Volume 14 Issue 2, 2013 Communication from the Policy A Information Exchange Slice of Pie A Slice of Pie is an ongoing publication keeping our readers informed about important public policy issues. It is the mission of the Policy Information Exchange to educate and inform Pennsylvanians with disabilities, their families and advocates, and the general public, regarding public policy issues and to further the exchange of policy information between the Pennsylvania Developmental Disabilities Council and federal, state, and local policy makers. The Policy Information Exchange is funded in part by the Pennsylvania Developmental Disabilities Council.

hours before the June 30 deadline. Total spending is increased $645 million – 2.3 STATE NEWS percent - over 2012-13. This is $64 million State Budget less than the governor’s budget request in In February, when Pennsylvania Governor February. Tom Corbett delivered his budget request for the 2013-14 fiscal year (July 1, 2013 to Efforts to address a number of key issues June 30, 2014), he highlighted the need for at the same time as the budget were increased funding to serve more people unsuccessful. Pension reform for state with intellectual and physical disabilities workers, transportation funding and liquor in the community. He spoke of his visit to Vision for Equality and introduced two In This Issue young women with intellectual disabilities who were in the House Chamber for his State News ...... page 1 speech. The final budget includes some, National News ...... page 11 but not all of the Governor’s proposed increase and restores some funding that Resources ...... page 12 was slated for cuts. Conferences ...... page 14

The Governor signed the $28.375 billion Contact PIE ...... page 15 state budget bill for 2013-14 a few store privatization bills all will have to wait below for information on legislative efforts until the General Assembly returns in the to move forward with the expansion. fall. Of particular concern to the disability community, legislation on the expansion Autism*: The Governor proposed, and of Medicaid will also have to wait. An the final budget includes, an increase effort to include a name change for the in state funds of $1,497,000 to serve Department of Public Welfare as part of an additional 118 people. Funding for the budget package also failed. For more mini-grants to individuals and families information on these pieces, see the Bills remains at $500,000 and funding for the of Interest section below. three regional autism centers remains at $800,000 each. The final autism line item Below PIE summarizes some items of included an extra $440,000 in total state interest to the disability community in funds which is intended for two special the final budget. Items marked with an initiatives, one located in Philadelphia and asterisk are different than what the the other in Pittsburgh. Governor proposed in February. All amounts are state general funds, unless State Centers*: Institutions for people labeled otherwise. For more information, with intellectual disabilities will receive a contact PIE at The Arc of Pennsylvania $13.2 million increase for maintenance of office at 717-234-2621 or pie@thearcpa. current program. org. Community Base Funding Intellectual DEPARTMENT OF PUBLIC WELFARE Disabilities: There is a small reduction in base funding. Intellectual Disability Waivers: State funding is increased by $19,867,000. This Services to Persons with Disabilities*: includes: This line item includes funding for the • $14 million for 380 people on the Independence, OBRA and Commcare county emergency waiting list and who Waivers as well as specialized services in require services immediately or within six nursing homes. The line item would have months; received an additional $15,758,000 in state • $4.5 million for 700 graduates from funds to serve an additional 1,280 people special education programs; and under the Governor’s proposal. The dollar • $1.4 million for 100 people who amount of the increase was cut in half in currently reside in a state Intellectual the House budget. The final budget put Disability Center. $1.1 million back. This amounted to a $26 Neither an increase nor a decrease is million (13.3%) increase in state funds in provided for provider rates. the final budget as compared to the 2012- 13 budget. Medical Assistance Expansion: Efforts to include this in the budget package Attendant Care*: The Attendant Care line failed. No decision has yet been made. item, which includes both the Attendant See Bills of Interest section (HB 1492) Care Waiver and Act 150, would have Page 2 A Slice of Pie - Volume 14 Issue 2, 2013 received an additional $4,125,000 to Behavioral Health: BHSI is part of serve an additional 400 people under the the Human Services Block Grant—see Governor’s proposed budget. The increase above—which is funded at the same was cut in half in the House budget. The reduced level as in 2012-13. final budget put back a small amount. In the final budget, the overall increase in state Aging Waiver*: The Governor proposed funds compared to last year is 4.8%. an increase for the Home and Community Based Services line item which includes Adult Protective Services*: The the Aging Waiver and the LIFE program. Governor’s budget included $2,391,000 in The Governor also proposed an additional state funds and an additional $1,304,000 $21 million from the lottery, including an in federal funds for a total of $3,695,000 in $8.1 million initiative to serve an additional the General Government Operations line 1,550 people. While the Governor seemed and $80,000 in the Information Technology to tie these additional lottery funds to the line. We are told that the final budget privatization of the lottery, the final budget includes a little more than that. package does not. The appropriation for Home and Community Based Services in Human Services Block Grant: This the final budget is nearly $57 million less block grant was created in the 2012- than the Governor’s request. Some of that 13 fiscal year and currently exists in 20 cut is because DPW lowered the amount counties. It combines funds for a number needed by $20 million due to updated of programs— Community Mental Health, caseload and cost projections. We are the Behavioral Health Services Initiative, told that the explanation for the rest of the Intellectual Disability Base funds, County reduction, $36 million, is that it was shifted Child Welfare, Homeless Assistance, the to another funding source. Human Services Development Fund and Act 152 Drug and Alcohol—into one block Nursing Homes*: Nursing homes receive grant and gives the county flexibility on how a 2% rate increase at a cost of $44.3 the money is spent. In 2013-14, the block million. Over objections from advocates, grant is receiving the same amount as in the budget again uses more than $309 2012-13—a 10% cut from 2011-12. The million in lottery funds for nursing homes. Governor’s budget provided for statewide In addition, the General Assembly included expansion, but HB 1075, a bill that passed $7 million in state funding for a one-time as part of the budget package, calls for payment to qualified private nursing expansion to 30 counties. homes.

