inspired care Responding to the changing needs of our clients CASEY HOUSE ANNUAL REPORT 2014–2015 Board of Directors, Senior Team Long Service 2014-15 Stephanie Karapita, Chief Volunteer Awards James Alberding Executive Officer 5 yrs Guy Bethell, Vice Chair Karen de Prinse, Chief Nursing Dawn Brereton Executive and Director of Clinical Joseph DeFoa Programs Randy Coates Karen de Prinse, Chief Nursing Steven Endicott, Chief Jennifer Dewling Executive, Director of Clinical VISION Development Officer Gord Hamilton Programs Claire Morris, Director of Finance Joyce Fenuta, St. Michael’s and Operation Representative 10 yrs Todd Ross, Director, Community Mark Garber Development & Information Joe & Heather Toby Kelly Glass Services MISSION Bryn Gray Ann Stewart, Medical Director 15 yrs We provide excellent, compassionate, interprofessional health Caroline Hubberstey Grant Maxted services to people living with HIV/AIDS who have evolving Mark Johnston Long Service complex health issues. We contribute our unique experience to a Sandeep Joshi Staff Awards 20 yrs broader system of HIV/AIDS care, education and research. Stephanie Karapita, Chief 5 yrs Rotraut Noble Executive Officer Katherine Burress Mark Lachmann Kathleen Sandusky ORGANIZATIONAL VALUES 25 yrs Debbie McDonald Jennifer Wellman Pat Bass Casey House embraces: Leighton McDonald Stephanie McKay James Owen, St. Michael’s • Hope and compassion 15 yrs Lisa Sommers Representative Kevin Gough Arthur Wong • The wisdom and life experiences David Simmonds, Secretary Shereena Hoosein brought by people living with HIV/AIDS Gillian Stacey, Chair Ann Stewart, Medical Director • Quality 20 yrs Cynthia Stewart • Safety Leleith Lawson Darryl Sturtevant Jennifer Naldrett • Integrity and accountability Priya Tandon Christopher Walker, Treasurer • A home-like environment that is warm and welcoming 2 Casey House – Inspired Care Who we are CASEY HOUSE YESTERDAY, In keeping with our founding TODAY & TOMORROW values, it is these people that Casey House serves today: The most sick, Casey House is a specialty HIV/AIDS the most marginalized, the most hospital with community programs alone. including home nursing care and outreach. Founded in 1988, we were the Continuing to pioneer HIV care in our first freestanding HIV/AIDS facility in community, in late 2016 Casey House is Canada and the first freestanding scheduled to open a greatly expanded hospice in Ontario. At that time, there facility that will feature a new model of were no effective treatments for care, including a new Day Health HIV/AIDS and so Casey House Program. pioneered the hospice care movement in These exciting advancements will Canada, leading the way in providing launch a brand new approach to compassionate end-of-life care. compassionate, inspired health care for Since that time, wonderful advances in people living with complex experiences HIV treatment have evolved and a of HIV/AIDS. diagnosis of HIV is no longer a terminal To learn more about our present-day disease, if a person is able to access care and our future plans, please visit effective treatment. However, many www.casehouse.com. people in our community face barriers to care, or have developed complications that result in a very complex burden of illness. ANNUAL REPORT 2014-2015 3 Letter from Casey House Board Chair and Chief Executive Officer What’s at the 2014/15 Selected heart of change Achievements: Adapting to change is at the root of Casey clients who use substances. Our fundraising • Started construction of our • Established a formal House’s pioneering health care leadership. team, as a result of an extensive strategic new home in collaboration partnership with Toronto When Casey House opened in 1988, we planning process, is working to ensure more with the Ministry of Health Public Health for our staff to were the first freestanding AIDS hospice sustainable revenue streams by shifting the and Long-Term Care and receive training on how to in Ontario. Health care providers from current reliance on event revenue to support Infrastructure Ontario better support clients who use across Canada and beyond visited Casey from leadership and individual gifts. substances • Raised $8.7 million to date via House not just to learn how we cared for While Casey House continues our inpatient, the Capital Campaign to fund • Provided placements to 32 people who were dying of AIDS, but home care, and outreach programs, we are our share of the project; efforts students from nursing, simply to learn about our innovative, excited to have taken a bold step forward in continue to achieve our $10 medicine, social work, holistic and compassionate approach to Casey House’s evolution with the start of million goal physiotherapy and public end of life care. construction of our new home. Our new health programs • Received an average overall Today our original mission of hospice care has building will enable us to respond to the satisfaction score of 9/10 from • Participated in eight research transformed from end of life care into helping changing and escalating need for advanced our