the

SpectrumVolume 31, No. 1 • issn 1044-1921 • WINTER 2015

Annual Conference: Lifelong Learning New Program: LifeLong Interventions Supported Employment Brings Fulfillment Mission Statement The Autism Society of North Carolina is committed to providing support and promoting opportunities Table of Contents which enhance the lives of individuals within the autism spectrum and their families.

Vision Statement Features: The Autism Society of North Carolina strives to Annual Conference: Lifelong Learning...... 4-5 create a community where people within the autism spectrum and their families receive respect, services, Introducing LifeLong Interventions...... 6-7 and support based on individual differences, needs, and preferences. Supported Employment Brings Fulfillment...... 10-11

Privacy Policy Social Skills and Teachable Moments...... 12-13 The Autism Society of North Carolina respects the privacy of its members and those who receive our Help on Residential Options...... 14 publications. We do not sell or otherwise share our mailing list, email notification list, or any other Facing Bullying Together...... 15 personal information with other businesses or organizations. A “Not So Mini” Mini-Camp...... 19

World Autism Awareness & Acceptance Day...... 21 The Spectrum The Spectrum (ISSN 1044-1921) is published in How Faith Communities Can Help...... 24 January and August by the Autism Society of North Carolina, Inc.© 2015. All rights reserved. Viewpoints expressed are not necessarily those of the Autism Society of North Carolina, Inc. or its Board of Also in this issue: Directors. Editor: Amy Seeley Message from the CEO...... 3 Graphic Designer: Erika Chapman Services Updates...... 8-9 Careers Public Policy Update...... 16-17 Would you like to work for the Autism Society of North Carolina? ASNC is a direct-care provider Camp Royall Upcoming Events...... 18 throughout the state with offices in Asheville, Charlotte, Fayetteville, Greensboro, Greenville, and Bookstore: Expert Picks...... 20 Raleigh. We are always looking for good candidates who are passionate about helping individuals on the Chapters & Support Groups...... 22-23 autism spectrum and their families.

A variety of part- and full-time positions are available! Fall Run/Walks for Autism...... 25-27 Please visit http://bit.ly/ASNCcareers to learn more about current ASNC career opportunities. We Thanking Our Supporters...... 28-29 appreciate referrals; please help us recruit the best talent by sharing the above link. Donations...... 30-31

ASNC is also supported by: 505 Oberlin Road, Suite 230 • Raleigh, NC 27605-1345 919-743-0204 • 800-442-2762 • Fax: 919-743-0208 www.autismsociety-nc.org Message from the CEO

Happy New Year! It’s hard to believe how quickly time goes by when there are so many things happening within our community. Last year saw ASNC Board of Directors and our stakeholders provide unprecedented guidance to legislators and policymakers on an array of issues across the lifespan. We also completed a strategic plan that charts a course for the organization to continue to move Executive Committee forward and serve people with a wider array of services. Chair

Responding to the expanding and ever-increasing need for quality autism services, ASNC has been Sharon Jeffries-Jones engaged in various consultative efforts across the state, in addition to providing direct supports, Vice Chair education, referral, and information to so many on a daily basis. We have been working diligently Elizabeth Phillippi with the NC Department of Health and Human Services (DHHS) and the legislature on a myriad of issues, such as how Medicaid reform can provide holistic, comprehensive, and most importantly, Secretary quality, services to individuals with autism. We have ongoing efforts to inform the rewrite of the Darryl R. Marsch new Innovations waiver that will go into effect in January 2016. We have been working on the standardization of various business practices that will provide more efficiency for providers and Treasurer families. We have spent much time advocating for improvement with the public system for preventing John Delaloye crises and accessing crisis services as well as looking at the concept of integrated care in NC for individuals with intellectual or developmental disabilities or Autism Spectrum Disorder. Additionally, Immediate Past Chair we have worked with legislators and other professionals in the education system on transition issues. Beverly Moore

Finally, autism insurance is an ongoing priority for ASNC as well, and we will continue our work until private health insurance provides real coverage to individuals with autism. (Please see pages 16-17 Directors for more on our public policy targets.) We applaud the State Health Plan for providing coverage for the diagnosis and treatment of autism to their benefits package. This went into effect January 1, and Anu Bhatt we are eager to begin providing those much-needed services to individuals across the state. (Read John Cavanaugh more on this on page 7.) Ray Evernham We hope you will keep up with all of these efforts by following our blog athttps://autismsocietyofnc. wordpress.com/. If you would like to become even more involved, sign up for our Policy Pulse email Ruth Hurst, Ph.D. newsletter at http://bit.ly/ASNCPolicyPulseSubscribe. Monique Justice

Preparing for the Future Taunya Land In the fall, we began implementing ASNC’s new three-year strategic plan, which was developed by Hortense Lucas the staff and Board of Directors in conjunction with OPEN MINDS, a leading nonprofit consulting company. The plan’s initiatives and recommended action steps will help ASNC position itself to better Fran Pearson meet the growing needs of individuals on the autism spectrum and their families both now and in Michael Reichel, M.D. the future. Also, through the growth of specialty services such as employment supports and lifelong interventions, ASNC can and will help increase the capacity for high-quality services for the autism Dale Reynolds community across the state. Steven N. Scoggin, Psy.D. The following goals have historically guided ASNC’s focus and decision-making, and will continue to do so: Dave Spicer • To provide the highest quality advocacy, training, education, and direct services across the autism John Townson spectrum and across individuals’ lifespans. Dana Williams • To be positioned and structured to accomplish our mission while ensuring sustainability to all of our stakeholders: individuals with autism, their families, professionals, the community, and the staff. Jeff Woodlief • To inspire donors, friends, and volunteers as they support ASNC.

What are we doing in 2015 to reach these goals? You can read about several of our efforts in this issue, including a new direction for our Clinical team, LifeLong Interventions. (See pages 6-7.) In March, we hope you will join us for our annual conference in Charlotte, Autism: Lifelong Learning. (Find more details on pages 4-5.) And if you’re looking for inspiration, you’ll find it at World Autism Awareness and Acceptance Day. Find the details on page 21 – see you there!

Tracey Sheriff, Chief Executive Officer

www.autismsociety-nc.org • 3 “Autism: Lifelong Learning”

is Theme for 2015 Conference

On MarchRegister 27-28, nearly online 800 parents, today! self-advocates, http://bit.ly/ASNC2015Conference and professionals will come together in Charlotte at the Hilton Friday: University Place Hotel for the ASNC two-day educational Daylong Workshop with the Koegels conference. The theme “Autism: Lifelong Learning” reflects On Friday March 27, the Koegels will the Autism Society of North Carolina’s goal of fostering lifelong present a full-day workshop titled: “Pivotal opportunities for individuals on the autism spectrum. Topics Response Treatment (PRT): Improving will include best practices, school, medical issues, sexuality, and Functioning, Improving Lives.” The Koegels, employment. of the University of California, Santa Barbara (UCSB), developed the Pivotal Response Dr. Aleck Myers, ASNC Clinical Director and chairman of the approach to the treatment of autism. planning committee, said, “We know that individuals on the PRT helps learners by building on their autism spectrum are lifelong learners. It is important to provide interests and has been proven effective for practical strategies for parents and teachers and address increasing social behavior and developing issues that present challenges over the lifespan such as school, communication, language skills, and play. It medications, understanding sexual development and health, and is listed as one of the top 10 comprehensive how to foster a successful work environment. We feel that the autism treatments by the National Academy topics will be informative and provide advice and ideas that can of Science and is one of four scientifically be implemented at home, in school, and in the workplace. We sound, research-based treatments for ASD. are also particularly pleased to have internationally recognized PRT can be used in home, school, and community settings. The presenters Drs. Robert and Lynn Koegel and Dr. Geri Dawson at Koegels have appeared on many TV shows and written several the conference to share their expertise with attendees.” books, which will be available in the ASNC Bookstore.

The complete conference schedule is available on the ASNC Also on Friday, the exhibit hall will be open 7:30 a.m.-5 p.m., website at http://bit.ly/ASNC2015Conference. giving attendees the opportunity to meet more than 30 exhibitors offering a variety of services, products, and information.

4 • The Spectrum, Winter 2015 You Choose Your Workshops Past conferences have been sellouts, so we encourage This year, Saturday attendees will be together for the opening and you to register early! The early-bird rate ends February 3. closingSaturday: sessions and will choose between concurrent workshops Registerhttp://bit.ly/ASNC2015Conference. Now for Early-Bird Rate! in the middle two sessions.

