Brittle Bone Society Supporting people who live with Osteogenesis Imperfecta The Gathering Brittle Bone Society Annual Conference 2019 13th - 15th September - The Wokefield Estate, Reading, RG7 3AE Friday 13th September 15.00 Registration desk opens 20.30 VIP Guest Spot Barry Simmons, TV Celebrity, Professional Quizzer 18.30 Welcome Address Chairman Elaine Healey & CEO Patricia Osborne 20.45 BBS Battle of the Eggheads Buffet Dinner As seen on TV Saturday 14th September 11.30 #RealLifeStories 9.00 Opening remarks & Civic welcome Lord Kevin Shinkwin & Abi Brown, Chairman Elaine Healey & CEO Patricia Osborne, Shani Dhanda & Gem Turner Councillor Graham Pask (Chairman of West Berkshire Council) 12.30 Mental Health Dr. Megan Riddington, Great Ormond Street Hospital 9.15 Collaboration: working together (GOSH), London BBS, OIFE, XLH Network, Softbones, FDSSUK, RGA Osteogenesis Imperfecta, X-linked Hypophosphotemia, 13.00 Lunch Hypophosphatasia, Fibrous Displaysia, Achondroplasia 14.00 AGM 9.35 Access to medicine: what is it and why 15.00 does it matter? Sleep & Fatigue Paul Connor, Market Access Director & BBS Supporter Dr. Catherine DeVile (GOSH) and Dr. Juddith Bubbear, Royal National Orthopaedic Hospital, London 9.50 ERN's, BOND & RUDY Dr. Kassim Javaid, Oxford University Hospital 15.40 ASTEROID Update Dr Judith Bubbear, Royal National Orthopaedic Hospital 10.20 TOPaZ Update Prof. Stuart Ralston, Edinburgh Western General Hospital 16.00 Close 10.40 Managing Pain 18:15 Welcome Drinks Reception & Entertainment Prof. Stuart Ralston, Edinburgh Western General Hospital 19.00 Gala Dinner & Awards 11.05 Coffee Break Vice Chairman John Phillips & CEO Patricia Osborne 22.00 Disco Sunday 15th September 9.30 Activity Graffiti Wall - Family Fun for all ages! 10.45 Workshops & Updates Welfare PIP consultation results & what next? Saturday 14th September Healthcare BBS consultation and updates on adult services, 10.00 - Sleep & Fatigue clinical care guidelines, registries and research Activity & Exercise Saturday 14th 12.45 Closing Remarks Sunday 15th September 9.00 Creche opens 13.00 9.30 - Laser Tag Lunch 16.00 Creche closes Conference 2019 is proudly sponsored by Registered Charity Nos. England and Wales 272100, Scotland SC010951.