Qualiti Workshop 1 Ethics

Qualiti Workshop 1 Ethics

<p> Qualitative Research Methods in the Social Sciences: Innovation, Integration and Impact</p><p>Qualitative Research and Ethical Approval One day workshop, 14th March 2007, Queens’s University Belfast</p><p>Social Sciences Research Ethics Resources</p><p>The following list of resources has been compiled in part using information available from the following centres that provide web resources with information on social science research ethics:  Developing a Framework for Social Science Research Ethics - ESRC project at the Science and Technology Studies Unit (SATSU), University of York and the School of Social Sciences and Law, Oxford Brookes University http://www.york.ac.uk/res/ref/kb.htm  Lancaster University - Unpacking the Moral Maze: Ethical Guidelines for Social Researchers http://www.lancaster.ac.uk/fss/resources/ethics/codes.htm  University of Southampton - Informed Consent and the Research Process project http://www.sociology.soton.ac.uk/Proj/Informed_Consent/ - including references from the Annotated Bibliography on Informed Consent, by Wiles, R., Charles, V., Heath S., & Crow., G.</p><p>Ethical Guidelines and Guidance</p><p>The Association for Qualitative Research - Best Practice Rules and Guidelines http://www.aqr.org.uk/refsection/recruitment-bestpract.shtml</p><p>Association of Social Anthropologists of the UK and the Commonwealth - Ethical Guidelines for Good Research Practice http://www.theasa.org/ethics/ethics_guidelines.htm</p><p>Barnardo’s – Statement of Ethical Research Practice http://www.barnardos.org.uk/ethical.pdf</p><p>British Association for Applied Linguistics (BAAL) - Recommendations on Good Practice http://www.baal.org.uk/about_goodpractice_full.pdf</p><p>British Educational Research Association (BERA) - Revised Ethical Guidelines for Educational Research http://www.bera.ac.uk/publications/guides.php</p><p>British International Studies Association (BISA) - Guidelines for Good Professional Conduct http://www.bisa.ac.uk/code.htm</p><p>1 The British Psychological Society – Code of Conduct http://www.bps.org.uk/the-society/ethics-rules-charter-code-of-conduct/</p><p>British Society of Criminology - Code of Ethics for Researchers in the Field of Criminology http://britsoccrim.org/ethical.htm</p><p>The British Sociological Association: Statement of Ethical Practice http://www.britsoc.co.uk/equality/63.htm</p><p>Central Office for Research Ethics Committees (COREC) - Guidance on the NHS REC application http://www.corec.org.uk/recs/guidance/guidance.htm</p><p>The Council for Industry and Higher Education – Ethical Issues and Higher Education http://www.cihe-uk.com/ethics.php</p><p>Department of Health – Research Governance Framework for Health and Social Care http://www.dh.gov.uk/PolicyAndGuidance/ResearchAndDevelopment/Research AndDevelopmentAZ/ResearchGovernance/fs/en</p><p>The Economic and Social Research Council - Research Ethics Framework http://www.esrc.ac.uk/ref</p><p>The Glasgow Centre for the Child and Society – Code of Practice on Research ethics http://www.gccs.gla.ac.uk/docs/pdf/CodeOfPractice.pdf</p><p>The Market Research Society – Code of Conduct http://www.mrs.org.uk/standards/codeconduct.htm</p><p>Medical Research Council (MRC) - Ethics and Research Governance Policy and Guidance http://www.mrc.ac.uk/PolicyGuidance/EthicsAndGovernance/index.htm</p><p>National Children’s Bureau (NCB) - Guidelines for Research http://www.ncb.org.uk/Page.asp?originx1838gs_81330095622449n31q531441</p><p>Nuffield Council on Bioethics – Public Health: Ethical Issues http://www.nuffieldbioethics.org/go/ourwork/publichealth/introduction</p><p>Oral History Society – Ethical Guidelines http://www.ohs.org.uk/ethics/ethics.html</p><p>Office for Research Ethics Committees in Northern Ireland – Guidance on the HPSS REC</p><p>2 http://www.orecni.org.uk</p><p>Royal College of Nursing – Research Ethics RCN Guidance for Nurses http://www.rcn.org.uk/publications/pdf/researchethics.pdf</p><p>The Royal Geographical Society/Institute of British Geographers - Research Ethics and a Code of Practice http://www.rgs.org/NR/rdonlyres/CBD85FFC-9B56-4C2F-A615- 7B41DD02C6B8/0/ResearchEthicsCodeofPractice190606.pdf</p><p>The Social Research Association (SRA) – Ethical Guidelines http://www.the-sra.org.uk/ethical.htm</p><p>Socio-Legal Studies Association - First Re-statement of Research Ethics http://www.slsa.ac.uk/download/ethics_drft1.pdf</p><p>The Welcome Trust – Guidelines on Good Research Practice