The day begins with a keynote address by Conference Rates Dr. Geri Dawson, Director of the Duke Center for General registration Individual w/ASD College student Autism and Brain Development. Dr. Dawson’s one day...... $135 one day...... $90 one day...... $110 talk is titled: “State of the Science in Autism two days...... $250 two days...... $160 two days...... $200 Research: What Do We Know and Where (All fees will increase by $20 on February 3) are We Heading” and examines recent research findings and the future direction of Registration includes access to lectures and the exhibit hall, research efforts. a conference program and handouts, continental breakfast, lunch, and break refreshments. The first group of concurrent workshops offers two important topics from well-respected professionals. Discounted Hotel Rooms & CEUs • “Autism Plus: What do we know about medical and psychiatric Conference attendees can reserve a room at the Hilton for a comorbidities, and what do we need to find out?”: Dr. Jim significantly discounted rate of $95 per night through the ASNC Bodfish of Vanderbilt University will discuss autism andco- website by February 28. occurring medical and psychiatric conditions as well as research findings and the implications for families and professionals. We are pleased to offer Continuing Education Units in 2015 through the Charlotte AHEC. At press time, the exact amount • “Sexuality and Autism”: Dr. Mary E. Van Bourgondien of the of credit hours offered per day was not finalized. Visit the TEACCH Program at UNC-Chapel Hill will share information conference page on the website for updated information. CEUs about sexual interests and behaviors of adolescents and adults are $35 per day and can be purchased online or on site. on the autism spectrum. Suggestions related to teaching appropriate behaviors and addressing inappropriate behaviors will be shared. Financial Assistance ASNC recommends two sources of financial assistance: After lunch, our second group of concurrent sessions looks at learning in two different environments: school and work. • Jean Wolff-Rossi Fund for Participant Involvement from the NC Council for Developmental Disabilities: • “Collaborating with Parents Toward Positive Outcomes for This fund reimburses individuals with an intellectual or Students with ASD”: Kim Tizzard, ASNC Autism Resource other developmental disability (I/DD) and parents, family Specialist, and Dana Rusher of the NC Department of Public members, or guardians of a child with I/DD or at risk of I/DD. Instruction’s Autism Team will present information that parents It will pay for portions of costs associated with registration, want to know about school-based training and behavioral child care, personal assistance, lodging, and transportation. To apply, contact the council at www.nc-ddc.org or 919-850- supports and how to work together to achieve successful 2901. Funding is limited to $600 per year for in-state events outcomes. There will be time for questions and answers. per individual applicant. • “Employing Adults with Autism: Creating Successful Small • CAP/Innovations Waiver Funding: Innovations waiver Business Ventures”: Gregg Ireland of Chapel Hill will moderate recipients and their natural supports system (family, this panel discussion. The panel, composed of representatives caregivers, etc.) are eligible for funding assistance to attend of three business models that employ individuals with ASD, will the conference. Contact your care coordinator at your discuss their approaches and how to develop similar programs managed-care organization (MCO) and let them know that in other communities. At press time, Walgreens, Extraordinary you wish to use Natural Supports Education funds. There is Ventures, and Rising Tide Car Wash planned to send panelists. an annual limit of $1,000 for conference expenses. Please note that if a family member is employed/paid as a child’s The final session will be a panel discussion about a unique caregiver, they cannot use these funds. ASNC program located in Davidson, NC. IGNITE is a community center for young adults living with high-functioning autism and Exhibits & Sponsors Asperger’s Syndrome that provides opportunities for social growth, learning, and skill development. The program has We are pleased to announce that the Metlife Center for Special helped members live independently, find jobs, and develop other Needs Planning and Earth Fare have already signed on as needed skills for independent living. Panelists will share how the sponsors for the conference. If you are a business owner – or program has helped them reach their goals and what needs to know one – who is interested in participating in the conference, be emphasized as families prepare their children for adulthood. please contact David Laxton at [email protected] or 919-865-5063. Saturday’s exhibit hall hours are 7:30 a.m.-3:45 p.m. g

www.autismsociety-nc.org • 5 A New Program for Direct Services:

The Autism Society of North Carolina is excited to Byannounce Dr. Aleck Meyers,the inauguration Clinical Director of a service to provide direct supports to children, youth, and adults with ASD

WhatLifeLong is LifeLong Interventions? Interventions Think early intervention, but recommendation on how many hours per week of treatment for all ages. At the Autism Society of North Carolina, we recognize would best meet the individual’s needs. that people with autism are lifelong learners. So we plan to offer direct training to individuals of all ages, using the same or similar Is parent/family training included? Yes. For maximum evidence-based practices that have been demonstrated to be so effect, a caregiver will receive coaching on some of the intensive effective with children on the spectrum. We will utilize elements training and the rationale behind it to extend the positive effects of protocols such as Structured Teaching, Pivotal Response of the program. We view parents as partners in the intervention Treatment, and other principles of Applied Behavior Analysis process. (ABA) to teach socially appropriate adaptive behaviors, both in a How can people access this new service? To sign up or find natural environment and in discrete trial format. out more, contact Dr. Myers at [email protected] or What is “direct service”? At ASNC, we will use a tiered 919-865-2271. model. At the top will be our Clinical Director, Dr. Aleck Myers, a Licensed Psychologist, who will supervise other psychologists (LPAs) and Board Certified Behavior Analysts (BCBAs) who will assist him in assessing each client’s needs, designing a treatment package to meet those needs, and scheduling, implementing, and monitoring the client’s progress. The training will be done by certified Registered Behavioral Technicians (RBT) or Board Certified Assistant Behavior Analysts (BCaBAs) paraprofessionals under the direct supervision of our LPAs, BCBAs, and Dr. Myers.

What is involved with LifeLong Interventions? LifeLong Interventions begins with a thorough clinical intake evaluation and functional assessment of need areas, including language and functional communication. Information is gathered for this intake from direct observation and from parents, family members, professionals, or others who know the individual well. The intake then guides us toward more formal assessments of areas such as verbal behavior, adaptive skills, attending, joint attention, imitation, communication, play, and social relations. From these, Is this available where I live? ASNC plans to start this program our clinical experts design an individualized treatment program with a small number of individuals in the Triangle area, then to be implemented directly by our skilled paraprofessionals. expand to the areas served by the following ASNC offices: Training programs combine both intensive, direct instruction Asheville, Charlotte, Fayetteville, Greenville, and Greensboro. We and naturalistic teaching procedures depending on the learning will expand the program to regions based on interest level, so activity and targeted skill. LifeLong Intervention programs may please let Dr. Myers know if you are interested even if you don’t include, but are not limited to, interventions based on principles reside in the Triangle area. in common with evidence-based ABA programs such as the What does it cost? How can I pay for this service? There are Early Start Denver Model, Pivotal Response Treatment, Verbal a variety of funding sources, including some insurance policies Behavior, Discrete Trial Instruction, and Structured Teaching and private pay. We hope to receive donations to be able to interventions. offer scholarships for this in the future. The most exciting news, How often do the training sessions occur? LifeLong though, is the coverage offered by the State Health Plan (SHP) to Interventions programming can occur from a few hours per week state employees, which began January 1. See the next page for up to as many as 40 hours per week, depending on need and details as we know them at this point in time. And yes, with the the individual’s schedule. Research has shown that the efficacy SHP, both ASNC and Dr. Myers are in-network providers. of ABA therapy increases as service time increases. As we For more information about our Clinical team and services complete our initial assessment, we will make a formal written provided, see page 8.

6 • The Spectrum, Winter 2015 While LifeLong Interventions employs a variety of effective methodologies, many Appliedof its interventions Behavior use the principles Analysis of Applied FAQs:Behavior Analysis (ABA). Q: What is ABA? Q: What does direct ABA therapy look like? Applied Behavior Analysis is the scientific study of behavior. While the structure and type of therapy delivered will vary In practice, ABA is used to promote the acquisition of socially depending on individuals’ unique needs and learning styles, appropriate behaviors and reduction of interfering behaviors ABA providers in general will use intensive teaching procedures by systematically changing environmental variables and designed to promote development and generalization of skills into strengthening appropriate replacement behaviors. natural settings. At ASNC, direct services are provided by a well- trained paraprofessional supervised by a psychologist and BCBA. Q: Who can benefit from ABA services? ABA is often used as a treatment for Autism Spectrum Disorders Q: What skill areas can ABA therapy help to (ASD). Though many treatment practices are advertised as address? interventions for ASD, Applied Behavior Analysis is one of the few ABA typically focuses on increasing communication and that is evidence-based and has been shown to be widely effective language acquisition, developing age-appropriate social skills, and safe, based on scientific research. and establishing pre-academic skills, such as attending to a task and following directions. In addition to those domains of Q: Who can provide ABA services? functioning, ABA throughout the lifespan can also be usedto teach independence with activities of daily living, community In North Carolina, ABA therapy currently can be delivered only living and safety skills, and vocational tasks. directly by or under the supervision of a professional holding a state license in psychology. These individuals may be licensed at the doctoral level (LP) or as a master’s-level psychological Q: Who is eligible to receive ABA services? associate (LPA). Practitioners delivering direct services must have The guidelines for eligibility to receive ABA services will often extensive training in the field of behavior analysis and may hold a be determined by individual insurance companies. However, a behavior analysis certification (BCBA) in addition to their license. diagnosis of ASD is typically necessary to qualify for services. To Paraprofessionals who are highly trained in ABA principles and determine individual eligibility for receipt of ABA services, contact strategies may deliver direct services under the supervision of your insurance company. If your insurance provider does not offer a licensed provider who has developed a comprehensive ABA ABA benefits at this time, you may consider contacting ASNC program tailored to the individual receiving services. to explore private payment options. See below for information about ABA coverage under the State Health Plan.

