Prepared for De Dwa Da Dehs Ney>s Aboriginal Health Centre, Ontario Federation of Indian Friendship Centres, Hamilton Executive Director’s Aboriginal Coalition, and the Our Health Counts Governing Council by: Janet Smylie, Michelle Firestone, Leslie Cochran, Conrad Prince, Sylvia Maracle, Marilyn Morley, Sara Mayo, Trey Spiller and Bella McPherson April 4 ACKNOWLEDGEMENTS This project was about enhancing community ways of gathering urban Aboriginal health information, and as such, could never have existed without the active participation and vital enthusiasm of hundreds First Nations community members living in the City of Hamilton. It is the intention of this report to honour the generosity of your participation and we therefore dedicate this report to members of the First Nations community in Hamilton. Special thank-you’s to all the members of the First Nations community in Hamilton who participated, Donna Lyons, Connie Siedule, Lisa Pigeau, Jessica Hill, Betty Kennedy, Dennis Compton, Mandy Berglund, Chester Langille, the Hamilton Executive Directors Aboriginal Coalition, the Social Planning and Research Council of Hamilton, Gordon Gong, Cindy Sue McCormack, Renee Wetselaar, Crystal Burning, Amye Annett, Ashly MacDonald, Trisha McDonald, Diane Therrien, Alisha Hines, Pat O’Campo, Rick Glazier, Kelly McShane, Roseanne Nisenbaum, Dionne Gesink Law, Cyprian Wejnert, and Brandon Zagorski. This project was funded by the Ontario Federation of Indian Friendship Centres, the Ministry of Health and Long-Term Care Aboriginal Health Transition Fund, and the Centre for Research on Inner City Health (CRICH) at Saint Michael’s Hospital. The Institute for Clinical Evaluative Sciences (ICES) contributed the costs of the in-house ICES data analysis and Dr. Smylie was supported by a Canadian Institutes for Health Research New Investigator in Knowledge Translation award during the course of the project. This study was supported by the Institute for Clinical Evaluative Sciences ICES( ), which is funded by an annual grant from the Ontario Ministry of Health and Long-Term Care (MOHLTC). The opinions, results and conclusions reported in this paper are those of the authors and are independent from the funding sources. No endorsement by ICES or the Ontario MOHLTC is intended or should be inferred. OUR HEALTH COUNTS GOVERNING COUNCIL Tungasuvvingat Tungasuvvingat Inuit Inuit Your next appointment is: _____________________________________ Tungasuvvingat Inuit Your next appointment is: _____________________________________ Family Family Health Health Team Team Date:Date: _______________________________ _______________________________ ᑐᑐᑐᑐᑐᑐᑐ ᑐᖓᓱᕝᕕᖓᑦ ᑐᖓᓱᕝᕕᖓᑦ ᑐᑐᑐᑐ ᐃᓄᐃᑦ ᐃᓄᐃᑦ Date: _______________________________ ᐃᐃᐃᐃᐃ ᐃᓚᒌᓄᑦ ᐃᐃᐃᐃᐃᐃᐃᐃᐃᐋᓐᓂᐊᓯᐅᕐᕕᒃ ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Tungasuvvingat Inuit #300, 24 Selkirk St Tungasuvvingat Inuit Time:Time: _______________________________ _______________________________Your next appointment is: Ann Duggan, MD, FCFP, _____________________________________MPH Tungasuvvingat Inuit Time: _______________________________Your next appointment is: _____________________________________ #300,Ottawa, 24 ON, Selkirk K1L St. 0A4 Ottawa, ON, K1L 0A4 Family Family Health Health Team Team Phone: (613)-740-0999 Colleen Arngna’naaq Comment:Comment: ___________________________ ___________________________Date: _______________________________ Phone: (613)-740-0999 Fax: (613) ᑐᑐᑐᑐᑐᑐᑐ- 740 -0991 ᑐᖓᓱᕝᕕᖓᑦ ᑐᖓᓱᕝᕕᖓᑦ ᑐᑐᑐᑐ ᐃᓄᐃᑦ ᐃᓄᐃᑦ Date: _______________________________ Community Health Researcher [email protected]: (613)-740-0991 ᐃᐃᐃᐃᐃHepatitus ᐃᐃᐃᐃᐃᐃᐃᐃᐃ C ᐃᓚᒌᓄᑦ ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ #300, 24 Selkirk St Tungasuvvingat Inuit Ann Duggan, MD, FCFP, MPH Time:Time: _______________________________ _______________________________ 297 Savard Ave, *Please give 24 hour notice if cancelling an appointment* #300,Ottawa, 24 ON, Selkirk K1L St. 0A4 Ottawa, ON, K1L 0A4 *Please give 24 hour notice if cancelling an appointment* Phone: (613)-740-0999Ottawa, ON K1L 7S1 Comment: ___________________________ Phone: (613)-740-0999Tel: (613) Fax: 749-4500 (613)- 740Ext. 21-0991 Colleen Arngna’naaq Comment:Comment: ___________________________ ___________________________ Community Health Researcher [email protected]: (613)-740-0991 Fax: (613) 749-8713 Hepatitus C Tungasuvvingat Inuit [email protected] Your next appointment is: _____________________________________ Tungasuvvingat Inuit www.tungasuvvingatinuit.ca *Please give 24 hour notice if cancelling an appointment* Family Health Team 297 Savard Ave, *Please*Please give 24give hour 24 notice hour noticeif cancelling if cancelling an appointment* an appointment* Ottawa, ON K1L 7S1 ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ Date: _______________________________ Tel: (613) 749-4500 Ext. 21 ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Fax: (613) 749-8713 Tungasuvvingat Inuit Time: _______________________________ Connie Siedule, Director of Health [email protected] Your