May|June 2014 Volume 24, Issue 3 A magazine dedicated to A Publication living well with limb loss of the Golf: The Perfect Rehabilitation Adaptive Soccer Therapy More Than Just a Team Sport Marksman on Ice Tot Te n Tips: for One-Armed Adaptive Gardening Parents of Toddlers Custom Seating Solutions for Drivers and Passengers . ssur, © Ö NEWStable enough for Ellie. Dynamic enough for Tim. ASK YOUR PROSTHETIST IF RHEO KNEE IS RIGHT FOR YOU. WWW.OSSUR.COM/RHEOKNEE RK3 inMotion 0314.indd 1 1/30/14 6:28 PM message from the editor BE AN INFORMED READER Editorial content (articles, news Adaptive Recreation items, columns, editorials, etc.) in inMotion often contain healthcare & Activities information. As an informed reader, Getting Back in the Game you should never make a decision about managing or treating your condition without consulting your own clinicians: They know you best. Sometimes, in our interviews with When a person is injured or has a condition that requires amputation, the loss can be traumatic. There is not only loss of the limb, but also the loss of what that people who are amputees, the person limb enabled the person to do. The ability to participate in hobbies, recreational being interviewed will say something and even professional activities that were once enjoyed is jeopardized. about his or her personal experience that may not be entirely consistent Although it is a challenge to become active again after amputation, many people with standard practice. In these cases, are driven by their former lifestyles. People with limb loss want to participate we print what the person said because in the same level of activities after amputation as they did before, regardless of we think it gives readers insight into their level of amputation or number of limbs lost. W that individual’s experience that we But the physical aspects of healing are just the beginning, however. Sometimes believe will resonate with others. But: it’s not the physical adjustment, but the psychological adjustment that takes a We urge you to always check with your longer period of time. medical team before changing your own healthcare regimen. Many amputees say the hardest part is learning how to participate with their new body. Having lost the limb, walking, running or swinging a golf club is no Advertisements in inMotion are longer intuitive. There has to be some training involved. reviewed according to established criteria and guidelines. We aim Organizations such as Disabled Sports USA and the Orthotic and Prosthetic to support public awareness of Activities Foundation (OPAF) are devoted to give people with disabilities the commercially available products – ability to learn or re-engage in recreational activities that they may have things that might be helpful to you thought they would never be able to experience again. In addition to the and to avoid advertisements that obvious physical benefits, participation also enables them to rebuild their self-confidence, self-esteem and social skills. might deceive or mislead the reader. Acceptance of advertisements in Disability doesn’t equal disabled, and amputation does not automatically inMotion is not an endorsement by mean the end of an active life. Yes, you have a new challenge – but with the the Amputee Coalition. The Amputee appropriate adapted equipment and a little practice, you should be able to Coalition does not test advertised return to just about any activity you were doing before the amputation. products, conduct independent It may take longer to become proficient with your new equipment than it scientific reviews of them or ensure did before the amputation, and you may have to learn to do things a little their claims. Companies that sell differently. You may also prefer to compete against other amputees instead through the mail must comply with of your previous competitors. But you will find that recreation and sports activities are just as enjoyable, perhaps even more than before. federal regulations regarding customer notification if the product is not Bill Dupes, Senior Editor available within 30 days. The Amputee Coalition reserves the right to reject any advertisement for any reason, which need not be disclosed to the party submitting the advertisement. “Leave all the afternoon for exercise and recreation, which are as necessary as reading. I will rather say more Opinions expressed in signed necessary because health is worth more than learning.” articles are those of the authors and ~ Thomas Jefferson are not necessarily endorsed by the Amputee Coalition. Printed in the United States of America. Contact the Amputee Coalition at 888/267-5669 or amputee-coalition.org 3 I’m POSSIBLE Surfing, skateboarding, hanging with friends. Cameron Clapp epitomized “California teen” until one night when, in an instant, his life changed. At 15, Cameron was struck by a train. He lost both legs and his right arm. Encouraged and cared for by staff at Hanger Clinic locations nationwide, Cameron not only learned to walk again, he now surfs, runs