As of January 1, the State Health Plan (SHP) covers Applied The ABA benefit is available only in-network – ASNC is anin- StateBehavior AnalysisEmployees (ABA) benefits Health for autism Plan treatment. Adds AutismThese network providerBenefits – and has a maximum coverage of $36,000 benefits are available to members enrolled in any of the current per year. Beneficiaries will also be responsible for co-pays, co- health plans. The following guidelines should be followed to insurance, and deductibles, as applicable based on their health access these benefits: plan. ABA benefits will not cover treatment for members with • The member receiving ABA benefits must be younger medical conditions that would impair their ability to benefit from than 26 years old. the treatment, or members who currently receive round-the- clock medical care in a hospital facility. • The member should have a diagnosis of autism, provided by a licensed physician or doctoral-level clinical psychologist. For a full list of exclusions, please visit www.shpnc.org. For • The treatment must be deemed medically necessary by the eligible members who are interested in accessing ABA services, Mental Health Care Manager. please visit www.shpnc.org and select the “Find a Doctor” tab to • All ABA services must be directly provided or overseen by a search for in-network providers in your area. For questions about Licensed Psychologist (LP) or Licensed Psychological Associate how this benefit will apply to ABA services on your individual (LPA) with sufficient training and expertise in autism and ABA. plan, and to determine out-of-pocket costs for which you will be Paraprofessionals and non-licensed Board-Certified Behavior responsible, please contact a customer service representative for Analysts (BCBAs) may provide direct services with supervision the SHP at 1-888-234-2416. You will need to provide a date of provided by LP/LPAs. birth, group number, and insurance number. g

www.autismsociety-nc.org • 7

ASNC’sWhat Clinical Services Can department hasASNC’s grown considerably in WorkshopsBy andDr. Aleck Presentations Meyers, Clinical Director the past two years. Since the arrival of Dr. Aleck Myers in January The department also delivers workshops to professionals and 2013, our department has expanded to include all forms of community members on a wide range of topics. Training is focused behavioral consultation and training. It now consists of: Clinical Serviceson Doincreasing understandingfor You? of autism, stressing the uniqueness • a Clinical Director who is a Ph.D. Licensed Psychologist (LP) of each individual on the spectrum, and teaching evidence-based • two lead trainers who are also Board Certified Behavior best practices in working with individuals with autism. Trainings Analysts (BCBAs) are offered in workshop settings, to small groups, and in one-on- • a part-time Licensed Psychologist (and doctoral-level BCBA) one direct coaching sessions. • six master’s-level Licensed Psychological Associates (LPAs), five of whom are also BCBAs Site-Based Coaching We also offer direct site-based coaching as a component of the In the next six months, we expect to add one more LPA/BCBA professional development training package. In many such cases, and two regional trainers. This will enable ASNC to provide our lead trainers work closely with teachers, students, autism behavioral consultation and training supports to the areas served specialists, therapists, and other staff in the school setting by the following ASNC offices: Asheville, Charlotte, Fayetteville, and provide firsthand guidance on how to implement specific Greenville, Greensboro, and Raleigh. You can learn more about interventions and behavioral strategies that are proven to be our experts on the ASNC website, www.autismsociety-nc.org, effective for students with autism. g under the “Get Help” dropdown. For more information about how Clinical Services We are also adding an exciting program called LifeLong can support you, please contact us at 919-865-5070 or Interventions. (See previous pages for more details.) LifeLong [email protected]. Interventions will enable us to provide direct evidence-based and promising practices such as verbal behavior instruction, Pivotal Response Treatment, Early Start Denver protocols, structured teaching, and other Applied Behavior Analysis (ABA) techniques. These apply to children, youth, and adults across the autism spectrum. We firmly believe that people with autism are lifelong learners, and while intensive early intervention is undeniably extremely beneficial for children at a very young age, children and adults of all ages can benefit significantly from these supports.

Behavioral Supports We provide behavioral supports to parents, caregivers, professionals, and self-advocates within a variety of settings, including the home, early childhood education settings, elementary and secondary education settings, adult day programs, and residential settings. The ultimate goal ofour consultative service is to empower caregivers with evidence- based and relevant strategies to promote optimal outcomes for the individuals they support. Our behavioral supports can involve many valuable aspects, including but not limited to: • behavioral/functional • development of formal assessment behavior support programs • behavior consultations • coaching on the programs’ • creation and use of structured implementation and related systems and visual supports follow-up • functional communication • empirical analysis of progress training

8 • The Spectrum, Winter 2015

ASNC is an accredited provider of many direct-care services plan for developing skills and reaching goals. To learn more about throughout the state. These services can be paid for through private pay, contact the nearest regional services office. Needfunding such as Innovations/CAP Direct-Care waiver, b3, or IPRS (state- Services? funded benefits); private pay; and in some instances, insurance. Insurance Coverage: The State Health Plan began covering To learn about the types of services that ASNC’s trained staff can autism therapy on January 1. As mentioned on page 7, ASNC is offer to your child, please call the officeWe nearest Can you. Helpan in-network provider for autism treatments through the State Health Plan. Services will begin in the Triangle area and expand ASNC Regional Services Offices: based on demand, so please visit our sign-up page at http://bit.ly/ ASNCformSHP Asheville: 828-236-1547 Greensboro: 336-333-0197 to be contacted by a member of our Clinical team. Other insurers also may cover autism therapy. J.P. Morgan, Verizon, Charlotte: 704-894-9678 Greenville: 252-756-1316 General Motors, and American Express Co. are just a few of the Fayetteville: 910-864-2769 Raleigh: 919-865-0681 employers that offer benefits. Check with your human resources department to learn whether your company offers benefits. State-Funded Services: There are three main sources of state/federal-funded services: Innovations/CAP Medicaid Attention Families in Orange, Alamance, waiver, b3, and IPRS services. All are managed locally through managed-care organizations (LME/MCOs). If your child already and Chatham counties! receives this funding, ASNC can be your care provider of choice Cardinal Innovations MCO manages in-home skill building, a in most areas. If your child is not receiving support through an new b3 service that enables a child or adult with autism to MCO, we encourage you to ask them about obtaining support acquire, maintain, and generalize new skills that support greater services. (Find contact information at this link: http://bit.ly/ independence along with family involvement. It is a short-term, LMEMCOcontacts.) There is a waitlist for waiver services, but intensive service that generally lasts six months to one year based by calling the MCO, you will start the process of determining on funding and eligibility. eligibility for funding support. If you are currently on the waitlist, contact your MCO to make sure your child’s information is up The service involves in-person, direct coaching of the individual to date. Some services, such as b3 or IPRS, may be immediately and training and participation of family members in the use of the available based on funding and eligibility. strategies to address the needs. Goals are defined and progress measured. For services in Orange and Chatham counties, please Private Pay: Some families prefer to contract individually with contact Shelley Welch at 919-865-0681 or swelch@autismsociety- care providers to work on goals with their children. ASNC will nc.org, and for services in Alamance County, contact Chris Liga at work with families who wish to choose this option and develop a 336-333-0197 or [email protected]

Melissa Mulcahey Wins Direct Service Award The Autism Society of North Carolina has named Melissa Melissa was nominated by the mothers of two individuals she Mulcahey of Asheville as the 2014 winner of the John and Claudia supports. “Melissa helps Davis continue to learn and grow. The Roman Direct Service Award. The annual award honors an ASNC future for him is better with her in his life,” wrote Debra Walker direct service employee who has demonstrated outstanding in her nomination. Jillian Martin wrote, “It’s because of people dedication to individuals with autism and like her that our kids are loved and accepted, our their families. Mulcahey is a community “Melissa helps Davis families are comforted, and we can all attempt to skills instructor who has worked for ASNC continue to learn and have the most ‘neurotypical’ life possible.” for five years. grow. The future for Mulcahey received a cash award of $1,000 and will “Direct support professionals are the be recognized at the annual conference in March. backbone of all ASNC does; they make a him is better with ASNC received many nominations for the award, tremendous difference every day in the her in his life.” demonstrating families’ appreciation for the life- lives of the families and individuals we changing work that direct support professionals do serve,” said Kari Johnston, ASNC’s Director of Services. “We every day. The John and Claudia Roman Direct Service Award was are pleased to be able to acknowledge them with the Roman endowed by Lori and Gregg Ireland to honor Christine Roman, the award, which also raises public awareness about direct support direct service professional who worked with their son, Vinnie. It professionals and the important work they do.” was named for her parents, John and Claudia Roman.

www.autismsociety-nc.org • 9

David Roth’s parents never have to wake him up in the morning matured. “I think it really has orSupported push him to get out the door on time Employment for his job. The 27-year- changed him.” old with autism works at the Courtyard in Chapel Hill, mostly in the fast-paced, physically demanding laundry, but he is always Kathryn Lane, who is Adam’s happy to go. Brings Fulfillmentemployment supports instructor through ASNC, agrees, saying “He loves to work. He absolutely loves it,” said his mother, Susan that Adam is calmer on the job Roth. than at other times. Having a job has also taught him responsibility as it requires him to be punctual, have clean, neat clothing, and David started working at the hotel when he was still in high school. manage his time as he completes tasks, she said. It was a volunteer position, facilitated through East Chapel Hill High School, where the young man was having some behavioral issues “Seeing the progress is really rewarding for me,” Kathryn said. “The when he was made to do things he did not want to do. “He was goal is to make him independent someday.” absolutely the happiest when he was out in the community and especially when he was at his job,” Susan said. For individuals with Autism Spectrum Disorder (ASD), meaningful employment is a key part of a fulfilling life, but studies have shown Now, almost a decade later, David holds a paying position at the that as many as eight out of 10 are unemployed or underemployed. Courtyard along with two other part-time jobs, with the help of an David Ingram, ASNC Employment Supports Director, said that employment supports instructor from the Autism Society of North individuals with ASD improve their odds of obtaining integrated Carolina. His mother says the jobs have helped him learn how to employment 400% through using job placement services from an interact with other people, provided the consistent schedule that organization such as ASNC while using Vocational Rehabilitation he needs, and given him pride and a sense of accomplishment. supports. They have even improved his reading skills because he is interested in reading about his job duties as opposed to school topics. Businesses Giving Back Lorraine La Pointe’s 25-year-old son with autism, Adam Ricci, also From the employers’ viewpoint, providing job opportunities for holds several part-time jobs. She says they have “opened up his individuals with autism is a win-win situation. circle”; when she is with him in the community, he always sees someone he knows. She also noticed that Adam has recently “The benefits that we have with David … it actually keeps us humble, grounded, and grateful,” said Lisa Giannini-White, the Director of Operations of Southpoint Animal Hospital in Durham, where David Roth works in the afternoons. “We thoroughly enjoy having David here.”

Terry Hamlet is President of S.H. Basnight and Sons, a small Hillsborough company that makes specialty hardware, doors, and frames. Terry said she and her employees benefit from working with Adam and another employee with autism. “I think that at the core of each person, they like the idea of doing something for other people. I think that in some way, that is happening here,” Terry said. “Hopefully they can feel good about the fact that they work for people who care enough about other people to give them an opportunity.”

