309 Resources: Where to get more information Here is a small selection of organizations, websites, and printed materials for helping children and families affected by HIV. Most countries also have national and local HIV organizations that can provide helpful information. MORE ABOUT GROUPS AND ORGANIZATIONS STRATEGIES IN THIS BOOK Aidsmap Produces and distributes clear, accurate, For more about Zvandiri (page 71): useful information about HIV and AIDS in https://tinyurl.com/y9jrh799 more than 20 languages. https://tinyurl.com/ycqra6qm Aidsmap/NAM, Acorn House, For the Zambia weaning foods 314-320 Gray’s Inn Road, London, cookbook (page 157): WC1X 8DP http://tinyurl.com/yyzmbta6 +44 (0)20 7837 6988 [email protected] For more about the CHABHA model www.aidsmap.com/resources (page 181): Hope Amidst Despair, HIV/AIDS-Affected APCA - African Palliative Care Assoc. Children in Sub-Saharan Africa, Susanna A pan-African organization working to W. Grannis, Pluto Press, 2011. reduce pain and suffering across Africa by advocating for access to palliative care For more about Plan Uganda medicines and practices at all levels. (page 272): https://tinyurl.com/yalj3xhr APCA, Box 72518, Plot 95, Dr Gibbons Road, Makindye, Kampala, Uganda For more about the Fatherhood +256 312 264 978 Support Project (page 273), a program [email protected] of the ACEV Mother Child Education https://tinyurl.com/y7omwyud Foundation: https://tinyurl.com/y72h2r82 Health Books International (formerly also described in: And How Will You Teaching Aids at Low Cost, TALC) Remember Me, My Child? Redefining Distributes books, CDs, DVDs, downloads, Fatherhood in Turkey, in the journal teaching materials, and accessories to Quality/Calidad/Qualite improve health in developing countries. https://tinyurl.com/y38jbvvq HBI, Barn B, New Barnes Mill, For more about mothers2mothers Cottonmill Lane, St Albans, (page 291): Hertfordshire, AL1 2HA, UK https://tinyurl.com/ycyvbadj +44 (0)1582 380883 [email protected] www.healthbooksinternational.org Helping Children Live with HIV 2019 Helping Children Live with HIV 2019 310 Resources International HIV/AIDS Alliance Plan International Works to reduce the impact and spread Promotes children’s rights and equality of HIV and provides technical and for girls worldwide. Local programs often organizational support for community- focus on meeting the needs of children with based groups focused on women, children, disabilities. and youth. Building Blocks and other Plan International, Dukes Court, resources are available in multiple Block A, Duke Street, Woking, languages. Surrey GU21 5BH, UK International HIV/AIDS Alliance, +44 (0)1483 755155 Preece House, 91-101 Davigdor Road, https://tinyurl.com/ya3hbhpe Hove, BN3 1RE, UK +44 (0)1273 718900 REPSSI - Regional Psychosocial www.aidsalliance.org/resources Support Initiative Trains people and organizations in 13 Eastern and Southern African countries to JAWS HIV/AIDS readers for children understand and support the psychosocial A collection of easy-to-read, illustrated needs of orphaned and vulnerable children. books to read to younger children, They develop materials, convene workshops published by Pearson UK. and regional meetings, and have special https://tinyurl.com/yajpq7xa programs for teachers and community members. PATA - Pediatric Adolescent REPSSI, 266 West Ave, Unit 2, Treatment Africa (formerly Pediatric Waterfront Office Park, Randburg, AIDS Treatment Africa) 2194, South Africa Promotes collaborative learning and +27 11 886 1581 knowledge sharing among health providers [email protected] caring for children and adolescents with www.repssi.org HIV in 24 countries. They produce and distribute a variety of resources. Stepping Stones with Children and PATA, Building 20, Suite 204 The Salamander Trust Waverley Business Park Wyecroft Rd., A community program to help different Mowbray, Cape Town 8000, genders and generations better South Africa communicate and advocate on sensitive +27 21 447 9566 issues, communicate honestly about HIV, [email protected] and build mutual trust and support. www.teampata.org https://tinyurl.com/ycqrpw8v Helping Children Live with HIV 2019 Helping Children Live with HIV 2019 Resources 311 TAC - Treatment Action Campaign Founded to fight for access to HIV WEBSITES treatment, TAC forced the South African www.who.int/hiv government to provide prevention The World Health Organization, includes medicines to mothers, and then universal treatment and prevention guidelines, and HIV treatment. TAC represents users of the HIV news articles and stories. public healthcare system to get better care and better access to care. They publish HIV www.learn.tearfund.org/en/ in Our Lives and other health information resources/publications/footsteps for people