1 3rd Global Adolescent & Young Adult Cancer Congress December 4 - 6, 2018 Sydney | Australia Pre Congress Workshops |December 3, 2018 Program & Abstract Handbook #AYACANCERCONGRESS 2 The 3rd Global AYA Cancer Congress Scientific Committee Core Planning Group USA Simon Davies AUSTRALIA Chairs Peter Orchard AUSTRALIA A/Prof Pandora Patterson Prof Ian Olver (Chair) USA Members Prof Stu Siegal (Co-Chair) UK Dr Olga Husson Members Maria Cable Dr Rachel Taylor AUSTRALIA Dr Dan Stark Professor David Thomas Professor Daniel Kelly A/Prof Pandora Patterson Dr Michael Osborn Andrew Murnane USA Dr Antoinette Anazodo A/Prof Brandon Hayes-Lattin Dr Natalie Bradford Dr Karen Fasciano Dr Ursula Sansom-Daly Prof Brad Zebrack Dr Haryana Dhillon Prof John Parentesis Dr Adam Walczak Lauren Lux Dr Fiona McDonald Dr Rebecca Johnson Joseph Lynch (consumer rep) Kathryn Woodward (consumer rep) CANADA Matilda Gorce (consumer rep) Prof Paul Grundy Dr Norma D’Agostino NEW ZEALAND Louise Sue FRANCE Dr Tristan Pettit Dr Valerie Laurence JAPAN International Advisory Group Dr Miyako Takahashi DENMARK Global Accord Team Members A/Prof Pia Riis Olsen UK Kate Collins BELGIUM Sam Smith Johan De Munter 3 Welcome to Sydney On behalf of CanTeen Australia and the Adolescent and Young Adult Cancer Global Accord, we are delighted to welcome you to the 3rd Global AYA Cancer Congress. Following on from the success of previous Global AYA Cancer Congresses in Edinburgh and Atlanta, this year’s event is welcoming over 400 delegates from more than 20 countries. The program theme of the 2018 congress: Navigating the road through AYA cancer, will emphasise the importance of addressing all aspects of AYA cancer from prevention and diagnosis, through acute treatment, to survivorship, palliative care and rehabilitation. We are incredibly grateful for all the wonderful contributors to the program which, in addition to our plenary program speakers and the adolescents and young adults who will share their insights, will be enriched with daily concurrent sessions, poster and rapid-fire presentations. We received an overwhelming 240 abstract submissions from 17 countries - we thank you all for your participation, time and energy to help shape a truly global approach to the congress. In addition to the primary program, we also held 4 pre-congress workshops. We are very appreciative to the many facilitators and convenors that produced such a valued addition to the congress. During the breaks we encourage you to visit our exhibition space which will house a variety of organisations who have generously helped sponsor this important event. The exhibition area will showcase My Life Before, With and Beyond Cancer: Creative Consumer Contributions to the AYA Conversation – a wonderful opportunity for young people impacted by cancer to share their experiences of ‘Navigating the road through AYA Cancer’. The mixed media exhibition is on display for all three days and we encourage you to view the wonderful art works. We trust that you will enjoy our social events; the Welcome Reception and Gala Dinner, taking the opportunity to meet new colleagues with a shared passion in improving outcomes for AYAs and their families with cancer and also catching up with friends in the field. We do hope you enjoy the next three days and some of the unique Australian sights, culture, tastes and sounds we have weaved into the scientific and social program for you. Thank you again for your presence, contributions and collaboration. It is our aim that the 2018 AYA Global Accord Congress inspires you to return to your work with new ideas, connections and knowledge to drive forward advancements in practice and care of young people with cancer. Best Wishes, Professor Ian Olver AM Peter Orchard Chair, Scientific Committee Chief Executive Officer Professor of Translational Cancer Research CanTeen Australia Director, University of South Australia Cancer Research Institute 4 3rd Global Adolescent and Young Adult Cancer Congress Program Quick Glance Day 1 – Life Before Cancer Tuesday 4 December 2018 7.45am Registration 8.30am Opening Ceremony: Grand Ballroom 1 Prof Ian Olver: Official opening of congress Mr Glen Doyle: Welcome to country The Hon. Greg Hunt MP, Federal Minister for Health: Video Message Opening address from the Global Accord partners: CanTeen: Mr Peter Orchard Teen Cancer America: Mr Simon Davies Teenage Cancer Trust: Ms Kate Collins 9.00am Plenary 1: AYA Priority Setting & Practice Innovation Chair Introduction: Dr Norman Swan & Mr Joey Lynch Grand Ballroom 1 9.05am Professor Paul Grundy - Establishing AYA cancer as a national priority: the Canadian experience 9.25am Dr Lorna Fern – Adolescent & young adult diagnostic timelines, pathways & impact on patient outcomes 9.45am A/Professor Pia