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The Life and Times Of'asperger's Syndrome': a Bakhtinian Analysis Of
The life and times of ‘Asperger’s Syndrome’: A Bakhtinian analysis of discourses and identities in sociocultural context Kim Davies Bachelor of Education (Honours 1st Class) (UQ) Graduate Diploma of Teaching (Primary) (QUT) Bachelor of Social Work (UQ) A thesis submitted for the degree of Doctor of Philosophy at The University of Queensland in 2015 The School of Education 1 Abstract This thesis is an examination of the sociocultural history of ‘Asperger’s Syndrome’ in a Global North context. I use Bakhtin’s theories (1919-21; 1922-24/1977-78; 1929a; 1929b; 1935; 1936-38; 1961; 1968; 1970; 1973), specifically of language and subjectivity, to analyse several different but interconnected cultural artefacts that relate to ‘Asperger’s Syndrome’ and exemplify its discursive construction at significant points in its history, dealt with chronologically. These sociocultural artefacts are various but include the transcript of a diagnostic interview which resulted in the diagnosis of a young boy with ‘Asperger’s Syndrome’; discussion board posts to an Asperger’s Syndrome community website; the carnivalistic treatment of ‘neurotypicality’ at the parodic website The Institute for the Study of the Neurologically Typical as well as media statements from the American Psychiatric Association in 2013 announcing the removal of Asperger’s Syndrome from the latest edition of the Diagnostic and Statistical Manual of Mental Disorders, DSM-5 (APA, 2013). One advantage of a Bakhtinian framework is that it ties the personal and the sociocultural together, as inextricable and necessarily co-constitutive. In this way, the various cultural artefacts are examined to shed light on ‘Asperger’s Syndrome’ at both personal and sociocultural levels, simultaneously. -
Beyond Diversity and Inclusion: Understanding and Addressing Ableism, Heterosexism, and Transmisia in the Legal Profession: Comm
American Journal of Law & Medicine, 47 (2021): 76-87 © 2021 The Author(s) DOI: 10.1017/amj.2021.3 Beyond Diversity and Inclusion: Understanding and Addressing Ableism, Heterosexism, and Transmisia in the Legal Profession: Comment on Blanck, Hyseni, and Altunkol Wise’s National Study of the Legal Profession Shain A. M. Neumeier† and Lydia X. Z. Brown†† I. INTRODUCTION Far too many—if not most—of us in the legal profession who belong to both the disability and LGBTQþ communities have known informally, through our own experi- ences and those of others like us, that workplace bias and discrimination on the basis of disability, sexuality, and gender identity is still widespread. The new study by Blanck et al. on diversity and inclusion in the U.S. legal profession provides empirical proof of this phenomenon, which might otherwise be dismissed as being based on anecdotal evidence.1 Its findings lend credibility to our position that the legal profession must make systemic changes to address workplace ableism, heterosexism, and transmisia.2 They also suggest †Committee for Public Counsel Services, Mental Health Litigation Division. (The contents of this article are published in the author’s personal capacity.) ††Georgetown University, Disability Studies Program, [email protected]. With thanks to Sara M. Acevedo Espinal, Jennifer Scuro, and Jess L. Cowing for support. 1Peter Blanck, Fitore Hyseni & Fatma Artunkol Wise, Diversity and Inclusion in the American Legal Profession: Discrimination and Bias Reported by Lawyers with Disabilities and Lawyers Who Identify as LGBTQþ,47Am. J.L. & Med. 9, 9 (2021) [hereinafter Blanck, et al., Discrimination and Bias]. -
AAC Technology, Autism, and the Empathic Turn
Delft University of Technology AAC Technology, Autism, and the Empathic Turn van Grunsven, Janna; Roeser, Sabine DOI 10.1080/02691728.2021.1897189 Publication date 2021 Document Version Final published version Published in Social Epistemology Citation (APA) van Grunsven, J., & Roeser, S. (2021). AAC Technology, Autism, and the Empathic Turn. Social Epistemology. https://doi.org/10.1080/02691728.2021.1897189 Important note To cite this publication, please use the final published version (if applicable). Please check the document version above. Copyright Other than for strictly personal use, it is not permitted to download, forward or distribute the text or part of it, without the consent of the author(s) and/or copyright holder(s), unless the work is under an open content license such as Creative Commons. Takedown policy Please contact us and provide details if you believe this document breaches copyrights. We will remove access to the work immediately and investigate your claim. This work is downloaded from Delft University of Technology. For technical reasons the number of authors shown on this cover page is limited to a maximum of 10. Social Epistemology A Journal of Knowledge, Culture and Policy ISSN: (Print) (Online) Journal homepage: https://www.tandfonline.com/loi/tsep20 AAC Technology, Autism, and the Empathic Turn Janna van Grunsven & Sabine Roeser To cite this article: Janna van Grunsven & Sabine Roeser (2021): AAC Technology, Autism, and the Empathic Turn, Social Epistemology, DOI: 10.1080/02691728.2021.1897189 To link to this article: https://doi.org/10.1080/02691728.2021.1897189 © 2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. -
