Kidney PREM 2020 Appendices Contents Appendix A: Centre Response Numbers in 2020 Compared to 2019 ................................................... 2 Table A1: England .......................................................................................................................... 2 Table A2: Northern Ireland ............................................................................................................. 3 Table A3: Wales ............................................................................................................................. 3 Table A4: Scotland ......................................................................................................................... 3 Figure A1: Centre Responses in 2020 Compared to 2019 ................................................................ 4 Appendix B: Proportion of Kidney PREM Responses for each Treatment Group by Centre ................. 5 Table B1: England .......................................................................................................................... 5 Table B2: Northern Ireland ............................................................................................................ 6 Table B3: Wales ............................................................................................................................. 6 Table B4: Scotland ......................................................................................................................... 7 Table B5: By Country ..................................................................................................................... 7 Appendix C: Age Ranges Across Modalities ........................................................................................ 8 Appendix D: A summary of the highest and lowest mean scores by centre, with the range in scores . 9 Appendix E: Mean Theme Scores by Modality ................................................................................. 10 Appendix F: Proportion of Kidney PREM Responses for each Ethnicity Group by Centre .................. 11 Table F1: England ........................................................................................................................ 11 Table F2: Northern Ireland ........................................................................................................... 12 Table F3: Wales ........................................................................................................................... 12 Table F4: Scotland ....................................................................................................................... 12 Table F5: By Country .................................................................................................................... 13 Appendix G: Unit Abbreviations and Response Rates ....................................................................... 14 Table G1: England ........................................................................................................................ 14 Table G2: Northern Ireland .......................................................................................................... 17 Table G3: Wales ........................................................................................................................... 17 Table G4: Scotland ....................................................................................................................... 18 Table G5: By Country ................................................................................................................... 18 www.renal.org/kidney-patient-reported-experience-measure Appendix A: Centre Response Numbers in 2020 Compared to 2019 Table A1: England Main Unit Difference Main Unit 2020 2019 Code n % Basildon RDDH0 112 194 -82 -42% Berkshire Kidney Unit RHW01 258 137 121 88% Birmingham Heartlands RL7 48 103 -55 -53% Birmingham QEH RRK02 136 719 -583 -81% Bradford RAE05 39 80 -41 -51% Brighton RGU01 497 314 183 58% Bristol REE01 93 256 -163 -64% Cambridge RGT01 47 171 -124 -73% Canterbury RVVKC 260 211 49 23% Carlisle RLGAY 36 128 -92 -72% Chelmsford RQ8L0 20 96 -76 -79% Colchester RDEE4 35 20 15 75% Coventry RKB01 40 518 -478 -92% Derby RFPFG 51 142 -91 -64% Doncaster RP5 91 165 -74 -45% Dorchester RBD01 193 216 -23 -11% Dudley RNA03 90 108 -18 -17% Exeter RH8 185 312 -127 -41% Freeman Hospital Newcastle RTD01 86 799 -713 -89% Gloucester RH641 170 202 -32 -16% Hull RF201 68 169 -101 -60% Ipswich RGQ02 12 96 -84 -88% Leeds RQR13 212 299 -87 -29% Leicester RFBAK 415 479 -64 -13% Liverpool Aintree RW402 112 177 -65 -37% Liverpool Royal RQ617 59 95 -36 -38% London and Epsom and St Helier RAZ 214 421 -207 -49% London Barts RNJ00 539 473 66 14% London