Riis Olsen & Ms Mette de Fine Licht – The difference a friend can make 10.10am Speaker panel discussion and audience Q&A 10.30am Morning Break – Exhibition & Poster Viewing RAPID FIRE 1.1 & POSTER VIEWING RAPID FIRE 1.2 & POSTER VIEWING 11.00am Chair: Mr Peter Orchard Chair: Dr Ursula Samson-Daly Grand Ballroom 1 Hyde Park Room 11.30am CONCURRENT 1.1 – LEADERSHIP IN CONCURRENT 1.2 – AYA CANCER CONCURRENT 1.3 – RARELY HEARD AYA CANCER POLICY & PRIORITIES VOICES & MINORITY POPULATIONS Co-Chairs: Dr Miyako Takahashi & Co-Chairs: Dr Allison Werner-lin & Co-Chairs: Ms Louise Sue & Ms Ms Madeleine Way Mr Jessada Phuntuya Aggie Kasicka Phillip Room Hyde Park Room Grand Ballroom 1 1.00pm Lunch Break – Exhibition & Poster Viewing 1.45pm CONCURRENT 2.1 – PREVENTION & CONCURRENT 2.2 – PROFESSIONAL CONCURRENT 2.3 – AYA CANCER DATA EARLY DETECTION DEVELOPMENT & EPIDEMIOLOGY Co-Chairs: Dr Natalie Bradford & Co-Chairs: Dr Stu Siegal & Mr Sean Co-Chairs: Mr Johan De Munter & Mr Terence Rumblow Dondas Ms Kathryn Woodward Grand Ballroom 1 Hyde Park Room Phillip Room 3.15pm Afternoon Break – Exhibition & Poster Viewing 3.15pm AYA Consumer Closed Networking Session – Phillips Room 3.35pm Plenary 2: AYA Cancer Risk –Melanoma, Lifestyle & Inherited Risk Profiles Co-Chair Introduction: Dr Norman Swan & Ms Tilly Gorce Grand Ballroom 1 3.40pm Professor Richard Scolyer – Melanoma: Progress to Date and Future Prospects in the Fight Against Australia’s National Cancer 4.00pm A/Professor Gill Hubbard – Approaches to addressing lifestyle-based cancer risks amongst adolescents & young adults 4:20pm Dr Allison Werner-Lin – Communicating genetic testing results in family and social networks: Meeting the unique psychosocial needs of AYAs 4:40pm Speaker panel discussion and audience Q&A 5.00pm Day 1 Close 5.00pm Welcome Reception – Sheraton Grand Sydney Hyde Park 5 3rd Global Adolescent and Young Adult Cancer Congress Program Quick Glance Day 2 – Life With Cancer Wednesday 5 December 2018 7.45am Registration 8.15am Plenary 3: Therapeutic advances – New treatments, clinical trials & exercise Co-Chair Introduction: Dr Norman Swan & Ms Kathryn Woodward Grand Ballroom 1 8.20am Professor Miles Prince – Predicting the future use of novel immunotherapy: experience to date in blood cancer proves that ‘one size does not fit all’ 8.40am Professor David Thomas – The International Sarcoma Kindred Study: mapping the genetic basis of sarcoma risk 9.00am A/Professor Prue Cormie – Exercise medicine for cancer 9.20am Professor David Freyer – Cancer Clinical Trial Participation: Understanding the Problem to Unlock the Potential 9.40am Speaker panel discussion and audience Q&A 10.00am Morning Break – Exhibition & Poster Viewing 10.30am RAPID FIRE 2.1 & POSTER VIEWING RAPID FIRE 2.2 & POSTER VIEWING Chair: Dr Fiona McDonald Chair: Ms Mette De Fine Licht Grand Ballroom 1 Hyde Park Room 11.00am CONCURRENT 3.1 – AYA TREATMENT CONCURRENT 3.2 – FERTILITY CONCURRENT 3.3 – MEASURING ADVANCES Co-Chairs: Dr Karen Fasciano & DISTRESS & NEEDS Co-Chairs: Dr Tristan Pettit Ms Madeleine Way Co-Chairs: Prof Nick Hulbert-Williams & Mr Joey Lynch & Mr Sean Dondas Phillip Room Grand Ballroom 1 Hyde Park Room 12.30pm Lunch Break – Exhibition & Poster Viewing 1.30pm CONCURRENT 4.1 – CLINICAL TRIALS CONCURRENT 4.2 – AYA CANCER CONCURRENT 4.3 – SURVIVORSHIP ACCESS PROGRAMS CONSIDERATIONS Co-Chairs: Dr Antoinette Co-Chairs: Prof Paul Grundy & Co-Chairs: Dr Haryana Dhillon & Anazodo & Ms Aggie Kasicka Ms Tilly Gorce Mr Terence Rumblow Phillip Room Grand Ballroom 1 Hyde Park Room 3.00pm Afternoon Break – Exhibition & Poster Viewing 3.00pm AYA Consumer Closed Networking Session – Phillip Room 3.20pm Plenary 4: Addressing life stage & cultural complexities Co-Chair Introduction: Ian Olver & Mr Jessada Phuntuya Grand Ballroom 1 3.25pm Ms Heidi Watson – Understanding the issues faced by taitamariki with cancer in Aotearoa 3.45pm Mr Kyran Dixon – Understanding Cancer within Indigenous Australian Adolescents and Young Adults 4.05pm A/Professor Donald Payne – Adolescent and Young Adult Medicine and Oncology 4.25pm Professor Nick Hulbert Williams – Acceptance and Commitment Therapy (ACT) for people affected by cancer: what does the evidence tell us, and how can we do better? 4.45pm Speaker panel discussion and audience Q&A 5.00pm Day 2 Close 7.00pm Congress Gala Dinner – Doltone House, Jones Bay Wharf 6 3rd Global Adolescent and Young Adult Cancer Congress Program Quick Glance Day 3 – Life Beyond Cancer Thursday 6 December 2018 8.00am Registration 8.30am Plenary 5 - Financial toxicity, fertility & family Co-Chair Introduction: Dr Norman Swan & Mr Sean Dondas Grand Ballroom 1 8.35am Ms Lynne Pezzullo & Ms Kathryn Woodward - The economic cost of cancer in adolescents and young adults 9.00am Dr Antoinette