Firstly THANK YOU to all our parent carers who have taken the time to respond to our annual survey, we know how valuable your time is. Having had an incredibly challenging year we really appreciate everyone who has shared their experiences of provision in North Somerset. It has been great to read some very positive experiences of provision helping to highlight areas that are working well whilst also disappointing to read of the continuing challenges faced by parent carers in accessing appropriate provision to meet the needs of their child / young person and that of their family. We will use all this information as we continue to represent the collective voice of parent carers over the coming year and seek to see much needed improvements in provision in North Somerset. Do continue to share your experiences with us during the year so that we can continue to represent your voice with local decision makers. Kenton Mee, CEO, NSPCWT 233 Parent Carers responded to our survey declaring that they are a parent Q2. How do you rate services/provision in North carer whose child is aged 0-25 and has any additional need or disability along with Somerset for children and young people (aged 0-25 living in North Somerset. years) with additional needs and/or disabilities? Thanks to South Glos Parent & Carer Forum who have worked co-productively with us to develop the contents of this survey. We will continue to work with all stakeholders in collecting the most helpful data that can influence improvements very good (26) very poor (36) and highlight successes in provision. 11% 16% This is the Full survey report - If you require any further clarification around the data collected or would like to investigate the data further, filters can be applied to look at the different demographics listed, we will do our best to facilitate this for you. good (66) 28% poor (56) This report directly conveys the parent carer experiences gathered in the annual 24% survey collected during March 2021. We have produced some short summaries at the beginning of each section to highlight some areas that are working well alongside areas to improve. This is the starting point to further develop the work of neither poor the forum and have more in-depth analysis of the experiences shared over the or good (49) coming months as we seek to influence provision. 21% www.nspcwt.org [email protected] facebook.com/NSPCWT 1 Some helpful terms used in this report: EHCP – Education, Health & Care Plan Local Offer – North Somerset Online Directory to promote the range of services, support available to children & families Setting – School, College, nursery where your child or young person attends. PFA – Preparing for Adulthood HTST –Home to School Transport SEND – Special Educational Needs & Disability Q6. What is your experience of telling your child's Q6b. How many times have you repeated it during the last 12 story as few times as possible? months? (Responses: 152) 35% very good (10) 32% 5% 30% very poor (46) good (39) 22% 25% 23% 19% 20% 16% 15% 11% 10% neither poor poor (55) 10% 8% or good (55) 27% 27% 5% 0% 0 1 to 3 4 to 6 7 to 9 10 to 20 21+ (too many times to count) 2 INDEX – click headings below for direct links Education P4 Education Health & P30 Health Services P49 Social Care P70 Parent Carer Support P81 Home to School P44 (setting & Care Needs Transport (HTST) Services) assessment (EHCna) Preparing for Adulthood P50 Preparing for P71 Understanding child’s needs P81 Adulthood P46 Comments Community Paediatrician P51 Community activities P83 Preparing for NS SEND Team P5 P31 Children’s social care Adulthood P72 Children & Adolescent 0-18 disability team SEND Clubs and Activities P85 Professionals & family Anything else you P32 Mental Health Service P52 Team (SENDCAS) P99 Level of support & contributions P6 (CAMHS) Community Family would like to tell progress P73 Teams Carers Assessment P86 us. Educational setting - meets P33 Occupational Therapy (OT) P53 Support @ setting P7 needs & outcomes Preventative Services North Somerset Parent Carers P87 P74 Speech and Language (early help, youth Working Together (NSPCWT) Demographics P102 Child experienced P10 Chase for Information & P33 Therapy (SALT) P54 offending team, family paperwork support workers) Local Offer Location (First half of P102 Child able to access P11 Physiotherapy P89 postcode) Personal Budget P34 P55 Adult social care Supportive Parents Communication & Autism Diagnosis (SCAMP) transitions team (SENDIAS) P91 Child’s additional needs P103 information P12 Comments P34 P75 P56 / disability Bristol Autism Spectrum Adult social care Online information, advice & Psychology Service (BASS) Mental Health Team guidance P92 Education Setting P105 P13 Education Health & P36 P76 P57 Inclusion support Care Plan (EHCP) Adult ADHD Adult social care team Social Media Year in Education Setting P106 P14 Annual Review P94 Sensory Support P77 Wheelchair P58 Personal Budget / In person information, advice