MEET THE ROME FOUNDATION 2021-2022 Three Decades of Service to Patients in the Field of Disorders of Gut-Brain Interaction THEROMEFOUNDATION.ORG WELCOME FROM OUR PRESIDENT AND COO Dear Rome Foundation Members, Friends, and Sponsors It is with great pleasure that we review the Rome Foundation’s Innovative educational programs for Gastroenterologists, activities over the past year and discuss our current and future primary care, and allied health providers. The unfortunate initiatives. This year we provide a detailed summary of all experience with COVID-19 has led us to make changes to programs and activities in the 2021 edition of the Meet the meet our educational needs by adapting to more online Rome Foundation. In this letter we take the opportunity to programs. We have upgraded our website to accommodate summarize our key current and future programs. These include: more online CME programs (see below), and last October, • Global Epidemiology Study publication, ongoing analysis we converted our regional on-site CME programs to be and symposium entirely online. Still, when we can, we will return to on-site • Rome Foundation Research Initiative (RFRI) activities educational activities to capture the full learning experience with small groups and interactive sessions. So moving • Innovative educational programs for Gastroenterologists, forward, we plan to combine online and on-site programs to primary care APPs and other Allied health providers maximize the learning experience. • Communication program • Upgraded website and social media activities Communication program. Our communication program, • Research and Rome Fellowship awardees a collaboration between the Rome Foundation and “Rome Campus,” which includes CME programs and other We want to thank you for your support of the Rome DrossmanCare https://romedross.video/Collaboration, has educational programs in a consolidated web page. https:// Foundation and look forward to future collaborations. Global Epidemiology Study publication and ongoing analysis. been highly successful in many ways. Through a series of theromefoundation.org/welcome-to-the-rome-campus/. To Under Ami Sperber MD MSPH’s directorship, we have recent publications2-5, producing a “tips and techniques” increase learning offerings for providers and patients, we Sincerely Yours, completed the Global Epidemiology Study, an eight-year study guide for providers https://romedross.video/2YphMDd, now have over 20 blogs by our Rome Foundation Board and project. The first overview of this exciting work now appears and our current work on Rome Foundation Working Team on 1 60 patient Q&A videos http://romedross.video/RomeQ_A in the January edition of Gastroenterology . There is currently Communication soon to be published, we continue to provide Each video is 8-15 minutes long, packed with information, an oversight committee to review research applications to educational resources. One key finding of the Working and they keep coming! Our social media followers have analyze additional studies from the research participants. Team was that an evidence review showed that effective more than doubled in a year to almost 800 facebook and We have decided to update the medical community with a communication skills and training lead to improved patient 2,200 twitter followers. series of online CME programs to review the findings over and doctor satisfaction, adherence to treatment, improved eight weekly sessions beginning in early March. For further outcomes, and reduced cost. Our educational videos are Douglas A. Drossman MD Jan Tack MD, PhD Research and Rome Fellowship awardees. We are pleased to information, click here https://romefoundation.clickfunnels. expanding now with three programs: Communication 101, President Emeritus and COO President announce that awardees for 2020 and 2021 Rome Awards com/optin16131391518981613139726156 Communication 202 and just launched, Communication Rome Foundation Rome Foundation include: 101.5; each has its role in teaching methods and techniques Rome Foundation Research Initiative (RFRI) activities. to improve the patient-provider relationship. In the last few • Professor Alexander C. Ford, MBChB, MD, FRCP- 2020 1. Sperber AD, Bangdiwala SI, Drossman DA, et al. Worldwide Prevalence and Burden Magnus Simren, MD, PhD is the research director of the RFRI, of Functional Gastrointestinal Disorders, Results of Rome Foundation Global Study. months, Drs. Drossman and Johannah Ruddy, our executive Rome/Torsoli Excellence in DGBI Awardee with Drs. Tack and Drossman on the executive committee. Gastroenterology 2021;160:99-114 e3. director, published a book, “Gut Feelings: Disorders of Gut- • Carlo DiLorenzo, MD- 2021 Rome/Torsoli Excellence in 2. Drossman DA, Ruddy