Mental Health: The budget includes Early Intervention (Birth to age 3): DPW’s funding for 90 CHIPPs (people out of state Early Intervention program received a hospitals and into the community). It is $4.3 million supplemental appropriation in part of the Human Services Block Grant— 2012-13 and an increase in 2013-14. see above—which is funded at the same reduced level as in 2012-13. Medical Assistance Transportation*: Funding is increased to cover increased A Slice of Pie - Volume 14 Issue 2, 2013 Page 3 use and trip costs. The 8.4% increase DEPARTMENT OF LABOR AND is larger than the Governor’s original INDUSTRY proposal. Transfer to Vocational Rehabilitation Medical Assistance for Workers with Fund (OVR state match), Supported Disabilities (MAWD): While state funding Employment, Centers for Independent would be reduced, the reduction is more Living (CILs), and Assistive Technology than offset by an increase in Tobacco Demonstration and Training (lending Settlement Funds, resulting in a net library): All of these programs are funded increase. at the same level as 2012-13, which is an actual decrease from several years ago. Cost Saving: The cost saving measures noted in the Governor’s proposed DPW Assistive Technology Devices* budget include imposing time limits on (alternative financing program): Received payments to injured workers in state an increase from $244,000 to $400,000. hospitals, state centers and youth development centers ($3.5 million to be DEPARTMENT OF COMMUNITY AND saved); enhanced auditing of providers ECONOMIC DEVELOPMENT ($20 million projected savings); and outsourcing third party liability collections PA Accessible Housing Program: The ($1.5 million to be saved). They include a PAHP program is part of the Keystone projected $8.3 million saved by imposing Communities line item which received a premiums on families of one (sometimes $500,000 increase. called “loophole families”). Efforts last year to impose co-payments on these families DEPARTMENT OF EDUCATION were unsuccessful. Special Education: Special education is Federal MA Matching Rate: The federal once again level funded. Advocates note share of Medicaid funds dropped from that this sixth year of flat funding for the 54.28% to 53.52%, costing the state $109 special education subsidy will force local million in 2013-14. school districts to cover the cost of living increases. This line item received some DEPARTMENT OF AGING attention in budget debates.