Lisa said it was a part of Southpoint Animal Hospital’s original business plan to “offer opportunities to everybody.” Before David came to work for them, she did research about how to support individuals with autism and also consulted with his father about David in particular. When she talked to her employees about bringing David on, they were all for it, she said, and so she shared what she had learned.

10 • The Spectrum, Winter 2015 Valued Employees But it’s not just about a feeling they are doing good; David is a operates on a visual schedule, and they have magnetic boards set valued employee, a consistent team player with great attention up for his tasks. They are just on it.” to detail, Lisa said. “He helps others see that well, gosh, I guess I could be more detailed, or I guess I could be a little bit of a harder The visual task boards give Adam the opportunity to choose worker.” the order in which they will do the tasks for that day as well the independence to move from one task to another, Terry said. Alex Griffin also brings strong attention to detail to his position At Southpoint Animal Hospital, Lisa also set up visual supports at the Center for Urban Affairs and Community Services (CUACS) for David, such as laminated sheets showing his duties in the at NC State University. Alex, a 30-year-old with high-functioning restrooms. autism, does not need the assistance of an employment supports instructor, but he did participate in ASNC’s JobTIPS program, which Terry also said that employment supports instructors are a key emphasizes the development of social skills that are critical to to success for individuals with autism. With the job coaches identifying, applying for, securing, and maintaining employment. supporting their clients well, there is more potential for growth The group facilitator provides coaching and feedback for job in the job. Kathryn Lane, who has worked with Adam since July, interviews, encourages peer interaction, and helps members said she has seen that; he has started recognizing more details at develop a broader community network. his job and times that tasks were not done correctly.

Sheila Brown, Alex’s supervisor, said he does not really need supports at CUACS and performs well in a variety of duties. “He’s got a great attitude, and everything he’s done for us he’s done very well, very thoroughly,” she said. The reviews of assessments and testing that their work group do can be tedious and require a lot of attention, and Alex has found things they might have missed, she said. He also is very responsive to feedback and happy to do anything that is asked of him.

Alex said he would like all employers to know that “our value as employees isn’t overshadowed by the minor cost of accommodation.”

David Ingram said, “Individuals with disabilities, including ASD, experience less turnover than nondisabled individuals, allow Adam Ricci works at S.H. Basnight and Sons with President Terry access to numerous tax incentives, and return an average of Hamlet, right. Kathryn Lane, left, is his employment supports instructor. $28.69 for each dollar invested in accommodations. Individuals with disabilities and their networks represent a $3 trillion market segment, and 87% of customers prefer to patronize businesses Part of the Team that hire employees with disabilities. I’m excited to see businesses For employees without onsite support staff, many issues can be starting to understand the value in hiring workers on the autism avoided with just a little research about autism and the employee spectrum and contact us seeking support in placing someone with in particular, said Sheila Brown, Alex Griffin’s supervisor at NC State. ASD with their corporation.” “We tend to have a stereotypical picture of what autism is, but it’s really more what autism is not,” she said. “Just be open, trying to Supporting the Workers make sure that the person is comfortable with what you’re asking them to do until they feel a comfort level with you and your staff.” S.H. Basnight and Sons’ employees with autism are productive parts of the business because Terry matched tasks that the Adam feels very comfortable with his Basnight co-workers and company needed to have done with their skills, just as she would Terry Hamlet; when he sees her in public, he greets her with a with any employee, she said. Having patience and teaching how hug. She said they strive to make him a part of their team. Adam’s to complete tasks properly is necessary with any worker, she said. mother said they have gone a step further, including him in parties “There is no employee ever that is totally easy. The key is to work for holidays and birthdays; “they treat him like family.” with people to help them do things correctly.” Terry says the effort was worth it. “It’s very important for everybody – it’s important with our children, it’s important with our co-workers, it’s important in “My life and the life of our company is richer for having had them our businesses – when there is a weakness, to help that person here. I really believe that.” g develop that.” For more information about Employment Supports, please Adam’s mother, Lorraine La Pointe, said Basnight has done an contact Director David Ingram at [email protected] “amazing” job of supporting him. “They are just naturals. He or 919-865-2267.

www.autismsociety-nc.org • 11

Teachable Moments

Social“Go play!” is a phrase Skills I used to hear as a andkid, andBy I hadKathleen no Dolbee, Autism Resource Specialist trouble finding friends on the block who had been given similar instructions. Generally, we could occupy ourselves and be unsupervised for most of the day. There was an accepted social hierarchy. If a problem arose, the oldest or most mature kids in the group would arbitrate. We learned from each other and gradually grew up knowing that if we wanted someone to play with us, we needed to be nice, share, and take turns. Checkers and chess taught us how to think strategically. Games like Simon Says and Red light, Green light taught us to think before we moved. Make-believe games and building projects gave us a chance to problem solve, think creatively, and work as a group. We learned that a winner who brags gets called a “jerk,” and if you pout or pitch a fit when you lose, then you’re a “sore loser” and you might not be invited to play again. These were critical skills acquired naturally. Those were the days… writes, “Problems rarely stemmed from a shortfall in technical or professional expertise, but rather from a shortcoming in the soft Learning how to resolve differences, share, take turns, problem skills arena with their personal, social, communication and self- solve, collaborate, and control your emotions, behavior and mouth management behaviors.” Clearly, better outcomes are achieved are life skills that are just as important today as they were when I when a student acquires social competence as well as knowledge was a kid. But the way that children play has changed dramatically. and technical ability. Television teaches children to be passively entertained and sends a subtle message that most problems can be resolved in less than 30 Several years ago, at a conference in Knoxville, Tennessee, Temple minutes. Video games reward impulsivity and encourage isolation. Grandin put it this way, “You may be able to do the job better than These days, many kids require more direct social-skills instruction anyone else, but if you call the boss a jackass, you won’t get hired!” and coaching than they did in the past. That is especially true for children who have social-cognitive deficits, as many kids with Clearly, all students should receive instruction in functional social Autism Spectrum Disorder do. skills. However, because of the unique way that children with autism learn, teachers and parents may need to adjust the way they teach these important skills. Thankfully, much research has been First and foremost, I learned done on the subject and many effective, easy-to-use strategies the importance of giving the have been developed. I will share just a few of my favorites based on my own experience in the classroom and with my own son who needed instruction in the way is on the spectrum. that is most meaningful for visual learners, which means talking Use the Visual to Teach Social Skills less and showing more. First and foremost, I learned the importance of giving the needed instruction in the way that is most meaningful for visual learners, which means talking less and showing more. I also learned that Should social skills be taught in public school? The simple answer the lesson needs to be taught when the need for the skill presents is yes. Social thinking and social skills are anchored in the standard itself, literally in the moment. Also, the skill needs to be practiced course of study for language arts. In addition, the North Carolina where it is most relevant. State Board of Education Mission statement includes the goal that “every public school student will graduate from high school, That might mean pressing pause on a planned academic globally competitive for work … and prepared for life in the 21st lesson to take advantage of a teachable moment that pops up Century.” (Italics added.) spontaneously. For instance, many students with autism become experts in subjects that deeply interest them. If a lesson involves In her book The Hard Truth About Soft Skills: Workplace Lessons that favorite subject, it might be necessary to first teach the Smart People Wish They’d Learned Sooner, author Peggy Klaus difference between a discussion and a lecture. Simply taking five

12 • The Spectrum, Winter 2015 minutes to give a verbal explanation to the entire class, along with easy and effective tool that parents and teachers can use alone a visual reminder that everyone can see might be all that is needed or combined with social stories. The Incredible 5-Point Scale truly to get back to academics. The visual might be a simple, two-sided lives up to its name as a tool for teaching emotional regulation and sign. One side is green and says: DISCUSSION; the other side is more. The book The Hidden Curriculum teaches the unwritten rules red and says: LECTURE. Consistent, ongoing use of the visual will that no one has actually been taught, but everyone seems to know. remind and reinforce the concept, and I guarantee that everyone in the class will benefit. A daring idea was presented by Dr. Jed These are just a few of the many researched-based tools that can Baker, director of the Social Skills Training Project and author, when be successfully used to help children become socially competent. he suggested that occasional role reversal, allowing the student Their common factor is that they are visual and simple. The more to be the teacher, might help the student understand a teacher’s familiar you become with a variety of social teaching tools, the perspective and build self-esteem at the same time. more likely you will be to notice and take advantage of teachable moments that arise each day. Just as a roadmap can prevent you from getting lost, using Social Thinking creator Michelle Garcia Winner’s “expected” and After all, if a child has not learned to read, we teach him; and if a “unexpected” behavior maps prior to an event, like a book fair or child has not learned to write, we teach him. So if a child has not field trip, primed my students for success and prevented mayhem. learned how to “behave,” we need to teach him. g Although designed to be a proactive strategy, I also learned to use Kathleen Dolbee is an Autism Resource Specialist in the Asheville the maps after the fact. Using the map backwards, we could do area. She can be reached at [email protected]. To a social autopsy and find out where the social wrong turns were find an Autism Resource Specialist near you, go to http://bit.ly/ made and plan a different route next time. This could be done AutismResourceSpecialists. with one student privately or with the entire class, whichever fits the situation best. Processing this way was empowering and the kids learned that making mistakes is to be “expected.” After all, Look in the Autism Society of North Carolina Bookstore for these mistakes help teach us what we need to learn next. resources and more on social skills: The Hard Truth About Soft Skills: Workplace Lessons Smart People Help on Perspective-Taking Wish They’d Learned Sooner, by Peggy Klaus Social Behavior Mapping: Connecting Behavior, Emotions, and We all have thoughts. If we have managed to stay employed or Consequences Across the Day, by Michelle Garcia Winner married for any length of time, we have likely learned the social skill of editing our thoughts before we speak. We do this because The Incredible 5-Point Scale, by Kari Dunn Buron and Mitzi Curtis we can take the perspective of the hearer. But perspective-taking The Hidden Curriculum, by Brenda Smith Myles, Ronda Schelvan, is hard, and children with autism may require direct instruction. and Melissa L. Trautman Drawing comics with speech bubbles and thinking clouds is an

