Summer2014newsletter_newsletter 5/7/14 2:36 PM Page 1 See our new public service ad on page 4 THE STUTTERING FOUNDATION ᭨ A Nonprofit Organization SUMMER 2014 Since 1947 ... Helping Those Who Stutter Update from Purdue By Christine Weber-Fox, Ph.D. and Anne Smith, Ph.D. We consider stuttering as a neu - rodevelopmental, epigenetic, mul - tifactorial disordmeru. l tIinfa ocutor rliaabl ora - tory, we take a ap - proach to studying speech motor, language, and emotional mea - sures, both physiological and be - havioral/clinical, to understand which factors in these broad do - mains are important in the devel - opment of stuttering, and which will help predict re - covery or persistence of stuttering. It is clear that each child will have a unique profile on Catchy Phrase Has Deep Roots Weber-Fox these factors and that the importance of By Gregf Woilrso n Stuttering Community various factors will and it seems to be a phrase to differ across children. Keep Calm and Carry On. which many persons who stutter For example, some can relate. Its first appearance children who stutter We’re sure you’ve seen it on Facebook, Tumblr, Twitter or even wasn’t on a Droid RAZR or a show delayed lan - Macbook Pro but in London dur - guage development, Instagram. Your children certainly have! And someone with it on a t- ing a time of great panic and un - Smith while others do not. shirt has probably passed you certainty. And it has deep roots in We know that stut - the stuttering community. tering develops over time because while walking down the street. It’s Keep Calm and Carry On a catchy meme (i.e., an idea, be - was monozygotic (identical) twins are a motivational poster produced only about 50% concordant for havior, or style that spreads from Continued on page 6 stuttering. This means that in two person to person within a culture), human beings with identical genes, one may become a person Popular Workbook Now Available in Polish who stuttEerpsi,g ewnheitliec s his/her twin The School-Age Child Who Teachers, 6 Tips for Speaking with does not. is an emerg - Stutters: Working Effectively with Someone Who Stutters, Myths ing field of science that bridges the Attitudes and Emotions about Stuttering Famous People gap between genes and envi - Who Stutter, St, u ttering: Straight ronment. Epigenetic scientists has been translated Talk for Teachers, The Child Who study the control processes that into Polish thanks to Stutters: To the Pediatrician, determine the timing and de - the tireless efforts of Down’s Syndrome and Stuttering, gree of activation and deactiva - Katarzyna Wesierska. Sometimes I Just Stutter, The Child tion of genes. This is a critical Katarzyna helped Who Stutters: Notes to the Teacher, element in whether the person translate other re - Did You Know?, Using the will ultimately have the trait or sources into Pol7is hT ipas Telephone, If Your Child Is disorder of interest. Applied to wfoerl lP, ainrecnlutsd,i n8g T: ips for Stuttering. and Continued on page 16 May is Better Hearing and Speech Month Summer2014newsletter_newsletter 5/7/14 2:36 PM Page 2 THE STUTTERING FOUNDATION ᭨ 2 The Foundation’s Financial Reports for 2013 The annual audit of the Stuttering low, and since we are fortunate to have Foundation financial reports for 2013 an endowment which more than cov- was recently completed by the account- ers our overhead expenses, donors can t ing firm of Cannon and Company, be assured that their gifts will go direct- i Certified Public Accountants, Memphis, ly to support our program services. d Tenn. Following is a recap of funds and The Foundation is a 501(c)(3) op- expenditures for the year. erating foundation which expends its u The 3.4% of expenditures for ad- funds on its own programs and opera- ministration and general expenses and tions and does not make grants to A the 9/10 of 1% for fundraising are very other institutions. l Funds expended for: Creation, production, printing and distribution a of educational materials . $776,880.....4 2.6% u Public information and education . 414,859.....2 2.7% Educational symposia for professionals . 198,841.....1 0.9% n Research on causes/treatment of stuttering and therapy. 264,744.....1 4.5% n Maintain Web site and toll-free information hotline . 90,449.......5 .0% Total for Program Services:. $1,745,773...9 5.7% Other expenditures: A Administration and general . 62,344......3 .4% Fund-raising expense . .17,246......0 .9% Total Expenditures: . .