annual report annual

2008

The Next 20 Years of Inspiration, Innovation and Determination for HEALTH RESEARCH

09 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 Research!America is the nation’s largest alliance working to make research to improve health a higher national priority.

Research!America is supported by 500 member organizations that together represent the voices of more than 125 million Americans. Our public opinion polls, advocacy programs and publications reach the public and decision makers to help advance medical, health and scientific research.

Research!America is a 501(c)(3) organization. Table of Contents

2 Research!America Leadership

3 Chair and President’s Message

4 Nation’s Largest Alliance of Medical and Health Research Stakeholders

5 Remembering The Honorable Paul G. Rogers

6 Election Year Impact

8 Advocacy for Increased Investment in Research

9 Economic Impact of Research

10 Public Health and Clinical Research Advocacy

11 Public Opinion Poll Data

12 Global Health Research Advocacy 1

14 2008 National Forum

16 Research Partners Forums

18 12th Annual Advocacy Awards

20 Communicating the Value of Research

22 Financials, Scientific Advisory Committee and Research!America Staff

23 Major Donors

24 Membership

Research!America is formed with former Senator Lowell Weicker Jr. (CT) [shown left] as president and CEO and Edwin C. “Jack” Whitehead [far left], founder of MIT’s Whitehead Institute for Biomedical Research,

1989 as our founder and board chair. Research!America Leadership

The Honorable John Edward The Honorable Paul G. William A. Peck, MD, Mary Woolley, Georges C. Benjamin, MD, Mary J.C. Hendrix, PhD, Porter, Chair Rogers (1921-2008), Vice Chair President Secretary Treasurer Partner, Hogan & Hartson Chair Emeritus Director, Center for Health Policy Chief Executive Officer, Executive Director, American Public President and Scientific Director United States Representative, Partner, Hogan & Hartson Washington University School Research!America Health Association Children’s Memorial Research 1980-2001 United States Representative, of Medicine Center 1955-1979

Officers Joseph M. Feczko, MD Herbert Pardes, MD Honorary Directors The Hon. John Edward Porter, Chair Chief Medical Officer President and Chief Executive Michael E. DeBakey, MD (1908-2008) Partner, Hogan & Hartson Pfizer Inc Officer, NewYork-Presbyterian C. Everett Koop, MD, ScD, United States Representative, Hospital Eugene Garfield, PhD Former Surgeon General, 1980-2001 President and Founding Editor John R. Seffrin, PhD United States Public Health Service The Hon. Paul G. Rogers The Scientist Chief Executive Officer, American Cancer Society (1921-2008), Chair Emeritus Jay A. Gershen, DDS, PhD Emeritus Directors Partner, Hogan & Hartson Vice Chancellor for External Affairs Randolph Siegel William G. Anlyan, MD United States Representative, University of Colorado Denver and President and Publisher, Kenneth I. Berns, MD, PhD 1955-1979 Health Sciences Center PARADE Roger J. Bulger, MD William A. Peck, MD, Vice Chair Martha N. Hill, RN, PhD Laing Rogers Sisto G. Steven Burrill Director, Center for Health Policy Dean, School of Nursing Community Leader Gail H. Cassell, PhD 2 Washington University School of The Johns Hopkins University Wendy Chaite, Esq. Medicine Harrison C. Spencer, MD, MPH Jordan J. Cohen, MD Karen A. Holbrook, PhD President and Chief Executive Dominick P. DePaola, DDS, PhD Mary Woolley, President and Vice President for Research and Officer, Association of Schools of Sam Donaldson Chief Executive Officer, Innovation, University of South Public Health John P. Donnelly Research!America Florida The Hon. Louis Stokes Robert Dresing Georges C. Benjamin, MD, Secretary Elmer E. Huerta, MD, MPH Senior Counsel, Squire, Sanders & Myron Genel, MD Executive Director, American Public Director, Cancer Preventorium Dempsey, L.L.P. Irma E. Goertzen Health Association Washington Cancer Institute at United States Representative, M.R.C. Greenwood, PhD Mary J.C. Hendrix, PhD, Treasurer Washington Hospital Center 1968-1998 Robert A. Ingram President and Scientific Director Caroline A. Kovac, PhD Harry Johns The Hon. Billy Tauzin Philip R. Lee, MD Children’s Memorial Research President and CEO, Alzheimer’s President and CEO, Pharmaceuti- Center Ellen Levine Association cal Research and Manufacturers of Constance E. Lieber America (PhRMA) Jackie Lovelace Johnson John P. Margaritis United States Representative, Board Members Chair of the Board, Lovelace Jewell Jackson McCabe 1980-2004 Tenley E. Albright, MD Respiratory Research Institute Catherine E. McDermott Director, Collaborative Initiative Christopher A. Viehbacher Donnica L. Moore, MD Evan Jones Massachusetts Institute of CEO, sanofi-aventis James E. Mulvihill, DMD Principal, jVen Capital Technology William D. Novelli Ruth Wooden Darrell G. Kirch, MD Edward E. Penhoet, PhD Dennis A. Ausiello, MD President, Public Agenda Physician-in-Chief of the Medical President and CEO, Association William L. Roper, MD, MPH Service, Massachusetts General of American Medical Colleges Judy Woodruff Leon E. Rosenberg, MD Senior Correspondent and Political Hospital Debra R. Lappin, JD Isadore Rosenfeld, MD Editor, NewsHour with Jim Lehrer Jackson Professor of Clinical Senior Vice President, Raymond R. Sackler, MD MacNeil/Lehrer Productions Medicine, Harvard Medical School B&D Consulting LLC Charles A. Sanders, MD Mitchel Sayare, PhD William R. Brinkley, PhD Tadataka Yamada, MD Alan I. Leshner, PhD Carol R. Scheman Senior Vice President for Graduate President, Global Health Program Chief Executive Officer, American M. Roy Schwarz, MD Sciences Bill & Melinda Gates Foundation Association for the Advancement of Susan C. Scrimshaw, PhD Dean, Graduate School of Science Samuel C. Silverstein, MD Biomedical Sciences The Hon. Louis W. Sullivan, MD Baylor College of Medicine Mark McClellan, MD, PhD, MPA Director, Engelberg Center for Health Daniel C. Tosteson, MD Yank D. Coble Jr., MD Care Reform Reed V. Tuckson, MD Distinguished Professor and Senior Fellow, Economic Studies Alan G. Walton, DSc, PhD Director, Center for Global Health Leonard D. Schaeffer Director’s M. Cass Wheeler and Medical Diplomacy, University Chair in Health Policy Studies, John Whitehead of North Florida Brookings Phillip L. Williams James B. Wyngaarden, MD

Mary Woolley is named president Research!America makes our first call

1990 of Research!America. for NIH’s budget to be doubled. The Next 20 Years of Inspiration, Innovation and Determination for Health Research

2009 marks Research!America’s 20th year Investment in research will produce immediate and working to make medical and health research long-term dividends by protecting good jobs, stimulating a higher national priority. local economies, providing data to make health care more We reached this milestone through the leadership of research champions like The Honorable Paul G. evidence-based, expanding the foundation for innovation Rogers, who inspired us and helped us inspire and global competitiveness, and providing our only hope others, whose determination to aim high fuels our for new cures, treatments and prevention. own continuing determination as research advocates, and whose spirit of innovation drives us to continu- ously evolve new models of advocacy. He continues to and AHRQ funding as well. In 2009, Research!America inspire us even now—not least, through the timely will continue to play a leadership role to assure that and important work of the Ambassadors of the Paul research is positioned as a solution to this nation’s G. Rogers Society for Global Health Research. economic and health care challenges. In 2008, our achievements included inserting research Congress and the President have already taken and science into the heart of the national conversa- major steps forward in restoring science as a national tion in a crucial election year. With Research!America priority—and they have the support of the American members and new partners including Science Debate people on this issue. In recent polls commissioned by 2008, we engaged scientists, policy makers and news Research!America, 70% of Americans say the U.S. is 3 media to spotlight science as a key election-year issue. losing its competitive edge in science, innovation and Our voter education initiative, Your Candidates–Your technology. This trend must be reversed. Now is the Health, with nearly 50 supporting partners, drew time to put science back to work, or, in the words of strong participation from congressional and presidential President Obama in his inaugural address, “restore contenders, including then-candidates Obama and science to its rightful place.” McCain, sharing their views on health and research. Thanks to our outstanding board of directors, talented The initiative garnered media attention that reached staff and dedicated alliance partners, Research!America 111 million Americans. As of December 2008, 187 is embarking on its next 20 years of inspiration, members of the new 111th Congress had shared innovation and determination for health research in their positions on research and health issues through anticipation that we will continue to be instrumental Research!America’s Your Candidates–Your Health and in achieving substantial gains in support for research Your Congress–Your Health initiatives. and a much more positive policy environment for its Before the election, we hosted a headline-generating conduct. That’s our goal—nothing less. Going forward, discussion between economics advisers to McCain and our respected alliance of research stakeholders is uniquely well-equipped to have an impact. As Paul Obama. We followed this with the presentation of our 4 7th annual economic impact of medical and health Rogers would have said, “Without research there is no research award. Our Web site now features a wealth of hope.” What better message and what better time? up-to-date state and national economic impact data. Following the election, Research!America took the lead in calling for very strong research funding as part of the economic recovery package. We met

with the Obama Administration transition teams tofew very well informed of candidates candidates should debate science positions on research: policy 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION 16% DESTROYED HOMES / PROPERTIES

4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING discuss how research dollars save and create good jobs 1 4 8% MADE PEOPLE SICK 3 6% NO ELECTRICITY / WATER / RESOURCES

6% INCREASE IN POPULATION / CROWDING / RELOCATION 3 1 STRONGLY AGREE 56% and provide the foundation for U.S. leadership in a 1 VERY INFORMED 14% 3% DEATH 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% re-energized, life-science-driven global economy. 2 14% OTHER 5 DON’T KNOW 3% 6% NONE / DON’T KNOW 1 We strongly supported Senator Arlen Specter’s call 2 The Honorable Mary Woolley for $10 billion for NIH in the American Recovery and John Edward Porter President and CEO americans willing to pay more for strong support for state and local Reinvestment Act, and we called for strong CDC, NSFmedical research Chair health dept. funding 3

2 2

1 FAVOR 75%

2 OPPOSE 22%

1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66%

2 NOT WILLING 1 TO PAY MORE 34% 1

research is a solution to rising health americans say not enough spent on care costs research

3 2 Research!America releases our first polls, 2 1 NOT ENOUGH 63% 1 PA RT OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PA RT OF THE 3 TOO MUCH 5% 1992 William Anlyan, MD, elected board chair. a Maryland state poll and a national poll. PROBLEM 27%

1 1

us should lead in research to improve californians concerned about global health globally health

4 3 2

1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

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1 Who We Are: Nation’s Largest Alliance of Medical and Health Research Stakeholders

Research!America is a not-for-profit, membership- supported public education and advocacy alliance. We have established a 20-year history of reaching and inspiring decision makers, influencers and the public to help us make medical and health research a higher national priority. With our 500 member organizations, representing a vast array of medical, health and scientific fields, Research!America is The Value of Research!America Membership determined to meet four important goals: Research!America’s members are prominently positioned as national leaders in the research advocacy :: Achieve funding for medical and health research community. We add value for our members: from the public and private sectors at a level warranted by scientific opportunity and supported :: We are one of the strongest and most widely by public opinion. respected voices for medical research advocacy in Washington and across the nation. Research!America’s :: Better inform the public about the benefits of chair, board of directors, president and top staff medical and health research and the institutions engage in extensive outreach to policy makers and that perform research. national scientific and medical research leaders. :: Motivate the public to actively support medical :: We provide unique, proven advocacy tools, such as and health research and the complementary sciences public opinion poll data and local, national and global that make advances possible. 4 economic investment reports, on a timely, updated :: Promote and empower a more active public and basis for our members. political life by individual members of the research :: We are regularly sought out by key media and community on behalf of medical and health research, are often named as the “go-to” for information on public health, and science overall. research advocacy and policy. :: Research!America pioneers outreach to the next Research!America membership materials, publications and generation of medical and scientific leaders by offering alerts provide vital information and a perspective that our training in and encouraging involvement in advocacy company may otherwise not be aware of. and public service. — Doug Greene, MD, chief medical officer, sanofi-aventis U.S.

One successful strategy in advancing research is enhancing public awareness through partnerships with organizations such as Research!America. … We rely on Research!America to provide a trusted and unified voice for science, which it does admirably. — Victor J. Dzau, MD, chancellor for health affairs at Duke Medicine

Science magazine article by Nobel Laureates J. Michael Research!America creates a public service Bishop and Harold Varmus and distinguished biologist Marc announcement featuring former Surgeon Kirschner, calling for doubling the NIH budget from 1993- General C. Everett Koop, MD, ScD, that later

1993 1998, is a turning point, making the case for science. wins several national awards. Remembering Mr. Health The Honorable Paul G. Rogers (1921–2008)

Research!America’s Chair Emeritus The Honorable Paul G. Rogers, a highly decorated, 12-term member of Congress from Florida who was widely known as “Mr. Health” for his lifetime of service dedicated to public health and medical research, passed away on October 13, 2008. He chaired Research!America’s board from 1996-2005 and remained active as our chair emeritus.

In his 24 distinguished years in Congress (1955-1979), Rogers served as a member and later chair of the House Subcommittee on Health and the Environment. Credited to his stewardship are more than 50 ground- breaking laws that have helped improve health and the environment and helped advance medical and scientific research. Rogers’ achievements benefited the lives of Americans young and old, from every corner of the nation. In his honor, in 2001, the congressionally designated Paul G. Rogers Plaza was dedicated at the National Institutes of Health headquarters in Bethesda, MD. In 2006, Research!America established the Paul G. Rogers

The Honorable Paul G. Rogers [photo by Focused Images] Society for Global Health Research in his honor, with support from the Bill & Melinda Gates Foundation. Rogers inspired all who knew him with his dedica- 5 It’s impossible to convey the enormity of the loss of Paul tion to effective advocacy and his determination to Rogers. He was held in highest esteem by his colleagues, make better health a reality for all. As he so often said, his peers in Congress, by multiple Administrations and “Without research, there is no hope.” leaders in all areas of health and science. Read tributes from Research!America and many of the nation’s health research leaders at — The Honorable John Edward Porter, former Congressman, www.researchamerica.org/rogers_tribute. current Research!America chair and Hogan & Hartson partner

Contributors to The Hogan & Hartson LLP/J. Warren Gorrell Honorable Paul G. Rogers James A. Hourihan Memorial FUND Margot Howar James L. and Mary Frances Koltes Elizabeth Scott Adams Robert B. Lochrie, Jr. Suzanne M. Block Gary and Janet L. McDavid George U. and Susan Carneal Ray Merenstein Mr. and Mrs. John E. Chapoton The Honorable Bob Michel Sergey B. and Irina Chetverikov Barbara Mishkin Lois K. Cohen, PhD Jean Moyle Mary Louise B. Day Mary N. Munroe Barbara K. De Franceaux National Association of Community W. Leslie Douglas Health Centers John M. Farrell Susan Newton Tyrrell Flawn Stuart and Elena Nightingale Foundation for the National Institutes of The Honorable John Edward Porter Health/Amy McGuire Porter Bob and Patricia P. Schieffer William T. and Mary R. Garrison Ethelynn M. Stuckey The Honorable Paul G. Rogers & The Honorable John Edward Porter Jay A. Gershen, DDS, PhD Ann Vickery [photo by Mike Gatty/DCEvent Photos.com] Nancy L. Granese Quinton and Louise Wells Margaret N. and David Joseph Hensler Mary Woolley

We have lost one of our true champions for biomedical research. [Paul Rogers’] dedication, intellect and disarmingly warm style reaped many successes over his long career. People around the world can be thankful for all that he did on behalf of public health. In his honor and memory, we rededicate ourselves to what Paul spent his life working for—advancing science to the betterment of people’s health. — Elias A. Zerhouni, MD, National Institutes of Health director (2002-2008)

Research!America holds our first annual National Forum

1994 featuring former Sen. Paul Tsongas (MA). Election Year Impact 4 Voter Education Initiatives Research!America and its partners worked determinedly to make medical, health and scientific research a priority in the 2008 election. We called on candidates to make research part of their stated platforms, and we provided voters with resources about the candidates so they could make informed decisions during this important election year. Research!America and nearly 50 partners launched Your Candidates–Your Health 2008. We invited all presidential and congressional candidates to answer questions about their views on health, science, research and related issues. Both major presidential candidates, Barack Obama and John McCain, responded to the questionnaire, as did 357 candidates for Congress. Additionally, the initiative’s Web site was demonstrated on Capitol Hill at Rep. John Conyers’ (MI) Health Care Research!America endorsed another election-year Forum at the Congressional Black Caucus Annual initiative, Science Debate 2008, that called for a debate Legislative Conference. among presidential candidates about issues relating to science. We commissioned a public opinion poll with Science Debate 2008 that showed voters’ strong appreciation for the contributions of science to their 6 Citizens expect and deserve to know how candidates think quality of life. about medical research and its translation into health After the election, Research!America and its Your Candidates–Your Health partners met to look ahead enhancement and clinical care delivery. to the landscape for science and research in the new — Reed V. Tuckson, MD, United Health Foundation board member administration. The forum featured remarks by Bart Moore, head of research at Atlantic Media (National Journal, The Atlantic), who praised the initiative Your Candidates–Your Health 2008 kicked off the asfew a “foot very inwell the informed door” to the of 187candidates members of candidates should debate science presidential primary season with a four-state ad cam- 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION Congresspositions who on haveresearch: responded to one or more of policy paign in January 2008. Advertisements urged voters to our questionnaires. 16% DESTROYED HOMES / PROPERTIES use the initiative’s Web site to learn about presidential 4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING contenders’ positions on health and research. These 1 4 8% MADE PEOPLE SICK ads ran in local newspapers and local editions of 3 PARADE magazine. Subsequent ads ran in The Hill 6% NO ELECTRICITY / WATER / RESOURCES newspaper and other outlets during the Democratic 3 6% INCREASE IN POPULATION / CROWDING / RELOCATION and Republican conventions, followed by online 1 STRONGLY AGREE 56% 1 VERY INFORMED 14% 3% DEATH advertising leading up to the election. 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING Online outreach to blogs in all 50 states helped alert 3 SOMEWHAT DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES voters to this important resource. Media coverage 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% 14% OTHER further increased public awareness. Research!America’s 2 5 DON’T KNOW 3% Mary Woolley appeared on CNN Radio, Wall Street 6% NONE / DON’T KNOW Journal Radio and on National Public Radio’s “Science 1 Friday” to discuss the initiative. This and other media 2 attention, including The Scientist, Science, Nature and The Hill, helped Your Candidates–Your Health Few americans are very well informed of reach 111 million Americans. In all, the 2008 Your candidates’ positions on research Candidates–Your Health site saw a 650% increase in How well informed would you say you are about the positions of the visitors over the initial 2006 site. presidential candidates on medical, health and scientific research? Source: National Poll, 2008 Charltonamericans Research willing Company forto Research!America pay more for strong support for state and local medical research health dept. funding

The Honorable Paul G. Rogers is elected Research!America board NIH appropriations turn-around 3 chair and launches The 435 Project to engage citizens in all 435 is led by Sen. Mark O. Hatfield Congressional districts as advocates for medical research. Its first (OR) [left] and Rep. John Edward 2

1996 goal is to double funding for medical research2 in five years. Porter (IL).

1 FAVOR 75%

2 OPPOSE 22%

1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66%

2 NOT WILLING 1 TO PAY MORE 34% 1

research is a solution to rising health americans say not enough spent on care costs research

3

2

2 1 NOT ENOUGH 63% 1 PART OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27%

1 1

us should lead in research to improve californians concerned about global health globally health

4 3 2

1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

1

1 187 members of the 111th Congress have responded to one or more of our voter education initiatives: Your Candidates–Your Health 2006, Your Congress– Your Health 110th Congress and Your Candidates–Your Health 2008.

Your Candidates–Your Health is a unique and valuable resource that can help voters make informed choices on these issues, which touch all our lives. — Darrell G. Kirch, MD, Association of American Medical Colleges4 (AAMC), president and CEO Tim Westmoreland, JD; Ike Brannon, PhD; David Leonhardt. [photo by Mary Ann Gatty/DCEvent Photos.com]

Party Platform Statements Your Congress–Your Health Continues to Grow as Resource Research!America submitted a statement about the importance of research to the Democratic and Many members of Congress have participated in Republican parties’ 2008 Platform Drafting Your Congress–Your Health, a constituent education Committees. The letter stressed that investing in initiative launched in 2007 by Research!America, the research will: Albert and Mary Lasker Foundation and other partners. All members of the 110th Congress were invited to :: Make Americans healthier :: Improve health care complete a questionnaire about their views on :: Strengthen the economy :: Allow America to lead medical, health and scientific research. The questions :: Protect the future :: Improve health globally resulted from public input collected through PARADE.com, where visitors shared their thoughts on Candidates’ Advisers on Health, Research and the most pressing health and medical research issues. the Economy Those members of Congress who completed the questionnaire were featured in a full-page ad on the Presidential campaign advisers Ike Brannon, PhD, inside front cover of The Hill newspaper. The initiative of John McCain 2008, and Tim Westmoreland, JD, also was promoted on AARP’s Web site. 7 of Barack Obama 2008, presented their candidates’ views on a variety of health and economic issues at an October Research!America event at the Newseum, just blocks from the Capitol. The discussion was moderated Thank You to Your Candidates–Your Health 2008 Partners by David Leonhardt of The New York Times and gener- ated coverage in The Hill newspaper, on Nature maga- GlaxoSmithKline Johns Hopkins University zine’s “The Great Beyond” blog and in other media. PhRMA Memorial Sloan-Kettering Cancer Center Health policy advisers Dora Hughes, MD, MPH, of Bristol-Myers Squibb AAMC Mount Sinai School of Obama 2008 and Jay Khosla, JD, of McCain 2008 Medicine Alzheimer’s Association spoke at “Innovation and the Elections: Presidential Muscular Dystrophy Perspectives on Health,” an event co-sponsored American Heart Association Association few very well informed of candidates candidatesby Scientists should and Engineers debate forscience America and The Food Allergy Project National Association positions on research: policyResearch!America at The George Washington Pfizer Inc 20% MENTAL HEALTH ISSUES / ofINCREASED Children’s ANXIETY Hospitals / STRESS / DEPRESSION University in September. The ONE Campaign16% DESTROYED HOMES / PROPERTIESNational Osteoporosis Foundation 4 5 United Health15% FoundationWIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 National Alliance for NewYork-Presbyterian Hospital 8% MADE PEOPLE SICK 3 Hispanic Health Parent Project Muscular AdvaMed 6% NO ELECTRICITY / WATER /Dystrophy RESOURCES American Association 6% INCREASE for IN POPULATIONThe / ScrippsCROWDING Research / RELOCATION Institute 3 1 STRONGLY AGREE 56% Dental Research 1 VERY INFORMED 14% 3% DEATH Society for Neuroscience 2 SOMEWHAT AGREE 29% American Cancer Society University of Chicago Medical 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% Cancer Action Network Center 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 4 STRONGLY DISAGREE 6% American Medical Group University of Iowa Carver 4 NOT AT ALL INFORMED 6% Association14% OTHER College of Medicine 2 5 DON’T KNOW 3% American Public Health University of Michigan Association 6% NONE / DON’T KNOW 1 University of North Carolina Association of Independent School of Medicine 2 Research Institutes University of Pennsylvania Charles Drew University of School of Medicine candidates should debate science policy Medicine and Science Vanderbilt University Medical The presidential candidates should participate in a debate to discuss Cold Spring Harbor Center key problems facing the United States, such as health care, climate Laboratory Washington University School change and how science can help tackle them. Emory University of Medicine Source: National Survey, 2008 FasterCures Association of Schools of americans willing to pay more for strongHarris Interactive support for Research!America for state and local Fred Hutchinson Cancer Public Health medical research health dept. funding

Research Center Kidney1992 Cancer Association Howard Hughes Medical National Health Council 3 Institute PARADE

2 2

1 FAVOR 75%

2 OPPOSE 22%

1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66%

2 NOT WILLING 1 TO PAY MORE 34% 1

research is a solution to rising health americans say not enough spent on care costs research

3

2

2 1 NOT ENOUGH 63% 1 PART OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27%

1 1

us should lead in research to improve californians concerned about global health globally health

4 3 2

1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

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Advocacy for Increased Investment in Research

Research!America members know that public and private investment in research is critical for the health and prosperity of the United States. We provide leadership to help ensure robust, increased investment in the National Institutes of Health, Centers for Disease Control and Prevention, Agency for Healthcare Research and Quality and National Science Foundation. Research!America promotes policies that foster innovation to help the U.S. maintain its competitive edge in medical and health research.

In a letter to then-President-elect Barack Obama and 2007 Investment in Research Trails Health Care congressional leaders, Research!America requested fSewpending very wellAgain informed of candidates candidates should debate science $11.1 billion for research in economic recovery 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION positionsU.S. funding on of research: medical and health research from policy funding: $8.6 billion for NIH, $1.4 billion for NSF, 16% DESTROYED HOMES / PROPERTIES government and private sources was about $122.4 $1.0 billion for CDC and $97 million for AHRQ. billion in 20074 according to Research!America’s U.S. 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING Research!America also led the effort—430 signatories 1 4 Investment in Health Research 2007. This represents just 8% MADE PEOPLE SICK strong—to encourage Obama to select the NIH 3 5.5% of the $2.25 trillion projected for 2007 health director early in his administration. As a result of this 6% NO ELECTRICITY / WATER / RESOURCES spending overall in the United States. Relative to outreach, Research!America leadership were invited to 6% INCREASE IN POPULATION / CROWDING / RELOCATION 3total health costs, research investment is stagnant, 1 STRONGLY AGREE 56% meet on more than one occasion with the Presidential a trend that began in 2005. Research!America1 VERY INFORMED has 14% 3% DEATH Transition Team. 2 SOMEWHAT AGREE 29% issued reports estimating the U.S. investment2 SOMEWHAT in INFORMED 52% 3% FLOODING We support the Campaign for Public Health, a 3 SOMEWHAT DISAGREE 6% health-related research since 2000. 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 501(c)(4) organization, in advocating for strong, sus- 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% 14% OTHER tained investment in the Centers for Disease Control 2 5 DON’T KNOW 3% and Prevention. Chaired by Evan Jones, principal of 6% NONE / DON’T KNOW 8 jVen Capital, CPH continued to create more support 1 for and awareness of the CDC. The Campaign’s work 2 in 2008 included advertisements promoting the CDC's value and the creation of the Public Health Leaders Roundtable, an advisory group. Additionally, CPH led two tours of the CDC’s Atlanta campus for congressio- nal staff members and worked with the Congressional Study Group on Public Health to organize Capitol Hill briefings on topics such as adolescent health, early americans willing to pay more for strong support for state and local childhood health, global health and health reform. medical research health dept. funding Appropriators Sen. Arlen Specter (PA), Sen. Tom Harkin (IA) In 2008, Research!America signed on to multiple letters in support of increases in the Labor, Health and 3 Human Services and Education Appropriations. Our e-advocacy network generated more than 5,000 2 messages from independent, determined advocates to 2 members of Congress in support of such increases. Appropriator Rep. David Obey (WI) 1 FAVOR 75%

2 OPPOSE 22%

1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66%

2 NOT WILLING 1 TO PAY MORE 34% 1

Americans willing to pay more for medical research Evan Jones, Campaign for Public Would you be willing to pay $1 per week more in taxes if you were Health chair [photo by Gail Weyant] certain that all the money would be spent for additional medical research, or not? americans say not enough spent on researchSource: National is Poll,a solution 2008 to rising health Charlton Research Company for Research!America care costs research

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2

1997 Research!America presents our first Advocacy Awards.

2 1 NOT ENOUGH 63% 1 PART OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27%

1 1

us should lead in research to improve californians concerned about global health globally health

4 3 2

1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

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1 Promoting the Economic Impact of Research

Medical research helps keep Americans healthy and on the job. It creates jobs nationwide that keep the U.S. competitive in the global economy, and evidence- based health care helps manage the rising costs of care. Because health research contributes to the economy in so many ways and because such arguments are highly effective, Research!America highlights messages about the economic value of research.

Eugene Garfield Economic Impact of Medical Investment in Research and Health Research Award Saves Lives and Money Amitabh Chandra, PhD, of Harvard Kennedy School Research!America’s of Government, and Douglas O. Staiger, PhD, of Investment in Research Dartmouth College, received Research!America’s 2008 Saves Lives and Money Eugene Garfield Economic Impact of Medical series is broadly and Health Research Award. Their publication, recognized as an effective advocacy tool. These one- “Productivity Spillovers in Health Care: Evidence from page fact sheets inform members of the U.S. Congress the Treatment of Heart Attacks,” was honored for and other decision makers about the human and demonstrating a model that could improve the economic impacts of public and private investments translation of research to practice. in medical and health research. Mark McClellan, MD, PhD, of Brookings, presented Research!America launched the innovative series the award to Chandra and Staiger at a ceremony at the in collaboration with the Funding First initiative of Newseum in Washington, DC. Keynote speaker David the Mary Woodard Lasker Charitable Trust. Today, 9 Leonhardt of The New York Times explained the Research!America partners with groups concerned potential role research could play in alleviating the with specific diseases and conditions highlighted in nation’s economic crisis. Since 2002, this award has the series. The Bill & Melinda Gates Foundation and been generously supported by the Eugene Garfield Global Violence Prevention, a project of the Pan Foundation. In 2008, the University of Chicago American Health Foundation, sponsored the 2008 Medical Center became the sponsoring partner of fact sheets on global health and global violence, the award. Kevin White, PhD, represented UCMC at respectively. Research!America also updated previously the event. published fact sheets about cancer, obesity, COPD, arthritis, oral diseases, HIV/AIDS, vision and blind- ness, and research as an economic driver.

Economic Impact of Research by State Local economies are strengthened by health research. In 2008, Research!America added a resource to our Web site that profiles each state’s sources of investment in research. See www.researchamerica.org/state_econ.

Anything that shines a spotlight on the vital link between health care and research has our total support. It opens Eugene Garfield, PhD; David Leonhardt; Douglas O. Staiger, PhD; Amitabh Chandra, PhD; Mark McClellan, MD, PhD; Kevin White, MD [photo by Mary Ann Gatty/DCEvent Photos.com] up new opportunities for scientific imagination and collaboration. Garfield Award Selection Committee — James L. Madara, MD, CEO of the University of Chicago Medical Center

Mark McClellan, MD, PhD (Chair) David Meltzer, MD, PhD David Cutler, PhD Kevin M. Murphy, PhD Karen Davis, PhD Tomas J. Philipson, PhD Amy Finkelstein, MPhil, PhD Samuel Silverstein, MD Sherry A.M. Glied, PhD Robert H. Topel, PhD Anupam B. Jena, PhD With leadership from Sen. Arlen Specter (PA) [far left], Sen. Tom Harkin (IA) [left] and Rep. John Edward Porter (IL), Congress commits to doubling the NIH budget in five years. 4

Public Health and Clinical Research Advocacy

Public health research and programs at the federal, state and local governments help protect Americans Public Health Advocacy from injury, illness, infectious disease and the Training Partners “everyday” risks of preventable but deadly condi- tions such as obesity and diabetes. Highlighting the City of El Paso Department work of public health professionals—from research of Public Health through delivery of service—and building their Clinical Research Forum few very well informed of candidates candidatescommunications should and debate advocacy science skills is a critical Ohio Society for Public positions on research: policypart of Research!America’s ongoing outreach. 20% MENTAL HEALTH ISSUES / INCREASED ANXIETYHealth / STRESS Education / DEPRESSION 16% DESTROYED HOMES / PROPERTIES The Ohio State University In 2008, Research!America joined the Healthiest College of Public Health 4 Nation Alliance5 , a collaboration committed to 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 Pennsylvania & Ohio Public taking decisive actions to accelerate true 8% MADE PEOPLE SICK 3 Health Training Center improvements in health for all Americans. 6% NO ELECTRICITY / WATER / RESOURCESUniversity of Pittsburgh 6% INCREASE IN POPULATION / CROWDING / GraduateRELOCATION School of 3 Public Health Advocacy and Clinical1 STRONGLY Research AGREE 56% Public Health 1 VERY INFORMED 14% 3% DEATH Advocacy Training Workshops 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING In 2008, Research!America conducted3 SOMEWHAT three DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES advocacy training workshops to4 help STRONGLY public DISAGREE health 6% Public Health Thank You Day 4 NOT AT ALL INFORMED 6% and clinical research professionals become more 2 Research!America,14% OTHER the American Public Health effective advocates. These workshops5 DON’T combine KNOW 3% Association, 6% NONE Association / DON’T KNOW of Schools of Public Health, insights, advocacy tools and interactive exercises to 1 Association of State and Territorial Health Officials, engage new advocates and help veteran advocates 2 10 National Alliance for Hispanic Health and National polish their skills. Workshops were presented in Association of County & City Health Officials Ohio, Texas and Washington, DC. celebrated the many contributions of the nation’s public health heroes on Monday, November 24, the fourth annual Public Health Thank You Day. Good public health research is at the Sixteen public health professionals were identified to americans willing to pay more for strongheart supportof making forgood state policy. and local represent public health heroes. Research!America’s medical research health— James dept. Mercy, funding PhD, National Center for Injury Control newly created Public Health Thank You Day and Prevention, Centers for Disease Control Facebook group grew quickly to almost 200 and Prevention members. Many partners featured the Public Health 3 Thank You logo and banner on their Web sites, placed letters to the editor and op-eds in their local 2 papers and sent thank you e-cards to local, state 2 and national public health professionals through www.publichealththankyouday.org. 1 FAVOR 75% Research!America’s chair emeritus, The Honorable 2 OPPOSE 22% Paul G. Rogers (1921-2008), was a public health hero who worked at the national level to achieve passage 1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66% of legislation that helped all Americans. Many public health heroes have followed his example in 2 NOT WILLING their own communities. 1 TO PAY MORE 34% 1