Pigeonhole Podcast 18
Pigeonhole Episode 18 [bright ambient music] Introduction CHORUS OF VOICES: Pigeonholed, pigeonhole, pigeonhole, pigeonhole, pigeonhole, pigeonhole, pigeonhole, pigeonhole. [mellow ambient music plays] CHERYL: Since this is a story-based podcast, I don’t have a lot of interviews. This interview is a rebroadcast from the old podcast from 2017 recorded by Skype. It’s been edited just a bit for length. Talila “TL” Lewis has been named a White House Champion of Change and was also named one of the Top 30 Thinkers Under 30 by Pacific Standard in 2015. Talila is an attorney-organizer and visiting professor at Rochester Institute of Technology and National Technical Institute for the Deaf who founded and works with the all-volunteer organization HEARD, which stands for Helping Educate to Advance the Rights of Deaf communities. HEARD focuses on correcting and preventing deaf wrongful convictions, ending abuse of incarcerated people with disabilities; decreasing recidivism rates for deaf returned citizens; and increasing representation of deaf people in professions that can counter mass incarceration and end the attendant school to prison pipeline. Talila created the only national database of deaf incarcerated individuals. This is something the jails and prisons aren’t tracking themselves. Talila also maintains contact with hundreds of deaf incarcerated individuals. TL also leads intersectional campaigns that advance the rights of multiply-marginalized people, including the #DeafInPrison Campaign, the Deaf Prisoner Phone Justice Campaign, and the American Civil Liberties Union’s “Know Your Deaf Rights” Campaign. The show page and transcript will have a link to the syllabus TL created and uses for a class called Disability Justice in the Age of Mass Incarceration. -
Layersquality of Life and Autism
Exploring Diagnosis: Autism and Neurodiversity Steven Kapp Rhianna White 1 Preview of lecture Introduction to disability, neurodiversity movements Stimming study Labelling study Book on autistic community, neurodiversity movement 2 Sociology of (Jutel & Nettleton, diagnosis 2011) Diagnosis Diagnosis Stimming Neurodiversity as as Process study book Category Consequences of Diagnosis Labelling study 3 Disability rights movement Social contribution to/construction of disability Civil rights model – not medical model Self-advocacy: “Nothing About Us Without Us” Focus on self-determination and quality of life: building independence, inclusion, productivity through rights and support For respect, against personal tragedy narrative 4 Neurodiversity movement Autism: complex, pervasive; part of personality Often identity-first, non-medicalized language Autism: natural, on spectrum of human diversity Focus on rights, access, opportunities -> quality of life For acceptance; against prevention and normalization 5 Utility of autism, neurodiversity Little knowledge about what “works” for whom and why Common knowledge that no intervention works for all Little known for whom, how autism diagnoses tend to help Parental acceptance of child’s autism helps relationship (Kapp et al., 2018) Awareness of neurodiversity movement associated with views aligned with it (Kapp et al., 2013) Support for normalization associated with more stigma toward autistic people (Gillespie-Lynch et al., 2017) 6 Stimming (Jutel & Nettleton, study 2011) Diagnosis -
Social Justice, Audism, and the D/Deaf: Rethinking Linguistic and Cultural Differences
Social Justice, Audism, and the d/Deaf: Rethinking Linguistic and Cultural 65 Differences Timothy Reagan Contents Introduction ..................................................................................... 1480 An Introduction to the DEAF-WORLD ....................................................... 1482 Language .................................................................................... 1483 Cultural Identity ............................................................................. 1485 Behavioral Norms and Practices ............................................................ 1487 Endogamy ................................................................................... 1487 Cultural Artifacts ............................................................................ 1488 In-Group Historical Knowledge ............................................................ 1488 Voluntary Social Organizations ............................................................. 1489 Humor ....................................................................................... 1489 Literary and Artistic Tradition .............................................................. 1490 Becoming Deaf .............................................................................. 1494 The Duality of Deaf Identity ................................................................ 1494 Epistemology and the DEAF-WORLD ........................................................ 1495 Social Justice and the DEAF-WORLD ....................................................... -
