1 World Hepatitis Alliance World Strategic Plan 2018 - 2020 Plan Strategic Finding the Missing Millions The World Hepatitis Alliance’s 2018 – 2020 Strategic Plan (Updated August 2019) 2 3 CONTENTS FOREWORD Hepatitis Alliance World Rarely in history We have an opportunity Foreword 3 has there been such to eliminate a global disparity between killer. With effective Our story so far 4 the burden of disease vaccines and treatment and the global for hepatitis B and a What’s next 6 response as with viral cure for hepatitis C 2018 - 2020 Plan Strategic Strategic Plan 2018 - 2020 Plan Strategic hepatitis. As the world as well as a global Our members 8 celebrates decreasing commitment to the mortality from HIV/ cause, elimination is 2018-2020 in action 10 AIDS, tuberculosis and achievable. So few malaria, our community devastating diseases Funding 20 rebukes the rising can boast this. And number of deaths yet, while all the tools World Hepatitis Alliance World Why WHA 21 from viral hepatitis needed exist, a crucial – a staggering 1.3 million each year that has piece of the puzzle is missing to make this goal Delivering impact 21 increased by 22% since 2000. More worrisome a reality. What’s missing is the people: 290 yet is just how many more deaths we could be million people who are suffering from hepatitis talking about. Across the globe, as many as 325 B and C but are completely unaware of their million people are living with hepatitis B and C illness. These people can transmit the disease to but only 1 in 10 people are aware of their illness others and are at risk of developing fatal end- and just 1% of people access treatment. stage liver disease. Without finding the missing millions, elimination will remain nothing but a Viral hepatitis is a global problem that pipe dream. demands immediate action. It is not found in one location nor amongst one group of people. We know that the voice of people affected In fact, those most affected are those already by viral hepatitis is paramount to achieving disadvantaged, marginalised and often silenced, elimination. The efforts made over the past such as people who use drugs, indigenous decade is testament to this. The progress peoples, prisoners, men who have sex with men already made would be inconceivable without and migrants. Elimination is not conceivable the strong patient advocacy that has tirelessly without significant efforts to ensure that not demanded attention. With drastically only is ‘no-one left behind’ but that the furthest scaled-up awareness and diagnosis efforts to behind are reached first. Furthermore, success find and educate the millions currently in the will require a comprehensive approach. From dark, there is potential to shout so much louder. harm reduction and access to medicines and Once the missing millions become aware, we diagnostics, to blood and injection safety, to have a powerful army of 325 million advocates sanitation and access to clean water, these are who can drive prevention, demand access, all issues that must be addressed in order to encourage innovation and save lives. tackle this global epidemic. The road ahead may be long but this is exactly Yet, progress is finally in sight. Following why we must speed ahead. Unlocking the advocacy by the World Hepatitis Alliance potential of the missing millions and harnessing and its members, 194 governments adopted the power of the people living with viral WHO’s Elimination Strategy in 2016, with hepatitis means acceleration, momentum and FIGHTING FOR A many countries now enhancing their efforts to determination towards our elimination goal. tackle this disease. Still, we have much to do to make up for decades of neglect and WHA has developed an ambitious workplan to accelerate WORLD FREE FROM the response to viral hepatitis. Unequivocally, the time for action is now. Raquel Peck VIRAL HEPATITIS WHA CEO Michael Ninburg WHA President, 2018-2019 May 2016 First global 4 5 elimination strategy OUR STORY SO FAR: Hepatitis Alliance World March 2017 first WHO STAC HIV-HEP meeting on A TRAILBLAZING JOURNEY September 2015 Viral hepatitis elimination strategy mentioned in the Sustainable Development Goals In just 10 years of existence, we have Although we have come a long way and not just changed the course of history great progress is being made, a global 2018 - 2020 Plan Strategic Strategic Plan 2018 - 2020 Plan Strategic for viral hepatitis, we have put it on the strategy and targets alone are not enough September 2015 – map. We pioneered the fight through our to turn an aspiration into reality. Because Sepember 2016 Regional action plans adopted awareness raising, advocacy and capacity viral hepatitis was neglected for so long, January 2015 – present WHA building activities. From uniting the there’s a lot of catching up to do. Countries seconds a technical officer to community on the first World Hepatitis won’t be able to reach the 2030 goal alone. WHO EURO to be the hepatitis Day in 2008 to a decade