Dear Members of Human Rights Committee
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Dear members of Human Rights Committee, Thank you for this opportunity and your reading this brief report. I am Hiker Chiu. I come from Taiwan. I am the founder of Oii-Chinese and also the initiator of “Global Free Hugs with Intersex movement”. I am making efforts in intersex visibility, connecting intersex people around the world and advocating intersex awareness by public education about intersex human rights issues. I am here to represent myself as an intersex person and an intersex activist from Chinese speaking areas in Taiwan and China. Human Rights violation on Intersex in Taiwaan Today, most intersex subjects are still in hiding because of discrimination. The absence of their voices prompts me and Oii-Chinese to remain patient and work harder to help them speak, to be heard and be value. Taiwan and China share similar cultural traditions. Democracy made Taiwan more open than China. As soon as intersex normalization protocol was developed by John Money in US in 1950s, Taiwan adopted it. The first intersex normalizing surgery was done in 1953. My enlarged clitoris was removed in 1972 when I was six. A similar surgery has been performed on an 11 year old CAH girl in her first month after birth in 2004. Her mother reported that the doctor had intended to encourage and push for an early surgical normalization intervention. Now, she worries about the gender identity issue of her girl. After listening to my talk in 2012, a doctor told me that surgical intervention at an early age is still considered the best timing for intersex infants. The unnecessary, unconsented surgical interventions without human rights concern are still practiced by doctors in Taiwan. At least around 20 CAH (Congenital Adrenal Hyperplasia, a most common form of intersex variations with ambiguous genital ) babies born every year (according to the government report) in Taiwan are still in high risk to be surgical corrected without informed consent and being deprived their human rights of bodily integrity, self-autonomy and self- determination. Taiwan society are still ignorant to aware that intersex as a variations of human bodies, discrimination on intersex (neither male nor female) keeps intersex hiding. Being intersex in China Intersex people and the status of being neither male nor female have been discriminated in traditional Chinese society for thousands of years. It is shameful to have an intersex child and to be intersex in traditional Chinese culture. Intersex is seen as a monster that is a sign of bad luck to the family, village and even to the whole country in ancient China. It 1 is still believed by many people that having an intersex child must be a punishment for parents that have done too many bad things in their past lives. Once the secret has been let out, it will be disastrous lives for the intersex children, intersex adults and also their families. Gender binary concept is very strong in the Chinese society. Atypical genital, appearance and cultural gender norm are huge pressures and challenges to healthy intersex children in China. To make a choice between male and female physically is a very certain and common agreement also pressure by most people in the society including doctors, parents, general public and even intersex persons themselves. Most intersex people fear of being seen as abnormal and suffer from discrimination by being neither male nor female. Once the intersex status is uncovered, it is very difficult to live as a human being in Chinese society. Being abandon, discriminated, isolated, bully, excluded will come after soon, even from family. Many of them will drop off from school, leave their home alone and even commit suicide to escape from discriminations and severe sufferings from the social pressure. It is often kept secret in the family, sometimes even to the intersex child. It is the best policy to protect themselves by keep hiding. But the secret is often hard to keep in rural areas. Normalizing surgery actually is a huge demand from parents and intersex adults in China, specially those from poor traditional rural areas. It means there is huge pressure on physically healthy intersex people who keep their bodily integrity that suffer mentally from the discriminations and stigma from culture and society. Discrimination creates demand normalizing surgery but also prevent intersex people to get proper health care. The reasons for non-surgery include poverty, wanting to keep the secret, feeling shameful to go to the doctor, not trusting the hospital to protect their privacy, lacking information and knowledge, local hospitals not having the means to deal with surgery and giving up the intersex child. The key intersex human rights issue, “early aged, non-necessary normalizing surgery to fit the social need without consent”, or “IGM”, is not yet a big issue in China right now. They do happen to families that can afford early childhood surgery for intersex children but, only a small portion of intersex adults who had been assigned wrongly have awareness of this issue and almost all of them keep it as a secret. Up to now, unlike some western countries where intersex children can express their wishes and intersex adults are consulted about their choice of gender before surgery, Chinese parents have the power over their intersex children to make the ultimate decisions for them. Intersex people in China are not as concerned with unnecessary medical intervention without consent. But,due to the immense discrimination and pressure there is a huge desire in families of intersex children and also often in intersex adults themselves to be surgically “normalized”. 