L Brown Presentation
Health Equity Learning Series Beyond Service Provision and Disparate Outcomes: Disability Justice Informing Communities of Practice HEALTH EQUITY LEARNING SERIES 2016-17 GRANTEES • Aurora Mental Health Center • Northwest Colorado Health • Bright Futures • Poudre Valley Health System • Central Colorado Area Health Education Foundation (Vida Sana) Center • Pueblo Triple Aim Corporation • Colorado Cross-Disability Coalition • Rural Communities Resource Center • Colorado Latino Leadership, Advocacy • Southeast Mental Health Services and Research Organization • The Civic Canopy • Cultivando • The Gay, Lesbian, Bisexual, and • Eagle County Health and Human Transgender Community Center of Services Colorado • El Centro AMISTAD • Tri-County Health Network • El Paso County Public Health • Warm Cookies of the Revolution • Hispanic Affairs Project • Western Colorado Area Health Education Center HEALTH EQUITY LEARNING SERIES Lydia X. Z. Brown (they/them) • Activist, writer and speaker • Past President, TASH New England • Chairperson, Massachusetts Developmental Disabilities Council • Board member, Autism Women’s Network ACCESS NOTE Please use this space as you need or prefer. Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spin, move around, step in and out of the room. CONTENT/TW I will talk about trauma, abuse, violence, and murder of disabled people, as well as forced treatment and institutions, and other acts of violence, including sexual violence. Please feel free to step out of the room at any time if you need to. BEYOND SERVICE -
Disability in an Age of Environmental Risk by Sarah Gibbons a Thesis
Disablement, Diversity, Deviation: Disability in an Age of Environmental Risk by Sarah Gibbons A thesis presented to the University of Waterloo in fulfillment of the thesis requirement for the degree of Doctor of Philosophy in English Waterloo, Ontario, Canada, 2016 © Sarah Gibbons 2016 I hereby declare that I am the sole author of this thesis. This is a true copy of the thesis, including any required final revisions, as accepted by my examiners. I understand that my thesis may be made electronically available to the public. ii Abstract This dissertation brings disability studies and postcolonial studies into dialogue with discourse surrounding risk in the environmental humanities. The central question that it investigates is how critics can reframe and reinterpret existing threat registers to accept and celebrate disability and embodied difference without passively accepting the social policies that produce disabling conditions. It examines the literary and rhetorical strategies of contemporary cultural works that one, promote a disability politics that aims for greater recognition of how our environmental surroundings affect human health and ability, but also two, put forward a disability politics that objects to devaluing disabled bodies by stigmatizing them as unnatural. Some of the major works under discussion in this dissertation include Marie Clements’s Burning Vision (2003), Indra Sinha’s Animal’s People (2007), Gerardine Wurzburg’s Wretches & Jabberers (2010) and Corinne Duyvis’s On the Edge of Gone (2016). The first section of this dissertation focuses on disability, illness, industry, and environmental health to consider how critics can discuss disability and environmental health in conjunction without returning to a medical model in which the term ‘disability’ often designates how closely bodies visibly conform or deviate from definitions of the normal body. -
Neurodiversity Studies
Neurodiversity Studies Building on work in feminist studies, queer studies, and critical race theory, this vol• ume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and ‘others’, including dyslexics, autistics, and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/ prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neu• rodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assump• tions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humani• ties, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field – neurodiversity studies – will be of interest to people working in all these areas. Hanna Bertilsdotter Rosqvist is an Associate Professor in Sociology and currently a Senior Lecturer in Social work at Södertörn University. Her recent research is around autism, identity politics, and sexual, gendered, and age normativity. She is the former Chief Editor of Scandinavian Journal of Disability Research. Nick Chown is a book indexer who undertakes autism research in his spare time. -
Ontario's Seniors Strategy
