Guide for Patient Navigators A SUPPLEMENT TO THE ONCOLOGY PATIENT NAVIGATOR TRAINING: THE FUNDAMENTALS Cancer Instituute Oncology Patient Navigator Training: The Fundamentals George Washington University (GW) Cancer Institute © 2015 TABLE OF CONTENTS WELCOME ............................................................................................................................. i Acknowledgements ............................................................................................................... ii An Overview of the Training ................................................................................................. iv MODULE 2: AN OVERVIEW OF PATIENT NAVIGATION AND COMPETENCIES…………………..1 Principles of Patient Navigation ............................................................................................ 2 Patient Navigator Competencies .......................................................................................... 3 Relevant Articles on Patient Navigation ............................................................................... 7 Resources for Patient Navigators ......................................................................................... 7 References ............................................................................................................................ 8 MODULE 3: THE BASICS OF HEALTH CARE Lesson 1: Medical Terminology ........................................................................................... 10 Prefixes, Roots and Suffixes .................................................................................................. 11 Common Words Used in Cancer ........................................................................................... 18 Medical Terminology Cheat Sheet ........................................................................................ 19 Resources for Patient Navigators ......................................................................................... 21 References ............................................................................................................................ 22 Lesson 2: Cancer Basics ........................................................................................................ 23 Defining Cancer ..................................................................................................................... 24 Cancer Risk Factors and Prevention ..................................................................................... 27 Screening and Testing to Detect Cancers ............................................................................. 29 Cancer Staging....................................................................................................................... 31 Cancer Treatment ................................................................................................................. 31 Tips for Selecting a Complementary Health Practitioner ..................................................... 35 Resources for Patient Navigators ......................................................................................... 36 Resources for Patients .......................................................................................................... 36 References ............................................................................................................................ 38 Lesson 3: Clinical Trials ......................................................................................................... 41 FAQs About Clinical Trials ..................................................................................................... 42 Patient Protections ............................................................................................................... 46 Oncology Patient Navigator Training: The Fundamentals George Washington University (GW) Cancer Institute © 2015 The Navigator Role in Clinical Trials ...................................................................................... 47 Helping Patients Understand Clinical Trials .......................................................................... 48 Possible Questions to Ask Patients ....................................................................................... 48 How to Find Clinical Trials ..................................................................................................... 49 Resources for Patient Navigators ......................................................................................... 50 Resources for Patients .......................................................................................................... 50 References ............................................................................................................................ 51 Lesson 4: Impact of Cancer .................................................................................................. 53 Physical, Psychosocial, Practical and Spiritual Impacts ........................................................ 54 Issues Unique to Adolescents and Young Adults (aged 15‐40) ............................................ 55 Issues Unique to Those Living with Advanced Cancer .......................................................... 55 Post‐Treatment Survivorship ................................................................................................ 56 Resources for Patient Navigators and Patients .................................................................... 58 References ............................................................................................................................ 59 Lesson 5: U.S. Health Care System ...................................................................................... 62 Cancer Care Delivery ............................................................................................................. 63 Overview of Health Care Specialists ..................................................................................... 64 Overview of Oncology Specialists ......................................................................................... 67 Mental Health Professionals ................................................................................................. 67 Resources for Patient Navigators ......................................................................................... 68 References ............................................................................................................................ 69 Lesson 6: Health Care Payment and Financing ................................................................... 71 A Dictionary of Common Health Insurance Terms ............................................................... 72 Types of Health Insurance and Eligibility .............................................................................. 76 Federal Poverty Guidelines ................................................................................................... 77 Health Plan Type Comparison ............................................................................................... 78 Affordable Care Act ............................................................................................................... 79 Resources for Patient Navigators ......................................................................................... 80 Resources for Patients .......................................................................................................... 80 References ............................................................................................................................ 81 Oncology Patient Navigator Training: The Fundamentals George Washington University (GW) Cancer Institute © 2015 MODULE 4: THE BASICS OF PATIENT NAVIGATION Lesson 1: The Role of the Patient Navigator………………………………………………………………….. 83 The Patient Navigator’s Role ................................................................................................ 84 Sample Patient Navigator Job Description ........................................................................... 85 Possible Barriers .................................................................................................................... 87 Patient Navigator Duties ....................................................................................................... 88 A Day in the Life of a Patient Navigator ................................................................................ 89 Resources for Patient Navigators ......................................................................................... 91 References ............................................................................................................................ 92 Lesson 2: Patient Assessment…………………………………………………………………………………………94 The 5 A’s ................................................................................................................................ 96 Sample Patient Intake Form ................................................................................................. 97 Barriers Assessment Tool ...................................................................................................... 98 Tips for Building Rapport ...................................................................................................... 99 Tips for Asking and Assessing ..............................................................................................