Aging Services: There is $20 million Early Intervention (for ages 3 to 5): from the lottery to take 5,400 people off Will receive a $10,800,000 supplemental the waiting list for OPTIONS home and appropriation in the 2012-13 fiscal year community based services, $2 million for and an increase of $5 million in the 2013- 193 people aging out of the attendant 14 fiscal year to serve 1,500 additional care program and $5 million for Area children. Agencies on Aging. There is also $2 million in lottery funds which will go to Approved Private Schools: Approved Senior Centers. Private Schools are level funded. Page 4 A Slice of Pie - Volume 14 Issue 2, 2013 PA Charter School for the Deaf and DEPARTMENT OF DRUG AND Blind* (sic): Charter schools for children ALCOHOL PROGRAMS who are deaf and blind will receive a small increase to continue the current program. Assistance to Drug and Alcohol Programs: State funding is level, but federal funding DEPARTMENT OF HEALTH decreases slightly.

AIDS Programs and Services for DEPARTMENT OF TRANSPORTATION Children with Special Needs: Both of these programs are level funded. Shared Ride Program for Persons with Disabilities: Funding for the PWD program Sickle Cell*: The Governor had comes through Act 44 which may be recommended level funding, but the repealed as part of the transportation General Assembly added $60,000, a 5% reform package. If that happens, an increase. alternative funding source must be found. Also, there is discussion about adding AIDS Special Pharmaceuticals are level Allegheny County to the counties that can funded in state dollars, but an increase in participate in the PWD program. Pharmacy Rebates is anticipated, resulting in a net gain. Bills of Interest Epilepsy Support* and Tourette Below we summarize some bills of interest Syndrome*: The Governor had proposed to the disability community from the new eliminating funding for these two programs, 2013-2014 session. For more information but the final budget restored and increased about these or any other state bills, go to funding. Epilepsy state funding is increased www.legis.state.pa.us/cfdocs/legis/home/ by 5% to $550,000 compared to 2012- session.cfm. At the top of the page is a 13 and Tourette funding is doubled to box labeled, “Find Legislation By”, choose $150,000. “Bill #”, then enter the bill number and click on “Go”. DEPARTMENT OF INSURANCE HB 2. Introduced by Representative Children’s Health Insurance Program Bernie O’Neill (R-Bucks). This bill would, (CHIP)*: Governor Corbett’s February among other things, establish the state’s proposal would have increased funding firstspecial education funding formula in for CHIP by $13.5 million (13 percent). His over 20 years. It passed both chambers proposal included an additional $1 million and was signed by the Governor on April for outreach and funding to cover an 25, 2013 becoming Act No. 3 of 2013. additional 9,330 children. But enrollment See also SB 470 introduced by Senator is declining in CHIP. The final budget Patrick Browne (R-Lehigh). therefore includes a smaller increase of $9.5 million. HB 21. Introduced by Representative Glen Grell (R-Cumberland). This bill would allow A Slice of Pie - Volume 14 Issue 2, 2013 Page 5 psychologists to testify on insanity. It HB 461. Introduced by Representative is similar to HB 1405 from last session, Jerry Knowles (R-Berks). This bill would which passed the House unanimously, expand the Human Service Block Grant but did not receive third and final passage program from the current 20 counties to in the Senate before the end of the last all 30 of the counties which applied to be session. HB 21 was voted out of the considered. It was voted out of the House House Judiciary Committee on June 11, Health Committee on June 3, 2013 and 2013 and given first consideration by the given first consideration by the full House. full House. Like HB 315, which also deals with the Human Services Block grant, the bill is HB 31. Introduced by Representative currently tabled. Mauree Gingrich (R-Lebanon). The bill addresses abuse and neglect of people HB 806. Introduced by Representative who are care-dependent. It passed the Gene DiGirolamo (R-Bucks). This bill would House on March 12, 2013 and has been eliminate the Human Service Block sent to the Senate Judiciary Committee. Grant pilot program and create a different mechanism for counties to reallocate HB 252. Introduced by Representative unused human services dollars. It was RoseMarie Swanger (R-Lebanon). HB 252 passed out of the House Human Services would establish the Pennsylvania Long- Committee and given first consideration term Care Council in the law. It passed by the full House on June 11, 2013. It is the House on March 20, 2013. It was currently in the House Rules Committee. voted out of the Senate Aging and Youth Committee on June 11, 2013 and given HB 1114. Introduced by Representative first consideration by the full Senate. Thomas P. Murt (R-Montgomery). This bill would establish a bill of rights for people HB 315. Introduced by Representative with intellectual and developmental Gene DiGirolamo (R-Bucks). This bill disabilities. It was introduced and referred would restore the 10% cut from a to the House Human Services Committee number of human service programs on April 3, 2013. in the current 2012-13 budget. Programs affected include mental health, intellectual HB 1183. Introduced by Representative disabilities community base program, Mark B. Cohen (D-Philadelphia). This bill behavioral health and Human Services would establish in law the Governor’s Development Fund. The bill was reported Office for People with Disabilities, out of the House Human Services Cabinet for People with Disabilities Committee on February 12, 2013 and and Advisory Committee for People given first consideration by the full House. with Disabilities. It was introduced and It has been laid on the table. See also, HB referred to the House Human Services 461. Committee April 15, 2013. See also SB 280 introduced by Senator Christine Tartaglione (D-Philadelphia).

