SABES ADA webinar series (Part 2 of 3) Overview of Disability and Etiquette: handouts Overview of Disability and Etiquette (PowerPoint, 36 pages) Common Myths and Misconceptions About Disability (Together We Rock! 4 p.) Basic Etiquette: People with Disabilities (1 p.) What Do We Mean By the Term “Disability”? (1 p.) Watch Your Language! (2 p.) Person-First versus Identity-First (2 p.) Addressing Mental Health Disorders in the Classroom (TEACH Magazine, 4 p.) How to Avoid “Inspiration Porn” (Forbes Magazine, 7 p.) Overview of Disability and Etiquette SABES Program Support professional development center Dani M. Scherer Ebony Vandross Curriculum and PD Specialist E-learning and Communications Associate SABES and World Education World Education [email protected] [email protected] SABES Program Support Professional Development Center Director of: ∑ Program Management LUANNE and Educational TELLER Leadership ∑ Digital Literacy ∑ Professional Licensure Director of: Support SANDY ∑ Career Pathways ∑ Advising GOODMAN ∑ Cultural and DANI Competence SCHERER ∑ ADA Resources and Training Institute for Community Inclusion University of Massachusetts, Boston David Hoff, M.S.W. Maria Paiewonsky Ed.D. Program Director, Institute for Program Manager/Transition Community Inclusion Specialist UMass Boston Institute for Community Inclusion 4 David Hoff Maria Paiewonsky Institute for Community Inclusion University of Massachusetts, Boston www.communityinclusion.org 5 Part 2 of a 3-Part Webinar Series 1. Students with Disabilities: Legal and Practical Issues 2. Disability Overview and Etiquette 3. Universal Design (January 22nd - 3:00 to 4:15) 6 DISCUSSION •When we say the term “disability”, what types of conditions come to mind? 7 • paralysis XAMPLES OF E • blindness or visual impairment ISABILITIES D • deafness or hard of hearing • intellectual disabilities • learning disabilities • psychiatric disabilities and mental health conditions • chemical sensitivity • epilepsy • head injuries • cerebral palsy • chronic health or physical issue • autism • HIV/AIDS 8 OLD • View/treat people with disabilities as DISABILITY “defective” in need of “fixing” PARADIGM • Disability = unable, incapable • Individual is to overcome limitations caused by disability in order to participate in society • Approach: out of sight, out of mind SOURCE: Robert Silverstein, Emerging Disability Policy Framework 9 10 11 NEW DISABILITY • Disability: natural part of human PARADIGM experience that in no way diminishes a person’s right to fully participate in all aspects of life • Mission of public policy: Fix environment, not individual SOURCE: Robert Silverstein, Emerging Disability Policy Framework 12 “My disability exists not because I use a wheelchair, but because the broader environment isn't accessible.” • Stella Young 13 14 15 16 • 12% of people in Massachusetts identify as having a disability • Self-awareness and self-perception of disability varies • Many disabilities are non-apparent or “hidden” • Impact of disability on person’s life varies 17 People with Disabilities Are More Likely to Be: • Unemployed • Live in poverty • Poorly educated • Socially isolated 18 1. People are defined by their disability. 2. People with disabilities are “courageous”, “inspirational”. 3. People with intellectual disabilities are “eternal children”. 4. People with disabilities are “special”. 5. People with disabilities should be pitied. 6. People with mental health issues are dangerous. 19 BASIC ETIQUETTE • Avoid stereotypes • Don’t presume someone does or does not have a disability • Don’t presume what someone needs or doesn’t need • Assume capability • Ask before helping • Don’t hesitate to ask • Respect and connect with the person as an individual • Respect people’s privacy • Don’t be patronizing 20 LANGUAGE: PEOPLE FIRST vs. IDENTITY FIRST 21 "The difference between the right word and the almost-right word is the difference between lightning and the lightning bug." • Mark Twain 22 PERSON FIRST • Use person first in a phrase LANGUAGE • Disability as a secondary aspect of a person • Examples: ‹”Person with a disability” ‹“Woman with cerebral palsy” ‹”Student with an intellectual disability” ‹Affirms person has value and worth, and disability is separate from self- worth 23 Identity • Use in a phrase First disability first Language • Disability as an inherent aspect of a person • Examples: ‹”A disabled person” ‹“Autistic person” ‹”Deaf person” ‹“I’m bipolar” ‹Recognizes, affirms, validates an individual’s identity as a disabled person 24 25 Tips for Navigating 26 THERE IS NO • Don’t presume “ONE SIZE • Set ground rules for equal FITS ALL” participation APPROACH • Cultivate a safe space for voicing and respecting different perspectives • If there are varying opinions, alternate facilitation language frequently 27 LANGUAGE THAT SHOULD • “Handicap” NEVER BE USED • “Impaired” • “Wheelchair bound” or “Confined to a wheelchair” • “Suffers from” • The “R” word 28 “I have a number of physical disabilities, and I have no preference. What matters to me is that the surrounding conversation indicates that whoever I’m talking with sees me as a person and respects me fully as such.” • Irina Greenman 29 The Best Term to Use to Describe Someone With a Disability? 