Appendix 1. Identified Patient Reported Outcome Measures, by Domain

Appendix 1. Identified Patient Reported Outcome Measures, by Domain.PAIN1. PROMIS-Pain Intensity SF 3a2. PROMIS-Pain Interference SF 6b3. PROMIS-Pain Interference SF 8a (alternative to 6b)4. PROMIS Pain Behavior SF 7a5. PROMIS PAIN Behavior6. Visual Analog Scale for Pain (VAS Pain)7. Numeric Rating Scale for Pain (NRS Pain)8. McGill Pain Questionnaire (MPQ) 9. McGill Pain Questionnaire (MPQ) Short Form10. SF-36 Bodily Pain11. Measure of Intermittent and Constant Arthritis (ICOAP) – KNEE 12. Measure of Intermittent and Constant Arthritis (ICOAP) – HIP 13. KOOS-Pain subscale14. HOOS-Pain subscale15. WOMAC-Pain subscale 16. BRFSS Pain question17. AIMS2-Pain subscale18. Brief Pain Inventory (BPI) -- Short Form 19. Chronic Pain Grade Scale – public domain20. Lequesne Index of Severity for OA of the Hip (LISOH) 21. Lequesne Index of Severity for OA of the Knee (LISOK) 22. Oxford Knee Score-Pain subscale 23. Oxford Hip Score-Pain subscale 24. Harris Hip Score – SA and IA25. Nottingham Health Profile pain scale 26. Knee Pain Screening Tool FUNCTION1. PROMIS Mobility2. PROMIS Function SF3. PROMIS Physical Functioning SF 10a4. PROMIS Physical Functioning SF 20a5. KOOS-PS6. KOOS Knee Survey7. HOOS Hip Survey8. HOOS-PS9. IKDC Subjective Knee Evaluation Form10. KOS-ADL11. Lysholm Knee Scoring Scale12. Oxford Knee Score13. WOMAC14. Activity Rating Scale15. Tegner Activity Scale16. HAQ-2017. MHAQ18. SF-36 Physical Function subscale  fee required 19. Lequesne Index of Severity for OA of the Hip (LISOH)20. AIMS221. AIMS2 SF22. MMWR NRS23. Lequesne Index of Severity for OA of the Hip (LISOH)24. AAOS Hip and Knee Outcomes Questionnaire25. Oxford Hip Score26. Lower Extremity Functional Scale 27. EQ-5D-3L  fee requiredFATIGUE1. PROMIS Fatigue Short Form 8a2. PROMIS Fatigue Short Form 7a 3. Bristol RA Fatigue Scale Multi-Dimensional Questionnaire (BRAF MDQ) 4. Bristol RA Fatigue Numerical Rating Scales (BRAF NRS) 5. Checklist Individual Strength Therapy (CI20R) -- 20 item 6. Checklist Individual Strength Therapy (CIS8R) -- 8 item 7. Fatigue Severity Scale (FSS) 8. Functional Assessment of Chronic Illness Therapy Fatigue (FACIT-F) 9. Multidimensional Assessment of Fatigue (MAF) 10. Multidimensional Fatigue Inventory (MFI-20) 11. Profile of Fatigue (ProF)12. Short Form 36 Vitality (SF 36 VT) 13. Visual Analog Scale (VAS) – Fatigue 14. Numerical (10com) 0-10 scale (Stanford)SLEEP1. PROMIS Sleep Disturbance SF 8a2. PROMIS Sleep Disturbance SF 8b3. PROMIS Sleep Related Impairment SF 8a4. Medical Outcome Study (MOS) Sleep scale5. Epworth Sleepiness Scale (ESS)6. Functional Outcome of Sleep Questionnaire (FOSQ)7. Functional Outcome of Sleep Questionnaire Short Form (FOSQ-SF)8. Insomnia Severity Index9. Pittsburgh Sleep Quality Index (PSQI) 10. Berlin Questionnaire (for sleep apnea)11. STOP-BANG Sleep Apnea Questionnaire12. General Sleep Disturbance Scale13. Leeds Evaluation Questionnaire14. VAS sleep 15. Chronic Pain Sleep Inventory (CPSI) 16. Poor Sleep Quality 17. Sleep Impairment Index (SII) 18. Nottingham Health Profile sleep subscale 19. BPI interference with sleep item Appendix 2. Contact websites for Reviewed Patient Report Outcome Measures, by Domain. PAIN1. PROMIS-Pain Intensity SF 3a – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx 2. PROMIS-Pain Interference SF 6b – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx3. PROMIS-Pain Interference SF 8a (alternative to 6b) – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx4. Numeric Rating Scale for Pain (NRS Pain) – Stanford Patient Education Research Center  http://patienteducation.stanford.edu/research/ 5. Measure of Intermittent and Constant Arthritis (ICOAP) KNEE – available through OARSI website  http://www.oarsi.org/index2.cfm?section=Publications_and_Newsroom&content=Indexes 6. Measure of Intermittent and Constant Arthritis (ICOAP) HIP – available