Se Habla Español La Sociedad del Autismo de Carolina del Norte ofrece varios recursos para ayudar a las familias hispanas afectadas por el autismo. Entrenamientos en español. Temas incluyen: • Comprensión del Espectro del Autismo • Programas Educativos Individualizados (IEPs por sus siglas en inglés) • Transiciones a Edad Adulta Grupos de Apoyo Hispanos ayudan a que los padres: Para mayor información o ayuda en español, • Obtengan información sobre programas, talleres de por favor contáctese con Mariela Maldonado, entrenamiento y servicios en su propio lenguaje Enlace de los Asuntos Hispanos, a 919-865-5066 ó • Compartan con otras familias las experiencias, [email protected]. preocupaciones y esperanzas en un ambiente cómodo y comprehensivo Además, la Sociedad del Autismo en Carolina del Norte • Puedan reducir su sentido de aislamiento tiene la biblioteca más grande del país enfocada en el • Apoyan a otros miembros del grupo que necesiten autismo, y ofrece muchos títulos en español. ayuda

www.autismsociety-nc.org • 13

ResidentialAre you planning for your child’s move away Options: from home? This which honors the memory of fallen FDNY firefighter Jack Fanning, can be an emotional time for any parent; if your child is affected is committed to aiding the autism community and providing the by Autism Spectrum Disorder, the task can be made more appropriate research, educational opportunities, and support complicated by yourWe’re children’s needs. TheHere Autism Society to of neededHelp for individuals and families to reach their full potentials. North Carolina is committed to advocating for more resources ASNC will continue to present the workshop periodically. for families affected by autism and helping you through your child’s transitions.

New Toolkit ASNC’s new toolkit for parents and caregivers can help you: • Learn about available options, from independent living to group homes • Explore financial options for your child’s future • Teach independent living Some other workshops that may help you with transition issues: skills to your child • Developing an Individual Transition Plan: ITP @ 14 • Research group homes for • Journey to Adulthood your child • The Importance of Developing Self-Advocacy Skills The toolkit can be read online, downloaded, and printed • Guardianship: What You Need to Know on our toolkit page: http://bit.ly/ASNCtoolkits. Check the ASNC website at http://bit.ly/ASNCWorkshopCalendar for a complete schedule. Workshops This past summer and fall, ASNC’s Autism Resource Specialists Other resources offered well-attended workshops called “The Next Step: Residential Options for Adults with Autism” around the state. Autism Resource Specialists, who are parents of children with The workshops and the toolkit were made possible by a grant autism themselves, connect families to resources and help them from The Jack Fanning Memorial Foundation. The foundation, as they navigate the services system. Find contact information here: http://bit.ly/AutismResourceSpecialists.

The ASNC Bookstore is a one-stop shop for quality autism books and materials selected by ASNC’s experienced staff; browse at www.autismbookstore.com. Here are a few we recommend: • Special Needs Planning Guide, by John W. Nadworny CFP and Cynthia R. Haddad • Preparing For Life, by Dr. Jed Baker • Moving Out: A Family Guide to Residential Planning for Adults with Disabilities,by Dafna Krouk-Gordon and Barbara D. Jackins • Life Skills 101: A Practical Guide,by Tina Pestalozzi

14 • The Spectrum, Winter 2015

Bullying:Children with disabilities are bullied at far greater rates than their nondisabled peers. Students with Autism Spectrum Disorder often have characteristics that make them especially susceptible, includingA age-inappropriate Problem interests, clumsiness, We or inflexibility Can Face Together when it comes to rules. Recent incidents in the news have drawn attention to the issue with frightening examples of extreme bullying.

The Autism Society of North Carolina works year-round to ensure that students with autism have a safe learning environment in which they are treated as valued members of the school community. We collaborated with members of the legislature to pass the School Violence Prevention Act, which included specific language about bullying, in 2009. Since that time, ASNC has continued to educate and engage members of the House and Senate about bullying and its impact on students on the autism spectrum.

Here are some of the ways we are addressing bullying today. “I would say, Listen, You are Never, New toolkit Ever alone! You are very, very Special Easy-to-use, accessible guide and Very Wonderful for who you are. includes: • signs of bullying It is not your fault that some choose • ways to prevent bullying to Bully. It is their own Fault and • how to stop bullying not Yours! … Do not be afraid to tell • overview of anti-bullying programs that have been someone about others who make fun proven effective for schools • detailed list of resources of you! … Bullying is Never Okay and You Never Deserve to be Bullied!” The toolkit can be read online, downloaded, and printed here: http://bit.ly/ASNCSchoolIssues. The ASNC Bookstore offers many resources on bullying; browse Other resources at www.autismbookstore.com. Here are a few we recommend: Autism Resource Specialists provide support for families • Asperger Syndrome and Bullying: Strategies and Solutions, who are addressing challenges such as bullying and can also by Nick Dubin give presentations in schools about understanding those • Intricate Minds II: Understanding Elementary School with autism. Find contact information here: http://bit.ly/ Classmates with AS (DVD) AutismResourceSpecialists. • No Fishing Allowed: “Reel in Bullying” (DVD, workbook and The Safe in the Community section of ASNC’s website addresses teacher manual), by Carol Gray and Judy Williams many safety concerns. Find it here: http://bit.ly/ASNCSafetyKit. • No More Victims: Protecting those with Autism from Cyber Bullying, Internet Predators, and Scams, by Jed Baker The ASNC blog, at http://autismsocietyofnc.wordpress.com/, is a constant source of information. In a recent post, artist and motivational speaker D.J. Svoboda shared some wise words for those who may be facing bullying:

www.autismsociety-nc.org • 15

ASNCAs an organization Publicdedicated toBy enhancingJennifer Policy the Mahan, Director ofAdvocacy: Government Relations lives of individuals on the autism spectrum and their families, we advocate for public policies that support Our people on Work the spectrum and monitor& What’s Ahead for 2015 changes in our developmental disability and education systems. We have made tremendous progress in educating elected officials, especially in our state legislature, about Autism Spectrum Disorder. This past two-year legislative cycle brought great hope for passing autism insurance legislation and great disappointment when this was not accomplished. ASNC has worked to improve the operations of existing services and prevent an erosion of rights. The state has adopted a scholarship program for children with disabilities. ASNC has worked to reduce the impact of the economic downturn on the state’s budget for people with disabilities; while there has been an erosion of supports, many core services remain. We urge everyone in the autism advocacy community to begin When we talk with people across the state, we know there working with your legislators now as they will be determining is much, much more work to do to ensure that individuals on their priorities very quickly. Let’s make sure our priorities are the spectrum have the supports they need. Our public policy theirs. agenda for the next two years reflects this need. The state has a long waitlist for services, students on the spectrum need more Here are some easy ways to get involved in advocacy: support in schools, and our services system must address people 1. Sign up for the ASNC Policy Pulse email list. ASNC has created on the autism spectrum, regardless of how any new system is a periodic e-update focused on public policy and advocacy to shaped. People with autism are lifelong learners, but they also keep you aware of what is happening across the state that have needs starting from a young age through adulthood and may affect you or your family. You can sign up at http://bit. into their maturity, especially as their caregivers age. ly/ASNCPolicyPulseSubscribe. You can also stay informed by ASNC does not just work with elected officials; once laws have signing up for ASNC’s monthly email newsletter or following passed and funds have been appropriated, it’s up to state us on Facebook and Twitter. Visit the ASNC blog, at https:// administrative officials to set program policies in place. ASNC autismsocietyofnc.wordpress.com/, regularly for the latest in staff members continue to provide feedback on improvements issues affecting people with autism and their families. Learn to the Innovations waiver (due for renewal in 2016) to make more about all of these ways to connect at http://bit.ly/ it more flexible, to push for autism services coverage under ASNCStayInformed. the recent guidance from the federal Centers for Medicare & 2. Get involved with your local ASNC Chapter or Support Group. Medicaid Services, to advocate for autism-specific crisis services, Visit the ASNC website at http://bit.ly/ASNCChapters to find and to work with the NC State Education Assistance Authority on Chapters and Support Groups in your area. Volunteer to help – improvements to the scholarship program. many Chapters are looking for volunteers interested in public We cannot do this advocacy alone. We need all of the families and policy and keeping other families informed! Check out any individuals touched by ASD, whether as a parent, a self-advocate, local e-groups. No Chapter in your area? ASNC works with a friend, a neighbor, or a service provider, to get involved in local families to start new groups. Contact Maureen Morrell autism advocacy to create much-needed public policy changes. at [email protected] for more information on 2015 marks the start of the long legislative session that will run starting local ASNC groups. from mid-January through June. Legislators start with a “clean 3. Build a relationship with your NC state legislators. Sharing slate” and introduce new bills as well as a two-year state budget. our stories with legislators is one of the most powerful ways to

16 • The Spectrum, Winter 2015 educate them on the need for supports for people with autism 2. The education system should be accessible to and better serve and their families. The start of the new legislative session people with autism and other developmental disabilities. following an election is a good time to introduce yourself to Students should have options that suit the unique needs of any newly elected legislators, and if you have not contacted people with Autism Spectrum Disorder. them before, to let your elected officials know who you are. Check out our Advocacy 101 Toolkit for information and advice • Ban prone restraints and promote Positive Behavior at http://bit.ly/ASNCContactingLegislators. Support programs in schools. • Increase per-student funding for special education. 2015-2017 State Public Policy Targets • Increase autism-related training and professional development for teachers and other school staff. ASNC issues two-year policy targets to match up with the two- year legislative and budget cycle. We seek input on policy targets • Ensure employment is an outcome of education services from community members, consider the legislative outlook, and by improving IEPs and transition plans as well as access to vocational training, job experience, and post-secondary decide which issues we will work on to create policy changes. opportunities that meet individuals’ goals and aspirations. Here are our 2015-2017 targets:

