QF QijLjQ Qtt$tJNJQNEfl AtJJQ AQQWQNSJL $A(ttTjiES. Sourcebook for Master Trainers Education of Children with Deafblindness and Additional Disabilities Sourcebook for Master Trainers NationaL Institute for the Mentally Handicapped (Ministry of Social Justice & Empowerment, Government of indla). Manovikasnagar, Secunderabad 500 009 A,P indit Phone 040-27751741, Fax 040 - 27750198, Email'dlrnimh@hd2 vsnl net in Website nlmhindla.org In collaboration with Voice and Vision Task Force Ta HelenKeller Institute for the Deaf & Deaf Blind rJ s&affCCS4,TTC M1DC,ShIiMahapeROad,NaVIMtlmbaI400lOI india Phone022-2fl32214127782193, Fax: (022) 27781226, Email: [email protected] Copyright C NIMH 2003. Any part of this book may be reproduced with due acknowledgement to the publishers. *Voice and Vision Task Force is supported by the Hilton/Perkins Program of Perkins Sctiooi for the Blind Watertown, Massachusetts U S A The Hilton Perkins Program is fundedby a grant from the Conrad N. Hilton Foundation of Reno, Nevada, U.S.A. Voice & Vision Task Force 1. Ms. Marianne Riggio Perkins School for the Blind Massachusetts 02472, USA. 2. Ms. Reena Bhandarl Helen Keller Institute for Deaf & Deafblind Navi Mumbai 400701. 3, Dr. Jaanthi Narayan National Institute forth. Mentally Handicapped. Secunderabad-500009 4. Ms. Saji .Anand Spastic Society of Tarnil Nadu chennal 600113. 5. Ms. Dipti Karnad Clarke School For The Deaf Chennai-600004, 6. Ms. Sumilra Mishra Sense International (India) Ahmedabad 380052. 7. Ms. Means Nikam National Association for the Blind, Murnbai 400033. 8. Ms.Anusoya Shanna National Institute for the Visually Handicapped Dehredun 248001 9. Ms. Virnal Thawani, Blind People's Association Ahmedabad 380015. ISBN 81 86594 89 2 Artist: Ch. Venkata Ramana, S.c-bad. Ph 040- 27539227 Printed at Sree Rainana Process Pvt. Ltd., Sec-bad, 040'21&1 1750 ____ ug ninRicn *f'4N gj _____ iq 4R .A..Rnu 4mM, Rl W%R) Dr. L. GOVINDA MAO NATIONALINSTITUTEFORTHE Dwsctor MENTALLY HANDICAPPED (Ministryof Social .Aatlc. &Empcwsi'm.nZ Gonnm.ntof India) FOREWORD It is seen that there is vast gap between the need for services to the persons with multiple disibiities and the infrastructure available.Infrastructure includes, qualified rehabilitation personnel/professionals; Usually, it is also seen that when service models are available for a given disability with the, qualified rehabilitation personnel and professionals, the persons with disabilities can have access to auth services, which, in turn, creates awareness leading to . demand and, ultimately, availability of services. In the case of multiple disabilities, the scenario is very bleak because neither the service models, nor the trained human resources are adequately available. This is probably due to the fact that the multiple disabilities come' under the low incidence category for which setting up of infrastructUre separately is neither feasible nor viable from the practical and cost point of view.. However. such a situation should not make us to think that we should not and cannot d,o anything for the children with multiple disabilities arid it is very unfair and injustice if they are not covered in our rehabilitation programmes. It is observed that presently, the services to the persons with multiple disabilities • are availed through multiple sources where the holistic approach is missing to the detriment of the persons with multiple disabilities; Sometimes it so happens that. the children with multiple disabilities are drifted to a single disability centre. They continue to receive seivices from 'the centre for longer periods without much Improvement or they abandon the service to fend for themselves. The person with multiple disability undergoes the stress of load of additional disability thereby decreasing his functional efficiency drastically and rendering him helpless in his activities of daily living, Interaction with the environment and society. In order to meet their needs, it is vital to focus on the development of appropriate service models to be used by the existing qualified special teachers in the existing system Such a strategy will be very effective as the infrastructure in the single disabiliiy area is extensively growing in the country and the special teachers working in special schools have the right attitude to acquire skills to handle the children with multiple disabilities particularly the deafblind. Contd..2 — -— w %4.-,,..