HSC Newsletter Atlantic Spring 2016 www.huntingtonsociety.ca ` RESOURCES & CHAPTER INFORMATION Atlantic News Prince Edward Island Chapter Prince Edward Island Chapter President: Danny Drouin Tel: (902) 856-2050 Chapter News [email protected] The Chapter is wrapping up our Amaryllis campaign and thanks all those who sold or purchased a kit this year. To learn more or offer Nova Scotia Chapter assistance for PEI events, contact Danny Drouin. President: Jim Russell Tel: (902) 576-5660 Nova Scotia Chapter [email protected] Chapter News Newfoundland YPAHD Chapter Member: Catherine Price Congrats to Shannon Olsen and other Halifax Chapter members – we Tel: (709) 832-7870 sold 17 cases of Amaryllis! We are also welcoming volunteers to help [email protected] as we plan for the upcoming National Conference in November! We are hoping to host an even better Conference than we hosted in 2001! HSC National Office Those interested in helping can contact Jim (902) 576-5660 151 Frederick Street, Suite 400 Kitchener, ON N2H 2M2 1-800-998-7398 Upcoming Events [email protected] Save the date! Halifax Indy: October 2, Kartbahn ______________________________ Bi-Annual HSC Conference: November 4-6, Harbourfront Holiday Inn The Nova Scotia & PEI Huntington Disease Resource Centre (NS/PEI - HDRC) located Newfoundland News in Halifax and The Newfoundland & Labrador Huntington Disease Resource Plans are underway for the 2016 Walk – for details or to help with Centre (NL-HDRC) located in St. John’s, planning, contact Catherine at [email protected]. offers the Huntington Society of Canada’s Family Services Program. Information Sessions: May 3-6 The Family Services Program includes: Jim Pollard will be travelling across the Atlantic region this May, sharing Information on HD and related his “Hurry Up and Wait” presentation. This presentation is great for community services caregivers, professionals, and those living with HD! There will also be a Short-term counselling chance to talk with HSC about Chapter Development in your area and Connecting families with community the upcoming conference! For details, email services through referral and advocacy [email protected]. Educational sessions to groups of professionals May 3: Halifax, Nova Scotia May 4: Moncton, New Brunswick Nova Scotia & PEI Huntington Disease May 5: Corner Brook, Newfoundland Resource Centre May 6: St. John’s, Newfoundland Barb Horner, Director 3845 Joseph Howe Drive, Suite 101 Halifax, NS B3L 4H9 Clinical Trials Tel: (902) 446-4803 Participating in an HD Clinical Trial is a personal choice; will help [email protected] advance medical research; and may get those involved early access to available 4 days per week a new promising treatment. Newfoundland & Labrador Huntington For locations and who to contact, visit: Disease Resource Centre www.huntingtonsociety.ca/clinical-trial-locations Elaine Smith, Director Unit 50, Hamlyn Road Plaza, Suite 433 Choosing to participate in clinical trials is a personal decision; the St. John's NL A1E 5X7 Society encourages those who are interested to consult with their HD Tel: 1-877-745-1155 Resource Centre Director or Family Services Worker to understand all [email protected] aspects of this decision. Available 2 days per week .