Guy's RJ121 642 453 189 42% London Kings RJZ 293 445 -152 -34% London Royal Free RAL01 94 282 -188 -67% London St George's RJ701 196 91 105 115% London West RQN02 223 569 -346 -61% Manchester RI - RDU RM574 49 161 -112 -70% Middlesbrough RCJAT 72 238 -166 -70% Norwich RM102 100 172 -72 -42% Nottingham RCSLB 640 479 161 34% Oxford RNX02 74 435 -361 -83% Plymouth RK950 81 154 -73 -47% Portsmouth RHU02 87 174 -87 -50% Preston RMF01 46 290 -244 -84% www.renal.org/kidney-patient-reported-experience-measure Salford RM301 196 269 -73 -27% Sheffield RK7CC 128 508 -380 -75% Shrewsbury RLZ01 53 138 -85 -62% Southend RAJ01 22 48 -26 -54% Stevenage RAQ01 307 456 -149 -33% Stoke RJE01 80 186 -106 -57% Sunderland RLNGH 37 179 -142 -79% Truro REF12 57 107 -50 -47% Wirral - Arrowe Park RBL14 35 254 -219 -86% Wolverhampton RL403 26 105 -79 -75% York RCB55 50 125 -75 -60% Table A2: Northern Ireland Main Unit Difference Main Unit 2020 2019 Code n % Antrim (Northern Trust) 24027 20 65 -45 -69% Belfast 2020 30 132 -102 -77% Newry (Southern Trust) 33020 9 97 -88 -91% Ulster 7021 12 151 -139 -92% Western Trust (NI) 45021 23 104 -81 -78% Table A3: Wales Main Unit Difference Main Unit 2020 2019 Code n % Bangor RQBAU 45 43 2 5% Cardiff RRBBV 519 24 495 2063% Clwyd RKGA1 71 39 32 82% Swansea RQHC7 279 198 81 41% Wrexham RKHA4 54 44 10 23% Table A4: Scotland Main Unit Difference Main Unit 2020 2019 Code n % Aberdeen SNC01 52 103 -51 -50% Dumfries and Galloway SYC02 51 4 47 1175% Dundee STC01 23 91 -68 -75% Edinburgh SSC02 59 113 -54 -48% Glasgow SGC04 218 290 -72 -25% Inverness SHC01 21 53 -32 -60% Kilmarnock SAC02 15 18 -3 -17% Kirkcaldy SFC01 23 79 -56 -71% Lanarkshire SLC01 36 40 -4 -10% www.renal.org/kidney-patient-reported-experience-measure Figure A1: Centre Responses in 2020 Compared to 2019 www.renal.org/kidney-patient-reported-experience-measure Appendix B: Proportion of Kidney PREM Responses for each Treatment Group by Centre Tables B1-B5 below display the number of Kidney PREM responses received as a proportion of those patients registered at each centre for each treatment group. The UK Renal Registry only holds data for those patients who have received a transplant, or who are treated with dialysis, so all others have been excluded. The Kidney PREM data was collected in the autumn of 2020, whereas the UK Renal Registry patient numbers were recorded at the end of 2019. In a survey of this type, 10-30% response is generally expected, so response levels above 30% are remarkable and below 10% are low. Caution should be used when interpreting statistics where the absolute number of responses is less than 20 within any particular group, unless the centre is small such that the sample is less than one fifth of the patients in that centre. Table B1: England Home Centre/Satellite Peritoneal Transplant Total RRT Renal Haemodialysis Haemodialysis Dialysis Unit Proportion Proportion Proportion Proportion Proportion N N N N N (%) (%) (%) (%) (%) Basldn 2 2 85 45.2% 9 45% 2 1.9% 98 30.4% Bham 3 3.9% 129 9.6% 6 2.3% 35 2.1% 173 5.2% Bradfd 1 16.7% 16 5.7% 5 14.7% 9 2.2% 31 4.2% Brightn 20 62.5% 165 38.4% 40 72.7% 78 14.4% 303 28.6% Bristol 2 12.5% 44 9.4% 4 6.3% 30 3.2% 80 5.4% Camb 2 6.7% 10 3.5% 2 7.1% 21 1.9% 35 2.4% Carlis 0 23 20.7% 2 5.6% 7 4.5% 32 10.6% Carsh 3 8.6% 159 19% 12 17.4% 13 1.6% 187 10.6% Chelms 0 8 7% 7 22.6% 1 0.9% 16 6.1% Colchr 0 32 22.1% 0 1 33 22.8% Covnt 2 1 19 5.4% 3 3.7% 9 1.5% 33 3.1% Derby 5 8.6% 21 8.8% 2 3.2% 12 4.1% 40 6.1% Donc 1 2 69 38.1% 9 36% 5 3.8% 84 24.6% Dorset 1 6.7% 159 55% 3 9.1% 18 4.1% 181 23.4% Dudley 2 38 17.4% 11 30.6% 29 26.1% 80 21.9% Exeter 5 23.8% 118 26.6% 34 40.5% 17 3.1% 174 15.9% Glouc 0 25 11.1% 8 27.6% 91 34.1% 124 23.6% Hull 0 45 12.9% 8 16.3% 10 2% 63 7% Ipswi 0 1 0.7% 2 4.8% 5 2.1% 8 1.9% Kent 10 52.6% 192 45.7% 18 35.3% 26 4% 246 21.6% L Barts 10 55.6% 196 18.9% 21 9.2% 162 11.8% 389 14.6% L Guys 15 34.1% 152 22.8% 28 52.8% 290 18.7% 485 21% L Kings 8 44.4% 208 34.3% 64 67.4% 10 1.9% 290 23.3% L Rfree 0 34 4.6% 8 4.8% 21 1.5% 63 2.7% L St.G 0 103 34.3% 8 18.2% 40 8% 151 17.7% L West 5 17.2% 71 5.1% 13 8.3% 100 4.9% 189 5.2% www.renal.org/kidney-patient-reported-experience-measure Leeds 1 3.8% 72 13% 9 13.4% 40 3.7% 122 7.1% Leic 13 24.1% 335 34.8% 21 16.5% 29 2% 398 15.4% Liv Ain 4 30.8% 92 60.9% 5 27.8% 0 101 48.1% Liv Roy 13 36.1% 9 2.5% 4 12.5% 25 3.1% 51 4.2% M RI 3 3.9% 16 3.2% 2 2.6% 19 1.3% 40 1.9% Middlbr 0 51 14.8% 3 9.4% 14 2.5% 68 7.2% Newc 0 24 7.3% 19 31.7% 23 3% 66 5.6% Norwch 2 14.3% 75 25.3% 1 2.1% 14 3.1% 92 11.4% Nottm 7 22.6% 34 9.4% 21 27.6% 183 24.4% 245 20.1% Oxford 0 32 7% 3 5.3% 30 2.1% 65 3.3% Plymth 0 56 44.4% 3 7.1% 16 4.5% 75 14.1% Ports 3 4.3% 18 3% 18 20.5% 32 2.8% 71 3.8% Prestn 2 4.1% 21 4.1% 1 2.4% 14 1.9% 38 2.8% Redng 1 12.5% 136 43.6% 7 12.5%