1. North Carolina needs to ensure a high quality continuum of 3. North Carolina should develop policies and invest in services services and supports for individuals on the autism spectrum to ensure quality life outcomes for people with Autism and their families across the lifespan, with a focus on Spectrum Disorder and other developmental disabilities. Our community settings and ensuring that people with Autism public and private health-care system should support people Spectrum Disorder achieve a good quality of life. This includes in community settings, operate in a transparent fashion, be access to early intervention; developmentally appropriate outcomes-focused, recognize the unique needs of people on services, supports, and interventions; health care; employment the autism spectrum, and include self-advocates and families supports; and long-term care services. in the decision-making process. • Eliminate or reduce waiting lists for community-based • Integrate physical, mental, and developmental needs into intellectual and/or developmental disability services the public and private health-care system while offering (CAP/Innovations, b3 programs, state-funded services). high quality, autism-specific services and supports. • Cover autism diagnosis and interventions for people with • Address the needs of people with autism under Medicaid health insurance coverage. as NC considers new managed-care options. • Expand access to autism-specific early intervention • Focus the services system on person-centered outcomes. services. • Improve the distribution of services across the state. g • Expand autism training for law enforcement and first responders. Need help finding your elected officials? Have questions about public policy or advocating? Contact Jennifer Mahan, Director of • Expand availability of adult and children’s services: Government Relations at ASNC, at 919-865-5068 or jmahan@ residential, crisis, employment, health care, and autism services and supports. autismsociety-nc.org.

Show Your Support! You can show your support everywhere you drive by purchasing an Autism Society of North Carolina license plate. A portion of the plate fee is donated to public awareness and autism education programs throughout the state. To learn how to order a plate from the NC Department of Motor Vehicles, go to http://www.ncdot.gov/ dmv/vehicle/plates/ and click on the “Specialized and Personalized Plates” icon at the upper right.

www.autismsociety-nc.org • 17 Register now for Summer Camp! It’s the start of a new year, and that means it’s time to register for Summer Camp! We are accepting applications for the Summer Camp lottery through February 24. You can register and find allCamp the latest information Royall about our Summer Camp program, including the dates and rates for 2015, at www.camproyall.org.

This summer, we will offer more day camp slots each week, which will enable more campers to attend. Campers will be allowed to attend multiple weeks of day camp. If you need assistance with registration or have any questions, please contact us at 919-542- Better yet, print a copy of our 2015 flyer, found at http://bit.ly/ 1033 or [email protected]. CampRoyallPrograms2015, so you won’t miss anything in 2015! Adult Retreat Weekends: Independent adults 18 or older with What else is new at Camp Royall? high-functioning autism or Asperger’s Syndrome can spend a We are excited to continue to expand our programming this weekend with friends enjoying activities at camp and in the year! We enjoyed a full week of overnight Winter Camp, a great community. opportunity for campers and families to take a break during the Afterschool Program: Every day during the school year, children hectic holiday season. We are looking forward to building in take part in outdoor activities, gym play, group games and more, some spring break and track-out camps in the spring as well. while being supervised by trained and experienced staff members. This year also brought major facility upgrades. In our gym, we Transportation can be provided, and siblings are welcome. have a new HVAC system – thanks to a generous grant – and a Family Fun Days: Bring the whole family out to camp for a brand-new floor! The gym is a well-loved and well-used building Saturday afternoon filled with recreation and leisure activities in at camp, especially during the cooler months and on rainy a fun and safe setting. summer days. We were also able to add some additional shade structures by the pool and the zapline, making these activities Family Overnight Camping: Come for the Family Fun Day and even more enjoyable for campers in those hot summer months! stay overnight! Enjoy dinner and a campfire together on Saturday These upgrades will have a great impact on many campers and night; breakfast on Sunday is also provided. families. Mini-Camp Weekends: Campers arrive Friday evening and stay through Sunday for a weekend of fun, providing a much-needed break for both campers and families.

Winter Camp: Overnight and day camp options during winter break provide a great break for campers and families in the hectic holiday season!

Help Send Kids to Camp The Autism Society of North Carolina has been offering summer camp for over 40 years for individuals with autism of all ages. Camp Royall is the oldest and largest camp exclusively for individuals with autism in the United States. We work year round Year-Round Programs to raise money to give campers who are unable to afford camp 2014 was another awesome year at Camp Royall, and our year- the opportunity to learn new skills, have fun, and make friends at round programs continue to grow tremendously. With our camp. Each year, the demand for scholarships exceeds the funds Afterschool Program and regular weekend events, there are not we have available. We hope you will consider giving to provide many days without campers around anymore! In 2014, we were life-changing experiences for campers with autism. Please able to serve more than 1,750 individuals and their families at contact Kristy White, Chief Development Officer, at kwhite@ Camp Royall. autismsociety-nc.org or 919-865-5086 if you are interested in donating to camp, learning about named scholarships, or helping If you have not been out to camp in a while, we encourage with fundraising. We look forward to working with you to help you to check out all of the happenings throughout the year. campers across North Carolina. Thank you! g

18 • The Spectrum, Winter 2015

By Lesley Fraser, Camp Royall Assistant Director

In September 2010, five campers joined us at Camp Royall for our Afirst-ever “Not Mini-Camp Weekend, So which Mini” we created to give campersMini-Camp of all ages an opportunity to enjoy a taste of camp throughout the year. This past October, we had our largest ever Mini-Camp with 22 campers, ages 4 to 34, coming from the Triangle, the Charlotte area, and as far as the coast of North Carolina.

This “not so mini” Mini-Camp was made possible by 18 of our wonderful returning summer camp staff members as well as a group of 14 recreational therapy students from Western Carolina University (WCU). During Mini-Camp, campers on all levels of the autism spectrum receive 1:1 or 1:2 counselor-to-camper attention throughout the weekend, so we need a large staff. The students’ adviser, Jennifer Hinton, had contacted us because she was looking for a learning opportunity for her students that unsure what sort of anxiety he would have. No need to worry. weekend, when they were coming into town for a conference. He was happy to arrive, happy when we left and happy while We jumped at the chance to provide these students with an we were gone. His counselor, Carina Castro, one of the students awesome hands-on learning experience and to spread autism from WCU, could not have been more sweet. At the end of the awareness, as well as Camp Royall awareness. Of course this also weekend, she was tearing up when it was time to say goodbye. allowed us to offer the Mini-Camp Weekend to more campers and families, who benefit from a weekend of much-needed “Camp Royall is one of the only places we can safely, confidently respite. leave our son knowing he is in the best hands and happy to be there. I can’t say enough good things about camp!” The WCU students arrived Thursday night and spent Friday training before the campers arrived in the evening. We hired Another parent, John Angell, said his son also enjoyed the two of our veteran staff members to work as consultants and weekend. “Eoin tries to communicate more often with people he continued to train the students while they were working hands- likes and attempts things at Camp Royall he won’t do at home or on with the campers throughout the weekend. Five more of our in his day program. His counselor Kacey (a WCU student) said that returning staff members “floated” and helped out as needed. Eoin was smiling all weekend!”

One of our consultants for the weekend, We hope to replicate this weekend again soon Cassie Ball, commented, “Seeing the with another group of students eager to learn. new staff learn so much and get their It is a great opportunity to train the future legs under them so quickly was really professionals who will be working with our awesome. As they got to know autism campers. We continue to hear from our staff and their campers, their confidence every year that what they learn at Camp Royall and enjoyment seemed to grow from the experience and from our campers is simultaneously.” something that you can’t learn anywhere else.

Tim Cumberland, one of the WCU For me, this Mini-Camp was definitely a students, said, “Camp Royall changed highlight of my 4-1/2 years of developing the my life, and it was one of the best year-round programs at Camp Royall. It was a experiences I have ever had in my joy to see all of the staff, new and returning, young life. Camp Royall is the best camp I’ve ever gone to, and I working so hard to make it a success for all of the campers. hope others can say the same soon.” Throughout the weekend, there was a strong sense of teamwork as everyone worked together to support each other and each of We have already heard from a number of the WCU students that the campers. With 22 campers here, as well as so many of our they hope to return for year-round programs and Summer Camp staff members, it felt just like a week of summer camp, something next year, and we are excited to have them back! that is missed by all year-round! g Leslie Welch, mom to Josh, one of our campers, shared, “This was only Josh’s second time staying at camp overnight. We were very

www.autismsociety-nc.org • 19

Check out these favorites recommended by ASNC’s Autism Resource Specialists and Clinical team! You can use the listed codes to search for them on our website, www.autismbookstore.com: in theExpert ASNC PicksBookstore

Autism: What Does it Mean to me? Ten Things Every Child with Autism Wishes You Knew This updated edition of the bestselling book is designed like a This bestseller written by the mother of a son with autism workbook and covers self-awareness, self-acceptance, and self- illuminates and encourages understanding of your child, or any confidence. BAUT64 child, with autism. It is perfect for newcomers to autism. BTEN03