of strong patient Collaboration will be the key, we know that focal point for the region advocacy. A decade of tenacious effort and elimination will not be achieved without World Hepatitis Alliance World unwavering commitment has resulted in 194 putting the people affected by viral hepatitis governments pledging to the elimination of at the heart of the solution. May 2014 Adoption of the viral hepatitis by 2030. second resolution on viral hepatitis (WHA67.6) We are at a turning point. We have vaccines August 2013 WHA granted April 2017 first global and a treatment for hepatitis B and a cure Special Consultative Status by January 2016 WHA hepatitis report for hepatitis C. Very ambitious targets were the United Nations Economic advocates for global with WHO-validated set when the WHO Elimination Strategy was and Social Council elimination strategy at WHO estimates ratified in 2016, including a 90% reduction in Executive Board meeting new cases of chronic viral hepatitis B and C infections, a 65% reduction in viral hepatitis July 2012 WHO launches its Prevention and Control B and C deaths and 80% of eligible persons of Viral Hepatitis Infection with chronic hepatitis B or C virus infection Framework for Global Action treated by 2030. May 2015 WHA makes December 2011 Global Hepatitis intervention at WHO Programme established technical briefing on elimination strategy July 2016 NOhep launched May 2010 Adoption of the first resolution on viral hepatitis May 2013 WHA organises a (WHA63.18) April 2016 Need to address side meeting on viral hepatitis December 2014 – February hepatitis in drug policy at the World Health Assembly 2008 Advocating for support for 2015 WHA participates in recognised by United Nations the first World Hepatitis Day WHO consultations on viral General Assembly September 2012 WHA seconds hepatitis elimination targets November 2017 Second World 2007 WHA established a member of staff to the WHO Hepatitis Summit Global Hepatitis Programme September 2015 WHA launches the World Hepatitis 2014 WHA joins WHO Summit 2009 Development of the Director-General’s STAC- first World Health Assembly HEP on hepatitis resolution on viral hepatitis January 2012 WHA establishes Official Relations status with WHO 19 May 2008 First community- led World Hepatitis Day July 2011 First official World Hepatitis Day 6 7 MAKING AN IMPACT WHAT’S NEXT Hepatitis Alliance World A snapshot of how our work benefits our members: We have 13 years to hit our ultimate goal. 13 years to make viral hepatitis a thing of the past. So where do we start? With over 280 members working on the ground in 91 countries, we start by uniting on a renewed mission to: “Working with the World Hepatitis Alliance has helped us build our 2018 - 2020 Plan Strategic Strategic Plan 2018 - 2020 Plan Strategic “Since 2010, we have joined forces awareness and knowledge of the with the World Hepatitis Alliance to global policy landscape and through “Harness the power of people living with viral celebrate World Hepatitis Day. The their regular capability building resources and guidance they provide webinars, have helped us translate hepatitis to achieve its elimination” us each year connects us with a global policies into national actions.” global community of organisations, Liver Foundation, West Bengal, India patients and governments, helping From prevention and diagnosis through to treatment and care, people living with viral World Hepatitis Alliance World us to build awareness and deliver hepatitis need to be recognised for the unique contribution they can make and their power national impact.” should be harnessed to bring about the changes we need to make elimination a reality. Of Deutsche Leberhilfe e.V., Germany “The highly successful 2017 the 325 million people currently living with either viral hepatitis B or C, upwards of 290 World Hepatitis Summit in Brazil million are unaware they have the disease. Without finding those “Missing Millions” that was testament to WHA’s role as are yet to be diagnosed and linking them to care, all other efforts will only have marginal a global convener. More than 900 “We are delighted to be working success. Our first step is to find them. policymakers, people living with with WHA in-country here in Nigeria. viral hepatitis, community advocates Working collaboratively, we hope and professionals came together the financing project will produce to debate, discuss and formulate tools that encourage governments to plans to eliminate viral hepatitis. The consider the right of their citizens to interactions at the Summit were both quality health care, to allocate more inclusive and powerful and serve funds and further the viral hepatitis as an excellent platform to create cause.” global change. The health and Chagro-Care Trust (CCT) Taraba, welfare of people living with viral Nigeria hepatitis can only be advanced as a result.” Hepatitis Australia, Australia “More than 15 million people are living with Hepatitis in Pakistan.