competitively, swims and inspires others through peer-to-peer mentoring and motivational public speaking. In 700 clinics throughout the U.S., Hanger Clinic delivers integrated rehabilitative solutions to help more than 1,000,000 patients each year like Cameron turn their hopes and dreams into reality, break down barriers and move their lives forward. “IMPOSSIBLE IS AN To experience what’s possible at OPINION, NOT A FACT.” Hanger Clinic, call 1-877-4HANGER or visit www.hanger.com. 150 YEARS 700 CLINICS 1 VISION 1-877-4HANGER www.hanger.com Hanger Clinic Ads_8.37x11.25.indd 1 8/16/12 9:17 AM contents May | June 2014 Adaptive Soccer More Than Just a Team Sport sections 14 Federal Affairs Marksman on Ice 18 16 Parenting as an Amputee The Tot 10 Tips for One-Armed Parents With Toddlers 26 Technology Review Getting In and Out of a Vehicle Made Easier: departments Custom Seating Solutions 3 Message From the Editor 28 Living With Limb Loss GOLF: Adaptive Gardening 8 Advocacy in Action The Perfect Rehabilitation 30 Exercise & Fitness 11 Events Calendar Common Issues Therapy 12 Special Message 22 32 Well-Being Warning Signs: Stopping 36 Advertiser Index Depression Before It Goes Too Far 34 Phantom Fashionista Tips From a “Fellow” Fashionista: Part Deux 38 Perspectives On the Cover Getting Back in the Water Nicolai Calabria, USA National Amputee Soccer Team, Field Tester for SideStix. Photo taken by Carl Calabria in Mazatlan on April 16, 2012, two days after international match between USA and Mexico. The Amputee Coalition recognizes the following National Sponsors for their valuable support. Platinum Sponsors Gold Sponsors Silver Sponsors Bronze Sponsors The Board of Purdue Pharma Certification/ Accreditation (BOC) Rusk Rehabilitation at NYU Langone College Park Medical Center Industries Scheck & Siress Contact the Amputee Coalition at 888/267-5669 or amputee-coalition.org 5 contributors Cindy Asch-Martin is a Laurel Krasne spent most of certified personal trainer her career as an award-winning A Publication of the Amputee Coalition and lifestyle fitness coach, corporate communicator and InMotion magazine publishes unbiased journalism that seeks to “empower and motivate” living well and thriving and a left below-knee strategic planner for several with limb loss. The magazine targets amputees and their families and is provided free electronically to all friends of amputee. Fortune 100 companies within the Amputee Coalition and in hard copy to all subscribers. the financial services industry. Each issue covers health, well-being, exercise, life issues and Amy Di Leo is the founder of advocacy for amputees and their families. Stories showcase She is the cofounder of amputees living and thriving with limb loss and profile Aim Hi Public Relations BrainNovation.net, teaching people Amputee Coalition programs and services. (AimHiPR.com) and has whole-brain thinking – primarily been a television and through mind mapping and Editorial Board print journalist for more memory techniques. Laurel, a right than 20 years. below-knee amputee, Marshall J. Cohen Immediate Past Chair, Robert S. Gailey, PhD, PT, is an is on a personal mission Amputee Coalition Board of Directors associate professor at the University to help get amputees Lisa Ann Cairns, PhD Senior Market Analyst for Smith & Associates of Miami Miller School of Medicine, back in the water. Scott Cummings, PT, CPO, FAAOP Department of Physical Therapy. He Leif Nelson, DPT, ATP, CSCS, is the Scientific & Medical Advisory Committee also has a joint appointment as a assistant chief of clinical care for VA/ Steve Custer health science researcher with Miami DoD Extremity Trauma and Amputation Production Manager, O&P Almanac for AOPA Veterans Affairs Medical Center and Center of Excellence (EACE). He is a Lacey Henderson is the director of the Amputee Coalition Paddy Rossbach Youth Camp doctor of physical therapy, a certified counselor Functional Outcomes assistive technology Jason T. Kahle, CEO, CPO, FAAOP Research and Evaluation professional, and a certified OP Marketing Center. strength and conditioning Stephen Luce specialist. Associate Director for Communications, CDC Harleen Gupt Chhabra is an artist, David McGill writer/ blogger, a communications Vice President, Reimbursement & Compliance and marketing advisor for a Fortune 5 for Össur company and a mother (harleengupt. Nancy Miller Marketing Communications Specialist com). Drawing from her almost lifelong Phantom Fashionista Leslie Pitt Schneider above-elbow amputee experiences, Amputee Coalition Board of Directors she is working on children’s books and parenting resources for Staff the limb loss community. Susan Stout Interim President & CEO Coming up in the Guy Hanford is the director Mary Beth Gibson July/August Chief Marketing & Communications Officer of marketing for MobilityWorks, a mobility issue of inMotion: Bill Dupes dealer headquartered in Senior Editor, inMotion Housing & Personal Akron, Ohio. Transportation inMotion is published six times a year by the Amputee Coalition, 900 E.