Table of Contents Step 1 ........................................................................................... 1 Breastfeeding Overview .......................................................................... 2 Getting Information from the Healthcare Team ........................................................ 6 Step 2 ........................................................................................... 8 Temperature Control ............................................................................. 9 Pain Management ............................................................................. .13 Developmental Care ............................................................................ 15 Parenting in the NICU. .18 Newborn Screening ............................................................................ .20 Step 3 .......................................................................................... 24 Kangaroo Care ................................................................................ 25 Skin Care .................................................................................... .27 Newborn Jaundice ............................................................................. 32 Step 4 .......................................................................................... 35 Basic Baby Care ............................................................................... .36 Choosing Your Baby’s Provider .................................................................... 39 Home Safety .................................................................................. 41 Postpartum Depression ......................................................................... .44 Step 5 .......................................................................................... 47 Oral Feedings . .48 Hearing Screening ............................................................................. .50 Immunizations ................................................................................ .52 Step 6 .......................................................................................... 55 Car Seat Testing and Safety ...................................................................... 56 Cardiopulmonary Resuscitation (CPR) Training ....................................................... 60 Safe Sleep ................................................................................... .62 Step 7 .......................................................................................... 65 Respiratory Syncytial Virus ...................................................................... .66 Preventing Infections ........................................................................... .70 Step 8 .......................................................................................... 74 Preparing to Take Your Baby Home ................................................................ .75 Breastfeeding at Home: Information for the Healthcare Team ........................................... .81 Step 9 .......................................................................................... 85 Home Medical Equipment: Apnea Monitor (Cardiorespiratory Monitor) ................................... .86 Home Medical Equipment: Feeding Pump ........................................................... 87 Home Medical Equipment: Nebulizer (Aerosol or Inhalation Treatment) ................................... .88 Home Medical Equipment: Ostomy Supplies ........................................................ .89 Home Medical Equipment: Oxygen ................................................................ .90 Home Medical Equipment: Pulse Oximeter (Pulse Ox, Oxygen Saturation Monitor) .......................... .91 Home Medical Equipment: Tracheostomy ........................................................... .92 Medications at Home: Albuterol (Proventil, Ventolin) .................................................. .95 i Baby Steps to Home Medications at Home: Budesonide (Pulmicort) ........................................................ 97 Medications at Home: Caffeine Citrate .............................................................. 99 Medications at Home: Chlorothiazide (Diuril) ........................................................ 101 Medications at Home: Clonidine . .103 Medications at Home: Compounding Pharmacy ...................................................... 105 Medications at Home: Digoxin (Lanoxin) ............................................................ 106 Medications at Home: Ferrous Sulfate (Fer-In-Sol) .................................................... 108 Medications at Home: Fluticasone (Flovent) ......................................................... 110 Medications at Home: Keppra .................................................................... 112 Medications at Home: Lansoprazole (Prevacid) ....................................................... 114 Medications at Home: Methadone (Methadone Intensol™, Methadose®) ................................. 116 Medications at Home: Morphine Sulfate ........................................................... 119 Medications at Home: Multivitamins (Poly Vi Sol) .................................................... 122 Medications at Home: Omeprazole (Prilosec) ........................................................ 123 Medications at Home: Phenobarbital (NAS) ......................................................... 125 Medications at Home: Phenobarbital (Seizures) ...................................................... 127 Medications at Home: Ranitidine (Zantac) .......................................................... 129 Medications at Home: Vitamin D (Ergocalciferol, Cholecalciferol) ........................................ 131 Follow-Up Appointment: Cardiology ............................................................... 133 Follow-Up Appointment: Cardiothoracic Surgery ..................................................... 134 Follow-Up Appointment: Community Resources ...................................................... 135 Follow-Up Appointment: Dermatology ............................................................. 136 Follow-Up Appointment: Early Intervention or Early Childhood Intervention ................................ 137 Follow-Up Appointment: Endocrinology ............................................................ 138 Follow-Up Appointment: Gastroenterology .......................................................... 139 Follow-Up Appointment: Genetics ................................................................. 140 Follow-Up Appointment: Hematology .............................................................. 141 Follow-Up Appointment: High-Risk Infant Follow-Up (Neuro Brain Developmental Follow-Up) ................. 142 Follow-Up Appointment: Nephrology .............................................................. 143 Follow-Up Appointment: Neurology ............................................................... 144 Follow-Up Appointment: Neurosurgery ............................................................. 145 Follow-Up Appointment: Nutrition Clinic ............................................................ 146 Follow-Up Appointment: Ophthalmology ............................................................ 147 Follow-Up Appointment: Otolaryngology (ENT) ....................................................... 148 Follow-Up Appointment: Primary Care Provider ...................................................... 149 Follow-Up Appointment: Pulmonology ............................................................. 150 Follow-Up Appointment: Surgery .................................................................. 151 Follow-Up Appointment: Urology .................................................................. 152 Step 10 ........................................................................................ 153 Rooming-In ................................................................................... 154 Going Home .................................................................................. 156 ii Baby Steps to Home Procedures..................................................................................... 160 Chest Tubes .................................................................................. 161 Circumcision .................................................................................. 163 Intubation .................................................................................... 167 Lumbar Puncture. .169 Peripherally Inserted Central Catheters ............................................................. 172 Umbilical Venous Catheter/Umbilical Artery Catheter ................................................. 175 Diagnoses ..................................................................................... 178 Apnea of Prematurity ........................................................................... 179 Bronchopulmonary Dysplasia ..................................................................... 184 Cardiac Defects: Aortic Stenosis .................................................................. 196 Cardiac Defects: Atrioventricular Canal Defects ...................................................... 198 Cardiac Defects: Coarctation of the Aorta ........................................................... 200 Cardiac Defects: Hypoplastic Left Heart Syndrome ................................................... 202 Cardiac Defects: