OREGON FAMILY TO FAMILY HEALTH INFORMATION CENTER
Atrial Septal Defect Sometimes called “hole in the heart”. An atrial septal defect (-trē-əl ˈsep-tᵊl ˈdē-ˌfekt , di-ˈ) is a birth defect of the heart in which there is a hole in the wall (septum) that divides the upper chambers of the heart (atria). A hole can vary in size and may close on its own or may require surgery. It is estimated that about 1,966 babies in the United States are born each year with an atrial septal defect. The causes of heart defects such as atrial septal defect among most babies are unknown. Some babies have heart defects because of changes in their genes or chromosomes. Read more about Atrial Septal Defect at the Center for Disease Control and Prevention’s website, tinyurl.com/y79ekfca. Resources for families
Northwest support resources Information for you and your care team • Road map to health • Children’s Heart Foundation (OR) • Cincinnati Childrens’s Hospital tinyurl.com/yysc6kv7 tinyurl.com/yclkmhgr Atrial Septal Defect • General/Oregon Health Plan Questions: tinyurl.com/y92jzbnh • Pediatric Congenital Heart Assoc. (WA) 855-323-6744 tinyurl.com/yba3yhlw • AHA - ASD fact sheet [PDF] tinyurl.com/ycx3pyux Other resources • Mended Little Hearts - Portland • CHF - It’s My Heart - free resource book [Facebook] • AHA - Fact sheets and other tools tinyurl.com/ybyp9goh tinyurl.com/y9zskzll tinyurl.com/kex96bk • AHA Web Booklet - If Your Child Has a • AHA - Portable edical info [PDF] Congenital Heart Defect National/international/online resources tinyurl.com/ydye5u4s tinyurl.com/ycgu5mzw • Atrial Septal Defect Survivors Network • NIH Library of Medicine [Facebook] • Merry Heart Children’s Camp tinyurl.com/aot8rx tinyurl.com/y8yhwgev tinyurl.com/yaml6cma
• Atrial Septal Defect Support Family stories • Summer camps for kids with CHD tinyurl.com/ycvo39vp • AHA Family Stories (outside OR) tinyurl.com/y9awy2gy • AHA Support Network for CHD tinyurl.com/y8j578ny tinyurl.com/y5bxh3z3 • Little Hearts Stories of Hope • NIH - Miscellaneous tip sheets for children, teens and families • Mended Hearts tinyurl.com/y8cze7em tinyurl.com/y86ofx4e tinyurl.com/7wppot4 Clinical trial information • CDC - Five Things you Need to Know • Little Hearts - Parent Matching Program • Children and Clinical Studies tinyurl.com/y7wuh4yc about CHD [PDF] tinyurl.com/y75s4twm tinyurl.com/yavg6fn2 • Children’s Heart Foundation (CHF) • Find an approved clinical trial tinyurl.com/ptkqdj tinyurl.com/zp3jesq Books for parents and children • Congenital Heart Info Network • Bibliography available by calling [Facebook] Insurance information and help the Oregon Family to Family Health tinyurl.com/y8oxl67t • Getting insurance for children (OR) Information Center at 855-323-6744 tinyurl.com/ydfaaeoy • Swindells’ online library search • Understand your health insurance tinyurl.com/y9t2jwcx tinyurl.com/y46h8nvx
• Learn about coverage tinyurl.com/y4639rz6
This Family Resource Page was supported by a Cooperative Agreement (#DD004951) funded by the Centers for Disease Control and Prevention to the Oregon Health Authority (OHA) (6NU50DD004951-01-01). This project is a joint effort of the OHA’s Birth Anomalies Surveillance System and the Oregon Center for Children and Youth with Special Health Needs’ Family to Family Health Information Center at OHSU. This public domain publication is available in alternative formats by calling 503-494-0865. The contents of this page are solely the responsibility of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention, the Department of Health and Human Services, the OHA, or OHSU. The generous support and collaboration of the OHA and Community Partners is appreciated.