Nurses with Interpretive Statements (ANA, 2015) and Nursing: Scope and 117 Standards of Practice (3nd ed., ANA, 2015), are documents produced by ANA to inform the thinking and 118 decision-making of registered nurses practicing in the United States and guide their practice. The Code 119 of Ethics for Nurses with Interpretive Statements (ANA, 2015) lists the nine succinct provisions that 120 establish the ethical framework for registered nurses across all roles, levels, and settings. Nursing: 121 Scope and Standards of Practice (3nd ed., ANA, 2015) outlines the expectations of the professional role 122 of the registered nurse. It includes the Scope of Nursing Practice Statement and presents the Standards 123 of Professional Nursing Practice and their accompanying competencies. These documents are intended 124 to help provide the public with assurances of safe and competent nursing care. 125 126 Along with these documents, specialty nursing organizations have worked with the ANA to publish 127 specific standards of professional practice in their specialty. This document, concerning the care of 128 individuals with intellectual and developmental disabilities (hereafter referred to as IDD), is a revision of 129 the Intellectual and Developmental Nursing: Scope and Standards of Practice, 2nd Edition. This 130 document has been revised to: (a) capture the changing practice of nursing in this specialty (i.e., 131 encompassing all levels of education and all system levels of care from the individual to the system 132 itself), (b) emphasize the unique health care needs and characteristics of individuals of all ages with 133 IDD, (c) incorporate the ANA standards mentioned earlier (ANA, 2015a), (d) incorporate the provisions 134 of the Code of Ethics for Nurses with Interpretive Statements (ANA, 2015b); (e) emphasize the 135 importance of a family-centered and consumer-centered framework of care; and (f) incorporate the 136 developments in the field since the last edition. The previous edition of these specialty standards and 137 scope of practice is found in Appendix A. 138 139 Adolescents and adults with IDD and their families/legal guardian(s) collaborate with healthcare 140 professionals to make person-centered decisions about their health care. This self-advocacy has arisen 141 in tandem with an evolving healthcare system that may or may not optimize healthcare options for all 142 people. Therefore, in response to these changes, individuals of all ages with IDD and their families/legal 143 guardian(s) should be assured of safe and effective nursing care. This document addresses this care, the 144 associated nursing standards, and the competencies expected of registered nurses who specialize in 145 IDD practices. 146 147 Additional Content 148 149 This document should also be used in conjunction with other specialty nursing scope and standards of 150 practice and professional performance such as but not limited to : Pediatric Nursing: Scope and 151 Standards of Practice, 2nd Edition, (Society of Pediatric Nurses [SPN], National Association of Pediatric 152 Nurse Practitioners [NAPNAP], & ANA, 2015); Genetics-Genomics Nursing: Scope and Standards of 153 Practice, 2nd Edition, (International Society of Nurses in Genetics, Inc. & ANA, 2016); Public Health 154 Nursing: Scope and Standards of Practice, 2nd Edition, (ANA, 2013); Psychiatric-Mental Health Nursing: 155 Scope and Standards of Practice, 2nd Edition, (American Psychiatric Nurses Association, International 156 Society of Psychiatric-Mental Health Nurses, & ANA, 2014); and School Nursing: Scope and Standards of 157 Practice, 3rd Edition, (National Association of School Nurses & ANA, 2017). Additional important nursing 158 documents that address the history and context of nursing standards include Nursing: Scope and © 2020 American Nurses Association – CONTENT ONLY FOR PUBLIC COMMENT DO NOT CITE OR REFERENCE 6 159 Standards of Practice, 3rd Edition, (ANA, 2015a); Principles