Beyond Techno-Utopia: Critical Approaches to Digital Health Technologies Edited by Deborah Lupton Printed Edition of the Special Issue Published in Societies www.mdpi.com/journal/societies Deborah Lupton (Ed.) Beyond Techno-Utopia: Critical Approaches to Digital Health Technologies This book is a reprint of the Special Issue that appeared in the online, open access journal, Societies (ISSN 2075-4698) in 2014 (available at: http://www.mdpi.com/journal/societies/special_issues/health-technologies). Guest Editor Deborah Lupton News & Media Research Centre Faculty of Arts & Design University of Canberra Bruce 2601 Australia Editorial Office MDPI AG Klybeckstrasse 64 Basel, Switzerland Publisher Shu-Kun Lin Production Editor Xingxing Zhao 1. Edition 2015 MDPI • Basel • Beijing • Wuhan • Barcelona ISBN 978-3-03842-060-6 (Hbk) ISBN 978-3-03842-061-3 (PDF) Articles in this volume are Open Access and distributed under the Creative Commons Attribution license (CC BY), which allows users to download, copy and build upon published articles even for commercial purposes, as long as the author and publisher are properly credited, which ensures maximum dissemination and a wider impact of our publications. The book taken as a whole is © 2015 MDPI, Basel, Switzerland, distributed under the terms and conditions of the Creative Commons by Attribution (CC BY-NC-ND) license (http://creativecommons.org/licenses/by-nc-nd/4.0/). III Table of Contents List of Contributors ............................................................................................................... V Preface ................................................................................................................................. IX Minna Ruckenstein Visualized and Interacted Life: Personal Analytics and Engagements with Data Doubles Reprinted from: Societies 2014, 4(1), 68–84 http://www.mdpi.com/2075-4698/4/1/68 ................................................................................ 1 Michael Christie and Helen Verran The Touch Pad Body: A Generative Transcultural Digital Device Interrupting Received Ideas and Practices in Aboriginal Health Reprinted from: Societies 2014, 4(2), 256–264 http://www.mdpi.com/2075-4698/4/2/256 ............................................................................ 18 Emma Rich and Andy Miah Understanding Digital Health as Public Pedagogy: A Critical Framework Reprinted from: Societies 2014, 4(2), 296–315 http://www.mdpi.com/2075-4698/4/2/296 ............................................................................ 27 Collette Sosnowy Practicing Patienthood Online: Social Media, Chronic Illness, and Lay Expertise Reprinted from: Societies 2014, 4(2), 316–329 http://www.mdpi.com/2075-4698/4/2/316 ............................................................................ 47 Sophia Alice Johnson “Maternal Devices”, Social Media and the Self-Management of Pregnancy, Mothering and Child Health Reprinted from: Societies 2014, 4(2), 330–350 http://www.mdpi.com/2075-4698/4/2/330 ............................................................................ 61 Baki Cakici and Pedro Sanches Detecting the Visible: The Discursive Construction of Health Threats in a Syndromic Surveillance System Design Reprinted from: Societies 2014, 4(3), 399–413 http://www.mdpi.com/2075-4698/4/3/399 ............................................................................ 83 IV Jane Hendy, Theopisti Chrysanthaki, James Barlow Managers’ Identification with and Adoption of Telehealthcare Reprinted from: Societies 2014, 4(3), 428–445 http://www.mdpi.com/2075-4698/4/3/428 ............................................................................ 98 Chris Till Exercise as Labour: Quantified Self and the Transformation of Exercise into Labour Reprinted from: Societies 2014, 4(3), 446–462 http://www.mdpi.com/2075-4698/4/3/446 .......................................................................... 116 Deborah Lupton Apps as Artefacts: Towards a Critical Perspective on Mobile Health and Medical Apps Reprinted from: Societies 2014, 4(4), 606–622 http://www.mdpi.com/2075-4698/4/4/606 .......................................................................... 