$1,825,363....1 00% Book Helps Students By MaOry Mpejeia n Up Addressing students about their stuttering is one of the hardest tasks for me to do. Maybe it is be - cause I am new to the field. I do not have the perfect words to say or a script to mem - orize. I’ve learned that you have to approach every student differently. That goes for any child – even those who do not stutter. Nobody is the same. I love that! I camSoem aectrimosess tIh iJsu csth iSldturettne’rs , book, by Eelco de Geus, on the Stuttering Foundation’s website and I decided to read this with Continued on page 17 Summer2014newsletter_newsletter 5/7/14 2:36 PM Page 3 THE STUTTERING FOUNDATION ᭨ 3 SCotngurestsmtane Franikn Woglf g avGe ets Congress’ Attention a speech on March 6 on the House and language problems or devel - Speech-Language Pathologists, floor about the challenges he and opmental delays are more likely therapists trained to help deal with other people who stutter face. to stutter speech issues like stuttering, often Below is the complete text of • The make-up of the brain. An work in schools, clinics, at univer - Congressman’s remarks: ongoing research study by Dr. sities and in private practice to Anne Smith with the Purdue help treat stuttering. University Stuttering Project “The most important thing – and “Today I rise to many experts agree – discuss some - that early intervention is thing very close key. The earlier we can to me. I want to identify stuttering in our talk about stutter - children, and get them ing. I have been the help they need, the a life-long stut - better chances we have terer. of helping them to speak “More than 70 more fluently. million people “If you stutter, if your stutter. One in child or a loved one every 100 people stutters, or if you even in the world stut - think they might be stut - ters and in the tering, get help immedi - U.S., more than 3 ately. One of the best million ways to get help is by Americans stut - visiting the Stuttering ter. You proba - Foundation. The bly have a friend, Congressman Frank Wolf holds up the Stuttering Foundation’s Foundation was started a neighbor, a book as he speaks on the floor of by Malcolm Fraser classmate, a the HoSueslfe- Tohf eRreapprye sfeonr ttahteiv eSst.utterer more than 70 years Saeglof-. coworker or a THhise rabpooy k, cafollre d the family member Stutterer who stutters. Most people do. was originally pub - “About five percent of all chil - lished in 1978 and is still one of dren go through a stuttering phase the best books on stuttering that lasts six months or more. available. Some will recover by late child - “You can visit the Foundation’s hood, but one out of every 100 wWwebw .StutteringsHiteel p.org at: children will be left with long- . They term stuttering. have lots of well-trusted, expert “I would like to take this time to shows that people who stutter seem information available for free, in - tell you a little more about stutter - to process speech and language dif - cluding Malcolm Fraser’s book, as ing; what it is, and how family ferently than those who don’t. well as countless brochures, members and friends can help. • Lastly, family dynamics have videos and other materials for par - “Stuttering is a disorder where an impact – high expectations and ents and teachers. the flow of speech is broken by fast-paced lifestyles can also con - “Unfortunately, there are no in - repetitions, prolongations or abnor - tribute to stuttering stant miracle cures for stuttering. No mal stoppages of sounds and sylla - “People who stutter are no dif - surgery. No pills. No intensive bles. For some people, unusual fa - ferent from those who don’t stut - weekend retreats. Stuttering takes cial and body movements may ter. In fact, studies by Dr. Ehud time and effort and commitment to happen when they try to speak. Yairi at the University of Illinois work through. Some people outgrow “Stuttering is most likely show that people who stutter are it. Some people respond well to caused by four factors: as intelligent and as well-adjusted years of therapy and learn to speak • Genetics as those who don't. fluently with almost no trace of diffi - • Child development, for exam - “Contrary to what many people culty. But for many others, stuttering ple, children with other speech believe, stuttering can be treated. Continued on page 6 Summer2014newsletter_newsletter 5/7/14 2:36 PM Page 4 THE ERING STUTT ᭨ FOUNDATION O N D I T I N D E S E C O a T E N T H E D I T I O N d 4 v about the founder i c Malcolm Fraser knew from personal experience what s e e the person who stutters is up against, having struggled l t f - self-therapy o with stuttering since early childhood. st e tho h t o He first received therapy at age fifteen with e e h vic ad r Frederick Martin, M.D., Superintendent of Speech o a Correction for the p for the s New York City schools.