http://www.wellcome.ac.uk/doc_wtd002757.html</p><p>3 Academic centres concerned with research ethics</p><p>University of Birmingham – Centre for the Study of Global Ethics http://www.globalethics.bham.ac.uk/</p><p>The Economic and Social Research Council Methods Programme – Links to Ethical Guidelines and UK Resource Centres http://www.ccsr.ac.uk/methods/links/</p><p>University of Southampton - Informed consent and the research process http://www.sociology.soton.ac.uk/Proj/Informed_Consent/</p><p>Economic and Social Data Service (ESDS) – Ethical and Legal Considerations http://www.esds.ac.uk/aandp/create/ethical.asp</p><p>University of Lancaster - Ethics and Ethical Practice in Social Science Research http://www.lancs.ac.uk/fass/ihr/events/esrcResearchTrainingProgramme.html</p><p>Recent references on research ethics</p><p>Alderson, P. (2000) Ethics Review of Social Research: ten topics for social researchers to consider. Education-line database.</p><p>Alderson, P. & Morrow, V. (2004) Ethics, social research and consulting with children and young people, Barkingside, Barnado’s</p><p>Butler, I. (2002) A code of ethics for social work and social care, British Journal of Social Work, 32, 239-248</p><p>Christensen, P (2004) Children’s participation in ethnographic research: Issues of power and representation, Children & Society, 18, 2, 165-176</p><p>Christensen, P & Prout, A (2002) Working with ethical symmetry in social research with children, Childhood, 9, 4, 477-497</p><p>Christians, C. G. (2005) ‘Ethics and politics in qualitative research’, in N. K. Denzin and Y. S. Lincoln (eds.) Handbook of qualitative research, Third edition. Thousand Oaks CA: Sage.</p><p>Coomber, R. (2002) ‘Signing your life away?: why Research Ethics Committees (REC) shouldn’t always require written confirmation that participants in research have been informed of the aims of a study and their rights – the case of criminal populations (Commentary). Sociological Research Online 7,1.</p><p>Cloke, P. (2002) Deliver us from evil? Prospects for living ethically and acting politically in human geography, Progress in Human Geography 26(5) 587-604.</p><p>4 Cutcliffe JR, Ramcharan P (2002) Leveling the playing field? Exploring the merits of the ethics-as-process approach for judging qualitative research proposals, Qualitative Health Research 12 (7): 1000-1010 </p><p>Eby, M.A. (2000) Producing evidence ethically, in Gomm R & Davies C (eds) Using evidence in health and social care, London, Open University Press, 108- 128</p><p>Ensign, J. (2003) Ethical issues in qualitative health research with homeless youths. Journal of Advanced Nursing 43,1: 43-50</p><p>Epstein, M. & Wingate, D.L. (2007) Outsourcing the NHS REC system - Is the NHS research ethics committees system to be outsourced to a low-cost offshore call centre? Reflections on human research ethics after the Warner Report, Journal of Medical Ethics 33 (1): 45- 47</p><p>Forbat L, Henderson J (2003) "Stuck in the middle with you": The ethics and process of qualitative research with two people in an intimate relationship, Qualitative Health Research 13 (10): 1453-1462 </p><p>Fraser J (2004) A case report: ethics of a proposed qualitative study of hospital closure in an Australian rural community, Family Practice 21 (1): 87-91 </p><p>Grinyer, A. (2001) Ethical dilemmas in nonclinical health research from a UK perspective. Nursing Ethics 8,2: 123-132</p><p>Haimes, E. (2002) What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations. Bioethics 16,2: 89-113.</p><p>Hammersley M (2006) Are Ethics Committees Ethical? Qualitative Researcher, 2, 4-7 </p><p>Hannigan, B. & Allen D. (2003) A tale of two studies: research governance issues arising from two ethnographic investigations into the organisation of health and social care. International journal of nursing studies 40: 685-695</p><p>Harden, J., Scott, S., Backett-Milburn, K. & Jackson, S. (2000) 'Can't talk, won't talk?: methodological issues in researching children. Sociological Research Online 5 (2)</p><p>Hay, I. (2003) Ethical practice in geographical research, in Clifford, N.J. and Valentine, G (Eds) Key Methods in Geography. London: Sage, 37-54.</p><p>Herdman, E. (2000) Reflections on “making somebody angry”. Qualitative Health Research 10,5: 671-702.