Page 6 A Slice of Pie - Volume 14 Issue 2, 2013 HB 1240. Introduced by Representative SB 1. Introduced by Senator John Rafferty Thomas P. Murt (R-Montgomery). It would (R-Berks). This is the comprehensive provide for Medical Assistance payment Transportation funding bill. It would for cognitive rehabilitation therapy. It provide funding for mass transit, though was introduced and referred to the House the House version provides less than Health Committee April 22, 2013. the Senate. One of the provisions would add Allegheny to the counties served by HB 1287. Introduced by Representative the Shared Ride Program for People Bryan Cutler (R-Lancaster). The bill would with Disabilities. It passed the Senate remove the Medicaid requirement that on June 5, 2013 and was voted out of psychiatrists receive pre-authorization the House Transportation Committee with before prescribing medication. It is amendments and given first consideration aimed at reducing the delay that may be by the full House on June 27, but efforts experienced in refilling medications. It to pass the bill before the summer recess passed the full House on June 5, 2013 and failed. has been sent to the Senate Public Health and Welfare Committee. SB 117. Introduced by Senator Greenleaf (R-Montgomery). This bill amends the HB 1472. Introduced by Representative law on guardianship of incapacitated Matthew E. Baker (R-Bradford). Among people. Among the changes are those other actions, this bill would change the relating to end of life decisions. The bill intermediate care facilities law to replace was voted out of the Senate Judiciary the term “mentally retarded” with the Committee on February 12, 2013, given accepted term “intellectual disability”. first consideration by the full Senate and The bill was voted out of the House Health referred to the Senate Appropriations Committee, given first consideration by the Committee. full House and sent to the Rules Committee on June 5, 2013. SB 363. Introduced by Senator Lisa M. Boscola (D-Lehigh). This bill would amend HB 1492. Introduced by Representative the Election Code to, among other things, Gene DiGirolamo (R-Bucks). The bill would require that in selecting polling places, the allow Pennsylvania to participate in the county board of elections “shall ensure Medicaid expansion provided for in the that the places selected are accessible Affordable Care Act. It includes protections by persons with physical disabilities.” for Pennsylvania including the ability to drop The bill was introduced and referred to the the program if the federal commitment to Senate State Government Committee on reimbursement is not maintained. The bill January 31, 2013. was referred to the House Human Services Committee on June 11, 2013. The Senate SB 428. Introduced by Senator Jay Costa included Medicaid expansion in a bill that (D-Allegheny). This bill provides for pooled was part of the budget process, but the trusts for people with disabilities. It House removed the language. was voted out of the Senate Judiciary Committee and given first consideration A Slice of Pie - Volume 14 Issue 2, 2013 Page 7 by the full Senate on February 12, 2013. SB 977. Introduced by Senator Patricia It is currently in the Senate Appropriations H. Vance (R-Cumberland). This bill would Committee. expand the human services block grant program to all counties on a voluntary SB 589. Introduced by Senator Randy basis. It was voted out of the Senate Vulakovich (R-Allegheny). The bill would Public Health and Welfare Committee on add Allegheny to the counties funded for June 4, 2013, given two considerations the Shared Ride Program for Persons by the full Senate and sent to the Senate with Disabilities. It was introduced and Appropriations Committee. referred to the Senate Transportation Committee on March 1, 2013. HR 226. Introduced by Representative Thomas R. Caltagirone (D-Berks). SB 840. Introduced by Senator Bob The resolution provides for a study Mensch (R-Bucks). This is one of several of the Pennsylvania mental health bills that would change the name of the system and “report back with specific Department of Public Welfare to the recommendations for amendment and Department of Human Services. The bill improvement, particularly as to how was voted out of the Senate Public Health criminal defendants with mental illness and Welfare Committee, has been given are addressed by established procedures, two considerations by the full Senate and policies and programs.” The resolution is currently in the Senate Appropriations was adopted by the full House on May 13, Committee. See also HB 993. Introduced 2013. by Representative Thomas P. Murt (R-Montgomery) which was passed by HR 316. Introduced by Representative the full House on July 1, 2013. An effort W. Curtis Thomas (D-Philadelphia). to include the name change language as This resolution congratulates Temple part of the budget package failed when University’s Institute on Disabilities on the House removed the language. House its 40th anniversary. It was adopted on leaders expressed support for the concept, May 13, 2013. but said that they thought it should be a separate bill rather than part of the budget SR 44. Introduced by Senator Randy process. Vulakovich (R-Allegheny). It honors the life of Evelyn R. Stypula, Acting Chair SB 862. Introduced by Senator Andrew of the Governor’s Advisory Committee for E. Dinniman (D-Chester). The bill would People with Disabilities. It was introduced provide for therapy dogs on public and adopted, March 11, 2013. transportation including buses and trains. It was voted out of the Senate State Government Committee and given first consideration by the full Senate on June 11, 2013 and is currently in the Senate Appropriations Committee.

