Winter 2017 Shinethe Shooting Star Chase magazine The moment you’ll never forget Help us give families precious and unforgettable moments London Marathon team break records Families become VIPs at afternoon tea Daisy’s, Max’s and Josh’s stories Make every moment count for babies, children and young people with life-limiting conditions, and their families. Shine Winter 2017 News Welcome to Shine! Highlights inside She began as outreach team leader, News with no other staff in the team, 3 Running into the record books and recruited the first members 4 More tea, Simon? of staff to support families in the 8 Two more reasons to shop community. From that initial team 9 A day in the life of a... Specialist of just three people, Sandi now Fundraiser manages a team of 50 nurses and 10 Makaton award care assistants working in-house 10 A look inside… Summer Fun Day at Shooting Star House and across Shooting Star Chase’s entire Hospice at Home team. Family stories Welcome to the winter 2017 edition 6 Daisy’s story of Shine, which aims to show how “It’s been a privilege supporting 12 Max’s story your support helps Shooting Star families through the most 16 Josh’s story Chase make every moment count for unimaginable circumstances over babies, children and young people the last 12 years,” says Sandi. “I’ve with life-limiting conditions, and their been very lucky to work with an Feature families. amazing team of staff and it’s been 14 The moment you’ll never forget an honour to be able to support the Our guest editor this edition is Sandi families we look after. Knowing we Hillery, Head of Care at Shooting Star can make a difference to families at Your Shooting Star Chase House, our Hampton hospice. the worst possible time makes this 18 Fabulous fundraisers job so rewarding. I’ve met so many 19 Over to you When Sandi first joined the charity in incredible children and families over May 2005, the hospice wasn’t even the years and I will miss everyone open and now, after 12 years leading when I leave.” the team at Shooting Star House, Sandi is retiring. Sandi Running into the record books Shooting Star Chase’s team for the Westminster, where the awesome place choosing to run for us. If that’s Virgin London Marathon in 2017 team was greeted by their families, you, and you want to be part of a achieved not one but two records for staff and volunteers with a big cheer, record-breaking marathon team, visit And the charity. The team of 82 runners a celebratory drink, a massage and shootingstarchase.org.uk/vlm Care we have provided in was the largest team in the charity’s a hot meal. The refreshments at the money marathon history, and between reception were kindly donated by raised them they have raised £250,000 for corporate supporters Fuller’s, Pelican the last six months our care service, breaking the record Procurement and Les Caves Pyrene. Care figures cover April 2017 to September 2017. so far in amount raised for any previous 2017/18 marathon. Supported dad, Ali Najefi, who ran 3,570 hours of Hospice at the marathon with his brother-in- Home visits £3.4m The team was made up of four law and a friend said: “I did this for 4,146 in Oct 16 to Mar 17 bereaved parents, 28 runners my son, Adnan. He goes to day care Supported 681 1,672 Against a target of £3.3m in Apr 17 to with a connection to one of our and we stay over at the hospice for families bednights Aug 17 supported families, 18 runners from a break, and they’ve been so good 690 in Oct 16 to Mar 17 1,539 in Oct 16 to Mar 17 corporate partners and several local to us. We’re all proud to do this for supporters, and they were cheered Shooting Star Chase today – it’s nice on by three teams at different to be able to give something back.” locations on the 26-mile course. The Virgin London Marathon is our As a thank-you to runners, most valuable challenge event of Shooting Star Chase held a post- the year, and crucial to that income race reception at Central Hall in is people with their own marathon Shooting Star Chase, Bridge House, Addlestone Road, Surrey, KT15 2UE t 01932 823100 f 01932 858399 e [email protected] w shootingstarchase.org.uk sschospices make every moment count ToRegistered donate goCharity to shootingstarchase.org.uk/donate No: 1042495 or call 01932 823100 3 News News Let’s stay together Shooting Star Chase is calling on supporters to give their consent to ensure we can continue to share our work with them, ahead of new regulations which could have a significant impact on the charity’s income and care service. The general data protection regulation (GDPR) is a new EU law which comes into effect in May 2018. It is a fundamental change to the way supporter information is accessed and controlled, and could have a significant impact on our ability to share our work with supporters. Although the final details of the More tea, Simon? regulation are still to be confirmed, we’re asking our supporters to act Why I love Shooting Supported families were given VIP Simon Cowell said: “The Afternoon Day of luxury for now to avoid a situation where we treatment at an exclusive afternoon Tea is something I so thoroughly Star Chase might not be able to contact you in tea this summer courtesy of The look forward to every year. It is such the future. Dorchester and our Vice President, a special, warm day. It really is a “amazing” families Simon Cowell. tribute to all the children and their families, as well as Shooting Star To make the process as Eight supported families were Supported dad Peter and his son Simon, who has hosted the event for Chase, that this is such an uplifting straightforward as possible, we have treated to a well-deserved day of Michael were part of the group. Shooting Star Chase since 2012, was and unique event for all of us who set up a website where supporters luxury thanks to car dealer group, Peter said: “It has been something joined by Patron Lauren Silverman are lucky enough to attend.” can give consent easily and quickly. HR Owen, Bentley Surrey and The really special for Michael. It’s great and a host of stars including fellow Medicine Garden in Cobham. to have something like this as he Patrons Dame Joan Collins and Supported mum, Faye Nogombo, Visit shootingstarchase.org.uk/ goes through so much. He absolutely Laurence and Jackie Llewellyn- whose seven-year-old son, Caleb, consent for more information or Bentley Surrey despatched eight loved the car and it’s beautiful in Bowen, plus friends of the charity was born extremely prematurely and if you don’t have access to the brand new Bentayga SUVs to our the garden, it was lovely to be in a including Julian Clary and Arlene has cerebral palsy, said: “It was such internet, please call our Supporter Lynda Borthwick has been a hospices to whisk the families away tranquil open space.” Phillips. a fun day at The Dorchester and a Care Services team on 01932 823115. volunteer for over five years, in their very own chauffeur-driven totally new experience. We felt like helping out at head office, our vehicle. They were then taken for a Sandi, Guest Editor Together they spent time chatting mini celebrities dressing up to come retail distribution centre and at private tea in The Dome within the “One of the teenage boys with the 12 children and their here and having our photos taken! Sandi, Guest Editor events in the community. walled garden, a former Victorian who went on the trip talks families, posing for photographs and Caleb loved meeting Simon and it “We have a fantastic group kitchen garden now restored and to me about it every time he sees me “I admire the work and support signing autographs to make it a day has been amazing to talk to all of the of supporters who dedicate transformed into a hidden haven. – he says it was one of his favourite Shooting Star Chase provides, not to remember. charity’s supporters and tell them many hours to support the charity. days.” I see first-hand every day how only to the children we care for Peter Matthews, Bentley Surrey our story, and how much Shooting in our hospices and at home, but much that support is appreciated by Brand Ambassador, said: “It was As well as an amazing afternoon tea, Star Chase supports my family.” to family and extended family guests enjoyed a pick ‘n’ mix sweet families, it’d be such a shame to lose an honour for us at Bentley Surrey touch with our incredible supporters members, staff and volunteers. cart, goody bags and non-alcoholic Sandi, Guest Editor and HR Owen to spend the day because of these new rules, so I have seen Shooting Star Chase Shooting Star Chaser cocktails. “This is such a wonderful grow over the last 20 years to with these incredibly brave children please do act.” treat for families and what it is now and thoroughly and their amazing families. Seeing The families were also treated to a helps create special memories. In enjoy being a member of the their eyes light up when they first performance by Britain’s Got Talent my experience the families always volunteer team.