</p><p>5 Hill, M. (2005) Ethical considerations in researching children’s experiences, in Greene, S. & Hogan, D. (eds) Researching children’s experience: methods and approaches, London, Sage, 61-86</p><p>Hill, M., Davis, J., Prout, A., & Tisdall, K. (2004) Moving the participation agenda forward, Children & Society, 18, 77-96</p><p>Hoeyer K, Dahlager L, Lynoe N. (2005) Conflicting notions of research ethics: the mutually challenging traditions of social scientists and medical researchers, Soc Sci Med. Oct;61(8):1741-9. Journal of Advanced Nursing 43 (1), 43–50. </p><p>Katz J (2006) Ethical escape routes for underground ethnographers, American Ethnologist 33 (4): 499-506 </p><p>Kennedy, J.E. (2006) Grey Matter: Ambiguities and Complexities of Ethics in Research. Journal of Academic Ethics 3:2-4, 143</p><p>Kent, G. (2000) Ethics and qualitative research, Psychologist 13 (1)</p><p>King, N.M.P & Churchill, L.R. (2001) Ethical principles guiding research on child and adolescent subjects, Journal of Interpersonal Violence, 15, 710-724</p><p>Krayer A (2003) Fieldwork, participation and practice: Ethics and dilemmas in qualitative research., Sociology of Health & Illness 25 (1): 134-136 </p><p>Lawton, J. (2001) Gaining and maintaining consent: ethical concerns raised in a study of dying patients Qualitative Health Research 11: 69-73.</p><p>Lincoln, Y. S. (2005) ‘Institutional review boards and methodological conservatism: the challenge to and from phenomenological paradigms’, in N. K. Denzin and Y. S. Lincoln (eds.) Handbook of Qualitative Research. Thousand Oaks CA: Sage.</p><p>Mauthner, M., Birch, M., Jessop, J., and Miller, T. (eds.) (2002) Ethics in qualitative research. London: Sage.</p><p>Mulhall, A.(2003) In the field: notes on observation in qualitative research. Journal of Advanced Nursing 41 (3): 306-313.</p><p>O’Kane, C. (2000) The development of participatory techniques: facilitating children’s views about decisions which affect them in Christensen, P. & James, A. (eds) Research with children: perspectives and practices, london, Falmer Press, 136-159</p><p>Orb A, Eisenhauer L, Wynaden D (2001) Ethics in qualitative research, Journal of Nursing Scholarship 33 (1): 93-96 </p><p>6 Philipp, E. (1999) Ethics committees and qualitative research, New Zealand Medical Journal 112 (1094)</p><p>Ramcharan, P & Cutcliffe, JR (2001) Judging the ethics of qualitative research: considering the 'ethics as process' model, Health and Social Care in the Community, 9, 6, 358-366</p><p>Richards, H.M. & Schwartz, L.J. (2002) Ethics of qualitative research: are there special issues for health services research? Family Practice 19 (2): 135-139.</p><p>Sayers GM (2007) Research ethics - Should research ethics committees be told how to think? JOURNAL OF MEDICAL ETHICS 33 (1): 39-42</p><p>Schuklenk, U. (2000) Protecting the vulnerable: testing times for clinical research ethics Social Science and Medicine 51:6: 969-977.</p><p>Seymour, J. & Skilbeck, J. (2002) Ethical considerations in researching user views European Journal of Cancer Care 11: 215-219.</p><p>Small, R. (2001) Codes are not enough: what philosophy can contribute to the ethics of educational research. Journal of Philosophy of Education 35 (3): 387- 406.</p><p>Smith, D.M. (ed) (2000) Moral Geographies: ethics in a world of difference. Edinburgh: Edinburgh University Press.</p><p>Smythe, W E & Murray, M J (2000) Owning the story: ethical considerations in narrative research, Ethics and Behaviour, 10, 4, 311-336</p><p>Thompson, P. (2003) Towards ethical practice in the use of archived transcripted interviews: a response International Journal of Social Research Methodology 6,4: 357-360.</p><p>Truman, C. (2003) Ethics and the ruling relations of research production Sociological Research Online 8(1)</p><p>Truscott D (2004) Fieldwork, participation and practice: Ethics and dilemmas in qualitative research, Science Education 88 (5): 811-813 </p><p>Valentine, G. (2003) Geography and ethics: in pursuit of social justice - ethics and emotions in geographies of health and disability research, Progress in Human Geography 27(3) 375-380.</p><p>Valentine, G., Butler, R. & Skelton, T. (2001) The ethical and methodological complexities of doing research with ‘vulnerable’ young people. Ethics, Place and Environment 4:117-178</p><p>Wainwright, P. & Saunders, J. (2004) What are local issues? The problem of the local review of research, Journal of Medical Ethics 30 (3): 313-317 </p><p>7 Williamson, G. & Prosser, S. (2002) Action research: politics, ethics and participation. Journal of Advanced Nursing 40(5): 587-593.</p><p>Williamson, E., Kent, J., Goodenough, T. & Ashcroft R. (2002) Social Science gets the ethics treatment. Sociological Research Online 7,4</p><p>8</p>

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