Page 8 A Slice of Pie - Volume 14 Issue 2, 2013 Futures Planning OLTL & Aging Reorganization The Office of Developmental Programs The Office of Long Term Living (OLTL) has begun a Futures Planning process. and the PA Department of Aging (PDA) Internal and external work teams have have both reorganized their structure been established “to build on prior and personnel. The OLTL is no longer strategic planning efforts to envision a under both the Department of Public ten-year future for our service system.” Welfare (DPW) and PDA; it is now is fully They are using “long-term goals to create within DPW. The PDA no longer shares a short-term plan with achievable action oversight of OLTL with DPW. Both OLTL steps.” For more information, go to www. and PDA made changes in their Bureaus odpconsulting.net/odp-futures-planning and Divisions, as well. View the revised that includes the documents produced organization charts at by the Futures Planning teams and a link www.portal.state.pa.us/portal/server.pt/ to submit input. To provide feedback, go community/organization_charts/717. to www.odpconsulting.net/odp-futures- planning/odp-futures-planning-feedback. Special Ed Funding Act 3 of 2013 created a Special Education Aging & Attendant Care Waivers Funding Commission which has begun The Office of Long Term Living in DPW its work. The commission consists of the has received approval from the Centers for majority and minority chairmen of the House Medicare and Medicaid Services (CMS) to and Senate Education committees, eight renew the Aging and Attendant Care waivers legislators, the secretaries of Education effective July 1, 2013 for five more years. and Budget and the state deputy secretary The renewals reflect the amendments to for elementary and special education. each that have been approved since July The Chairs elected at the first meeting 1, 2008, including changes to Service on May 15 are Senator Patrick Browne Coordination and Financial Management (R-Lehigh) and Representative Bernie Services. One of the changes requires O’Neill (R-Bucks). The commission will getting the results of background checks hold public hearings this summer. It has on applicants before they can start on until November 30 to recommend a new the job for consumers who hire their own funding formula to more effectively pay for workers. A side-by-side display of changes special education throughout the state. and stakeholder comments is available at www.dpw.state.pa.us/dpworganization/ ODP Bulletins officeoflongtermliving/S_001665. Click The Office of Developmental Programs on Aging Waiver Comments or Attendant has issued two new Bulletins which can be Care Waiver Comments. The side-by-side seen at www.dpw.state.pa.us/publications/ display will be removed when the new bulletinsearch/index.htm. waivers are posted. View both renewed • Participant Rights – Statement of Policy waivers in the A-Z Directory of Services, (6400-13-02) was issued on February also on this page, under “A”. 11, 2013 and was effective on February 9, 2013. The Bulletin establishes and publishes participant rights guidelines A Slice of Pie - Volume 14 Issue 2, 2013 Page 9 under incident management. Rescission that this new redistricting map may favor of Class 3 Republicans. Three Senate seats now • Intellectual Disability Bulletins (6400- held by Democrats are believed to be 13-03) was issued on April 5, 2013 and vulnerable: one in the 2014 election was effective on March 30, 2013. The cycle, which could pit Senator Jim Ferlo Bulletin rescinds various statements of (D-Allegheny) against Senator Randy policy that are no longer current. Vulakovich (R-Allegheny). The other two seats that could be vulnerable in the 2016 OLTL Bulletins election are in altered districts, currently The Office of Long Term Living has issued held by Senators Rob Teplitz (D-Dauphin) three new Bulletins which can be seen and John Wozniak (D-Cambria). at www.dpw.state.pa.us/publications/ bulletinsearch/index.htm. Legislative Changes • Maintaining Waiver Eligibility While On June 4, two winners of state in an Institution (05/51/52/55/59-13-01) House special elections, Democrats was issued on January 24, 2013 and was Dan Miller and Kevin Schreiber, were effective on that date. The Bulletin clarifies sworn into office in the state House of the allowable time that a participant may Representatives. Representative Miller remain enrolled in a HCBS waiver program fills Allegheny County’s 42nd Legislative when the participant is then placed in a District seat vacated by Matt Smith, nursing facility or ICF/ORC. who was elected to the state Senate. • Billing Instructions for HCBS providers Representative Schreiber fills York (05/51/52/55/59-13-02) was issued on County’s 95th Legislative District seat February 7, 2013 and was effective on vacated by Eugene DePasquale, who left January 26, 2013. The Bulletin provides to become state Auditor General. an update on waiver procedure codes and billing. DPW Secretary • Absence Policies in the Enhanced In late June, the state Senate voted Older Adult Daily Living Center Program unanimously to confirm Beverly Mackereth (03/41/55-13-03) was issued on March as Secretary of the Department of Public 22, 2013 and was effective on that date. Welfare. She had been the acting Secretary The Bulletin provides absence policies in of the department since Gary Alexander OLTL’s Enhanced Older Adult Daily Living left the position in mid-February. Secretary Center Program. Mackereth previously served as Deputy Secretary for the Office of Children, Youth Redistricting and Families. She had served four terms In May, the Pennsylvania Supreme Court in the state House of Representatives upheld the Legislative Reapportionment and has served in a variety of health and Commission’s second try at drawing new human services positions. state legislative districts. The first map was struck down by the court in February 2012. As a result 2012 elections used the old 2001 maps. Political watchers believe Page 10 A Slice of Pie - Volume 14 Issue 2, 2013 than twelve, the amount of spending to be cut is roughly 9%. Programs affected NATIONAL by sequester include Special Education; Medicare providers (limited to a 2% cut), Developmental Disability Councils NEWS (PA’s percentage to be cut is 4.47%) and 2013 Federal Budget Protection and Advocacy agencies (PA’s On March 26, 2013, the President signed a Disability Rights Network percentage to be budget bill to fund the federal government cut is 5.13%). Other programs not affected until September 30, the end of the current by sequestration include Social Security, fiscal year. Most programs were funded SSI, Medicaid and the Children’s Health at the same level as the first half of the Insurance Program (CHIP). year—a small 0.6% increase over 2012. But many programs are feeling the effects 2014 Federal Budget of “sequestration,” across-the-board On June 4, the U.S. House of cuts, which went into effect on March 1. Representatives passed a resolution Mandatory Federal programs will not be (H Con Res 25) setting spending caps receiving spending cuts, but discretionary that would limit discretionary spending programs will receive cuts in funding until for the 2014 fiscal year to $967 billion. Congress changes the laws that require it The resolution assumes that, overall, to take place. sequestration (budget cutting) remains in place, except some defense cuts would be In late March, Congress passed legislation shifted to non-defense domestic programs. that gives some departments in the The Senate’s fiscal 2014 budget resolution U.S. government more flexibility in how of $1.058 trillion assumes repeal of sequestration cuts are implemented. The sequestration as part of a broader, long- legislation also reduced the amount of budget term deficit reduction agreement. Neither cuts for some programs while increasing budget negotiations nor appropriations the amount of cuts in other programs. hearings have been held, making a budget Overall, sequestration would lead to about deal unlikely before the start of the new a 5% reduction in discretionary program fiscal year on Oct. 1, 2013. spending for a full year. But for FY 2013, because the cuts need to be achieved in seven months (March - September) rather