Strong support for state and local health Public health research is an integral part of department funding economic growth; leveraging scientific innovation Do you favor or oppose increasing federal funding for state and is challenging, but essential. local health departments and hospitals across the country that are expected to prepare for and respond to threats to our health? — James L. Regens, PhD, University of Oklahoma Health research is a solution to rising health americansSource: Your Candidates–Yoursay not enough Health Survey, spent 2007 on Sciences Center for Biosecurity Research Charlton Research Company for Research!America care costs research

3 Research!America leads the formation of the Campaign 2 for Medical Research, a 501(c)(4) organization Research!America releases our with the initial goal of doubling of the NIH budget. first Poll Data Summary of recent

1998 John Whitehead is named CMR's founding chair. NIH budget sees a 15% increase. polling results. 2 1 NOT ENOUGH 63% 1 PART OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27%

1 1

us should lead in research to improve californians concerned about global health globally health

4 3 2

1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

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few very well informed of candidates candidates should debate science positions on research: policy 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION 16% DESTROYED HOMES / PROPERTIES

4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 8% MADE PEOPLE SICK 3 6% NO ELECTRICITY / WATER / RESOURCES

6% INCREASE IN POPULATION / CROWDING / RELOCATION 3 1 STRONGLY AGREE 56% 1 VERY INFORMED 14% 3% DEATH 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% 14% OTHER 2 5 DON’T KNOW 3% 6% NONE / DON’T KNOW 1 2 few very well informed of candidates candidates should debate science positions on research: policy 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION 16% DESTROYED HOMES / PROPERTIES

4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 8% MADE PEOPLE SICK americans willing to pay more for strong support for state and local 3 medical research health dept. funding 6% NO ELECTRICITY / WATER / RESOURCES 6% INCREASE IN POPULATION / CROWDING / RELOCATION Public Opinion 3 1 STRONGLY AGREE 56% 1 VERY INFORMED 14% 3% DEATH 3 Poll Data 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% 2 3 Thanks NOT TOO INFORMEDto our 28% 3% INCIDENCE OF ALLERGIES Among the most valued benefits of Research!America membership is direct access to 2008 Poll Sponsors 4 STRONGLY DISAGREE 6% 2 4 NOT AT ALL INFORMED 6% 14% OTHER our unique public opinion poll data on Americans’ attitudes toward medical, health and 2 5 DON’T KNOW 3% 6% NONE / DON’T KNOW scientific research and a wide range of related issues. Since 1992, Research!America Bill & Melinda Gates 1 FAVOR 75% 1 has commissioned and released the findings of more than 100 national and state polls. Foundation 2 OPPOSE 22% 2 ScienceDebate2008.com Five new polls were commissioned and released in 2008 on topics related to science 1 WILLING 3 DON’T KNOW 3% Pfizer Inc TO PAY MORE 66% and the presidency, mental health, public health, global health, and prioritizing health Wyeth 2 NOT WILLING and research in 2009. 1 TO PAY MORE 34% 1 Research!America provides poll results to its members, Congress, state government leaders, journalists, other americans willing to pay more for strong support for state and local decision makers, opinion leaders and the general medical research health dept. funding public. Thanks to the generous and continued support of the United Health Foundation, Research!America 3 published America Speaks: Poll Data Summary, Volumeamericans 9 in 2008. say not Snapshots enough from spent recent on poll data are research is a solution to rising health 2 featuredresearch throughout this report and can be accessed care costs through the Research!America Web site. 2

3 1 FAVOR 75%

2 OPPOSE 22% 2 1 WILLING 11 3 DON’T KNOW 3% TO PAY MORE 66%

2 1 NOT ENOUGH 63% 2 NOT WILLING 1 PART OF THE TO PAY MORE 34% SOLUTION 73% 2 THE RIGHT AMOUNT 32% 1 1

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27%

1 1

research is a solution to rising health americans say not enough spent on Americans say not enough spent on research care costs research In 2007, the U.S. spent 5 and a half cents of each health dollar on research to prevent, cure and treat disease and disability. Do you 3 us should lead in research to improve californiansthink that is too concernedmuch, the right amountabout or global not enough? health globally healthSource: National Poll, 2008 Charlton Research Company for Research!America 2

4 3 2 2 1 NOT ENOUGH 63% 1 PART OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27% 1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10% 1 1 4 NOT AT ALL VALUABLE 2%

research is a solution to rising health care costs 1 When it comes to rising health care costs, would you say research to 1 improve health is part of the problem or part of the solution? us shouldSource: National lead Poll, in 2008 research to improve californians concerned about global Charlton Research Company for Research!America health globally health

4 With a grant from the Robert Wood Johnson3 Foundation, Research!America launches our 2

2000 Prevention Research Initiative to elevate prevention research to a higher national priority.

1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

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few very well informed of candidates candidates should debate science positions on research: policy 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION 16% DESTROYED HOMES / PROPERTIES

4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 8% MADE PEOPLE SICK 3 6% NO ELECTRICITY / WATER / RESOURCES

6% INCREASE IN POPULATION / CROWDING / RELOCATION 3 1 STRONGLY AGREE 56% 1 VERY INFORMED 14% 3% DEATH 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% 14% OTHER 2 5 DON’T KNOW 3% 6% NONE / DON’T KNOW 1 2

americans willing to pay more for strong support for state and local medicalGlobal research Health Research health dept. funding Advocacy 3

Global health research benefits Americans as well as people around the world. Named for The Honorable 2 2 Paul G. Rogers (1921-2008), former Congressman, Research!America chair emeritus and renowned advocate for research to improve health, the Paul G. Rogers Society for Global Health Research includes some of the nation’s foremost leaders in global health research, public policy and communications. 1 FAVOR 75% 2 OPPOSE 22% The Honorable John Edward Porter Bailey Hutchison (TX); Rep. Michael 1 WILLING 3 DON’T KNOW 3% chairs the distinguished Advisory TO PAY MORE 66% Burgess (TX); and other federal, state Council that selects the Rogers and local officials. 2 NOT WILLING Society Ambassadors. The Ambassadors 1 TO PAY MORE 34% :: Media outlets have1 quoted or are some of the nation’s most respected published columns by Ambassadors, and inspiring “citizen-scientist” leaders including the Lansing State Journal, in global health research. The Society Tulsa World, Edmond (OK) Sun, received renewed support from the Bill Indianapolis Star, The Capital Times & Melinda Gates Foundation in 2008. (Madison, WI), Pittsburgh Post-Gazette, The 75 Rogers Society Ambassadors CQ Healthbeat, and Science. serve the public’s interest by increasing :: Jeffrey P. Koplan, MD, MPH; Robert researchawareness is a solution of—and to making rising the health case americans say not enough spent on researchEdward Black, MD, MPH; and Peter care costsfor—greater U.S. investment in research J. Hotez, MD, PhD, spoke in July at a to fight diseases that disproportionately session of the Institute of Medicine affect the world’s poorest nations. In Committee3 on the U.S. Commitment 2008, the Rogers Society developed an The Honorable Paul G. Rogers [photo by to Global Health. 12 2 ad urging leaders to invest in research Mike Gatty/DCEvent Photos.com] to save lives and improve health around :: Hotez also spoke at a June Capitol the world. It ran in The Hill and other Hill briefing, “Working Smart in publications. Additional Society successes in Global2 Health: Learning as We Deliver,” 1organized NOT ENOUGH 63% 1 PART OF THE by Research!America, the Global Health Council and 2008 follow: 2 THE RIGHT AMOUNT 32% SOLUTION 73% the World Health Organization’s Special Program for :: Ambassadors met with more than2 PA RT150 OF THEpolicy Research and Training in Tropical Diseases.3 TOO MUCH 5% makers and their staffs, including PROBLEMRep. Donald 27% Payne (NJ), chair of the Foreign Affairs Subcommittee on :: Samuel L. Stanley Jr., MD, and Eric Bing, MD, PhD, Africa and Global Health; Sens. Frank Lautenberg (NJ) MPH, spoke at a Capitol Hill briefing, “Global Health and Robert Menendez (NJ); Rep. Rush Holt (NJ); IS America’s Health,” in November, sponsored by the 1 Rep. Lynn Woolsey (CA); Rep. Carolyn Maloney (NY); Congressional Asian Pacific American1 Caucus, Rep. John Sarbanes (MD); Rep. Henry Waxman (CA); Congressional Black Caucus Health Braintrust, Sen. Barbara Boxer (CA); Sen. Tom Harkin (IA); Congressional Hispanic Caucus Task Force on Health Sen. Dianne Feinstein (CA); Sen. Russ Feingold (WI); and the Environment, and Congressional Global Rep. Roy Blunt (MO); Sen. Ben Cardin (MD); Sen. Joe Health Caucus. us shouldBiden lead (DE); in research Sen. Barbara to improve Mikulski (MD); Rep. Betty :: Adelcalifornians A.F. Mahmoud, concerned MD, PhD, about was globalhonored by the health globallyMcCollum (MN); Sen. Carl Levin (MI); Sen. Debbie Friendshealth of the National Library of Medicine. Stabenow (MI); Rep. Carolyn Kilpatrick (MI); Sen. Kay 4 3 2

AMERICANS SAY u.s. should lead in research 1 VERY VALUABLE 48% 1 YES 85% to improve health globally 2 SOMEWHAT VALUABLE 40% 2 NO 15% 2 How valuable do you think it is for the U.S. to be a leader in research 3 NOT TOO VALUABLE 10% to improve health globally?