30 ISSUES REGARDING SPECIFIC DISABILITIES ‹ Conduct research online ‹ There is an association for everything ‹ Use state and local resources 31 • Create an atmosphere of general openness and welcoming to all • Don’t be afraid of saying or doing the wrong thing • Remember: the individual is the best source of information 32 Discussion: Creating a Welcoming Atmosphere in the Classroom 33 34 How To Avoid “ Inspiration Porn” 1/7/20, 8)4 6 AM What Do We Mean By the Term “Disability”? Addressing Mental Health Disorders iBan thes Cilacs sEtroomi q– TuEAeCtHt Mea:g aPzinee ople with Disabilities 1/7/20, 12(35 PM “DisabCilityo” immoncludes a wnid e Mranyge tofh cosnd itaionns. d Misconceptions A fe40w ,8e7x6a mviepwless:| Nov 29, 2019, 07:12pm ! " # TUESDAY / JANUARY 0 7 , 2 0 2 0 1. Use “Person First” language as a default, but recognize that some people prefer • paralysis About Dis• achbemilitical seynsitivity (https:(/h/wttwp:w//(.whyotwtupwt:u/./tbweiw.tctweor.m.fca/ocumesbe/otre/otakec.achcomhmma/gat)ega)chmag) • “Idbelinntidntye sFsi orsr t”vi s ual impairment • epilepsy • Exademafplneesss: oPre hrsaonrd Fofirs hte:a “rpeingrs on with a disability” •not h“ethead diinsjuablrieesd” Ho w Ident Tify Foirs t:A “a blvindo peirsdon” “notI “penrsson pwhoi irs blaind”ti on Porn” • intellectual disabilities • cerebral palsy 2.( h•ttp “Ds://lteaiesacabhrmnaigln.icgty”om d) i sisa bAthinleidt irmoseesw tPu gelrnaenrgalConly actributorcepte d term •-- naotut "ishman dicap" • psycMythhiatris,c d stereoiDsiavberisliitiytype &s Iaesnncld u anmsioednn tstial ghmaealt hab out d•isab HilIiVty/A areID Sb arriers to the realization 3. Offering Assistance conditions Exploring odifs athbielit yh purmanactice sri, pgohlictsy, poofli tpic•eos , apnadlne cd uw lmtuithraen. yd iosabtherisli ties. The Magazine Articles ! Our Resources Blog Videos Photo Essay Store 1 1. PowerPoint • It is okay to offer assistance Disabled Peoples’ International $ •D isaAbsikli bety foreimp aprovicts pdieongp laes’si lsitvaencs ein a wide variety of ways, and the level of impact can range from minimal to extensive. In some cases, a person’s disability is a minor inconvenience, Myths and misconceptions about disability are common. These incorrect assumptions •s omOetnchien gthe th aoffet is rc foront raoslsliesdta tnchreo uhaghs bemeedni caactcieoptn,e od,r raesqku foirer si nssotmruce tsiionsmp laend aLdA cTaElpaStTria tIfySioS UnwEsha. Itn ki ondthe r arcea soeofsf,te aas nps iestrrtsaiggeoncn’es trdheeisd ape bbyirsliont yfe pwalara,ynt sla sa.c mk aojofr uronldee inr sttahenirdin livegs , aimnd/opactri nprg tehjueirdic abeil.it yPr to meaorntin a g negative 2. Common Myths and liMveinntalg He, atltoh &p Wealrl-tbiecingi p(hattptse:/ / tienac hamcag.ctiovmi/taircehsiv eis/nca ttehgoery /mceonmtal-hmeaulthn-weitlly-be,i nag)n, Populard to do many of the things that many non- 4.im (haRttgepes:/s/ptseae cochmtfa g.caldisolm /asaarchbilitysiviessti/cavetego isrdy/pe oavipu lacfr)eosr m(i.e o., fc andisecsr, imwhineealctiohainr sbe, ccrauutcshee sit, ccommureatensi cbaatironrie broars tod sf,u ll diestcab.)l easd ppeeorpslone talak pe rfopor egrrty.ant e Ud nline sths egiirve dani lsype licviefisc. and explicit permission, do not move, play ci tAiwzenshidith,dr ores puss forien tghe pMmeop.e nltea lw Hhoe ahalthv eD ais doirsabderislit Iyn. CTommonhe myths and stereotypes that Disabilities are often not apparent. Learning disabilities, psychiatric disabilities, epilepsy, and emergClases reprooeatm edly in society include the following assumptions. Misperceptions About Disability 5. mDuolt inpotle spcelte roros ipsl ayare w juithst aan fe win doifvi thdeu mala’sn yse drivisacbei lanitieimals tha. t are often “hidden”. Never presume that someone doesn’t have a disability just because it is not readily apparent. 6. Always direct your communication to the individual with a disability. If a person is accompanied, do not direct your commeMntsy ttoh the: A com ppaernison.on ’s disability defines Disability is a natural part of the human existence. There has been a major shift in our 3. Disability: What do we mean? 7. soRceiemety’mbs vieerw th oatf d piseaopbiliet yw. i thDi sdaibsabilitiyli tiusewesd arh tooe b inet tehseereenys te aasd ar inen a thbaeesr rs aameationn ,topin sodmicivest