A GUIDE TO EVIDENCE-BASED PRACTICES for INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES This report was produced with the support of the Saginaw County Community Mental Health Authority May 2009 Compiled by Barbara Glassheim This document may not be reproduced or distributed without the express permission of SCCMHA A GUIDE TO EVIDENCE-BASED PRACTICES FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES V. 1.0 TABLE OF CONTENTS FORWARD ............................................................................................................... 1 EXECUTIVE SUMMARY ............................................................................................. 2 INTRODUCTION ....................................................................................................... 4 AN OVERVIEW OF EVIDENCE-BASED PRACTICE CONCEPTS ........................................... 7 CULTURAL CONSIDERATIONS ................................................................................. 10 MALTREATMENT ................................................................................................ 10 WOMEN ............................................................................................................. 11 OLDER ADULTS .................................................................................................. 11 ETHNIC GROUPS ................................................................................................ 12 DEAF CULTURE .................................................................................................. 13 EMPOWERMENT AND SELF-DETERMINATION ............................................................. 15 SELF DETERMINATION ........................................................................................ 17 SELF-DIRECTED HEALTH CARE ............................................................................ 18 SELF-DIRECTED SUPPORT CORPORATIONS (SDSCS) AND MICROBOARDS ................. 20 PERSON-CENTERED PLANNING (PCP) .................................................................. 22 BIOGRAPHICAL TIMELINE PROCESS ................................................................... 24 PERSONAL FUTURES PLANNING (PFP) .............................................................. 24 MAKING ACTION PLANS (MAPS) ...................................................................... 27 PLANNING ALTERNATIVE TOMORROWS WITH HOPE (PATH) ................................ 27 ESSENTIAL LIFESTYLE PLANNING (ELP) ............................................................ 28 GROUP ACTION PLANNING (GAP) ..................................................................... 29 ALTERNATIVES TO GUARDIANSHIP ....................................................................... 30 ASSISTANCE WITH FINANCES ........................................................................... 31 POWERS OF ATTORNEY .................................................................................... 32 CONSERVATORSHIPS ....................................................................................... 33 TRUSTS ......................................................................................................... 34 WORKING WITH FAMILIES ....................................................................................... 36 RESPITE ............................................................................................................ 37 CRISIS NURSERIES .......................................................................................... 38 CRISIS NURSERIES FOR INFANTS AND CHILDREN WHO ARE MEDICALLY FRAGILE . 40 PROGRAMS FOR PARENTS WITH INTELLECTUAL DISABILITIES .................................. 41 PARENT ENHANCEMENT PROGRAM (PEP) .......................................................... 43 PREVENTION AND EARLY INTERVENTION ................................................................. 45 UCLA YOUNG AUTISM PROJECT (YAP) ............................................................... 46 Learning Experiences: An Alternative Program for Preschoolers and Parents (LEAP) ............................................................................................... 47 CEDEN FAMILY RESOURCE CENTER .................................................................... 48 THE LET’S PREVENT ABUSE PROGRAM (LPA) ....................................................... 49 CRISIS PREVENTION AND RESPONSE .................................................................... 49 SAGINAW COUNTY COMMUNITY MENTAL HEALTH AUTHORITY A GUIDE TO EVIDENCE-BASED PRACTICES FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES V. 1.0 SYSTEMS COLLABORATION .................................................................................... 51 EDUCATION ....................................................................................................... 52 TEACCH (TREATMENT AND EDUCATION OF AUTISTIC AND RELATED COMMUNICATION HANDICAPPED CHILDREN) ...................................................... 56 INCIDENTAL TEACHING .................................................................................... 57 EMPLOYMENT .................................................................................................... 58 SUPPORTED / CUSTOMIZED EMPLOYMENT .......................................................... 58 RISE (REACH INDEPENDENCE THROUGH SELF-EMPLOYMENT) PROGRAM ........... 61 FLORIDA FREEDOM INITIATIVE (FFI) .............................................................. 61 BENEFIT PLANNING ......................................................................................... 62 TICKET TO WORK AND SELF-SUFFICIENCY PROGRAM ....................................... 62 PLAN FOR ACHIEVING SELF-SUPPORT (PASS) ................................................ 62 MEDICAID BUY-IN PROGRAM ......................................................................... 63 TRIAL WORK PERIOD (TWP) ......................................................................... 64 EARNED INCOME TAX CREDIT (EITC) ............................................................. 65 STUDENT EARNED INCOME EXCLUSION (SEIE)................................................ 65 IMPAIRMENT RELATED WORK EXPENSES (IRWE) ............................................ 65 HOUSING .......................................................................................................... 66 CENTERS FOR INDEPENDENT LIVING (CILS) ....................................................... 68 PERSONAL ASSISTANCE SERVICES (PAS) ............................................................. 69 DIRECT SUPPORT STAFF .................................................................................. 69 ADAPTIVE EQUIPMENT, ASSISTIVE TECHNOLOGY (AT), AND ENVIRONMENTAL MODIFICATIONS (E-MODS) ............................................................................... 70 TRANSPORTATION ........................................................................................... 75 RECREATION AND LEISURE .................................................................................. 75 CO-OCCURRING MENTAL HEALTH AND MEDICAL DISORDERS .................................. 76 CHILD WELFARE ................................................................................................ 79 THE JUSTICE SYSTEM ........................................................................................ 82 SPECIAL OFFENDER SERVICES PROGRAM (SOS) ................................................ 84 FAITH-BASED ORGANIZATIONS ............................................................................ 85 SERVICE COORDINATION ..................................................................................... 87 CASE MANAGEMENT / SUPPORTS COORDINATION ............................................... 87 PERSONAL AGENTRY ....................................................................................... 87 INDEPENDENT BROKERS .................................................................................. 88 INDEPENDENT FACILITATION ............................................................................ 88 FISCAL INTERMEDIARIES .................................................................................. 89 CIRCLES OF SUPPORT ...................................................................................... 89 ONE-STOP CENTERS........................................................................................ 89 TRANSITION SERVICES: PREPARING FOR ADULTHOOD ............................................... 91 TRANSITIONING FROM FOSTER CARE .................................................................... 94 THERAPY ............................................................................................................. 95 SAGINAW COUNTY COMMUNITY MENTAL HEALTH AUTHORITY A GUIDE TO EVIDENCE-BASED PRACTICES FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES V. 1.0 APPLIED BEHAVIORAL ANALYSIS (ABA) ............................................................... 95 DISCRETE TRIAL TRAINING (DTT) .................................................................... 97 PICTURE EXCHANGE COMMUNICATION SYSTEM (PECS).................................... 100 FUNCTIONAL COMMUNICATION TRAINING (FCT) .............................................. 102 PIVOTAL RESPONSE TRAINING (PRT) .............................................................. 102 VIDEO MODELING .......................................................................................... 103 INTENSIVE BEHAVIORAL INTERVENTION (IBI) .................................................. 104 EARLY AND INTENSIVE BEHAVIORAL INTERVENTION (EIBI) ...........................