DIRECTORY OF LOCAL SUPPORT SERVICES AND NETWORKS Produced by Michael Stanley, Maggie Heppell and the Members of the Parkway Medical Centre Patients Participation Group Issue 5 October 2018 ~ 1 ~ Index Section 1: Physical Health and Well Section 2: Mental Health and Section 3: Community Care and Being Wellbeing Social Support Achondroplasia Acquired brain injury Asylum Seekers and Refugees AIDS ADHD Babies and Infants Alzheimer’s Anxiety, Depression, Agorophobia, Carers (of all ages) Apnoea (Sleep) Claustrophobia ………….. Despair/Loss of Hope Ankylosing Spondylitis Autism Domestic Abuse Arthritis Bipolar Disorder Drug and Alcohol Abuse Asbestos related diseases Dyslexia Emotional Well Being Blindness Dyspraxia (DCD) Foodbanks Cancer Eating Disorders General Advice and Support Cardiology General Support Heating not working/Cold Home Cerebral Palsy Men and Mental Health Home Call CJD Specific courses Independent Living Cystic Fibrosis Suicidal Learning Disabilities Dementia Tourette Syndrome Over 50’s Diabetes Reading Agency Epilepsy Safeguarding Adults Fibromyalgia (FMS) Safeguarding Children Haemophilia Sexual Abuse Hearing Loss Social Inclusion Huntington’s Disease Supported Living IBS/IBD Young People Kidney/Renal Lung Diseases Lupus Meniere’s Disease Meningitis MND MS Neurological Conditions ~ 2 ~ Osteoporosis Pain Management Parkinson’s Disease Podiatry Poliomyelitis Prostate Cancer Psoriasis Pulmonary Fibrosis Respiratory Diseases Scleroderma and Raynaud’s Sjogren’s Syndrome Stroke Women’s Health Section1: Physical Health and Wellbeing FOCUS RANGE OF SUPPORT CONTACT DETAILS FURTHER INFORMATION Achondroplasia Web-based advice and Achondroplasia UK, 52 Vernham Grove, Odd Down, http://www.achondroplasia.co.uk support Bath, Avon, BA2 2TB. E-Mail link on website. AIDS Web-based advice and The Terence Higgins Trust, 314-320 Gray’s Inn http://www.tht.org.uk/ support Road, London WC1X 8DP 0808 802 1221 E-Mail: [email protected] Alzheimer’s Web-based advice and Tel: 02704 233500 https://www.alzheimers.org.uk support Email: [email protected] Alzheimer’s Society, Tees Tel: 0891 389044 Valley Local Service Office [email protected] Apnoea (Sleep) Web based advice and The Sleep Apnoea rust, PO Box 60, OX39 4XE http://www.sleep-apnoea-trust.org/ support Tel: 0800 025 3500 E-Mail: [email protected] Local support and expertise Middlesbrough Sleep Apnoea Trust, JCUH http://www.sleep-apnoea-trust.org/clinic-area/cleveland/ Professor Gerry Danjoux http://southtees.nhs.uk/services/sleep-medicine/ ~ 3 ~ Tel: 01642 850850 Ankylosing Support Group. Meet at St Kay West, Rheumatology Physiotherapist 01642 [email protected] Spondylitis Barnabas Church, 854357 Linthorpe Road, M’bro. Arthritis General support on living Arthritis Care UK, Saffron House, 6-10 Kirby Street https://www.arthritiscare.org.uk with arthritis including London, EC1N 8EQ. treatments, aids and National Services Co-Ordinator, Pete Birchall, equipment and local area [email protected] support. Rheumatoid and Juvenile National Rheumatiod Arthritis Society Helpline 0800 www.nras.org.uk 2 987650 Opportunity to meet in Middlesbrough Arthritis Support Group https://www.nras.org.uk/groups/middlesbrough-group-non-nras-group informal setting, 3rd Rheumatology OT Dept, JCUH, TS4 3BW. Wednesday of each month, Tel: 01642 854790/0845 458 3969 2pm to 4 pm. E-Mail: [email protected] Sharing of experience and The Cadet Hut, Armitage Road, Redcar, TS10 5PZ. https://www.arthritiscare.org.uk/our-services-and-support/branches- tips on living with the Tel: 020 7380 6522 and-groups/1366-redcar-arthritis-care-group condition. Meeting 1st E-Mail: [email protected] Friday every month 2pm to 3.45pm. Asbestos Asbestosis, Mesothelioma, The Community Centre, Miers Ave, Hartlepool, TS24 http://www.nasag.org.uk/ related diseases Pleural Thickening. 9JQ. (See also under Cancer) 01429 271294 Blindness JCUH Contact Numbers JCUH Blindness/Opthalmic/Eye Emergency No [email protected] /Opthalmic 01642 854050 Eye Casualty Dept Opening Hours Mon-Fri 0800 to 1630, Sat/Sun/Bank Holidays 0800-1200. Specialist Nurse Contact: Angela Beddingfield 07710 120005 RNIB Helpline 03031 239999 Casualty 01642 854050 Guide Dogs Guide Dogs for the Blind http://www.guidedogs.org.uk/ Resolution House 18 Ellerbeck Court M’bro TS9 5PT 0845 3727430 Cancer Note: For Full Listing of Specialist Nurses for Cancer in South Tees NHS Foundation Trust, Acute Services – See Appendix 1 attached Blood Haematology Support Group (All blood cancers) Graham Lane 01609 760191 E Mail: [email protected] Breast Positively Pink Middlesbrough https://www.southtees.nhs.uk/services/cancer/macmillan-information- ~ 4 ~ Trinity Holistic Centre