134 V List of Contributors James Barlow has worked at the Imperial College Business School since 2003, where he holds a Chair in Technology and Innovation Management in Healthcare. He was co-director of the Innovation Studies Centre from 2003–2006. From 2006–2013 he led a multi-university programme of research on the adoption, implementation and sustainability of innovation in healthcare systems (www.haciric.org). Since September 2013 he has been Associate Director of Research and Evaluation for the Imperial College Health Partners (www.imperialcollegehealthpartners.com). He has published widely and has been a member of many expert panels on healthcare innovation, both in the UK and internationally. James was educated at the London School of Economics (BA and PhD) and has previously held appointments at the Science Policy Research Unit (SPRU, University of Sussex), the Policy Studies Institute and the University of Westminster. Baki Cakici is a postdoctoral researcher in the Department of Sociology at Goldsmiths, University of London. He holds a PhD in Computer and Systems Sciences from Stockholm University. His research interests include surveillance, classification, and the politics of information and communication technologies. In his research, he draws on theories from science and technology studies, and surveillance studies. Michael Christie worked as a linguist teacher in Yolƾu communities in Arnhem Land, Northern Territory, Australia, for over twenty years before moving to Darwin to set up the Yolƾu Studies program at Charles Darwin University in 1994. He is currently Professor in the Northern Institute, running the Contemporary Indigenous Knowledge and Governance research group, working on collaborative research and consultancies in a range of areas including health communication, ‘both-ways’ education, resource management, and contemporary governance. Theopisti Chrysanthaki is a Lecturer of Health Services Research and Policy at London School of Hygiene and Tropical Medicine, UK. She previously held positions at the Imperial College London (2008–2013), Queen’s University Belfast (2007-2008) and the University of Surrey (2003–2007). Theopisti is a social psychologist with an MSc and PhD from the University of Surrey. In her research and consultancy work, Theopisti uses a mixed method approach and theories of identity change, to study the adoption and sustainability of policy and technology innovations in healthcare services. She has worked in the evaluation of two large transformational UK policy initiatives and published book chapters and papers in peer-reviewed journals. She is currently involved in a large Department of Health funded project that investigates the impact and cost-effectiveness of memory assessment services in England and the feasibility of using PROMs with people with dementia in routine healthcare contexts. VI Jane Hendy is senior lecturer in the Department of Healthcare Management and Policy at the University of Surrey. Jane previously held positions at the Imperial College Business School, University College London, and the London School of Hygiene and Tropical Medicine. Jane’s research focuses on the organisational change and integration attached to the adoption of innovations in health care, particularly telehealthcare. Jane has studied the national rollout of telehealth care services over the last five years—more recently as part of the evaluation team for the Department of Health’s Whole System Demonstrator Programme. Sophie Johnson is an early career researcher with an interdisciplinary background which intersects gender, health, sociology and technology. Her interests lie in the implications of technology and big data for health care and quality of life. Her PhD research, which was completed at the University of Sydney, investigated the health information-seeking experiences of women transitioning to first-time motherhood. This included a focus on the user experiences of women accessing the internet as a form of social support and knowledge-gathering, and utilising applications (apps) in a variety of ways including tools of convenience, knowledge-gathering, tracking functionalities and push notifications. She is very interested in working to adopt and test new methodologies of research for investigating the use of digital technologies for health and well-being. She is not only interested in why people use digital health technologies, but also the ways these technologies can impact on identity making and identity management. Deborah Lupton is Centenary Research Professor in the News and Media Research Centre, Faculty of Arts and Design, University of Canberra. She has published widely on the sociocultural dimensions of medicine and public health, risk, the emotions, food, obesity politics and parenting. Her current research is focused on digital technologies in relation to a range of topics, including medicine and health, big data, self-tracking, parenting and academic work. She has published 14 books, the latest of which is Digital Sociology (2015, Routledge). Her blog is ‘This Sociological Life’. Andy Miah is Chair of Science Communication and Future Media, in the School of Environment and Life Sciences, University of Salford, Manchester. He is also Global Director for the Centre for Policy and Emerging Technologies, Fellow of the Institute for Ethics