4 NOT AT ALL VALUABLE 2% Source: National Global Health Survey, 2008 Charlton Research Company for Research!America

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The Paul G. Rogers Plaza on the NIH campus is dedicated in honor of Research!America’s chair [left, with Ruth L. Kirschstein, MD, NIH], as a

2001 result of an act of Congress in 2000. Fonts used: Century Old Style - italic (main and tag line)

Colors: PMS 287 = C:100 M:72 Y:2 K:12 PMS 201 = C:7 M:100 Y:65 K:32 PMS 130 = C:0 M:30 Y:100 K:0

:: Wafaa El-Sadr, MD, MPH, MPA, was named to the WHO’s Strategic and Technical Advisory Group on Tuberculosis. El-Sadr also received a MacArthur Foundation fellowship for her work as a global leader in the field of infectious diseases and public health. :: Melinda Moore, MD, MPH, presented at a :: Philip Hopewell, MD, spoke to Stanford University congressional briefing on Capitol Hill about pandemic students and faculty about the importance of global influenza preparedness in Southeast Asia and the health research. Middle East. :: Hotez and James E.K. Hildreth, MD, PhD, were :: Thomas G. Streit, CSC, PhD, participated in a press elected to the prestigious Institute of Medicine at the call for FamiliesUSA on a report documenting U.S. National Academies, one of the highest honors in government funding on research and development for health and medicine. eight neglected infectious diseases. :: Carmen J. Portillo, RN, PhD, addressed global 2009 Paul G. Rogers Society for Global Health health research issues at the “Partnerships in Global Research Ambassadors Health Research: A Bridge to the World” forum in San Francisco, hosted by Research!America, Pfizer Inc, Ambassadors Adnan A. Hyder, MD, MPH, PhD University of California, Berkeley, and University Linda H. Aiken, PhD, RN James W. Kazura, MD of California, San Francisco. Michele Barry, MD Kelli L. Kuhen, PhD :: William Tierney, MD, participated in National Barry Beaty, PhD Richard R. Love, MD Institutes of Health meetings exploring public-private David E. Bloom, PhD Carole D. Mitnick, ScD 13 partnerships in global health research. Jacquelyn Campbell, PhD, RN Keith Norris, MD Daniel G. Colley, PhD Richard Parker, PhD Frank H. Collins, PhD Mark M. Rasenick, PhD Walter R. Dowdle, PhD Scott Ratzan, MD Cyril O. Enwonwu, ScD, Steven G. Reed, PhD PhD, MDS Lee B. Reichman, MD, MPH Pierce Gardner, MD Mark L. Rosenberg, MD Anne Goldfeld, MD Mathuram Santosham, Patricia Hibberd, MD, PhD MD, MPH

Advisory Council Robert A. Ingram The Honorable John Edward Donald E. Kennedy, PhD Porter, chair Gerald T. Keusch, MD The 2009 Paul G. Rogers Society for Global Health Research Ambassadors [photo by Mary Ann Gatty/DCEvent Photos.com] Dennis A. Ausiello, MD Mathilde Krim, PhD David Baltimore, PhD* Richard A. Lerner, MD Günter Blobel, MD, PhD* Alan I. Leshner, PhD Barry R. Bloom, PhD, DSc The Honorable Bob Michel Ambassador Nancy G. Brinker William D. Novelli Roger J. Bulger, MD The Honorable Sandra Day Thomas G. Burish, PhD O’Connor Gail H. Cassell, PhD Herbert Pardes, MD David R. Challoner, MD William A. Peck, MD Yank D. Coble Jr., MD William L. Roper, MD, MPH Rita R. Colwell, PhD, DSc Isadore Rosenfeld, MD Glen Daugherty Allan Rosenfield, MD Nils Daulaire, MD, MPH (1933–2008) Jane Delgado, PhD Steven A. Schroeder, MD Susan Dentzer M. Roy Schwarz, MD Dominick P. DePaola, John R. Seffrin, PhD DDS, PhD Harrison C. Spencer, MD, MPH Harvey V. Fineberg, MD, PhD The Honorable Louis W. Robert S. Galvin, MD Sullivan, MD Helene D. Gayle, MD, MPH Ciro V. Sumaya, MD, MPHTM Joseph L. Goldstein, MD* M. Cass Wheeler J. Warren Gorrell Jr. Mary Woolley Leland Hartwell, PhD* Karen A. Goraleski, Martha N. Hill, RN, PhD vice president, public John P. Howe, III, MD health partnerships *Nobel Laureate 2008 National Forum: Research for Health in 2008: Valuing Evidence and Enhancing Impact

Each of us individually has to work even harder than we have up until now to turn this around and put science and research back high among our nation’s priorities. — The Honorable John Edward Porter, Research!America chair, opening remarks

C-SPAN2 broadcast live from Research!America’s 2008 National Forum, which brought together nationally recognized leaders in government, media, industry and patient advocacy organizations—including the directors of three federal research agencies and the lead research officer for the Department of Veterans Affairs—for a dynamic discussion about medical and health research. Panelists discussed issues that Andrew C. von Eschenbach, MD; Elias A. Zerhouni, MD; Garry Neil, MD; Susan Dentzer; Joel influence public policy, media coverage and public Kupersmith, MD; Carolyn M. Clancy, MD; William D. Novelli; Julie Louise Gerberding, MD, MPH perception. Nearly 200 people attended the March 18 [photo by Mike Gatty/DCEvent Photos.com] event at the National Press Club.

14 At the National Press Club event, Susan Dentzer challenged panelists to look back at the early 2000s from the perspective of an “Intergalactic Press Club” meeting in 2030 and to consider: “Did the nation under-invest in research?” “What opportunities were lost?” “Why didn’t things change?” “What would have made the most difference?”

She also asked each panelist to recommend five to seven goals to keep health-related research among the nation’s top priorities. “This is not easy. It will require major social and economic change.” — Moderator Susan Dentzer, health correspondent, “The NewsHour with Jim Lehrer” on PBS

It takes way too long to apply evidence in health care. There’s no question. We can do this (speed up application of evidence), with the greatest input coming from stakeholders. — Carolyn M. Clancy, MD, director, Agency for Healthcare Research and Quality

Because many of our researchers also see patients, the VA is able to translate from bench to clinical practice. All veterans in our system have an electronic health record, which is a model for others. — Joel Kupersmith, MD, chief research and development officer, U.S. Department of Veterans Affairs

Research!America presents the Research!America releases our first annual report first Eugene Garfield Economic documenting U.S. investment in health research Impact of Medical and Health

2002 across public and private sectors. Research Award. Thank You to Our National Forum Sponsors

AARP Astellas Friends of VA Medical Care The tragedy is that it’s one thing to not know what to do, but an and Health Research even bigger tragedy is to not do what we know, such as getting The Hill Infocast Americans to stop smoking, to eat right and to exercise. Johnson & Johnson — Julie Louise Gerberding, MD, MPH, director (2002–2009), Novartis Centers for Disease Control and Prevention Pfizer Inc Pharmaceutical Research and Manufacturers of America Vietnam Veterans of America [photos by Mike Gatty/DCEvent Photos.com]

In 2008, wedges between public-private partnerships prevent [research from] flourishing and thriving. … Small changes can have a big impact—change the incentives toward outcome instead of activity. — Garry Neil, MD, corporate vice president, Corporate Office of Science and Technology, Johnson & Johnson

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The biggest problem [for research] is not on the bench, but it’s on the Hill. … There’s a lot of angst out there. We must turn that angst into anger. When the middle class gets mad, politicians listen. — William D. Novelli, chief executive officer, AARP

Investments in biomedical research are going to be the drivers of the economy in the next two decades. This is not an appropriation; this is an investment in our present and in our future. — Andrew C. von Eschenbach, MD, commissioner (2005–2009), Food & Drug Administration

The seeds of great discoveries in 2030 are germinating in 2008. We must feed and fertilize these ideas now to reap the benefits in the future. — Elias A. Zerhouni, MD, director (2002–2008), National Institutes of Health

The Investment in Research Saves Lives and Money fact sheet series is launched, supported by the Albert and Mary Lasker Pfizer Inc partners with Research!America for Foundation’s Funding First Initiative. the first of many Research Partners Forums. Research Partners Forums

Our Research Partners Forums are open dialogues between leaders in academia,4 business, government, non-profits, news media and the public on subjects that are relevant to improving health through research. Research!America forums generate discussion about the social and economic impacts of research at the intersection of science, public policy and politics. In 2008, Research Partners Forums reached audiences in Louisiana and California with provocative discussions about mental health and global health, respectively.

Louisianans Speak Out on Mental and Public Health Thank You Mental and Public Health in Concert: Voices from to Our Partners Louisiana was presented in New Orleans on April 29. Led by moderator Corey Hebert, MD, medical director Pfizer Inc of the State of Louisiana Recovery School District, Louisiana State University experts discussed the challenges still facing Health Sciences Center Louisiana—and New Orleans in particular—as the Tulane University School of mental and public health infrastructure is rebuilt in Public Health and Tropical the aftermath of hurricanes Katrina and Rita. Diseases Panelists included: University of California, Corey Hebert, MD [photo by Rick Olivier] Berkeley School of Public :: Eric Baumgartner, MD, MPH, Louisiana Public Health Health Institute University of California, :: Neil Boris, MD, Tulane University San Francisco Global Health Sciences :: Cathryn M. Clary, MD, Pfizer Inc 16 :: Anthony Patton, EBONetworks :: Ben Springgate, MD, MPH, St. Anna Medical Mission :: Mark H. Townsend, MD, Louisiana State University katrina & rita: hurricanes have the greatest Research!America’s Karen A. Goraleski presented the impact on mental health results of a statewide public opinion poll commissioned In what ways did the hurricanes impact your own health or the to gain a better understanding of how the public health of people in your community? (% first mentions) perceives mental health in Louisiana. When asked, Source: Louisiana Survey, 2008 Charlton Research Company for Research!America few very well informed of candidates candidates“In should what ways debate did thescience hurricanes impact your own health or the health of people in your community?” 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION positions on research: policy Louisianans mentioned mental health issues more 16% DESTROYED HOMES / PROPERTIES than any other concern—including destroyed homes. 4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 Keynote speaker Donald Palmisano, MD, JD, past-pres- 8% MADE PEOPLE SICK 3 ident, Louisiana State Medical Society, highlighted the need for more health professionals in the community. 6% NO ELECTRICITY / WATER / RESOURCES 3 “You don’t have to go to a third-world country—you 6% INCREASE IN POPULATION / CROWDING / RELOCATION can come to Louisiana,”1 heSTRONGLY said ofAGREE those 56% looking for 1 VERY INFORMED 14% 3% DEATH opportunities to help. 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% 14% OTHER 2 5 DON’T KNOW 3% 6% NONE / DON’T KNOW 1 2

americans willing to pay more for strong support for state and local medical research health dept. funding [photo by Donn Young “Sunrise 9th Ward New Orleans] Ward “Sunrise 9th Young [photo by Donn

3 The doubling of the NIH budget is complete, a multi-organizational effort

2003 in which the Research!America alliance played a leadership role. 2 2

1 FAVOR 75%

2 OPPOSE 22%

1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66%

2 NOT WILLING 1 TO PAY MORE 34% 1

research is a solution to rising health americans say not enough spent on care costs research

3

2

2 1 NOT ENOUGH 63% 1 PART OF THE SOLUTION 73% 2 THE RIGHT AMOUNT 32%

2 PART OF THE 3 TOO MUCH 5% PROBLEM 27%

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us should lead in research to improve californians concerned about global health globally health

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1 VERY VALUABLE 48% 1 YES 85% 2 2 SOMEWHAT VALUABLE 40% 2 NO 15% 3 NOT TOO VALUABLE 10%

4 NOT AT ALL VALUABLE 2%

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few very well informed of candidates candidates should debate science positions on research: policy 20% MENTAL HEALTH ISSUES / INCREASED ANXIETY / STRESS / DEPRESSION 16% DESTROYED HOMES / PROPERTIES

4 5 15% WIND / ROOF DAMAGE / IMPACT IS DEVASTATING 1 4 8% MADE PEOPLE SICK 3 6% NO ELECTRICITY / WATER / RESOURCES

6% INCREASE IN POPULATION / CROWDING / RELOCATION 3 1 STRONGLY AGREE 56% 1 VERY INFORMED 14% 3% DEATH 2 SOMEWHAT AGREE 29% 2 SOMEWHAT INFORMED 52% 3% FLOODING 3 SOMEWHAT DISAGREE 6% 3 NOT TOO INFORMED 28% 3% INCIDENCE OF ALLERGIES 4 STRONGLY DISAGREE 6% 4 NOT AT ALL INFORMED 6% 14% OTHER 2 5 DON’T KNOW 3% 6% NONE / DON’T KNOW 1 2

americans willing to pay more for strong support for state and local medical research health dept. funding

