Data Collection Survey on Disability and Development in Indonesia Final Report September 2015 Japan International Cooperation Agency (JICA) KRI International Corp. HM Tekizaitekisho LLC JR 15-073 Data Collection Survey on Disability and Development in Indonesia Final Report September 2015 Japan International Cooperation Agency (JICA) KRI International Corp. Tekizaitekisho LLC Exchange Rate USD 1 = JPY 124.21 IDR 1 = JPY 0.00922 (JICA Rate in August 2015) Data Collection Survey on Disability and Development in Indonesia Final Report Abbreviations and Acronyms Abbreviation English/Indonesian ADB Asian Development Bank AHA Centre ASEAN Coordinating Centre for Humanitarian Assistance on disaster management AIPJ Australia-Indonesia Partnership for Justice APJII Indonesian Internet Service Providers Association ASB Arbeiter-Samariter-Bund ASD Autistic Spectrum Disorders ASEAN Association of South-East Asian Nations AUD Australian Dollar AusAID Australian Agency for International Development BAPPEDA Badan Perencanaan Pembangunan Daerah (Regional Development Planning Agency) BAPPENAS Badan Perencanaan Pembangunan Nasional (State Ministry of National Development Planning) BASARNAS Badan Search And Rescue Nasional (National Search and Rescue Agency) BBRVBD Balai Besar Rehabilitasi Vokasional Bina Daksa (National Vocational Rehabilitation Center) BNPB Badan Nasional Penanggulangan Bencana (National Disaster Management Authority) BPBD Badan Penanggulangan Bencana Daerah (Regional Disaster Management Agency) BPJS Badan Penyelenggara Jaminan Sosial (Social Security Administrative Bodies) BPS Badan Pusat Statistik (Central Bureau of Statistics) CBM Christian Blind Mission CBR Community-Based Rehabilitation CBRDTC Community-Based Rehabilitation Development and Training Center CEMIJ Community Emergency Management Institute Japan CIQAL Center for Improving Qualified Activity in Life of People with Disability CRPD Convention on the Rights of Persons with Disabilities CSR Corporate Social Responsibility DAISY Digital Accessible Information System DESA Department of Economic and Social Affairs DET Disability Equality Training DF/R Draft Final Report DFAT Department of Foreign Affairs and Trade (Australia) DINSOS Dinas Sosial (Local Department of Social Welfare) DPD Dewan Perwakilan Daerah (Regional Representative Council) DPOs Disabled People’s Organizations DPR Dewan Perwakilan Rakyat (People’s Representative Council) ESCAP Economic and Social Commission for Asia and the Pacific F/R Final Report FGD Focused Group Discussion FY Fiscal Year (January to December in Indonesia) GERKATIN Gerakan untuk Kesejahteraan Tunarungu Indonesia (Movement of the Welfare of Deaf Indonesia) GDP Gross Domestic Product GIZ Deutsche Gesellschaft fur Internationale Zusammenarbeit (Germany) HI Handicap International HIV/AIDS Human Immunodeficiency Virus/ Acquired Immune Deficiency Syndrome HWDI Himpunan Wanita Disabilitas Indonesia (Indonesian Association of Women with Disabilities) IC/R Inception Report ICF International Classification of Functioning, Disability and Health ICT Information and Communication Technology i Data Collection Survey on Disability and Development in Indonesia Final Report Abbreviation English/Indonesian IDR Indonesian Rupiah ILO International Labour Organization IMF International Monetary Fund ISSA International Social Security Association JDF Japan Disability Forum JKN Jaminan Kesehatan Nasional (National Health Insurance Program) KARA Kesehatan Anak Remaja (Child Health) KARINA KAS Karitas Indonesia Keuskupan Agung Semarang KEMDIKBUD Kementerian Pendidikan dan Kebudayaan (Ministry of Education and Culture) KEMENAKER Kementerian Ketenagakerjaan (Ministry of Labor) KEMENDESA Kementerian Desa Pembangunan Daerah Tertinggal dan Transmigrasi (Ministry of Villages/Underdeveloped Regions Development and Migration) KEMENHUB Kementerian Perhubungan (Ministry of Transportation) KEMENKES Kementerian Kesehatan (Ministry of Health) KEMENKUMHAM Kementerian Hukum dan Hak Asasi Manusia (Ministry of Law and Human Rights) KEMENPPPA Kementerian Pemberdayaan Perempuan dan Perlindungan Anak (Ministry of Women’s Empowerment and Child Protection) KEMPUPERA Kementerian Pekerjaan Umum dan Perumahan Rakyat (Ministry of Public Works and (PU) Public Housing) KEMSOS Kementerian Sosial (Ministry of Social Affairs) KESREM Kesehatan Remaja (Youth Health) KIA Kesehatan Ibu dan Anak (Maternal and Child Health) KOMINFO Kementerian Komunikasi dan Informatika (Ministry of Communication and Informatics) LK3 Lembaga Konsultasi Kesejahteraan Keluarga (Family Welfare Advisory Bureau) LKS Lembaga Kesejahteraan Sosial (Social Welfare Institution) MCH Maternal and Child Health MOU Memorandum of Understanding MPR Majelis Permusyawaratan Rakyat (People's Consultative Assembly) MSBP Modul Sosial Budaya dan Pendidikan (socio-cultural