2 Therefore modern western medical doctors are seen as saviors of the intersex family and intersex people. Doctors continue to promote what they learn from the western medication, promoting early childhood normalization surgery to prevent psychological harm from the society. Healthy intersex space is further framing by western medication in China to be a condition could and should be normalized. There is less and less space for physical healthy intersex people to keep their bodily integrity. Under this circumstance, non-necessary, cosmetic intersex medical intervention at an early age could increase as fast as economic growth in China and become the big intersex human right violation issue by the culture need in the very near future. The key issue in Taiwan and China is to eliminate discrimination on intersex people in the society to prevent healthy intersex people to do the normalizing surgery under social stigma and discrimination. And to raise the intersex human rights awareness to the whole society especially in intersex people, parents and doctors to prevent “early normalizing surgery without consent” and “IGM”. At the same time, intersex visibility as variations of human being should be included in general and public education and knowledge system around the world. We need to have a space to be who we are without discrimination. 3 Advocates for Informed Choice October 28, 2015 aiclegal.org I. Introduction Americans born with intersex conditions face a wide range of violations of their sexual and reproductive rights, as well as rights to bodily integrity and individual autonomy. In infancy and throughout childhood, children with intersex conditions are subject to irreversible sex assignment and involuntary genital normalizing surgery, sterilization, medical display and photography of the genitals, and medical experimentation. Intersex individuals suffer life-long physical and emotional injury as a result of such treatment. Various human rights bodies have recognized that the medical treatment of people with intersex conditions rises to the level of human rights violations. The World Health Organization (WHO) has called for the elimination of involuntary sterilization, noting that sterilization without informed consent has been described as a violation of fundamental human rights. (WHO 2014) WHO recognizes that “[i]ntersex persons, in particular, have been subjected to cosmetic and other non-medically necessary surgery in infancy, leading to sterility, without informed consent of either the person in question or their parents or guardians.” (WHO 2014) The United Nations Committee on the Rights of Persons with Disabilities (CRPD) has called for data collection on the frequency of genital mutilation and forced sterilization of intersex children, and a plan to end these practices, in Germany. (CRPD 2014) The United Nations Special Rapporteur on Torture (SRT) has also called for an end to the abuses against intersex people: “Children who are born with atypical sex characteristics are often subject to irreversible sex assignment, involuntary sterilization, involuntary genital normalizing surgery, performed without their informed consent, or that of their parents, ‘in an attempt to fix their sex’, leaving them with permanent, irreversible infertility and causing severe mental suffering. The Special Rapporteur calls upon all States to repeal any law allowing intrusive and irreversible treatments, including forced genital-normalizing surgery, involuntary sterilization, unethical experimentation, [or] medical display … when enforced or administered without the free and informed consent of the person concerned. He also calls upon them to outlaw forced or coerced sterilization in all circumstances and provide special protection to individuals belonging to marginalized groups” (SRT 2013) Despite this international outcry, these procedures are still occurring in the US today. II. Violations experienced by people with intersex conditions in health care settings A. Irreversible sex assignment and genital normalizing surgery When a child is born with an intersex condition, parents and doctors are often unsettled by the child’s atypical genitals and the possibility of “gender uncertainty.” Due to a sense of urgency about making a gender assignment, genital “normalizing” surgery commonly 4 occurs in the first two years of life, often by six months. Medical literature admits that these surgeries are cosmetic and intended to ensure gender-normative behavior, such as standing to urinate in children assigned as boys.