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2 2

1 FAVOR 75%

2 OPPOSE 22%

1 WILLING 3 DON’T KNOW 3% TO PAY MORE 66%

2 NOT WILLING 1 TO PAY MORE 34% 1

Betty Ann Bowser; Charles Knirsch, MD, MPH; Stephen Shortell, PhD, MPH; Dial Hewlett Jr., MD; Carmen Portillo, RN, PhD; Haile T. Debas, MD; Art Reingold, MD; and Joe Cerrell [Elisabeth Fall Photography] An engaging conversation on a range of topics in research is a solution to rising health globalamericans health, including say not enough public-private spent partnerships, on Global Health Leaders Discuss Partnerships, wasresearch led by moderator Betty Ann Bowser, health care costsInnovation correspondent for “The NewsHour with Jim Lehrer” on PBS. Panelists were: Research Partners Forum Partnerships in Global 3 Health Research: A Bridge to the World was presented :: Joe Cerrell, director of global health policy and 2 on December 8 in San Francisco. Research!America advocacy at the Bill & Melinda Gates Foundation President Mary Woolley released the results of a poll :: Haile T. Debas, MD, of UCSF Global Health Sciences of California residents on the subject of global health :: Dial Hewlett Jr., MD, of Pfizer Inc and the role California and the United States should 2 1 NOT ENOUGH 63% 1 PART OF THE play. The poll showed that 84% SOLUTION of Bay 73% Area residents :: Charles Knirsch, MD, MPH, of Pfizer2 THE Inc RIGHT AMOUNT 32% think that Americans will be better off if the U.S. 2 PART OF THE :: Carmen Portillo, RN, PhD, of UCSF3 School TOO MUCH of 5% 17 government invests in research PROBLEM to improve 27% health Nursing and a Paul G. Rogers Society for Global around the world. Nearly 96% say that investing in Health Research Ambassador scientific research is important to help create jobs in :: Art Reingold, MD, of UC Berkeley School of Public California. 1 Health 1 Julie Louise Gerberding, MD, MPH, Centers for Disease :: Stephen Shortell, PhD, MPH, of UCSF Global Health Control and Prevention director (2002–2009), focused Sciences her keynote address on the ways global health research will benefit development in other countries, A podcast of the forum is available at emphasizing that an all-encompassing approach to http://researchamerica.blogspot.com. us should leadglobal in healthresearch will to produce improve greater results. californians concerned about global health globally“Glocality [is] the idea that a problem that is global is health simultaneously local—local for somebody,” she said, 4 reinforcing3 that what is good for global health is good 2 for America’s health.

californians concerned abou1 tVERY glob VALUABLEal hea 48%lth 1 YES 85% 2 When you hear the term global health,2 SOMEWHATdo you think VALUABLE it is an 40% issue 2 NO 15% about which Californians should be concerned? 3 NOT TOO VALUABLE 10% Source: California Global Health Survey, 2008 Charlton Research Company for Research!America4 NOT AT ALL VALUABLE 2%

1

1

The Campaign for Public Health, a 501(c)(4) organization, is formed with leadership from Research!America, to PARADE magazine publishes increase funding for the Centers for four PARADE/Research!America Disease Control and Prevention.

2004 Health Polls. Evan Jones is named chair of CPH. 12th Annual Advocacy Awards To honor stars of medical, health and scientific research advocacy

Nearly 500 supporters of health and medical research attended Research!America’s 12th Annual Advocacy Awards on March 18, 2008, at the Andrew W. Mellon Auditorium in Washington, DC. In opening remarks, The Honorable John Edward Porter, Research!America chair, and Mary Woolley, Research!America president and CEO, urged all attendees to become breakthrough advocates in a crucial election year. Research!America’s Your Candidates–Your Health voter education initiative and Science Debate 2008 were noted as two key efforts to help medical, health and scientific research advocates to have an unprecedented impact.

n California Gov. Arnold Your country needs you! Not to sit Schwarzenegger was honored on the sidelines and watch, but with the Isadore Rosenfeld Award to get in the game. So get off your for Impact on Public Opinion. He was recognized for his chair, and do something outside demonstrated commitment to your comfort zone and make a cutting-edge medical and health difference for science! research, including stem cell research, and for his leadership to — The Honorable John Edward Porter The Honorable John Edward Porter, Susan Whitehead provide better health care for all Californians. George Vradenburg, Isadore Rosenfeld, MD; George Vradenburg president, Vradenburg Foundation, accepted the award on Schwarzenegger’s behalf. 18 Award Benefactor: Rosenfeld Heart Foundation Research!America is making a difference in the lives of people in communities across America by instilling that most precious of Both clinical medicine and public health are all gifts—hope. dependent on science with its driving force Sen. Edward M. Kennedy (MA) — Sen. Edward M. Kennedy, being the seeking of truth and breaking down in a videotaped acceptance message the walls of ignorance. Science does both by means of research. n Sen. Edward M. Kennedy (MA) was recognized William H. Foege, MD, MPH with Research!America’s pinnacle award, the Edwin C. — William H. Foege, MD, MPH, in written acceptance remarks Whitehead Award for Medical Research Advocacy. The Senator was honored for his longtime, outspoken n support of federal policies to advance medical, health Renowned epidemi- and scientific research, including championing ologist and public health National Institutes of Health funding and embryonic research advocate William stem cell research. Susan Whitehead of the Whitehead H. Foege, MD, MPH, was Charitable Foundation presented the award. recognized with the Raymond and Beverly Award Benefactor: Whitehead Charitable Foundation Sackler Award for Sustained National Leadership. A former Centers for Disease Outstanding scientific minds and break- Joe Feczko, MD,; Michael Madnick Control and Prevention through technologies have combined to director, Foege’s pioneering give us an era of unprecedented medical achievements include the successful campaign to erad- icate smallpox in the 1970s. Additionally, Foege has achievement. Researchers need the funds to championed many public and global health research continue on this upward course. issues. He is a Bill & Melinda Gates Foundation senior — Gov. Arnold Schwarzenegger in his acceptance letter fellow and an emeritus presidential distinguished Gov. Arnold Schwarzenegger (CA) professor at Emory University Rollins School of Public Health. Michael Madnick of the Bill & Melinda Gates Foundation accepted the award on Foege’s behalf. Joe Feczko, MD, of corporate host Pfizer Inc, presented the award. Award Benefactor: Beverly & Raymond R. Sackler, MD Research!America extends special thanks to our 2008 Advocacy Award supporters

Corporate Host Pfizer Inc Media Sponsor PARADE Grand Reception Sponsor Investment in research can change outcomes. GlaxoSmithKline … Raising your voice (for research) can make you Program Partners different, make you learn, make you have hope and Abbott Laboratories can change the world. Gates Foundation — Pat Furlong Patrons Pat Furlong, Randy Siegel Johnson & Johnson Merck, Inc. n Pat Furlong, founding president and CEO of Parent Project Muscular sanofi-aventis Dystrophy, received the Gordon and Llura Gund Leadership Award. Contributors Furlong founded Parent Project Muscular Dystrophy in 1994 after both of American Cancer Society her sons were diagnosed with Duchenne muscular dystrophy. Unfortunately, Baxter International she lost both of her sons to the disease. PPMD is now the largest non-profit Quintiles Transnational Corp. organization in the U.S. solely focused on DMD. Schering-Plough Award Benefactor: Gordon and Llura Gund Sponsors Alnylam Pharmaceuticals Alzheimer’s Association American Heart Association AstraZeneca We need to achieve a cure for AIDS. David & Denise Bunning The Food 19 A conventional vaccine won’t work. It will Allergy Project, Inc. take a quantum jump in our way of thinking. Pharmaceutical Research and Manufacturers of America — Mathilde Krim, PhD TEVA Pharmaceuticals

The Honorable Paul G. Rogers; Mathilde Krim, PhD; Wyeth M. Cass Wheeler Friends AARP n The Paul G. Rogers Distinguished Organization Advocacy Award was amfAR, The Foundation for AIDS presented to amfAR, The Foundation for AIDS Research. Founded in 1985, Research amfAR was selected for its outstanding work to accelerate HIV/AIDS research Association of American Medical and to achieve breakthroughs in prevention, treatments and a search for a Colleges cure. Mathilde Krim, PhD, amfAR founding chairman, accepted the award. Association for Research in Vision and Ophthalmology/National The award is named for The Honorable Paul G. Rogers (1921-2008), a former Alliance for Eye and Vision Congressman, renowned advocate for health and Research!America chair Research emeritus. B&D Consulting Award Benefactor: Hogan & Hartson Baylor College of Medicine Graduate School of Biomedical Sciences Brigham & Women’s Hospital Brooks Street Dana-Farber Cancer Institute What must you do in order to be successful David Geffen School of Medicine (when building and running an institution)? at UCLA Duke University Medical Center You must understand the intellectual currency Emory University and don’t go counter to it. Evan & Cindy Jones Foundation — Richard Lerner, MD Harvard Medical School Richard A. Lerner, MD; Dennis A. Ausiello, MD Mary J.C. Hendrix, PhD Loyola University Medical Center Parent Project Muscular Dystrophy n Research!America’s second annual Builders of Science award was presented PTC Therapeutics to Richard A. Lerner, MD, president of The Scripps Research Institute in La The Scripps Research Institute Jolla, CA. Lerner has served as president of Scripps since 1986, and today, it Squire, Sanders & Dempsey, LLP is one of the largest and most respected private non-profit research organiza- Washington University in St. Louis tions in the nation. Its sister institute opened in Jupiter, Florida, in 2004. School of Medicine

Weill Medical College of Cornell Ann Gatty/DCEventPhotos.com] [Event Photos by Mike Gatty and Mary University Research!America Honored Communicating Research!America communications the Value of Research efforts were honored with several awards in 2008, including an Apex award of excellence for most Media Outreach and Coverage :: The New York Times, improved Web site, a Hermes gold International, national and local news media Pittsburgh Post-Gazette, India- award and a silver Davey Award increasingly cite Research!America leaders and napolis Star, Capital Times, for www.researchamerica.org. our messages. 2008 highlights include: Wisconsin State Journal, Our 2007 annual report received a Edmond (OK) Sun, Tulsa Hermes honorable mention, and :: Research!America board chair, The Honorable John World, Lansing State Journal, a silver Davey Award was awarded Edward Porter, was quoted in a front-page New York Herald Sun (NC) and Seattle to Your Congress–Your Health. Times article on the importance of research for the Post-Intelligencer published U.S. economy and global competitiveness. The article editorials, letters and/or op- also appeared in a number of other publications and eds on global health research after meetings with Web sites, including The International Herald-Tribune. Paul Rogers Society for Global Health Research :: Porter also was quoted about the role science must Ambassadors. The Rogers Society was cited in a play in the Obama Administration by a number of Science magazine editorial, on CNBC.com, in the media outlets including ABCNews.com, the Associated RAND Health Congressional Newsletter and in the Press, MSNBC.com and Science. AAPA News. The expanded funding from the Gates Foundation for the Society was featured on the Bill :: Nature Medicine named Research!America one of the & Melinda Gates Foundation’s Web site, in the 15 medical research advocacy groups to know, and Philanthropy News Digest and the ASPH Friday Letter. profiled Porter as one of 10 influential people to watch in biomedical policy. :: The 2008 Research!America National Forum was broadcast live by CSPAN2 and covered by CSPAN. :: Porter was profiled inThe Scientist as one of four leaders shaping the future of science policy. :: Research!America’s “2007 U.S. Investment in Health Research” report was featured in CQ HealthBeat, The 20 :: An editorial about global health by Mary Woolley Journal of Life Sciences, Science News’ blog and The Deal and Jim Wells, PhD, a University of California, San Newsweekly magazine. Francisco, professor, was published in Science. :: Research!America’s Stacie Propst, PhD, was a guest on public radio’s “The Tavis Smiley Show.” Your Candidates–Your Health garnered considerable :: Woolley and Propst were featured in The Journal of media attention, reaching about 111 million people: Life Sciences on advocacy by scientists. :: Woolley was interviewed by Ira Flatow on National :: Research!America’s Woolley, Propst and Emily Public Radio’s “Science Friday” program. Connelly wrote “U.S. Investment in Research to :: CNN Radio, Wall Street Journal Radio and local radio Improve Health,” published in Monitoring Financial stations also covered the initiative. Flows for Health Research 2007. :: Nature Medicine, Nature magazine, Science News and :: Porter and Research!America were featured in a The Nation’s Health (APHA) referenced the initiative in report from Sweden’s SNS–Centre for Business and several articles leading up to the election. Policy Studies, Titans and Tigers: Biomedicine and :: The Scientist’s Editor-in-Chief Richard Gallagher, Innovation Systems. PhD, wrote about the initiative in an editorial. :: The 2008 Eugene Garfield Economic Impact of :: An op-ed by former Research!America intern Andrew Medical and Health Research Award and the Gore was published in The Tennessean (Nashville). moderated debate between presidential candidate advisers that preceded the award presentation were :: Woolley was also a guest on Cleveland NPR station covered in The Hill and Nature’s blog The Great Beyond. 90.3 FM WCPN’s panel discussion about the election.