J. Improving Patient-Provider Relationships to Improve Health We are now entering our 3rd year and have several exciting Care. Clin Gastroenterol Hepatol 2020;18:1417-1426. Brain Interaction and the Patient-Doctor Relationship” DGBI Awardee projects underway, including a sponsored bloating and diet 3. Black CJ, Drossman DA, Talley NJ, et al. Functional gastrointestinal disorders: for patients and providers6 https://romedross.video/ advances in understanding and management. Lancet 2020;396:1664-1674. study with Danone Nutricia Pharmaceuticals and the ROBOT GutFeelingsWebsite. Later this year, we expect to resume our In addition the Rome Foundation Fellowship (RFF) is given 4. Ruddy J. From Pretending to Truly Being OK: A Journey From Illness to Health With and DOMINO projects. We have over 80 investigators Postinfection Irritable Bowel Syndrome: The Patient’s Perspective. Gastroenterology on-site workshops and train the trainer programs. to clinicians or scientists who have established themselves internationally who are available for research studies. We 2018;155:1666-1669. in their area of work and have committed time to activities 5. Drossman DA. From Pretending to Truly Being OK: A Journey From Illness to would also like to welcome Takeda Pharmaceuticals as a Health With Postinfection Irritable Bowel Syndrome: The Provider’s Perspective. Upgraded website and social media activities. We are pleased with the Rome Foundation. For 2020 the clinical awardees gold sponsor joining Ironwood pharmaceuticals our diamond Gastroenterology 2018;155:1664-1665. to announce that our website has been completely renovated are Albena Halpert MD, Brooks Cash MD, and the awardee in 6. Drossman DA, Ruddy J. Gut Feelings: Disorders of Gut-Brain (DGBI) Interaction and sponsor. For full information, please go to our annual report: for easier navigation https://theromefoundation.org/ and to academic medicine is Shin Fukudo MD. the Patient-Doctor Relationship. Chapel Hill, NC: DrossmanCare, 2021. Click here https://theromefoundation.org/research-institute- offer more online education programs. Welcome to rome-foundation/. i | MEET THE FOUNDATION 2021 MEET THE FOUNDATION 2021 | ii MEET THE TABLE OF CONTENTS CONTACT INFORMATION For Information on: • Research Institute (RFRI) ROME FOUNDATION • Global Study Introduction 1 • Public Relations Rome Foundation Board 2-11 • Communication Program Activities • Rome IV and Rome V Rome Foundation Administration 12 • Sponsors - Information/Opportunities The Rome Foundation is an independent not for profit 501(c) 3 organization whose mission • Sponsorship of Rome Activities Global Epidemiology Study Initiative 13-15 is to improve the lives of people with functional GI disorders, now called Disorders of Gut • Upcoming Events/Symposia Brain Interaction. The foundation provides support for activities designed to create scientific Programs - Research 18-28 • Website data and educational information to assist in the diagnosis and treatment of disorders of • Financials DGBIs. For three decades, beginning with the first working team committee at Roma ’88 Programs - Education 29-36 Contact: Johannah Ruddy (see figure 1), the Rome organization has sought to legitimize and update our knowledge Active Working Team Committees 37-41 [email protected] of the field. This has been accomplished by bringing together scientists and clinicians from around the world to classify and critically appraise the science of gastrointestinal function Completed Working Team Committees 41-52 For Information on: and dysfunction. • Education Credits for Rome Campus Patient/Provider Education 53-54 • Mentoring This knowledge permits clinical scientists to make Rome IV Education Products 55-60 • Tradeshow/Exhibits recommendations for diagnosis and treatment that • Partners Program can be applied in research and clinical practice. The Rome Iv Committees 61-62 • Online order support Rome Foundation is committed to the continuous Contact: Michelle Berry development, legitimization and preservation of the Collaboration & Sponsors 63 [email protected] field of DGBI through science-based activities. We are inclusive and collaborative, patient-centered, innovative For Information on: and open to new ideas. • Marketing • Bulk Orders of Rome IV Products • International book sales • Copyright & Licensing • Translations Goals of the FOR 30 YEARS THE ROME FOUNDATION HAS: Rome Foundation • Developed the first classification system for FGIDs (1990) Contact: Mark Schmitter • Developed and validated questionnaires for research (1993) [email protected] • Promote global recognition • Epidemiological study of FGIDs (Rome I, 1993); First global study (2017) and legitimization of DGBIs • Criteria adopted by pharmaceuticals and regulatory agencies