An Early Start for Your Child with Autism Tasks Galore Series This book is highly recommended as a first book for parents who Developed by experienced teachers and therapists with TEACCH often have to wait for services after the initial diagnosis of their at UNC, the books in this series are perennial bestsellers. That is young child. It contains tools and strategies to help you, and your not surprising, given the wealth of practical advice and structured child, as soon as possible. BEAR05 teaching ideas they provide for groups, home, and community. Sold individually and in sets. BTAS01 The Incredible 5-point Scale Originally designed to teach social understanding in the Social Rules for Kids classroom, this book covers noticing and responding to others’ This guide to the top 100 social rules that kids need to succeed social behavior as well as your own. It provides a great way for all is set up like a friendly reference book with one rule per page. caregivers to communicate effectively. BINC10 The easy-to-read handbook helps children and teens navigate the complex social world in which we live. BSOC17 When My Worries Get Too Big! This charming child- and adult-friendly book can help children The Hidden Curriculum with anxiety and behavior control problems to understand We carry several books in this popular series that describe and learn effective self-calming techniques. Simple to use, it unstated rules and customs of social situations that many with empowers them to take control. BWHE07 ASD find challenging. Topics of each include understanding unstated social rules, everyday challenges, and getting and No More Meltdowns keeping a job. BHID03 Although not specific to autism, this book helps caregivers learn to predict potential meltdowns and defuse them before they Parenting Across the Autism Spectrum occur. It provides great practical advice. BNOM01 In this award-winning book, the two authors detail their journeys from diagnosis to adulthood with children on opposite ends of the Preparing for Life spectrum. Their perspective on lessons learned is an invaluable This easy-to-use workbook for high school students transitioning message of hope and compassion – a must read for caregivers, to adulthood covers various topics such as relationships, social teachers, and professionals. BPAR02 skills, and making career and education choices. BPRE04

Contact the ASNC Bookstore for help in finding resources on a /AutismBookstore particular topic or in assembling a purchase order. 800-442-2762 (NC only) | 919-743-0204, ext. 1132 Keep up to date on the newest books & resources! [email protected] 3rd• Bounce houses Annual• Lunch cookout World• Zapline AutismThursday, April 2, 2015 • Ice cream truck • Hay rides • Snoezelen sensory room 10am – 4pm Awareness• Music DJ • Face-painting & Acceptance• Playground CampDay Royall • Outdoor games • Gym • Pond for boating & fishing 250 Bill Ash Road Come chat with ASNC staff, including our Autism Resource Specialists. Moncure, NC

In 2008, the United Nations General Assembly unanimously declared April 2 RSVP NOW! as World Autism Awareness Day (A/RES/62/139) to highlight the need to help The activities and lunch are free, but to help us plan for staffing and food, improve the lives of children and adults who have the disorder. The Autism please sign up: https://camproyall. Society of North Carolina recognizes that acceptance of each person as an campbrainregistration.com/ individual and of their ability to contribute to society is just as important, so we [email protected] added “Acceptance” to the day. WAAAD has grown into a wonderful event, a 919-542-1033 day when new friends and old come together to celebrate community. We hope you will join us!

Order your T-shirt today!

awareness is the first step New this year! We’ve designed a special T-shirt that will acceptance is the goal awareness is the first step debut during WAAAD. Pre-order yours by February 27, acceptance is the goal and we will ship to you by late March, in plenty of time for WAAAD. T-shirts will be sold during the event, but • 100% cotton, pre-shrunk sizes and quantities will be limited. • $10 sizes youth small - adult XL We hope to see lots of you wearing them! • $12 sizes adult http://bit.ly/WAADtshirt XXL - XXXL

www.autismsociety-nc.org • 21 “TheseChapters & Support are Groups a Few

ForsythFindingof County Friendship, our Chapter Favorite Things…” Acceptance,“The amazing, supportive & Information people that have come into my life because of the Chapter. I consider these people my truest friends. I can trust them to watch (and understand) my kids or ask them for information about services, extracurricular activities, or medical advice. I love being part of such a supportive and accepting group of people that always have an answer, suggestion, or know where to point you to help find one.” – Emily Green, mom of Aidan

Sampson County Chapter “So many of our members tell us how happy they are to finally have somewhere to turn and how good it feels to not feel alone.” – Amy Irvin, parent and member of leadership team

Learning Together Hispanic Support Group “Recibí mucha información muy importante de como ayudar a mi hijo usando el iPad y que tipos de applicaciones usar.” – parent Victor Delgado after iPad workshop in Greensboro (Translation: “I received a lot of useful information on apps that will truly help my child in many different areas.”) Franklin County Support Group “I love the freedom of sharing successes and learning from each other. I also love the atmosphere of an evening coffee meeting at the coffeehouse.” – Connie Stancil, Franklin Support Group Leader

“I like this group because we are able to understand and discuss similar experiences. I feel like I have found a home of like-minded people.” – Susan Williams, parent

To find a Chapter or Support Group near you, go online to http://bit.ly/ASNCChapters or contact Marty Kellogg, State Chapter Coordinator, at 919-865-5088 or [email protected].

WakeCreating County SocialChapter “MyOpportunities absolute favorite thing & isFun seeing families actually out of their homes and in the community at our events. The annual Halloween party typically has more than 150 kids of all ages. It’s amazing, but I rarely see meltdowns at this event. I think parents are less anxious because it’s just us autism families, and the kids pick up on that. Plus the event is made for them with a giant slide and GF pizza. Always a great time for everyone!” – Leslie Welch, Wake County Chapter Leader

OProvidingnslow County CommunityChapter Support &“We Awareness had such an overwhelmingly positive response to our Rock For Autism Benefit Concert! We even got our local rock station 99.5 The X to support our event and help us with an advertisement sponsorship for both our benefit concert and zombie walk. These bands have a big heart for our Chapter and autism community. They came out and volunteered their time and talent to help us achieve new goals in raising awareness and acceptance of autism. Many of the band members have family or friends that are on the autism spectrum or are working toward a degree in a field related to autism. To our surprise, we even found out one of the band members of Bridge to Breakdown actually has Asperger’s. Also our rock concert brought out many teens and preteens on the autism spectrum and their families.” – Marina Jorge, Onslow County Chapter Leader

Guilford County Chapter FindingOn Oct. 25, manySupport families for came Real-Life out for Wings Situations for Autism at PTI & AirportChallenges sponsored by the airport, Delta Airlines, the Guilford Chapter, the Enrichment Center, and The Arcs of Greensboro and High Point. This “airline rehearsal” event allowed families to go through ticketing, the regular security screening process, waiting at the gate area, boarding the plane, and taxiing around the airport. The participants did so well, and all of the employees and volunteers were welcoming and encouraging to them and their families. At the end of the “trip” around the airport, children told us they were “going to go to flight school,” “Now I need to fly to Los Angeles,” and “I was scared at first, but now I’m not. I’m having fun!”

“It was such a great experience we have already started planning next year’s Wings for Autism event!” – Lisa McCutcheon-Gutknecht, Guilford County Chapter Leader

www.autismsociety-nc.org • 23

Communities Autism: How Faith Practicing one’s faith is important to many families of children and adults with autism and other disabilities. Families often turn to their faith communities for understanding, acceptance, and support as they work to meet the needs of the person with autismCan and come Help to understand his or her strengths and gifts. But a parent raises concerns to a church leader about her child’s often they struggle to find a faith community that will welcome development. This session helped the audience understand and include them. the importance of early screening and diagnosis of autism and the roles that church leaders can play. The afternoon session Many faith communities want to help these families. They focused on looking at autism from the perspective of the child recognize that their communities are missing the presence with autism. ASNC Autism Resource Specialists Amy Perry and and participation of people with autism and their families. Yet Judy Clute used their personal experiences as parents, advocates, they lack an understanding of autism and feel ill-equipped and and special-needs ministers to make a poignant case for why this unprepared in how best to minister and provide support. outreach to special-needs families is so important. Closing the With a grant from the Association of Maternal & Child Health day was an amazing panel of parents and a self-advocate who Programs (AMCHP), ASNC is collaborating with the Autism shared their insights and experience in building and nurturing Society of Cumberland County, the UNC-CH Carolina Institute a special-needs ministry in their churches. They explained how for Developmental Disabilities, and the UNC-CH Department of this ministry benefitted not only the family but the entire church Allied Health Sciences to create a training program to bridge the community. The workshop was enhanced by exhibitors from the gap between faith communities and families. Cumberland County region who staffed tables with information and consultation about how to access local resources. The first workshop in what we hope will be an ongoing effort was held in October as 120 self-advocates, family members, A follow-up workshop will provide more in-depth strategies to and faith community leaders and members came together for a train special-needs ministry volunteers for their work to welcome daylong program titled Autism: How Faith Communities Can Help and include people with autism. at Manna Church in Fayetteville. Participants said they gained a better understanding of autism and would use the information to help make connections to families and train fellow faith leaders. They also said they enjoyed hearing about local resources and meeting others in the community who were interested in the topic.

The objectives of the first workshop were to: • Learn about autism and the challenges families face • Understand the importance of screening and early identification of autism • Connect with community resources for assistance • Learn from a panel of church representatives who The grant provides additional funding for training in Robeson are working in special-needs ministry County in the fall. ASNC hopes to work with its Chapters and • Learn how they can welcome and support families Support Groups to offer this program in other places across the in their faith communities state in the future. Please contact Maureen Morrell at mmorrell@ autismsociety-nc.org if you are interested in helping with this The interactive morning session was filled with video clips and effort. g audience participation around the idea of a church picnic where

24 • The Spectrum, Winter 2015 FundraisersThe Autism Society of North Carolina’s fall& Run/WalksEvents create awareness about autism while raising funds throughout the Run/Walkstate. More than 5,000 forparticipants Autism raised more Events than $430,000 to improve the lives of individuals with autism, support families affected by autism, and educate their communities. We are so appreciative of all the individuals, families, and businesses that participated, donated, volunteered, or sponsored this year. Here are some highlights from the fall of 2014:

Triangle Run/Walk for Autism A picture-perfect fall Saturday morning set the tone for the 16th annual Triangle Run/Walk for Autism in downtown Raleigh on October 11, which raised more than $330,000. A record-breaking number of participants (over 4,000) and 241 teams signed up to raise money in honor of a loved one with autism or to promote awareness in the community. Many teams showed their spirit and creativity with customized T-shirts, banners, and costumes. Even a dragon for Ry and Drew’s Dragon Crew joined in the fun! Team Liam raised more than $21,000, while Walking with Grace signed up 278 team members, a Run/Walk record.