A Slice of Pie - Volume 14 Issue 2, 2013 Page 11 research. Read the 71 page report at www.acl.gov/NewsRoom/Publications/ RESOURCES docs/PCPID_FullReport2012.pdf. Lifesharing The Office of Developmental Programs Medicaid Report has made several resources on Lifesharing AARP Public Policy Institute has published available. The resources include a Spring a new report called Medicaid: A Program 2013 newsletter Lifesharing Update, Youth of Last Resort for People Who Need Long- Independent Living Services Guidelines, Term Services and Supports. Nearly a third and a Lifesharing Directory. To access the of older people are projected to deplete resources, go to www.odpconsulting.net their life savings and turn to Medicaid and click on Topic Info. for assistance as their ability to care for themselves declines. To read the six page Autism Resource Center report, go to www.aarp.org/content/dam/ The DPW Bureau of Autism Services has aarp/research/public_policy_institute/ announced that a new statewide autism health/2013/medicaid-last-resort-insight- resource center will include a website, AARP-ppi-health.pdf. statewide toll-free number and community outreach specialists to provide information CMS Guidance to the autism community. The Autism The Center for Medicare and Medicaid Services, Education, Resources & Training Services has issued “Guidance to States (ASERT) Collaborative will include the using 1115 Demonstrations or 1915(b) ASERT Statewide Resource Center which Waivers for Managed Long Term Services will offer information about local, regional and Supports Programs” (MLTSS). To and statewide events, professional read the 18 page report, go to www. training, community resources, services, medicaid.gov/Medicaid-CHIP-Program- and current research. Contact the ASERT Information/By-Topics/Delivery-Systems/ Statewide Resource Center at 1-877-231- Downloads/1115-and-1915b-MLTSS- 4244 or at www.PAautism.org. guidance.pdf. The guidance encourages states to include both home and community Long Term Managed Care based services and institutional programs The President’s Committee for People in the managed care capitation rate. with Intellectual Disabilities (PCPID) has released its 2012 Report on long-term Mental Health Site services and supports through managed The U.S. Department of Health and Human care. It includes background information Services has launched www.MentalHealth. about managed care and offers 15 gov as an online resource for people looking recommendations in four categories: for information about mental health. This disability stakeholder engagement, website provides information about the choice and self-determination, consumer signs of mental illness, how individuals protections and rights, and quality can seek help, and how communities can measurement, data collection and host conversations about mental health. The website also features videos from a Page 12 A Slice of Pie - Volume 14 Issue 2, 2013 number of individuals sharing their stories Housing Market about mental illness and recovery. Every two years the Technical Assistance Collaborative and the CCD Housing Task Medicaid Buy-In Force publish a study, Priced Out, which Mathematica Policy Research has documents the housing crisis for people submitted its final Medicaid Buy-In report, with disabilities. The study compares Enrollment, Employment, and Earnings in average HUD fair market rents for one- the Medicaid Buy-In Program, 2011. The bedroom and efficiency apartments with report is part of the Medicaid Infrastructure the average SSI benefit for a person with Grant (MIG), which provided more than $450 a disability living in the community. The million to strengthen state infrastructures in study provides data for all states and promoting and supporting employment for housing market areas across the nation, people with disabilities. The size of state and includes information on how to use MIG programs varied, from fewer than 50 the data for housing advocacy. To read the enrollees to nearly 20,000. Pennsylvania’s report, go to www.tacinc.org/media/33368/ program, called Medical Assistance for PricedOut2012.pdf. Workers with Disabilities (MAWD), is one of the five largest programs with 35,946 Inclusion Report enrollees in 2011. To read the report, go to United Cerebral Palsy (UCP) has issued the www.mathematica-mpr.com/publications/ 2013 Case for Inclusion, an annual report PDFs/health/medicaid_buyin_enrollment. that tracks the progress of community living pdf. standards for Americans with intellectual and developmental disabilities (ID/DD). Housing and Olmstead Pennsylvania’s scorecard shows the The U.S. Department of Housing and numbers served and the cost in 2011. The Urban Development (HUD) has issued 2013 report, and data from all previous new guidance about the decision of the reports since 2006, is available on UCP’s US Supreme Court in Olmstead v. L.C., website at www.ucp.org/the-case-for- 527 U.S. 581 (1999) and how it affects inclusion/2013. recipients of federal financial assistance from HUD. The guidance was issued to Compensation Report encourage housing providers to support On April 16 the PA Legislative Budget and Olmstead implementation by increasing Finance Committee (LBFC) released its the integrated housing opportunities report entitled Financial and Compensation that are available for individuals with Information Concerning Nonprofit and disabilities who are transitioning from, or For-profit Human Service Providers. The at serious risk of entering, institutions, study was to include recommendations hospitals, nursing homes, adult care to address the unmet service needs of facilities, and other restrictive, segregated individuals and increase the efficiency settings. To read the guidance, go to www. and quality of the direct delivery system. portal.hud.gov/hudportal/documents/ However, LBFC said that the information huddoc?id=OlmsteadGuidnc060413.pdf. it was asked to compile for the report was not sufficient to lead to recommendations. A Slice of Pie - Volume 14 Issue 2, 2013 Page 13 To read the report, go to www.lbfc.legis. Living Well Conference state.pa.us under Health & Welfare in the The Center for Independent Living Reports Released section. A hard copy is of Central PA (CILCP), PA Statewide available by calling (717) 783-1600 or by Independent Living Council (PA SILC) email at [email protected]. and Three Rivers Center for Independent Living (TRCIL) are hosting the first Living Well With A DisabilitySM Conference & Expo from August 23-26. 2013 at CONFERENCES the Lancaster Marriott and Lancaster Building Bridges County Convention Center. Attendees The 2013 Aging/Intellectual Disability will test new assistive technology, gain Cross-Systems Conference will be held knowledge from national speakers, dive on September 17-18 in Camp Hill, PA, into the action of adaptive sports and meet at the Radisson Hotel. It is sponsored by celebrity guests with disabilities. People the Pennsylvania Department of Aging can register for the conference through and Pennsylvania Department of Public July 26, 2013. The expo, held August 24 Welfare. The registration deadline is and 25, is free and open to the public, September 10, 2013. To register, go to and attendees can register online. For www.ltltraingpa.org or call (717) 541- full details about the Living Well With A 4214. Disability Conference & Expo, visit www. livingwellwithadisabilityexpo.org. For the latest updates, connect with Living Well With A Disability Conference & Expo on Facebook and follow updates on Twitter.