through OARSI website  http://www.oarsi.org/index2.cfm?section=Publications_and_Newsroom&content=Indexes7. KOOS-Pain subscale -- http://www.koos.nu/ (click on KOOS under “Questionnaires, user’s guides and scoring files – click on English to secure the pdf -- go to the 9-item Pain scale)8. HOOS-Pain subscale -- http://www.koos.nu/ (click on HOOS under “Questionnaires, user’s guides and scoring files – click on English to secure the pdf -- go to the 9-item Pain scale)9. AIMS2-Pain scale -- http://www.proqolid.org/instruments/arthritis_impact_measurement_scales_aims2? private=yes&fromSearch= (under “Copy of the original questionnaire”, click on “AIMS2 in English for the USA – go to the 5-item Pain scale, questions 38-42) FUNCTION10. PROMIS Mobility – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx11. PROMIS Function SF – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx12. KOOS-PS -- http://www.koos.nu/ (click on KOOS-PS under “Questionnaires, user’s guides and scoring files – click on English to secure the pdf)13. HOOS-PS -- http://www.koos.nu/ (click on HOOS-PS under “Questionnaires, user’s guides and scoring files – click on English to secure the pdf)14. MHAQ – www.iche.edu/newsletter/MHAQ.pdf 15. MMWR NRS (Cheng) -- yes/no question “Have you ever been told by a doctor or other health professional that you have some form of arthritis, rheumatoid arthritis, gout, lupus, or fibromyalgia?” http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5939a1.htm 16. AAOS Hip and Knee Outcomes Questionnaire – www.aaos.org/research/outcomes/Hip_Knee.pdf FATIGUE15. PROMIS Fatigue Short Form 8a – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx16. PROMIS Fatigue Short Form 7a – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx17. Bristol RA Fatigue Numerical Rating Scales (BRAF NRS) -- available from the developer  http://www1.uwe.ac.uk/hls/research/healthandclinicalresearch/researchareas/longtermconditions/ fatiguescales/brafscales.aspx 18. Fatigue Severity Scale (FSS) – requires permission from the author (Lauren B Krupp, MD)  email [email protected] 19. Functional Assessment of Chronic Illness Therapy Fatigue (FACIT-F) – access through the FACIT.org website  http://www.facit.org/FACITOrg/Questionnaires 20. Multidimensional Assessment of Fatigue (MAF) – register at the author’s website  http://www.son.washington.edu/research/maf/ 21. Numeric Rating Scale – Stanford Patient Education Research Center  http://patienteducation.stanford.edu/research/ SLEEP20. PROMIS Sleep Disturbance SF 8a – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx21. PROMIS Sleep Disturbance SF 8b – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx22. PROMIS Sleep Related Impairment SF 8a – contact the PCORI website for access to short forms  https://www.assessmentcenter.net/PromisForms.aspx23. Medical Outcome Study (MOS) Sleep scale -- http://www.rand.org/health/surveys_tools/mos/mos_sleep.html 24. Insomnia Severity Index (ISI) -- contact Charles M. Morin, PhD for permission  [email protected]25. Pittsburgh Sleep Quality Index (PSQI) -- permission for use from Daniel J. Buysse, MD  [email protected] 26. Berlin Questionnaire (for sleep apnea) -- http://www.google.com/url? sa=t&rct=j&q=&esrc=s&source=web&cd=1&ved=0CC8QFjAA&url=http%3A%2F %2Fwww.commondataelements.ninds.nih.gov%2FCRFs%2FBerlin%2520Questionnaire.pdf%3FCrfId%3DF0781&ei=jE3pUaTnFdWv4AOC4YHgCg&usg=AFQjCNE9en_t7wqzwFa7q8l9qkRN_xf-3w&sig2=VGetAhBmT0tarJWdtlgVmA&bvm=bv.49478099,d.dmg27. STOP-BANG Sleep Apnea Questionnaire -- http://www.google.com/url? sa=t&rct=j&q=&esrc=s&source=web&cd=1&ved=0CC8QFjAA&url=http%3A%2F%2Fwww.sleepapnea.org%2Fassets%2Ffiles%2Fpdf%2FSTOP-BANG%2520Questionnaire.pdf&ei=y03pUe3iOJXj4AOL14GoAg&usg=AFQjCNEX3ODJ4A1xbWgSLKw- o9s47mnlFg&sig2=WDh7peKIfQ_6gHWuO14bRg&bvm=bv.49478099,d.dmg

Appendix 1. Identified Patient Reported Outcome Measures, by Domain

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