Email: [email protected] Website: seniorpridenetwork.com July 10, 2019 Ontario’s Seniors Strategy Consultation Seniors Policy and Programs Division Ministry for Seniors and Accessibility 777 Bay Street, Suite 601C Toronto, ON M7A 2J4 The Senior Pride Network (Toronto) welcomes this opportunity to provide input into the consultation on Ontario’s Seniors Strategy. The Senior Pride Network (Toronto) is an association of individuals and organizations committed to promoting appropriate services and a positive, caring environment for elders, seniors and older persons who identify as 2 Spirit, lesbian, gay, bisexual, transgender, transsexual, queer, intersex and other (2SLGBTTQI+). We envision a series of communities of 2SLGBTTQI+ elders, seniors and older persons that are respectful, affirming, supportive, safe and healthy. The Senior Pride Network (Toronto) asserts and advocates for the human, economic, social and cultural rights of 2SLGBTTQI+ elders, seniors and older persons. We seek to eradicate all forms of oppression including homophobia, heterosexism, lesbophobia, transphobia, biphobia, sexism, cissexism, racism, antisemitism, settler colonialism, xenophobia, islamophobia, ableism and ageism. We demand the right of all 2SLGBTTQI+ elders, seniors and older persons to live their lives free from discrimination, harassment, reprisal, bullying, intimidation, victimization, stigmatization, silencing, being marginalized or being made invisible. 2SLGBTTQI+ Elders, Seniors and Older Persons and Ontario’s Seniors Strategy 2SLGBTTQI+ elders, seniors and older persons face a number of issues that have impacted their lived experiences and may have negatively affected their mental or physical health, their financial and housing circumstances and their overall social well-being. Gaining an understanding of those issues and positively addressing them are necessary to developing and implementing an inclusive and effective Ontario’s Seniors Strategy. -
Attitudes Towards Individuals Who Are Deaf and Hard of Hearing
ffff Attitudes towards individuals who are deaf and hard of hearing Introduction For individuals who are deaf or hard of hearing (DHH), negative attitudes from DHH and hearing individuals can serve as a barrier to healthy social and emotional development22, social integration17, and academic and career success 19. Societal attitudes toward individuals who are deaf is an important research topic because: Attitudes toward DHH individuals are critical aspects of integration into social and academic activities.23 Knowledge of attitudes toward individuals who are DHH contributes to understanding and positive interactions between hearing and DHH individuals.15 What does the research tell us about attitudes toward people who are DHH? Researchers have assessed attitudes toward individuals with disabilities, as well as deaf individuals specifically. Some findings include: Negative attitudes toward individuals with disabilities have existed throughout history and still exist today.8 There are differences in attitudes toward people who are deaf compared to people with other disabilities.16 Hearing people have been found to hold more negative attitudes toward individuals with an intellectual disability than toward individuals who are deaf.7,10 The relationship between attitudes and expectations “Attitudes toward Attitudes can be conveyed through expectations; people tend people with to internalize and fulfill the expectations others have of them.6 disabilities represent Parental expectations strongly influence their deaf childrens’ an individual’s -
Inhumane Beyond All Reason the Torture of Autistics and Other People with Disabilities at the Judge Rotenberg Center Shain Neumeier, J.D
Inhumane Beyond All Reason The Torture of Autistics and Other People with Disabilities at the Judge Rotenberg Center Shain Neumeier, J.D. They call what the Judge Rotenberg Center does to people with disabilities treatment. That’s why it still happens. For over forty years, JRC has used painful methods of controlling the behavior of Autistic people, people with intellectual disabilities, and people with mental illnesses. This includes long-term mechanical restraint to a four-point board, food and sensory deprivation, social isolation, and, most infamously, electric shock. Labeling these methods as aversive behavioral modification, and even aversive therapy, JRC has not only been allowed to use them on their students – both children and adults – but has in fact received the approval of parents, state agencies and courts in doing so. JRC follows what its own administration has called a “radical Skinnerian” behavioral approach, relying on the principles of operant behavioral conditioning – namely, arranging an individual’s environment to provide rewards for appropriate or desired behavior and punishment for unacceptable or unwanted behavior. JRC’s founder, Matthew Israel, became fascinated with these principles after taking a class with B.F. Skinner, a pioneer in the field of operant conditioning, and reading his book, a novel called Walden Two, portraying a utopian society that was based on the ideas of behavioral psychology while he was a student at Harvard University. He in fact decided that it was his life’s mission to create such a utopian community, and, to this end, worked under B.F. Skinner during the course of his studies.