Page 14 A Slice of Pie - Volume 14 Issue 2, 2013 Contact PIE

Contact the PIE Team with any questions, comments, suggestions, or information to share at PIE, c/o The Arc of Pennsylvania, 301 Chestnut Street, Suite 403, Harrisburg, PA 17101, by email at [email protected] or by phone at 800-692-7258.

* A Slice of Pie is available by email and contains hyperlinks for ease of accessing websites and internet documents and resources. * PIE Alerts, PIE Information, and PIE Job Postings are available by email to keep people informed about disability issues between newsletters. * Sign up for A Slice of Pie or PIE electronic messages by phone at 800-692-7258 or by emailing [email protected]. * Individuals who already get A Slice of Pie and/or PIE electronic messages can make changes at any time by clicking “Update Profile/Email Address” at the end of any PIE email message. * A Slice of Pie is available at the Developmental Disabilities Council website www.paddc.org, by clicking on “Publications” and “Slice of Pie”. Archived editions can also be found there. * A Slice of Pie is available in alternate format upon request. * The PIE office will download, copy, and mail information mentioned inA Slice of Pie upon request.

The PIE Team THE ARC OF PENNSYLVANIA PIE STAFF: Gwen Adams Maureen Cronin Todd Dickinson Ashlinn Masland-Sarani Maureen Westcott

CONSULTANTS: Theotis Braddy Joan W. Martin Vini Portzline Terry Roth

A Slice of Pie - Volume 14 Issue 2, 2013 Page 15 A Slice of Pie

Policy Information Exchange c/o The Arc of Pennsylvania Suite 403 — Pennsylvania Place 301 Chestnut Street Harrisburg, PA 17101

Change of Information? We want to be certain that you do not miss an issue of A Slice of Pie, so please send name or address changes either by phone 800-692-7258 or by email to [email protected]. Thank you.