Information, Support Services and Resources Aboriginal and Torres Strait Islander Australian Centre for Grief and Bereavement Access Line (Medicare) Provides information on grief support for all ages and See Medicare carries a number of publications in its library and bookshop. T: 1800 642 066 Aboriginal Medical Service (AMS) T: 03 9265 2100 See National Aboriginal Community Controlled F: 03 9265 2150 Health Organisation (NACCHO) P: 253 Wellington Road, Mulgrave, Victoria, 3170 Angel Flight Australia grief.org.au A charity that co-ordinates non-emergency flights for financially and medically needy people. All flights are free Heartfelt and may involve patients or compassionate carers travelling Heartfelt is a volunteer organisation of professional to or from medical facilities anywhere in Australia. photographers from all over Australia and New Zealand T: 1300 726 567 (toll free) dedicated to giving the gift of photographic memories to families that have experienced stillbirths, premature T: 07 3620 8300 births or have children with serious and terminal illnesses. F: 07 3852 6646 Heartfelt is dedicated to providing this gift to families in P: PO Box 421, Fortitude Valley QLD 4006 a caring, compassionate manner. All services are provided angelflight.org.au free of charge. T: 1800 583 768 (Aust) Assistance Dogs Australia E: [email protected] Provides information about assistance dogs and their heartfelt.org.au availability in your area. Assistance Dogs aims to deliver freedom and independence to people with Australian Counselling Association physical disabilities. Provides an online directory of accredited counsellors T: 1800 688 364 and psychotherapists in Australia, including specialists in E: [email protected] grief counselling. P: PO Box 455, Engadine NSW 2233 T: 07 3356 4255 assistancedogs.org.au T: 1300 784 333 F: 07 3356 4709 P: PO Box 88, Grange QLD 4051 theaca.net.au 1 palliativecare.org.au/children Australian Funeral Directors Association Better Health Channel Can provide information on how to arrange a funeral and A website funded by the Victorian Government to contact details for accredited funeral service providers. provide the community with access to online health It also produces a booklet entitled: When a baby has died. related information. It has a section on funerals with a T: 03 9859 9966 summary of the issues to consider when planning a funeral. Its brochure Funerals — some issues explained is available F: 03 9819 7390 through its website. E: [email protected] P: GPO Box 4057, Melbourne VIC 3001 P: PO Box 291, Kew East VIC 3102 E: [email protected] afda.org.au betterhealth.vic.gov.au Australian Organ Donor Register Camp Quality Records patient consent details. It also contains a frequently A non-profit organisation committed to bringing hope asked questions section which briefly explains when organ and happiness to children living with cancer, their families and tissue donation can occur. and communities through recreational, educational and T: 1800 777 203 support programs. E: [email protected] T: 02 9876 0500 humanservices.gov.au/individuals/services/medicare/ T: 1300 662 267 (for your nearest office) australian-organ-donor-register F: 02 9869 0688 Bear Cottage E: [email protected] A hospice in New South Wales. It is a place where children P: Suite 6, 44–46 Oxford Street, Epping, NSW 2121 with a terminal condition and their families can stay for campquality.org.au respite care or end-of-life care in a home-like environment. Bear Cottage is located in Manly, Sydney, and takes referrals Cancer Council Australia from throughout New South Wales. A national non-government organisation which works to T: 02 9976 8300 prevent cancer and reduce illness, disability and death F: 02 9976 8303 caused by cancer. The council can provide information on cancer, links to patient support organisations E: [email protected] and specialists, and the Cancer Council Helpline P: PO Box 2500, Manly NSW 1655 (see below). The council has member organisations in each bearcottage.chw.edu.au state and territory. To find your local office visit its website. Cancer Council Helpline: 13 11 20 Bereavement Care Centre (8.30am – 6pm, Monday – Friday) The centre offers bereavement counselling and a range of E: [email protected] resources and information for bereaved adults and children. P: GPO Box 4708, Sydney NSW 2001 T: 1300 654 556 cancer.org.au E: [email protected] P: PO Box 835, Wyong NSW 2259 Canteen bereavementcare.com.au A national support organisation for young people aged 12–24 years living with cancer, and their families. T: 1800 226 833 (for your nearest office) P: PO Box 3821, Sydney NSW 2001 canteen.org.au 2 palliativecare.org.au/children Carers Australia/Carers