Component of Statistics Canada Catalogue no. 82-225-XIE2005000 ISSN: 1715-2100 O Canadian Cancer Registry Manual 2005 Input Data Dictionary Statistics Canada Health Statistics Division Canadian Cancer Registry Input Data Dictionary Published by authority of the Minister responsible for Statistics Canada © Minister of Industry, 2003 Material appearing in this publication may be reproduced or copied without permission; however, the following citation to indicate the source must be used: "Data sources: Statistics Canada, Canadian Cancer Registry, Ottawa, 2003." February 2005 Catalogue no. 84-601-XIE Frequency: Irregular Ottawa La version française de cette publication est disponible gratuitement sur le site Internet de Statistique Canada (no 84-601-XIF au catalogue). Note of Appreciation Canada owes the success of its statistical system to a long-standing partnership between Statistics Canada, the citizens of Canada, its businesses, governments and other institutions. Accurate and timely statistical information could not be produced without their continued cooperation and goodwill. Canadian Cancer Registry – Input Data Dictionary Table of Contents Page 1.0 Introduction........................................................................................................................1 1.1 Content of Input Data Dictionary ............................................................................1 1.2 CCR Overview.........................................................................................................2 1.2.1 Canadian Cancer Registry ...........................................................................2 1.2.2 Nature of the Data........................................................................................2 1.2.3 Adding Records to the CCR ........................................................................2 1.2.4 Record Types (Functions)............................................................................3 1.2.5 Ownership of Data and Responsibility for Updates ....................................4 1.2.6 Changing Ownership...................................................................................5 1.2.7 Movement Between Province/Territory ......................................................5 1.2.8 Field Characteristics by Record Type..........................................................6 1.3 How to Submit Data to the CCR..............................................................................9 1.3.1 How to Submit Data for a New Patient Diagnosed with a First Tumour ................................................................................................9 1.3.2 How to Submit Data for a New ‘Second’ Patient Record for the Same Patient.........................................................................................10 1.3.3 How to Report a Subsequent New Tumour Record for the Same Patient...............................................................................................10 1.3.4 How to Update a Patient Record on the CCR ...........................................12 1.3.5 How to Update a Tumour Record on the CCR ..........................................13 1.3.6 How to Delete a Patient Record on the CCR ............................................13 1.3.7 How to Delete a Tumour Record on the CCR ...........................................14 1.4 Responsibility of the Provincial & Territorial Cancer Registries..........................15 2.0 Patient Record..................................................................................................................16 2.1 Input Patient Record Layout (Index of Validation Edits)......................................17 2.2 Input Patient Data Dictionary ................................................................................18 P1 – Reporting Province/Territory – Validation Edit No. 01 ...................19 P2 – Patient Identification Number (PIN) – Validation Edit No. 02................................................................................................20 P3 – CCR Identification Number (CCRID) – Validation Edit No. 03................................................................................................21 P4 – Patient Record Type – Validation Edit No. 04 .................................22 P5 – Type of Current Surname – Validation Edit No. 05 .........................23 P6 – Current Surname – Validation Edit No. 06.......................................24 P7 – First Given Name – Validation Edit No. 07 .....................................25 P8 – Second Given Name – Validation Edit No. 08.................................26 P9 – Third Given Name – Validation Edit No. 09....................................27 P10 – Sex – Validation Edit No. 10 ............................................................28 P11 – Date of Birth – Validation Edit No. 11.............................................29 P12 – Province/Territory or Country of Birth – Validation Edit No. 12................................................................................................30 P13 – Birth Surname – Validation Edit No. 13...........................................31 P14 – Date of Death – Validation Edit No. 14............................................32 Statistics Canada – Cat. No. 84-601-XIE i Canadian Cancer Registry – Input Data Dictionary P15 – Province/Territory or Country of Death – Validation Edit No. 15................................................................................................33 P16 – Death Registration Number – Validation Edit No. 16......................34 P17 – Underlying Cause of Death – Validation Edit No. 17 ......................35 P18 – Autopsy Confirming Cause of Death – Validation Edit No. 18................................................................................................36 P19 – Date of Transmission – Validation Edit No. 19................................37 3.0 Tumour Record................................................................................................................38 3.1 Input Tumour Record Layout (Index of Validation Edits)....................................39 3.2 Input Tumour Data Dictionary ..............................................................................40 T1 – Reporting Province/Territory – Validation Edit No. 01 ...................41 T2 – Patient Identification Number (PIN) – Validation Edit No. 02................................................................................................42 T3 – Tumour Reference Number – Validation Edit No. 03......................43 T4 – CCR Identification Number (CCRID) – Validation Edit No. 04................................................................................................44 T5 – Tumour Record Type – Validation Edit No. 05 ...............................45 T6 – Place Name of Residence at Time of Diagnosis – Validation Edit No. 06 ...................................................................46 T7 – Postal Code – Validation Edit No. 07...............................................47 T8 – Standard Geographic Code (SGC) of Place of Residence at Time of Diagnosis – Validation Edit No. 08...............48 T9 – Census Tract – Validation Edit No. 09.............................................49 T10 – Health Insurance Number – Validation Edit No. 10.........................50 T11 – Method of Diagnosis (1992 – 2003 data) – Validation Edit No. 11........................................................................................51 T12 – Date of Diagnosis – Validation Edit No. 12 .....................................52 T13 – ICD-9 – Validation Edit No. 13........................................................54 T14 – Source Classification Flag (SCF) – Validation Edit No. 14.............55 T15 – ICD-O-2/3 - Topography – Validation Edit No. 15..........................56 T16 – ICD-O-2 - Morphology – Validation Edit No. 16 ............................57 T17 – ICD-O-2 - M Behaviour Code – Validation Edit No. 17..................58 T18 – ICD-10 – Validation Edit No. 18......................................................59 T19 – Laterality – Validation Edit No. 19 ..................................................60 T20 – Filler (Multifocal Tumours) (no longer reported to the CCR) – Validation Edit No. 20 ...................................................................61 T21M – ICD-O-3 - Morphology – Validation Edit No. 21M.........................62 T21B – ICD-O-3 - M Behaviour Code – Validation Edit No. 21B...............63 T23 – Method Used to Establish the Date of Diagnosis (effective 2004 data forward) – Validation Edit No. 23...................64 T24 – Diagnostic Confirmation (effective 2004 data forward) – Validation Edit No. 24 ...................................................................66 T22 – Date of Transmission – Validation Edit No. 22................................68 4.0 Routines.............................................................................................................................69 Routine No. 01...................................................................................................................70 Routine No. 02...................................................................................................................71 Statistics Canada – Cat. No. 84-601-XIE ii Canadian Cancer Registry – Input Data Dictionary Routine No. 03...................................................................................................................72 5.0 Input Consistency – Input Match