2008 Media Coverage Included:

Associated Press C-SPAN The Denver Post Forbes.com

Huffington Post The Kansas City Star MSNBC.com

All media logos are the copyright of the respective companies.

The Honorable John Edward Porter is elected board Research!America’s membership PARADE magazine cover story chair, and The Honorable Paul G. Rogers remains grows to 500 organizations that features Research!America

2005 active with Research!America as chair emeritus. represent 125 million Americans. stem cell poll data. Research!America is extremely successful at creating effective tools for communicating with Congress and the general public regarding the importance of funding research. — Mike “Chip” Morgan, Association of Independent Research Institutes president

Communicating the Value of Research for Biomedical Research; Society To create real change and stronger support for health for Neuroscience; and medical research, Research!America continues to Southwest Foundation build and develop its coalition of advocates. One way for Biomedical we do this is by speaking to a wide variety of audiences. Research; Stowers Research!America leadership and staff regularly speak Institute for Medical to scientists, public health professionals and policy Research and others. makers. 2008 highlights include: :: When the Global Ministerial Forum on Research for Shaping the Curriculum Health convened in Bamako, Mali, Mary Woolley for Young Scientists presented strategies to encourage civil society’s (or non-profits’) involvement in making the case for Clinical and [photos by Mike Gatty/DCEventPhotos.com] stronger research funding and better health for all. Translational At a preparatory meeting in Copenhagen, Denmark, Sciences: Principles of —a new textbook published by Karen A. Goraleski, vice president of public health Human Research partnerships, and representatives of 10 nations Research!America member Elsevier and edited by 21 developed the call for civil society engagement that David Robertson, MD, Vanderbilt University, and was presented and adopted at the Bamako forum. Gordon H. Williams, MD, Harvard Medical School— includes a chapter written by Mary Woolley. The :: The Honorable John Edward Porter spoke at the chapter, “Clinical Research in the Public Eye,” covers Society for Neuroscience 2008 Annual Meeting, the the need for health research advocacy and public AAAS Forum on Science and Technology Policy and at outreach by scientists. Wake Forest University. :: Stacie Propst, PhD, vice president, policy and Visibility through Facebook and Google outreach, spoke at the Innovation 2008 conference Facebook, the popular social networking site, now hosted by the University of Minnesota and counts Research!America among its organizational ScienceDebate2008.com. members. We created fan pages for Research!America, :: Goraleski presented “Global Health Research: A Year our voter education initiative Your Candidates–Your for Change” at the Midwest Nursing Research Society Health 2008 and for Public Health Thank You Day. Conference in Indianapolis. A generous in-kind grant from Google.org, the :: Woolley spoke about advocacy for health research philanthropic arm of the search engine giant, at events organized by the Alzheimer’s Association; continued in 2008. Nearly six million American Association of Veterinary Medical Colleges; Research!America text ads appeared on relevant amfAR, The Foundation for AIDS Research; Google search results pages which drove more than Association of Medical School Microbiology and Im- 159,000 visitors to our sites. Visibility on Web sites munology Chairs; Association of University Centers including The Hill.com, AARP.org and Parade.com on Disabilities; National Health Council; National also helped drive traffic. Multiple Sclerosis Society; North Carolina Association

Nature The New York Times The Oklahoman

Argus Leader St. Louis Post Dispatch The Times–Picayune The Washington Post

Research!America and partners launch the nation’s first Public Health Thank Research!America releases the first known estimate You Day to recognize public health of U.S. investment in global health research. professionals. 2008 financials

Financials, Scientific Advisory Committee and Research!America Staff

4 3

REVENUE AND SUPPORT $4,165,208* 1 DUES AND CONTRIBUTIONS $2,605,670 63%

2 EVENT INCOME $741,350 18% 3 3 RESTRICTED PROGRAM GRANTS $755,668 18%

2 4 OTHER $62,520 1% 2

*unaudited

1 1 EXPENSES $4,442,644*

1 PROGRAM $3,558,407 80%

Audit Committee Members Yank D. Coble Jr., MD 2 DEVELOPMENT $370,574 8% Evan Jones, Chair Mary J.C. Hendrix, PhD 3 GENERAL AND ADMINISTRATIVE $513,663 12% Tenley E. Albright, MD Harry Johns *unaudited

Scientific Advisory Committee Everett Anderson, PhD Ronald E. Cape, PhD Barbara Hansen, PhD Howard Schachman, PhD Richard Axel, MD* Bart Chernow, MD William R. Hendee, PhD Phillip A. Sharp, PhD* 22 David Baltimore, PhD* Harvey J. Cohen, MD, PhD William N. Kelley, MD John F. Sherman, PhD Samuel Barondes, MD Joseph M. Davie, MD, PhD David Korn, MD Maxine F. Singer, PhD Paul Berg, PhD* Rose S. Fife, MD Philip Leder, MD Reed V. Tuckson, MD Floyd E. Bloom, MD William Foege, MD, MPH Herbert Pardes, MD Patricia Hinton Walker, PhD, FAAN Michael S. Brown, MD* Murray Goldstein, DO, MPH Mary-Lou Pardue, PhD Tadataka Yamada, MD *Nobel Laureate

Research!America Eva Maciejewski, Science Policy and Outreach Burroughs Wellcome Fund Interns Staff Media Relations Specialist Stacie Propst, PhD, Allison Bland, Marilyn Walker, Vice President, Science Policy Communications Mary Woolley, Communications Specialist & Outreach Anne DiGiulio, President and CEO Emily Connelly, Science Policy Membership and Development Barbara Love, Director, Science Policy Michael Leon, Kyndra Fuller, Manager, Executive Assistant & Outreach Communications to the President Membership Development Heather Benson, Susan Maya, Manager, Science Outreach Science Policy Administrative Public Health and Global Health Hillary Lewis, JD, Michael Coburn, Research Advocacy Pallavi Phartiyal, PhD, Burroughs Wellcome Chief Operating Officer Karen A. Goraleski, Science Policy Vice President, Public Health Science Policy Fellow Sue Reedy, Ramya Sankar, Partnerships Amit Mistry, PhD, Accounting Coordinator Science Policy Jennifer Chow, Burroughs Wellcome Sheilah Miller Satterwhite, Tatyana Varshavsky, Program Manager, Paul G. Science Policy Fellow Administrative Assistant Communications Rogers Society for Global Health Michelle Pangilinan, Communications Research and Public Health Administrative Assistant, Heather Jameson, Advocacy Science Policy & Outreach Vice President, Communications Kimberly Handler, Special Projects Program Manager, Paul G. Ann Andrews Morris, Mona Floyd, JD, Rogers Society for Global Health Senior Communications Senior Director, Special Projects Associate Research and Public Health Advocacy

F o nts used: Century Old Style - italic (main and tag line)

Colors: PMS 287 = C:100 M:72 Y:2 K:12 PMS 201 = C:7 M:100 Y:65 K:32 PMS 130 = C:0 M:30 Y:100 K:0 Research!America and partners, with initial funding from the Albert and Mary Lasker Foundation, launch The Paul G. Rogers Society for the Your Candidates-Your Health voter education Global Health Research is created initiative, the first survey of all Congressional with funding from the Bill & Melinda candidates to gather and publish their positions on

2006 Gates Foundation. medical, health and scientific research. Major Donors 2008

Visionaries Novartis Robert A. Ingram 100,000 + Pan American Health and Education Kidney Cancer Association Foundation C. Everett Koop, MD, ScD amfAR, The Foundation for AIDS Research Parent Project Muscular Dystrophy Debra R. Lappin, JD Bill & Melinda Gates Foundation Quintiles Transnational Corporation Alan I. Leshner, PhD PARADE Publications sanofi-aventis Constance E. Lieber Pfizer Inc Schering-Plough Massachusetts General Hospital/Partners TEVA Pharmaceuticals Healthcare System Champions Washington University in St. Louis School Memorial Sloan-Kettering Cancer Center $50,000 – $99,999 of Medicine Millennium: The Takeda Oncology Company Alzheimer’s Association Muscular Dystrophy Association Pharmaceutical Research and Manufacturers Advocates National Alliance for Eye and Vision of America (PhRMA) $1,000 – $9,999 Research United Health Foundation Tenley E. Albright, MD National Alliance for Hispanic Health Wyeth American Legacy Foundation National Association for Biomedical Research American Medical Group Association National Association of Children’s Hospitals Partners American Society for Nutrition National Health Council $25,000 – $49,999 The Association for Research in Vision AARP and Ophthalmology National Osteoporosis Foundation Abbott Laboratories Association of Schools of Public Health Oxford Bioscience Partners GlaxoSmithKline Baylor College of Medicine Graduate School PTC Therapeutics The Gordon and Llura Gund Foundation of Biomedical Sciences Herbert Pardes, MD 23 Hogan & Hartson Gerald W. Blakeley William A. Peck, MD Mount Sinai Medical Center/School Brigham & Women’s Hospital/Partners The Honorable John Edward Porter of Medicine Healthcare System, Inc. The Honorable Paul G. Rogers (1921-2008) The Rockefeller Foundation William R. Brinkley, PhD M. Roy Schwarz, MD Rosenfeld Heart Foundation Canon U.S. Life Sciences Inc. Science Debate 2008 Beverly and Raymond Sackler, MD Charles Drew University of Medicine The Scripps Research Institute Whitehead Charitable Foundation and Science Samuel C. Silverstein, MD City of El Paso Laing Rogers Sisto Innovators Gail H. Cassell, PhD Society for Neuroscience $10,000 – $24,999 Yank D. Coble Jr., MD Harrison Spencer, MD, MPH Dana-Farber Cancer Institute Alnylam US Inc. Squire, Sanders & Dempsey, L.L.P. Duke University Medical Center American Cancer Society United Bank Emory University American Cancer Society University of California, Los Angeles School Cancer Action Network The Endocrine Society of Medicine American Heart Association Joseph M. Feczko, MD University of North Carolina School of Medicine Association of American Medical Colleges Foundation for the National Institutes of Health University of Pittsburgh School of Medicine Astellas Pharma US Inc Fred Hutchinson Cancer Research Center Vanderbilt University Medical Center AstraZeneca Jay A. Gershen, DDS, PhD Alan G. Walton, DSc, PhD G. Steven Burrill Vartan Gregorian, PhD Hermine Warren Clinical Research Forum Harvard Medical School WayPoint Advisors The Food Allergy Project, Inc. Heat Transfer Research, Inc. Weill Medical College of Cornell University Eugene Garfield Foundation Mary J.C. Hendrix, PhD Mary Woolley The Hill Martha N. Hill, RN, PhD, FAAN Tadataka Yamada, MD Johnson & Johnson Karen Holbrook, PhD Evan and Cindy Jones Foundation Howard Hughes Medical Institute Merck & Co., Inc. Robert Hurwitz NewYork-Presbyterian Hospital INFOCAST