with HIV on how to stay healthy, 100 online issues of Footsteps, Tearfund’s pregnancy, ARVs, TB, social support, and practical newsletter with topics including more. HIV, caring for orphans, hygiene, sexual TAC, 10th Floor, 85 Main Street, and gender-based violence, land rights, and Johannesburg, 2001, South Africa others. +27 011 100 4721 [email protected] https://www.avert.org/public-hub www.tac.org.za Global information and education on HIV and AIDS. www.chiva.org.uk/resources Children’s HIV Association supports the health and well-being of children and families with HIV by providing information and reducing isolation. Resources include videos and a website designed by and for children with HIV. Helping Children Live with HIV 2019 Helping Children Live with HIV 2019 312 Resources PRINT AND ONLINE BOOKS GENERAL MANUALS FOR COMMUNITY MOBILIZATION FOR HOME-BASED CARE FOR HIV CHILDREN’S NEEDS Community Home-Based Care for Journey of Life Workshops, by REPSSI People and Communities Affected and Catholic Relief Services (CRS). by HIV & AIDS: A Handbook for Activities to stimulate community Community Health Workers, by reflection, dialogue, and action. Pathfinder International (2006). https://tinyurl.com/y87hlx66 Comprehensive guide to home-based www.repssi.org care for HIV and AIDS. Psychosocial Support Source Book for https://tinyurl.com/ych24dhx Vulnerable Children in Malawi. Useful Palliative Care Toolkit: Improving care participtory activities and community from the roots up in resource-limited strategies to support children. settings, by Charlie Bond, Vicky Lavy, https://tinyurl.com/yc6y7pb3 and Ruth Wooldridge, Help the Hospices Supporting Young Carers: Programme (2008). Guidelines for Households in which How to care holistically for people with Young People are Caring for Other incurable or difficult to treat health Household Members. problems, to relieve suffering, and Activities and information developed by improve quality of life. REPPSI and aimed at supporting young https://tinyurl.com/ybbkao4h caregivers, including: carers’ well- being, livelihood strengthening, support A Future Planning Notebook for groups, treatment literacy, future Families and Communities, planning, and grief and loss. by SAfAIDS and John Snow www.repssi.org International. Support for accepting your HIV status and talking with CHILD DEVELOPMENT AND WHAT families about planning care for CHILDREN NEED AT DIFFERENT STAGES children, making a will, and how to get important documents. See the books: Disabled Village https://tinyurl.com/ybb7v7r3 Children, Helping Children Who Are Blind, and Helping Children Who Are Deaf, information on the last page of this book, or www.hesperian.org Helping Children Live with HIV 2019 Helping Children Live with HIV 2019 Resources 313 Care for Child Development, Participant PREVENTION OF HIV IN MOTHERS AND Manual, by WHO and UNICEF. CHILDREN (PMTCT) Information on what babies and children need at different ages, and The PMTCT Toolkit by ICAP, the what caregivers can do to help them International Center for AIDS Care develop well. and Treatment Programs, is designed https://tinyurl.com/y9lgb7dk to train and support nurses, midwives, counselors, peer educators, and other We Care for Young Children: community health workers to help Helping adolescent caregivers look women and families engage with HIV after young children. This 50-page prevention and treatment services. manual was developed with the help of https://tinyurl.com/ycfwnf4s adolescent caregivers in several African countries. COMMUNICATING WITH CHILDREN https://tinyurl.com/yyosw5cr AND GIVING EMOTIONAL SUPPORT KEEPING CHILDREN HEALTHY: Building Resiliency Among Children NUTRITION AND BREASTFEEDING, Affected by HIV/AIDS, by Silke SAFE WATER, CLEANLINESS, AND MORE Mallmann (Maskew Miller Longman and Catholic AIDS Action, 2002-03). See Hesperian’s A Community Guide to This guide provides practical activities Environmental Health. to help caregivers and teachers support On the last page of this book, or orphans and children who are nursing www.hesperian.org an ill parent or grieving. https://tinyurl.com/yckjzqoa UNICEF and Global Health Media produced a helpful series of videos for Say and Play: A tool for young children health workers and caregivers on what and those who care about them, by to feed young children. Jonathan Brakarsh with Project Concern https://tinyurl.com/ycxlvhvh International. Very accessible book of activities that help children express Videos by Global Health Media, themselves naturally and help adults in multiple languages, on caring for understand children. small babies and young children, http://tinyurl.com/y2q5vnfr healthy births, breastfeeding, Guidelines for Counselling Children preventing and treating infections,