1 … SHADOW REPORT FOR THE REVIEW OF THE STATE OF CHILE BEFORE THE COMMITTEE ON THE RIGHTS OF PERSONS WITH DISABILITIES IN THE 15TH SESSION -MARCH 2016- SHADOW REPORT PREPARED BY: Corporación Circulo Emancipador de Mujeres y Niñas con Discapacidad de Chile-CIMUNIDIS; Corporación Humanas, Centro Regional de Derechos Humanos y Justicia de Género; Agrupación Lésbica Rompiendo el Silencio; Agrupación Líderes con Mil Capacidades; Centro de Estudios de la Mujer –CEM; Coordinadora Autónoma Contra la Violencia; Corporación Chilena de Prevención del SIDA – ACCIONGAY; Corporación Coordinadora Nacional de Familiares, Usuarios y Amigos de Personas con Afecciones de Salud Mental –CORFAUSAM; Corporación Opción; Fundación Down 21 Chile; Fundación Henry Dunant América Latina; Fundación Instituto de la Mujer; Fundación Iguales; Fundación Observatorio Contra el Acoso Callejero -OCAC Chile; Fundación Rostros Nuevos; Litigio Estructural en Derechos Humanos –LEASUR; Movimiento Acción Migrante –MAM; Observatorio de Derechos Humanos y Legislación; Observatorio de Género y Equidad; Unión Nacional de Ciegos de Chile - UNCICH. 2 1. The preparation of the present report has been coordinated by CIMUNIDIS and Corporacion Humanas. Besides these two organizations, the following members of the Network of Civil Society Organizations for Human Rights participated in the drafting of the document: Agrupación Lésbica Rompiendo el Silencio, Agrupación Líderes con Mil Capacidades, Centro de Estudios de la Mujer – CEM, Coordinadora Autónoma Contra la Violencia, Corporación Chilena de Prevención del SIDA – ACCIONGAY, Corporación Coordinadora Nacional de Familiares, Usuarios y Amigos de Personas con Afecciones de Salud Mental – CORFAUSAM, Corporación Opción, Fundación Down 21 Chile, Fundación Instituto de la Mujer, Fundación Iguales, Fundación Observatorio Contra el Acoso Callejero – OCAC Chile, Fundación Rostros Nuevos, Litigio Estructural en Derechos Humanos – LEASUR, Movimiento Acción Migrante – MAM, Observatorio de Derechos Humanos y Legislación, Unión Nacional de Ciego de Chile –UNCICH. A. Purpose and General State Obligations (Articles 1 -4) Article 1. Purpose. 2. Since the ratification of the Convention of the Rights of Persons with Disabilities (hereafter the Convention or CRPD) the state has not adjusted the local legislation to the treaties and international standards about the people with disabilities. It has neither publicly disseminated the right of the people with disabilities nor the national and international mechanisms for their protection. All this has had a negative impact in the exercise of their rights for the people with disabilities and has precluded the generation of jurisprudence, rules and regulations consistent with the Convention. 3. The State of Chile retains pejorative terms in laws and valid statutory instruments to refer to people with disabilities, as an example, the Art. 1447 of the Civil Code indicates that “that are absolutely incapable insane, prepubescent minors, deaf and deaf mute people that cannot make themselves understood clearly”. Likewise, it maintains laws that go in the opposite direction of the rights guaranteed by the Convention, among them, Art. 465 of the Civil Code: “The adult that lives in a habitual state of insanity will be denied the administration of his or her property, regardless he or she has intervals of sanity. The guardianship of the insane can be testamentary, legitimate or dative”; Art. 256 “Cannot be judges: 1st those who are under interdiction because of insanity or prodigality; 2nd the deaf, the blind and the mute”; *…+” and Art 465 of the Courts Statutory Codes “Cannot be notary public: 1st those who are under interdiction because of insanity or prodigality; 2nd the deaf, the blind and the mute”; Law 19,620 of 1999, that promulgates the Norms for the Adoption of Minors “ The child can be adopted, *…+ when the father or the mother or the responsible caregivers are morally or physically disqualified to provide the personal care…”; Law 19,947 of 2004, that establishes the new Law of Civil Marriage ”Will not be able to contract civil marriage: *…+ 3rd Those who have impaired judgment; and those who, provided a properly diagnosed psychic anomaly or disorder are incapable in absolute terms to form the community of life that marriage entails”, among others1. 4. The previous legislation limits the exercise of the rights of people with disabilities in all spheres of life; impedes the free will, and limits the equal participation in all realms of life. 5. The Constitution in force in the country, promulgated during the civil-military dictatorship in 1980, does not make reference to people with disabilities. The current government has initiated the process of drafting a new constitution to be founded in democracy and with the participation of the 3 people. This becomes an opportunity to acknowledge people with disabilities as a specific group in society to whose rights must be guaranteed. 