Associations Centrelink Carers Australia is a not-for-profit national Provides information on how best to access a range of organisation which provides carers with information Australian Government programs for financial support. and education resources. Several of its resources As a carer you may be eligible for a number of payments are available in different languages. For family carer and services. support and counselling contact your state or territory T: 13 27 17 Carers Association. TTY: 1800 552 152 (hearing and speech impaired) T: 1800 242 636 (to access your local Association) TIS: 131 450 (local call rate) T: 02 6122 9900 centrelink.gov.au or humanservices.gov.au/individuals/ F: 02 6122 9999 centrelink P: Unit 1, 16 Napier Close, Deakin ACT 2600 Foreign language support and brochures are available at carersaustralia.com.au medicare.gov.au CareSearch Centrelink Indigenous Specific Supports An online resource providing access to evidence based Indigenous Australians living in regional and remote areas palliative care information and resources. The CareSearch can talk about Centrelink payments and services. website also provides information and resources T: 1800 136 380 about palliative care for Indigenous Australians and humanservices.gov.au/individuals/subjects/ information on state and national organisations involved support-indigenous-australians in Aboriginal health. T: 08 7221 8233 Centrelink Multicultural Services E: [email protected] Information in your own language, including free interpreter caresearch.com.au services for interviews and free translation of documents relating to Centrelink business. Centrelink Multilingual Call Centre for Genetics Education also allows you to speak to Centrelink in your own language. Information on specialist services, genetic counselling and This is not an interpreter service. You can call this service prenatal diagnosis. The centrehosts a directory to help you to have your questions answered directly by Centrelink find the closest genetic counselling unit. employees in your own language. Service in some languages is available by returning your call. F: 02 9906 7529 T: 13 12 02 E: [email protected] centrelink.gov.au P: PO Box 317, St Leonards NSW 1590 genetics.com.au Cochrane Australia An international not-for-profit organisation which offers Centre for Palliative Care Research and Education up-to-date information about the effects of healthcare The centre offers information on palliative care, including through evidence-based healthcare databases. However the definitions and/or words used in palliative care. It also has a information is highly technical in clinical detail and advice frequently asked questions section and information on who from a care team member may be required. can help. T: 03 9903 0366 T: 07 3646 1449 cochrane.org F: 07 3646 7942 E: [email protected] Commonwealth Carer Resource Centres P: Royal Brisbane and Women’s Hospital, Post Office, Operated by Carers Associations in each state and territory Herston QLD 4029 of Australia. They provide professional counselling, health.qld.gov.au/cpcre specialist advice and information. T: 1800 242 636 carersaustralia.com.au 3 palliativecare.org.au/children Commonwealth Respite and Carelink Centres Home and Distance Education Options Provide a single point of contact for carers seeking Home and distance education programs and resources are information and advice about centres for respite services available to support families that choose to educate their and support. These centres are run by a wide variety of child at home. Advice is available through the education community organisations across Australia. department in each state and territory T: 1800 052 222 (during business hours) curriculum.edu.au T: 1800 059 059 (for emergency respite support goodschools.com.au/start-here/choosing-a-school/special- outside standard business hours) needs/distance-education TTY: 1800 555 677 and ask for 1800 052 222 Hospitals may offer specialised hospital school programs to Speech-to-speech relay: 1800 555 727 and ask for assist your child in their education. Contact your care team 1800 052 222 or social worker for information and advice. Translating and Interpreting Service: 13 14 50 Good Grief E: [email protected] Has a Seasons for Growth program for children, carersaustralia.com.au (For contact details of the Network of young people or adults who have experienced Carer Associations in each state and territory) significant change or loss. It delivers a range of services, including activities for primary and high school students, Compassionate Friends Australia as well as adults. This program is available in a number Offers self-help support to families after