next appointment is: _____________________________________ #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 www.tungasuvvingatinuit.ca Family Health Team Comment: ___________________________ Phone: (613)-740-0999 Fax: (613) - 740 -0991 ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ Date: _______________________________ [email protected] ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Connie Siedule, Director of Health Time: _______________________________ *Please give 24 hour notice if cancelling an appointment* #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Phone: (613)-740-0999 Fax: (613)-740-0991 Comment: ___________________________ [email protected] Tungasuvvingat Inuit Your next appointment is: _____________________________________ *Please give 24 hour notice if cancelling an appointment* Family Health Team 5 Date: _______________________________ ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Dr. Indu Gambhir Tungasuvvingat Inuit Time: _______________________________Your next appointment is: _____________________________________ #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Family Health Team Comment: ___________________________ Phone: (613)-740-0999 Fax: (613) - 740 -0991 ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ Date: _______________________________ [email protected] ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Dr. Indu Gambhir Time: _______________________________ *Please give 24 hour notice if cancelling an appointment* #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Phone: (613)-740-0999 Fax: (613)-740-0991 Comment: ___________________________ [email protected] Tungasuvvingat Inuit Your next appointment is: _____________________________________ *Please give 24 hour notice if cancelling an appointment* Family Health Team Date: _______________________________ ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Heather Burke, Medical Receptionist Tungasuvvingat Inuit Time: _______________________________Your next appointment is: _____________________________________ #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Family Health Team Comment: ___________________________ Phone: (613)-740-0999 Fax: (613) - 740 -0991 ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ Date: _______________________________ [email protected] ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Heather Burke, Medical Receptionist Time: _______________________________ *Please give 24 hour notice if cancelling an appointment* #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Phone: (613)-740-0999 Fax: (613)-740-0991 Comment: ___________________________ [email protected] Tungasuvvingat Inuit Your next appointment is: _____________________________________ *Please give 24 hour notice if cancelling an appointment* Family Health Team Date: _______________________________ ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Aigah Attagutsiak, Case Manager/ Interpreter Tungasuvvingat Inuit Time: _______________________________Your next appointment is: _____________________________________ #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Family Health Team Comment: ___________________________ Phone: (613)-740-0999 Fax: (613) - 740 -0991 ᑐᖓᓱᕝᕕᖓᑦ ᐃᓄᐃᑦ Date: _______________________________ [email protected] ᐃᓚᒌᓄᑦ ᐋᓐᓂᐊᓯᐅᕐᕕᒃ Aigah Attagutsiak, Case Manager/ Interpreter Time: _______________________________ *Please give 24 hour notice if cancelling an appointment* #300, 24 Selkirk St. Ottawa, ON, K1L 0A4 Phone: (613)-740-0999 Fax: (613)-740-0991 Comment: ___________________________ [email protected] *Please give 24 hour notice if cancelling an appointment* We gratefully acknowledge the financial contributions to this project from the Ministry of Health and Long-Term Care, Ontario Federation of Indian Friendship Centres and St. Michael’s Hospital. We would like to acknowledge the award given to Dr. Janet Smylie by the CIHR New Investigator Award in Knowledge Translation. TABLE OF CONTENTS 8 EXECUTIVE SUMMARY 16 PROJECT OVERVIEW Introduction Objectives Project Development Project Governance Research Team Hamilton Site 22 METHODS Community Based Participatory Research Concept Mapping Respectful Health Survey Respondent Driven Sampling ICES Data Linkage Community Implementation 29 RESULTS Concept Mapping Respectful Health Survey Data ICES Data Linkage 77 IMPLICATIONS FOR URBAN ABORIGINAL HEALTH POLICY AND PRACTICE References APPENDIX A — Community – SMH Research Agreement APPENDIX b — ICES data sharing agreement APPENDIX c — First Nations Adult and Child Survey Tool APPENDIX d — Concept Mapping Statements 7 8 EXECUTIVE SUMMARY COUNTS HEALTH OUR INTRODUCTION TO THE OUR HEALTH COUNTS PROJECT – ADDRESSING THE GAPS IN URBAN FIRST NATIONS HEALTH DATA IN ONTARIO: Over % of Ontario’s Aboriginal population lives in urban areas.¹ Public health assessment data for this population is almost non-existent, despite its size (, persons). Th is is primarily due to the inability of Ontario’s current health information