Research!America took the lead in calling for very strong research Research!America, the Lasker Foundation and funding in the economic recovery package, including $10 billion for partners launch Your Congress-Your Health, asking NIH and strong funding for CDC, AHRQ and NSF. The Scientist called all members of Congress to publicly state their us “the clearest voice clamoring for increased funding at government

2007 positions on health and research. 2008 life science agencies.” Research!America Members

n Academia, Hospitals Drexel University School of Public Health Mayo Clinic and Independent Duke University Medical Center McLaughlin Research Institute Research Institutes Duke University School of Nursing Medical College of Georgia Aaron Diamond AIDS Research Center Eastern Virginia Medical School The Medical College of Wisconsin Albert Einstein College of Medicine of Emory University Rollins School Medical University of South Carolina Yeshiva University of Public Health MedStar Research Institute The Allen Institute for Brain Science Emory University School of Medicine Meharry Medical College School of Dentistry Arizona State University College of Nursing The Forsyth Institute & Healthcare Innovation Memorial Sloan-Kettering Cancer Center Fred Hutchinson Cancer Research Center Baylor College of Medicine Mercer University The George Washington University Miami Children’s Hospital Baylor College of Medicine – Graduate Medical Center School of Biomedical Sciences Morehouse School of Medicine The George Washington University School BloodCenter of Wisconsin, Inc. of Public Health and Health Services Mount Sinai Medical Center/ School of Medicine Boston University School of Dental Medicine Georgetown University Medical Center National Jewish Medical and Boston University School of Public Health The Hamner Institutes for Health Sciences Research Center Brigham & Women’s Hospital/Partners Harvard Medical School Healthcare System, Inc. Nationwide Children’s Hospital Harvard School of Public Health Brody School of Medicine at East Carolina Nell Hodgson Woodruff School of University Harvard University School Nursing Emory University 24 of Dental Medicine Burns & Allen Research Institute The New York Academy of Medicine Howard Hughes Medical Institute California Institute for Regenerative Medicine New York Blood Center Howard University College of Dentistry California Institute of Technology New York College of Osteopathic Medicine Howard University College of Medicine Case Western Reserve University New York University Indiana University School of Nursing School of Dentistry New York University College of Dentistry The J. David Gladstone Institutes Case Western Reserve University NewYork-Presbyterian Hospital School of Medicine The Johns Hopkins University Northwestern University, The Feinberg School Bloomberg School of Public Health Center for Global Health and Medical of Medicine Diplomacy The Johns Hopkins University Nova Southeastern University School of Medicine Charles Drew University of Medicine College of Dental Medicine and Science The Johns Hopkins University The Ohio State University School of Nursing Children’s Memorial Research Center College of Dentistry Kornberg School of Dentistry, Children’s Research Institute/Children’s The Ohio State University Temple University National Medical Center, Washington, DC College of Medicine Kronos Longevity Research Institute City of Hope National Medical Center The Ohio State University School Cold Spring Harbor Laboratory La Jolla Institute for Allergy and Immunology of Public Health Coleman Institute for Cognitive Disabilities, Los Angeles Biomedical Research Institute Oklahoma Medical Research Foundation at Harbor-UCLA Medical Center University of Colorado System Oregon Health & Science University Louisiana State University Health Sciences Columbia University Oregon Research Institute Center at New Orleans Coriell Institute for Medical Research Pacific Health Research Institute Lovelace Respiratory Research Institute Cornell University College of Veterinary The Pennsylvania State University Loyola University of Chicago Stritch Medicine College of Medicine School of Medicine Creighton University School of Medicine Rice University Mailman School of Public Health The Critical Path Institute (C-Path) of Columbia University The Rockefeller University Dana-Farber Cancer Institute Masonic Medical Research Laboratory Sabin Institute Doheny Eye Institute The Massachusetts General Hospital/ The Salk Institute for Biological Studies Drexel University College of Medicine Partners Healthcare System, Inc. The Schepens Eye Research Institute, Inc. Massachusetts Institute of Technology Research!America Members

The Scripps Research Institute University of California, Irvine University of Michigan School of Medicine Simmons College University of Michigan College of Pharmacy University of California, Los Angeles The Smith-Kettlewell Eye Research Institute University of Michigan Medical School School of Medicine South Dakota State University University of Michigan School of Dentistry University of California, Los Angeles Southern Illinois University School School of Nursing University of Michigan School of Nursing of Medicine University of California, San Diego School University of Michigan School of Southwest Foundation for Biomedical of Medicine/Health Sciences Public Health Research University of California, San Francisco The University of Mississippi Medical Center Stanford University School of Medicine University of California, Systemwide University of Missouri at Kansas City, State University of New York at Buffalo School of Dentistry School of Dental Medicine The University of Chicago Pritzker School of Medicine University of Montana School of Pharmacy State University of New York Downstate and Allied Health Sciences Medical Center, College of Medicine University of Cincinnati/Medical Center University of Nebraska-Lincoln at Brooklyn University of Colorado Denver University of Nebraska Medical Center State University of New York Upstate Medical University of Colorado Denver School University of Dental Medicine University of Nebraska Medical Center College of Dentistry Temple University College of Allied Health University of Colorado Denver School Professions of Nursing University of Nevada, Reno School of Medicine Texas A&M Health Science Center University of Colorado System University of Nevada, Las Vegas 25 Texas Tech University Health Sciences Center University of Connecticut School of Medicine School of Dental Medicine Translational Genomics Research University of Florida University of North Carolina, School Institute (TGen) University of Florida College of Dentistry of Dentistry Tufts University University of Illinois at Chicago College University of North Carolina School Tufts University School of Dental Medicine of Dentistry of Medicine Uniformed Services University of University of Illinois at Chicago College University of North Carolina at Chapel Hill the Health Sciences of Medicine School of Public Health University of Alabama at Birmingham School University of Illinois at Chicago College University of North Texas Health Science of Medicine of Nursing Center University of Alabama at Birmingham School University of Illinois at Chicago School University of Notre Dame of Dentistry of Public Health The University of Oklahoma Health University of Alabama at Birmingham School University of Iowa Carver College of Medicine Sciences Center of Engineering University of Iowa College of Dentistry The University of Oklahoma Health Sciences University of Alabama at Birmingham School University of Iowa College of Public Health Center College of Public Health of Health Professions University of Kansas Medical Center University of Pennsylvania School University of Alabama at Birmingham School of Dental Medicine of Nursing University of Kansas School of Nursing University of Pennsylvania School University of Alabama at Birmingham School University of Kentucky College of Dentistry of Medicine of Optometry University of Louisville University of Pennsylvania School of Nursing University of Alabama at Birmingham School University of Louisville School of Dentistry University of Pittsburgh Graduate School of Public Health University of Maryland at Baltimore of Public Health University of Arizona College of Medicine University of Maryland at Baltimore University of Pittsburgh School of University of Arkansas for Medical Sciences School of Nursing Dental Medicine University of California, Berkeley University of Maryland Biotechnology University of Pittsburgh School of Medicine University of California, Berkeley School Institute University of Pittsburgh School of Nursing of Public Health University of Massachusetts Medical School University of Puerto Rico School of Medicine University of California, Davis School University of Medicine and Dentistry of New University of Rochester Medical Center of Medicine Jersey School of Public Health University of Rochester School of Nursing University of Miami Research!America Members

University of South Dakota School Wright State University School of Medicine n National Voluntary Health / of Medicine Yale University School of Medicine Patient Advocacy / Trade Associations / Coalitions / University of South Florida Yale University School of Nursing Other Not-for-Profits University of South Florida College of Nursing AARP University of Southern California School n Business and Industry of Dentistry Adult Congenital Heart Association Abbott Laboratories University of Southern California School Alliance for Aging Research of Pharmacy Alnylam US, Inc. Alpha-1 Foundation University of Tennessee Health Science Amgen Alzheimer’s Association Center Assurant Health America on the Move University of Texas Health Science Center Astellas Pharma US, Inc. at Houston American Cancer Society Athena Diagnostics University of Texas Health Science Center American Chronic Pain Association Bristol-Myers Squibb Company at San Antonio American Diabetes Association Burrill & Co. The University of Texas M.D. Anderson Cancer American Federation for Aging Research Center Canon U.S. Life Sciences American Heart Association University of Texas Medical Branch CryerHealth American Lung Association at Galveston School of Medicine DENTSPLY International American Medical Group Association University of Texas Southwestern Eli Lilly and Company 26 Medical Center American Medical Informatics Association Elsevier, Inc. University of Toledo Academic Health Americans for Medical Progress Science Center Ford Finance, Inc. amfAR, The Foundation for AIDS Research University of Utah Health Sciences Center GE Healthcare The Arc of the United States School of Medicine Genzyme Corporation Association for the Assessment & University of Vermont College of Medicine GlaxoSmithKline Accreditation of Laboratory Animal Care University of Virginia School of Medicine Heat Transfer Research, Inc. International University of Washington School of Medicine ImmunoGen, Inc. Association of Academic Health Centers University of Washington School of Nursing Johnson & Johnson Association of American Cancer Institutes University of Washington School of Public Life Technologies Association of American Medical Colleges Health & Community Medicine Millennium: The Takeda Oncology Company Association of Schools of Public Health University of Wisconsin School of Medicine Asthma and Allergy Foundation of America and Public Health Novartis Pharmaceuticals Autoimmune Disease Association Van Andel Research Institute Oxford Bioscience Partners Biotechnology Industry Organization Vanderbilt University Medical Center Pfizer Inc CFIDS Association of America Vanderbilt University School of Nursing Purdue Pharma, L.P. CURE, Citizens United for Research Epilepsy Virginia Commonwealth University Roche Carcinoid Cancer Foundation Virginia Commonwealth University School of sanofi-aventis Dentistry The Scientist Center for the Advancement of Health Wake Forest University School of Medicine Wyeth Child & Adolescent Bipolar Foundation Washington University Center for Clinical Research Forum Health Policy Cystic Fibrosis Foundation Washington University School of Medicine Delta Dental Plans Association Weill Medical College of Cornell University FasterCures West Virginia University Health Sciences Foundation for Biomedical Research Center Foundation Fighting Blindness West Virginia University School of Dentistry Friends of Cancer Research Whitehead Institute for Biomedical Research Research!America Members

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