clients projects, with Casey House people live with the medical complexities of HIV/AIDS care by providing space for an serving as Principal HIV and aging, which can include additional innovative model of HIV/AIDS care that • 100% of volunteers rated their Investigator for four burdens such as cancer, heart disease, mental includes a Day Health Program. Our staff experience as excellent or illness, cognitive impairment and substance teams have already begun the detailed very good • Reached agreement with St. use. Just as our clients must continuously preparatory work necessary to ensure that we Michael’s for the provision of • Distributed 100 boxed sets of adapt in order to cope effectively with their will be ready when the new building is information technology our Long-Term Care Video illness, Casey House must also adapt our scheduled to open in late 2016. services model of care. In the decades to come, people Series to long-term care As we begin this new chapter in Casey House’s living with HIV/AIDS will require more care facilities across Canada, via • Completed a strategic plan for history, we are grateful to our donors and and services. This has significant implications funding from MAC AIDS Fund Casey House Foundation to community of support for having the vision to for the types of services Casey House offers and Canadian Association for ensure more sustainable support us. Each and every day, the expertise and our work with other organizations to help HIV Research revenue streams by shifting and compassion of our entire staff and the current reliance on event meet the care needs of people living with • Completed three specific volunteer team allows Casey House to provide revenue to revenue from HIV/AIDS. quality initiatives including the type of care our clients need and deserve. leadership and individual gifts Our skilled and dedicated staff team are Together, we are on the path to great things. hand hygiene, an enhanced continuously learning and adapting. This year, admission package, and two Gillian Stacey we introduced an expanded inpatient care pathways for anxiety and Chair, Casey House Board of Directors admission package and began a partnership depression via Ministry of Health and Long-Term Care with Toronto Public Health for our staff to Stephanie Karapita funding for late-career receive training on how to better support Chief Executive Officer, Casey House registered nurses 4 CaseyCasey House House – – Inspired Inspired Care Care Breaking new ground in HIV/AIDS health care! On March 30, 2015 hundreds from Premier Kathleen Wynne remarked, the Casey House community came “Our government is proud to support this together for a very special project, and to build on Casey House’s groundbreaking ceremony to mark history of care and compassion.... I think the start of construction on our new that all of us who have lost people we cared 58,000-square-foot home for about to this disease are thinking about compassionate HIV/AIDS health care them today, so I want to acknowledge all at the corner of Jarvis and Isabella the people who you’re all thinking about.” Streets. “Let’s recognize as we break ground today WATCH THE that it’s the beginning of so many new VIDEO things that we have to keep on working to ensure that there aren’t gaps in care,” said “Casey House has a well-deserved Toronto-Centre MPP Glen Murray. “We reputation for 27 years of compassionate have to work to ensure that people are not and innovative health care for people living marginalized, that people never have to go with HIV/AIDS,” said Casey House Board through what we went through in those Chair Gillian Stacey in her welcome. early days, and that we never forget where “Our new building will allow Casey House we came from, so that we never ever give up to introduce a new model of health care, to the fight.” more than double our care capacity and Casey House’s new home for improve the health and well-being of the compassionate HIV/AIDS care is thousands of men and women who will scheduled to open at the end of 2016. come through our new doors in the future.” Please continue to check Said client Todd Kaighin, “After more www.caseyhouse.com for than a decade of planning and consultation, updates and renderings of the I am so delighted Casey House will now new facility plans and photos have a new home. A place where as construction progresses. explanations are not required, and where March 30: Breaking ground on the redevelopment are (L-R): Karen de Prinse, Chief Nursing Executive compassion and support are always given. and Director of Clinical Programs; Todd Kaighin, client; Jack Manchester, grandson of June Callwood; There are more of us than ever growing old Councillor Kristyn Wong-Tam; Minister Glen Murray; Premier Kathleen Wynne; Gillian Stacey, Chair, Board of Directors; Jaime Watt, Chair, Capital Campaign; John Fraser, Vice Chair, Toronto with HIV, and many of us will need the kind Central LHIN Board of Directors; Mark Bonham, Lead Donor; Siamak Hariri, Architect; Stephanie of care Casey House provides.” Karapita, Chief Executive Officer.