JCUH centre/survivorship/resource-directory/local-cancer-support/ Monthly Meetings 1st Wed, 7pm. Judith Pennington 01642 285418 Bowel Trinity Holistic Centre JCUH https://www.southtees.nhs.uk/services/cancer/macmillan-information- Support Group (Meetings every 3 months) centre/survivorship/resource-directory/local-cancer-support/ Colorectal Nurses 01642 854847 See also www.beatingbowelcancer.org Head and Neck Email: [email protected] Lymphoedema Darlington Memorial Hospital https://www.southtees.nhs.uk/services/cancer/macmillan-information- Floor C Surgical Outpatients centre/survivorship/resource-directory/local-cancer-support/ Meeting 3rd Tuesday every 2 months Specialist Nurse 01325 743290 Lymphoma Trinity Holistic Centre JCUH https://www.southtees.nhs.uk/services/cancer/macmillan-information- Monthly Meetings 2nd Thursday 6.30 to 8.30pm centre/survivorship/resource-directory/local-cancer-support/ David 01325 462297 Johnny 01325 243140 (JCUH Freephone Helpline: 08088085555) Mesothelioma North East Asbestos Support and Awareness Group https://www.southtees.nhs.uk/services/cancer/macmillan-information- Bob Stephenson centre/survivorship/resource-directory/local-cancer-support/ 01642 240044 (24 hrs) [email protected] Myeloma Myeloma Support Group. Bob Upton 01642 817943 Also, Ellen Myeloma UK 0800 980332 E Mail: [email protected] Oesophageal/Gastric Trinity Holistic Centre JCUH https://www.southtees.nhs.uk/services/cancer/macmillan-information- Meetings every 4 months centre/survivorship/resource-directory/local-cancer-support/ Clinical Nurse Specialist Helen Westcott 01642 832874 Ovarian OVA The Rainbow https://www.southtees.nhs.uk/services/cancer/macmillan-information- Trinity Centre centre/survivorship/resource-directory/local-cancer-support/ North Ormesby Market Square, M’bro Clinical Nurse Specialist Jane Mc Neil 01642 282418 Palliative Care Carers Group contact Social Worker 01642 811069. www.teessidehospice.org General Contact Number 01642 811060. Prostate Local Support Group Robin Millman 01642 651280 www.prostatecancerteesside.co.uk [email protected] or Fred Kinnear 01642 www.prostatecanceruk.org 740190 [email protected]. www.prostatecancerfree.org Local Specialist Nurse Lynne Kershaw 07920 ~ 5 ~ 415321 Skin Specialist Nurse Helena Hind. crux.org/sunsmart sunsmart.org.uk www.skincancer.org www.skinawareness.org Solid and Blood. Support Macmillan Cancer Support 01642 835674 Mon to Fri, www.southtees.nhs.uk/services/cancer/macmillan-information-centre/ for patients, carers, 0900 to 1600 hrs relatives and friends. Testicular Web based Support Group https://www.southtees.nhs.uk/services/cancer/macmillan-information- Specialist Nurse Annmarie Riorden 01642 282497 centre/survivorship/resource-directory/local-cancer-support/ Email: [email protected] Cardiology Heart health, treatments, Local Support Group 03003 303311, British Heart BHF.org.uk/heartvoices living with a heart condition Foundation (BHF) 0303 803322 Take Heart (Maintenance Langdon Sq, Coulby Nwwham, TS8 0TF. Tel: 01642 Class following Hospital 599723.. Phase 3 Cardiac Mon 100-1130; Tues 0930-1230; Wed 0930-1130. Rehabilitation Class. Cerebral Palsy Support, information and Scope UK https://www.scope.org.uk/support/families/diagnosis/cerebral-palsy advice on treatments. Helpline: 0808 800 3333 CJD Access to a support CJD Support Network, PO Box346, Market Drayton, http://www.cjdsupport.net/ network providing advice to Shropshire, TF9 4WN. sufferers, carers and [email protected] families. Potential access 0800 085 3527 to care grants. Cystic Fibrosis General Support Help Lines: https://www.cysticfibrosis.org.uk/ 0300 373 1000 020 3975 2184 Dementia Those with memory Lynne Harper 01642 231967, 07989 528066 https://www.middlesbroughmatters.co.uk/Services/114/Middlesbrough- problems Dement http://www.sanctuary-supported-living.co.uk Provision of information on National dementia Helpline 0300 22 1122 or https://www.dementiauk.org/ dementia cafes and related Shirley.Gray@ alzheimers.org.uk Local No 01642 https://www.alzheimers.org.uk/ activities on Teesside. 442030 0r 442034 Free Lunch/Get-together Run for those with dementia by MIMA Art Gallery plus arts activities every Thursday afternoon Monthly Dementia Cafés Kirsty Richardson, Tel:07738 741318, E-mail: https://www.middlesbrough.gov.uk/leisure-events-libraries-and- for those who have [email protected] hubs/community-hubs-and-libraries/find-librarycommunity- dementia or who care for Hemlington Library and Community Hub, Crossfield, hub/hemlington-community-hub-and-library someone living with Middlesbrough, TS8 9JJ. dementia. Starts Monday 29th January, last Monday of each month, 2.00 to