6. Recommendations: a) Constitutional acknowledgment of people with disabilities according to the concepts and principles established in the Convention as part of the functional diversity of the human condition. Maximum emphasis should be given to the right to equality and non- discrimination, and the respect to their inherent dignity, including the right to make their own decisions. b) To adapt the national legislation to the standards of the Convention, and warranting the direct participation and involvement of the people with disabilities and their organizations giving proper consideration to their suggestions and comments. c) Ensure the social minimums to people with disabilities, educating for social and political participation, and empowerment through education in human rights, protecting and strengthening civil society organizations as a social guarantee for the sustainable development of democracy. Article 4. General State Obligations. 7. On February 2010 the Law 20,422 was promulgated establishing the normative about equal opportunity and social inclusion of people with disabilities (here after LIOISPD), that establishes as main principles independent life, universal access, universal design, intersectorality, participation and social dialogue. However, the law does not establish the necessary measures for the development of a national level institutionalization to guarantee that the principles become effective and efficient measures for the people with disabilities. At the same time, the law has not represented the full harmonization of the national legislation with the Convention. 8. Chile lacks a clear and institutionalized mechanism for the consulting and participation of the organizations of people with disabilities. The state insists in neglecting its obligation to provide systematic public information, including the elaboration of diagnostic reports, periodic studies of prevalence and statistical reports, about the people with disabilities that are disaggregated by age, ethnic or racial origin, with gender perspective. 9. Regarding the sources for the information available, the main source is the National Study on Disabilities (ENDISC) based on the International Classification of Functioning, Disability, and Health. The first study was carried out in 2004 and from the second, carried out twelve years later, only recently some results are being provided. On January 20th, 2016 some preliminary results about the adult surveyed population were reported. It has been announced that the rest of the results obtained will be informed during 2016. It should be noted that the survey is only representative of the population that lives in private homes. The estimates do not reflect people living in collective dwellings, institutions or homeless. Henceforth, new policy design will be elaborated based on a limited population of people with disabilities excluding precisely those groups more at risk and more excluded. Especially worrisome is the situation of people sentenced and serving time in jail that the ENDISC did not include. 10. The findings of the ENDISC II identifies- considering only the adult population over 18 years old – 1,523,949 people in a situation of mild or moderate disability, representing an 11.7% of the national total population and 1,082,965 people in a situation of severe disability, representing an 8.3% of the 4 population. We acknowledge that this second study means an improvement because it disaggregates the information by sex, age brackets, members of indigenous peoples and geographical area. However, until all data of the study is provided is not possible to report a thorough analysis as of to date. 11. Regarding psycho-social disabilities, the National Socioeconomic Characterization Survey (CASEN) of 2013 identified 222.981 people. From these, 92,000 are in a situation of poverty, financial or multidimensional. From the Matrix of Inclusion 2015 of the Hogar de Cristo2, from these 92,000 people around 11,000 have access to specialized professional help at least once a year, what accounts for a gap in access of a 87,6% for the poorest and more excluded people with psychosocial and mental disabilities. 12. The official information makes specific groups of the population invisible as is the case of the homeless people with psychosocial disabilities. The national assessment of the people living in the streets of 2011 identified 12, 255 people. 1,886 of them have some mental health problem (16.6%). The assessment allowed to define the social programs necessary to satisfy the specific needs of these