Where is educational P15 Before & during annual Direct Payments & guidance P95 setting P107 Health Professionals P37 review meeting Continence P59 P16 P78 Comments Access information, advice & Parent carer age Social care After the annual review Health Visiting P60 guidance after Covid P96 P170 professionals P38 meeting P16 P80 School Nursing P61 comments Transitions between Additional survey Professionals & family P97 settings P39 information contributions Specialist Nursing P62 P108 P17 Comments Chase for Information & GP P63 P40 paperwork Home P18 Hospitals P64 P40 Education Personal Budget Personal Budget P65 P26 P41 Support Comments Comments P66 comments P27 P67 P29 3 Education - Setting & Services Working Well Areas to improve • Support in specialist schools • Meeting the needs of child / young person • Timely responses to requests from setting (Child & Parent) • Being part of the community & access to clubs • Transitions to post 16 education and apprenticeships • Support in mainstream primary & secondary schools • • Support provided at Springboard Emotional & social support • Support in being healthy • Access & involvement of support services, social care & health Q3. Do you feel your child's educational setting is meeting their needs? does not attend none of the Quotes… an educational time (13) setting (8) 6% Springboard “They go above and beyond for my son and also for 3% me as his mother” “lack of understanding from school when difficulties arose” some of the time (46) 20% all of the time Weston College “During the Lockdown they have been amazing” (86) 37% “we have wasted years 'treading water' and repeating the same situation” “Absolutely love Westhaven for my daughter” most of the time (80) “Without my persistence, my child's difficulties would not have 34% been recognised or supported” 4 Q7. How well are education services helping your child prepare for adulthood (PFA) in the following areas? PFA starts from children's early years helping them to develop skills throughout childhood in preparation for adulthood. a) being part of the 12% 14% 22% 31% 13% 8% community b) developing 7% 15% 15% 40% 16% 7% independence c) being healthy 7% 10% 21% 38% 17% 7% d) education, training, 7% 15% 15% 37% 19% 7% employment 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% very poor poor neither poor or good good very good I don't know Responses: a) 214, b) 217, c) 213, d) 205 5 Q16. What level of additional support is your child receiving at their educational setting? 70% 65% 60% 50% 40% 30% 20% 16% 10% 6% 10% 3% 0% no support reasonable adjustments SEN support EHCP I don't know Responses: 190 Q18. How would you rate the progress your child has made? socially and emotionally 9% 12% 16% 40% 20% 3% academically 10% 12% 14% 32% 31% 2% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% very poor poor neither poor nor good good very good I don't know Responses: 190 6 Q17. How well is the setting supporting your child? a) teaching / support staff 4% 10% 6% 28% 51% 1% understand my child's needs b) taking your child's views 6% 7% 11% 27% 45% 4% into consideration c) taking your views into 4% 8% 8% 30% 49% 1% consideration d) reviewing interventions 6% 9% 12% 30% 38% 5% & support e) implementing interventions 6% 8% 13% 30% 38% 5% & support f) planning interventions & 5% 10% 9% 33% 40% 3% support g) identifying your child's needs 4% 9% 9% 29% 48% 1% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% very poor poor neither poor nor good good very good I don't know Responses: a) 187, b) 182, c) 186, d) 186, e) 186, f) 185, g) 186 7 Breakdown of Q17. Mainstream Primary & Secondary ONLY - How well is the setting supporting your child? teaching / support staff 9% 16% 13% 33% 27% 2% understand my child's needs taking your child's views 8% 15% 10% 34% 28% 5% into consideration taking your views into 8% 10% 11% 36% 33% 2% consideration reviewing interventions 15% 13% 26% 25% 11% 10% & support implementing interventions 11% 13% 22% 33% 13% 8% & support planning interventions & 10% 18% 15% 44% 10% 3% support identifying your child's needs 9% 15% 19% 35% 22% 0% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% very poor poor neither poor nor good good very good I don't know Responses: a) 63, b) 61, c) 63, d) 62, e) 63, f) 62, g) 64 8 Breakdown of Q17. Specialist School ONLY - How well is the setting supporting your child? teaching / support staff 0% 6% 2% 29% 62% 1% understand my child's needs taking your child's views 2% 4% 12% 27% 51% 4% into consideration taking your views into 1% 9% 6% 27% 55% 1% consideration reviewing interventions 1% 5% 5% 34% 53% 2% & support implementing interventions 1% 5% 9% 27% 54% 3% & support planning interventions & 1% 5% 9% 27% 55% 2% support identifying your child's needs 1% 5% 5% 26% 62% 1% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% very poor poor neither poor nor good good very good I don't know Responses: a) 92, b) 91, c) 91, d) 92, e) 91, f) 92, g) 91 9 Q19.