1 2 Table of Contents IMPORTANT PHONE NUMBERS ......................................................................................................................................................... 5 CHAPTER 1 – WELCOME .................................................................................................................................................................... 7 STEPS OF AUTOLOGOUS TRANSPLANT ............................................................................................................................................................. 9 PREPARATION .......................................................................................................................................................................................... 10 CONDITIONING ........................................................................................................................................................................................ 13 TRANSPLANT ........................................................................................................................................................................................... 18 BEFORE ENGRAFTMENT ............................................................................................................................................................................. 19 AFTER ENGRAFTMENT ............................................................................................................................................................................... 22 TRANSITIONING BACK TO SCCA .................................................................................................................................................................. 23 PREVENTING INFECTION ............................................................................................................................................................................. 23 DEPARTURE ............................................................................................................................................................................................ 27 YOUR TRANSPLANT TEAM AND RESOURCES .................................................................................................................................................... 27 PARTICIPATING IN RESEARCH ...................................................................................................................................................................... 34 CHAPTER 2 – FINDING YOUR WAY ................................................................................................................................................... 37 TREATMENT AT SCCA ............................................................................................................................................................................... 39 INPATIENT TREATMENT .............................................................................................................................................................................. 42 YOUR DAILY ROUTINE ................................................................................................................................................................................ 43 VISITOR GUIDELINES.................................................................................................................................................................................. 45 CHAPTER 3 – MANAGING CARE AT HOME ....................................................................................................................................... 49 SUGGESTIONS FOR COPING WITH CARE AT HOME ............................................................................................................................................ 51 OUTLINE OF TYPICAL CAREGIVER RESPONSIBILITIES .......................................................................................................................................... 51 TAKING CARE OF THE CAREGIVER ................................................................................................................................................................. 52 PATIENT AND CAREGIVER EDUCATION ........................................................................................................................................................... 53 GUIDELINES FOR PREVENTING INFECTION ...................................................................................................................................................... 54 ANEMIA ................................................................................................................................................................................................. 60 ANXIETY ................................................................................................................................................................................................. 61 BLEEDING ............................................................................................................................................................................................... 62 BODY IMAGE CHANGES .............................................................................................................................................................................. 64 BREATHING PROBLEMS .............................................................................................................................................................................. 66 CHANGE AND UNCERTAINTY ....................................................................................................................................................................... 67 CONSTIPATION ........................................................................................................................................................................................ 68 DEHYDRATION ......................................................................................................................................................................................... 69 DEPRESSION ............................................................................................................................................................................................ 70 DIARRHEA ............................................................................................................................................................................................... 71 EXERCISE AND BLOOD VALUE PRECAUTIONS ................................................................................................................................................... 72 FALL PREVENTION ..................................................................................................................................................................................... 73 FATIGUE ................................................................................................................................................................................................. 75 FEVER .................................................................................................................................................................................................... 77 HAND-FOOT SYNDROME ............................................................................................................................................................................ 80 MEMORY AND CONCENTRATION ................................................................................................................................................................. 82 MUCOSITIS (INFLAMMATION OF MUCOUS MEMBRANES) .................................................................................................................................. 84 NAUSEA AND VOMITING ............................................................................................................................................................................ 86 PAIN ...................................................................................................................................................................................................... 88 PERIPHERAL NEUROPATHY .......................................................................................................................................................................... 91 SEXUAL HEALTH ....................................................................................................................................................................................... 93 SLEEP PROBLEMS ...................................................................................................................................................................................... 97 WHITE BLOOD CELLS ................................................................................................................................................................................. 98 FOOD SAFETY GUIDELINES .......................................................................................................................................................................... 99 WATER SAFETY GUIDELINES .....................................................................................................................................................................