-sos öø en ) ryisi (h) 2flsflls ei ossi (to) ZflStil7 Mwovika*maqat $eoundsctad500 009GraMsMANOV1KASPhones(0)27159281(R) 27757715 Fax0091 (40) 277M117 E-m14dirnimbChd2.viflLnet.in ian_grsarodlftmsii.oom Wabaits www.nimhlndla.org 2 NIMH in collaboration with the Voice and Vision Task Force, Helen Keller Institute for the Deaf and Deaf Blind has undertaken a project to develop the material on "Education of children with deafbhndness and additional disabilities" for Master Trainers. The package thus developed will be useful in imparting systematic training to the special teachers on education of children with deafblindness and additional disabilities The training miterlal has covered not only the aspects on nature and impact of deafblirtdness but also the assessment procedure, techniques of development of communication, curriculum development and programme management in a very comprehensive manner It is a unique and significant work in the field of disability rehabilitation. NIMH collaborated with Voice and Vision Task Force which has been supported by the Hilton/Perkins Programme of Perkins School for the Blind, Watertown, Massachusetts, U.S.A. The Hilton Perkins Program is funded by a grant from the Conrad N.Hilton Foundation of Reno, Nevada, U.S.A. -i I am very happy to acknowledge the wonderful work done by the Voice and Vision Task ForceI am confident that the special schools hitherto look for guidance will be in a position to accept wtiole-heartedly all the cases of deatblindness with the help of this book We all owe the responsib&ty towards the education of the children with dealblindness and additional disabibtS and let us not feel diffident for want of the service models and training packages Let us consider this as a stepping stone to develop more service models to enable the persons with deafblindness and additional disabilities to lead an indeponder living as far as practicable and feasible. I wish to urge all concemed to volunteer. in giving us suggestions and comments for improving the training package as well as for taking up further research projects In this direction. L.GOVINDA RAO, NED. Centre We He(en C.KflcrCinsfitute for(lJeaf &tJ)eaJ't]3t1n( —Adltta(]31r[a A pioneeringinstitistor Deat8lind- Founded k July 1977 CC-i. tT.C. MJ.D.C. SM Mahape Road.MaviMumbal 400 701. teI.:7762214/7702103 Fax:S1-22•7781226 E-mail hkivashiOvenl,net Is/lair Vish us at htlp:ftwww.helsnkeilsrindia.org Conquer Ifeel privileged to give my message. Since the last 4 yearsthere has beeS growing a conscious awareness towards theneeds of TheExecuve ComnSttat Deafblind population and Very exciting projects are coming Mt Suryakant C. D&ai Preeldent Trustee up! Mr. Sursth Ahuja It is all because of ThE ThRUST from major INGOS to our Vice Preadsttl NGOs -HiltonPerkins International -Bostonhas been in the Mt. RamGandhi forefront with its Vision and Support to. the people workingfor Chairman Fwid Raising the Deafblind! One of the Major momentous outcomesof its Cofinilos activities is the production of the Trainer's Manual from Voice Mr. Sudit K. PuSh & Vision Task Force Committee. My Heartiest Congratulations Hon. 1e..urer 8 Trust.. to all those involved in working on this very importantand Mr. Purvez soywils timely document which should bring about aTransformation In Hon. Treasurer & Trustee the growth of flinnsn Resource Development - Mr. AnalMshra Hon.Secretary .8 Ttustee MyDreamt Education & Welfare of the Deafblind' is today Mrs. Pwilz It BWmotta a Reality and 1 am all excited to witnessthe release of this Hon. it. Secretwy Manual -HelenICelier has truly said,.' !Øts wit exciting Mrs. Urns Mint. business, and It Is more .owhan 1*1* lived JOt others -For doso much Mr. Eruch 5. Hodiwaua Alone in can do so littLe, but Together we can "and truly this manual will live up to her words. Mr. Ashok Pemani Mrs. Beroz N. Vacha Once ngain my Heartiest and Warmest Thanks to everybody on Hon. DirectCone&4tW't this Project! MrOaPSk shandad Execuive Director Mrs. Reel Sari Pnncipat D.sI,Skd Section Mrs. Shubhangt Bandskat Mrs.BEROZ N.VACHA Phnoipal Deaf Section Hon.Directot & Consultant — Glw toevertotherhuman beiu*8 cver rt9kt that ru claimfor ounelf CQ,C1n0erso( ol Income Taxunder TheInstitute Is rngielered wide; the Societies Registration Act 1080, Bombay Pubaclnmet Act *950 and Exemption 1961. 100% InocnwTsx Exemption br.the Bldg. tmdsrSSAC,FCRA. SalesTax & OtIS. Section00-3tncomeTsx Act, sibove.d*flsC/O.The Director NI ehequote bedrawn InfavouroV'HeliiiKarlnsttWtsfor Deal & Deaf DMntaS seuttethe ACKNOWLEDGEMENTS This manual is an outcome of combined efforts of a number of people. In addition to the efforts of NIMH, HKIDB, members of the Voice and Vision Task Force and the contributors of Chapters, a number of persons have involved themselves in developing this manual as well as in the training programme of Master Trainers in the area of deafblindness and additional disabilities. The members of the Voice and Vision task force gratefully acknowledge the contributions and support of the following persons and organizations: • Dr.L.Govinda Rao, Director, NIMH, for his constant encouragement and support in conducting the training progranjrne as well as developing and printing the manual. • Ms.Beroz Vacha, Hon. Director and Consultant, HKIDB, who has been an inspiration all the way through forthe members of Voice and Vision to make this prolect a success. • Dr.Barbara Mc Letchie for her expert guidance in the development of the manual. • Dr. B.N.Rajasri for helping with the technical accuracy in the use of medical terminology. • Shri V.Shankar Kumar and Shri A.KSivasankaran in providing computer support for the development of the manual.