and education survey module) NGO Non-governmental Organization OT Occupational Therapist PERTUNI Persatuan Tunanetra Indonesia (Indonesia Blind Union) PKH Program Keruarga Harapan (conditional cash transfer program for households with school-age children) PMI Palang Merah Indonesia (Indonesia Red Cross) PPLS Pendataan Program Perlindungan Sosial (Data Collection of Social Protection Programs) PSKS Penyandang Masalah Kesejahteraan Sosial (Persons with Social Welfare Problems) PT Physical Therapist PU Pekerjaan Umum (Public Works or a shortened name of KEMPUPERA) RISKESDAS Riset Kesehatan Dasar (Basic Health Survey) RRI Radio Republik Indonesia (Radio Republic of Indonesia) SAR Search and Rescue SATGANA Satuan Penanggulangan Bencana (Disaster Management Unit) SIBI Sistem Isyarat Bahasa Indonesia (Indonesian sign language) SIGAB Sasana Integrasi dan Advokasi Difabel (Center of Integration and Advocacy for Disability) [NGO] SME small and medium-sized enterprises SRC-PB Satuan Reaksi Cepat Penanggulangan Bencana STKS Sekolah Tinggi Kesejahteraan Sosial (Social Welfare University, Bandung) SUSENAS Survei Sosial Ekonomi Nasional T/F Task Force ii Data Collection Survey on Disability and Development in Indonesia Final Report Abbreviation English/Indonesian TAGANA Taruna Siaga Bencana (Yough Volunteer Group for Disaster Management) TATTs Technical Assistance and Training Teams TKSM Tenaga Kesejahteraan Sosial Masyarakat (District Social Welfare Workers) TNP2K Tim Nasional Percepatan Penanggulangan Kemiskinan (National Team to Accelerate Poverty Reduction) TVRI Televisi Republik Indonesia (Television Republic of Indonesia) UNFPA United Nations Population Fund (formerly United Nations Fund for Population Activities) USAID United States Agency for International Development UUD Undang-Undang Dasar YAI Yayasan Autisma Indonesia (Autism Foundation of Indonesia) YAKKUM Yayasan Kristen Untuk Kesejahteraan Umum YPAC Yayasan Pembinaan Anak Cacat (Foundation for Development of Children with Disabilities) iii Data Collection Survey on Disability and Development in Indonesia Final Report Data Collection Survey on Disability and Development in Indonesia Final Report Table of Contents Chapter 1 Outline of the Survey .................................................................................................................... 1-1 1.1 Background ....................................................................................................................................... 1-1 1.2 Objectives of the Survey ................................................................................................................... 1-2 1.3 Agenda of the Survey ........................................................................................................................ 1-2 1.4 Methodology ..................................................................................................................................... 1-3 1.4.1 Workflow and Schedule ................................................................................................................ 1-3 1.4.2 Reports.......................................................................................................................................... 1-5 Chapter 2 Overview of Indonesia .................................................................................................................. 2-1 2.1 Socio-economic Context and Disaster Situations in Indonesia ......................................................... 2-1 2.1.1 Socio-economic Circumstances .................................................................................................... 2-1 2.1.2 Natural Disaster ............................................................................................................................ 2-4 2.2 Administrative Boundaries of Indonesia ........................................................................................... 2-6 2.3 A Matter of Local Autonomy ............................................................................................................ 2-8 Chapter 3 Current Situation of Disability and Development in Indonesia .................................................... 3-1 3.1 Definition of Disability and Persons with Disabilities ...................................................................... 3-1 3.2 Situation of Persons with Disabilities - Attitudes Towards Disability- ............................................. 3-2 3.3 Disability Related Indicators (Basic Indicators) ............................................................................... 3-5 3.3.1 Number of Persons with Disabilities (by Province, Gender, Age Group, Residential Area) .........................................................................................................................