WNC Run/Walk for Autism The 9th annual WNC Run/Walk for Autism on September 13 raised more than $45,000. More than 400 runners and walkers, 100 volunteers, and a variety of businesses participated in the family event to raise awareness and change lives in the community. UNC-Asheville hosted the run with its signature challenging course full of hills. The Warren Wilson Baseball Team came out in full force and provided exceptional volunteer service and encouragement to runners along the way. Team Marlowe took top honors again this year, having the largest team and raising more than $3,200.

Greensboro Run/Walk for Autism The 6th annual Greensboro Run/Walk for Autism was held September 27 at UNC-Greensboro. This year, the event raised more than $55,000 with more than 600 participants coming out to show their support. The High Point men’s lacrosse team signature Run/Walk events. We currently have events planned brought 56 members to enjoy the competitive run, and Team in Asheville, Beaufort, Concord, Greensboro, Greenville, Mount Nadia’s Hope raised almost $3,400 for services in the Triad Airy, Raleigh, and Wilmington. All of the Run/Walks are looking region. for new committee members to help the events continue to grow. For more information, email Heather Hargrave at hhargrave@ autismsociety-nc.org or call 919-865-5057. All of the proceeds Help Us Plan the Upcoming Run/Walks from our fundraisers stay in our state to help North Carolinians Our families, friends, supporters, committees, and volunteers affected by autism. Your contribution makes a difference! g work very hard year-round to make these events successful. We hope you will consider joining us next year for one of our

www.autismsociety-nc.org • 25 Run Sponsors: Many thanks to the following sponsors of our Fall Run/Walks for Autism. Please support these businesses and thank them for their support of the Autism Society of North Carolina. Premier

GOLD

MetLife Center for Special Needs Planning SM © UFS

Proud sponsor of the VISIONARY & CHAMPION

Partner 336events.com • BlackBird Frame & Art • Casey Rose Photography • Culligan of WNC • EarthLink • Feel The Sound Productions Financial Wellness Solutions - Security Marketing Group •Knights of Columbus/Saint Catherine of Siena • Mission Children’s Hospital Foundation • PPD • Sarah Catherine Designs • VF Corporation • UNC-Greensboro • Walkers Shortbread Advocate Asbury Associates • Atlanta Bread Company • Butterfly Effects • Capital City Chapter of Jack & Jill of America, Inc. Carolina Pediatrics of the Triad • Chi Rho Omega Chapter of Alpha Kappa Alpha Sorority, Inc. • David Allen Company Greensboro Jaycees • Henco Reprographics • Higher Ground Pediatric Therapy • Jersey Mike’s • Kane Security KoKo FitClub of Cary • Lindley Habilitation Services • Mountain Xpress • P.O.W.E.R. of Play Foundation • Pediatric Possibilities Raleigh Neurology Associates • Ross Photography • SkyHouse Raleigh • Spyglass Promotions • Texas Roadhouse The Health Insurance Store • The HOP • Thomas, Knight, Trent, King and Company • Wake Radiology • Yes! Weekly Zachary W. Feldman, M.D., P.A.

Friends ABC of NC Child Development Center • Active Care • Asheville Compounding Pharmacy • Asheville Pediatric Dentistry Capitol Pediatrics & Adolescent Center, PLLC • Chick-fil-A • Fleet Feet Greensboro / Off ’N Running • Food Lion Friends and Family of Sara Handlan • LearningRx of Raleigh • The PorterHouse Bar & Grill • Raleigh Pediatric Dentistry Re:Cycles Bike Shop • Smedes York • The Red T-Shirt Company • United Collection Bureau, Inc.

26 • The Spectrum, Winter 2015 Team Liam Excels with

It all started just two years ago, when Johnny and Emily Freeman invited family members to join them at the 2013 Triangle Run/ WalkGrandmother’s for Autism. The couple’s Love toddler son, Liam, had been diagnosed with autism, and they wanted to go to the event as a family and raise autism awareness. Tammie and Jimmy Crawford, Liam’s grandparents, agreed to save the date.

But Tammie decided she wanted to do more than spread was looking for donated goods. “Before I knew it, I had other awareness; she wanted to raise money to support the Autism friends and people in the community that were giving and giving Society of North Carolina and the families we help. “She decided and giving,” she said. “It just took off.” she was going to do it, and just ran with it,” Johnny said. The team has held three garage sales, raising a total of about In just the two years since, Tammie and Team Liam have raised $10,000. an amazing $30,863 for ASNC! Tammie said the team was indebted to her father-in-law, who “I am only a grandmother hoping to help in some small way,” donated the use of a vacant retail space for their sales and other Tammie said. “I have been very blessed to have my husband and events, such as a carnival. For the carnival, local businesses signed friends join me in this effort.” up as sponsors, vendors paid fees, and the team sold tickets for activities including hayrides, face-painting, and a train ride. And of course, there was a bake sale at the carnival, too. “We always include homemade baked items, which always bring in good money,” Tammie said.

The fundraisers have also been a way for Tammie to include others in her mission to help ASNC. In addition to “wonderful” friends who have given hours of their time to help organize and run the events, she has several teenage helpers, including one young man with autism. Tammie said she was happy to provide an opportunity for him to participate in the community and have a sense of accomplishment. He has even made a new friend. “Together they have the best time. It’s just another outlet for him. That has meant a lot to me.”

Many of her friends have also joined Liam and his family for the Triangle Run/Walk for Autism each year. They wear Team Liam shirts and go out for lunch afterward, turning it into a fun day. “It just means the world to know that friends take their Saturday to go to the Run/Walk with us,” Tammie said.

She is also glad to know that Team Liam’s efforts are helping children beyond Liam, who has “come leaps and bounds over How did they do it? With creativity and a lot of elbow grease. the last couple of years,” she said. He is more verbal now, at 5 While some teams bring dozens of participants to the Run/ years old, than when he was diagnosed at 2-1/2, using one or two Walk for Autism events, Team Liam’s success has come through words to convey his wants and needs. And like many children, bake sales, garage sales, a raffle for a four-wheeler donated by Liam loves to play on an iPad, particularly an Angry Birds racing MotoMax, and other fundraisers. “We’re just always constantly game, Johnny said. thinking what else can we do to generate earnings,” said Tammie, who lives in Henderson. What does the future hold for Team Liam? Undoubtedly more success, with Tammie leading it! “Nothing’s going to stop her,” The team’s first event was a garage sale. Tammie started by Johnny said. “If she wants to go after it, she’ll set her mind to it cleaning out her own closet, then spread the word that the team and do it.” g

www.autismsociety-nc.org • 27

Walmart Foundation Grant The WalmartExpands Foundation hasEmployment awarded a $50,000 grant to the Autism Society of North Carolina to expand its statewide SupportsEmployment Supports Program program. With the funding, the program a formal employment search and in the future, a job where they will serve 85 adults with autism across the Triangle, Triad, and are well-suited. Fayetteville regions and will include work-readiness evaluations, JobTIPS training, job search, on-the-job training, ongoing job “JobTIPS has been very beneficial to individuals in developing their supports, and monthly support group meetings. job development skills, and most would not have been able to attend if the program had not received funding from the Walmart As individuals with Autism Spectrum Disorder (ASD) finish high Foundation,” said Shannon Pena, ASNC Employment Supports school and move into adulthood, they are often for the first time Coordinator. “Two individuals who attended JobTIPS found jobs without resources or guidance to navigate the next chapter of before the classes were complete!” independent living and employment options. It has been estimated that about 80 percent of adults with ASD are unemployed or Walmart and the Walmart Foundation are committed to helping underemployed. However, an autism diagnosis does not mean people live better through philanthropic efforts. By operating an individual’s potential for successful career opportunities is globally and giving back locally, Walmart is uniquely positioned limited. ASNC’s Employment Supports program is specifically to address the needs of the communities it serves and make a tailored for individuals to ensure they are placed in a job that significant social impact within its core areas of giving: Hunger reflects their unique interests and abilities. Individuals also receive Relief & Healthy Eating, Sustainability, Career Opportunity, and comprehensive training and ongoing support throughout the Women’s Economic Empowerment. Walmart and the Walmart program, in order to maintain employment in the long term. Foundation are leading the fight against hunger in the United States with a $2 billion commitment through 2015. Walmart and The JobTIPS component serves as an important part of the the Walmart Foundation have donated more than 1 billion meals training process, teaching individuals the skills necessary for to those in need across the country. To learn more about Walmart’s networking, creating a resume, and interviewing. One participant giving, visit www.foundation.walmart.com. g appreciates the training module’s structure, which gives him the freedom to search for his own jobs while learning and practicing To register or for more information about free JobTIPS programs interviewing skills he can put to use in formal job interviews. offered in Fayetteville, Greensboro, and Raleigh through the Walmart Upon successful completion of JobTIPS, participants transition to grant, please go to http://bit.ly/ASNCEmploymentSupports.

HardisonThis football season, Hardison& Cochran & Cochran of Raleigh teamed up with the Autism Society of North Carolina and the University of North Carolina at Chapel Hill to raise awarenessTeams of autism Up in for the Tar Autism Heel state. Hardison Awareness & Cochran provided a media blitz to help others understand how to get help or get involved with ASNC. They reached out to the community through commercials on the “Larry Fedora Radio Show”, “Inside Carolina Football with Larry Fedora” and every UNC football game radio broadcast, print advertisements, and in each program sold at UNC games this season.

In addition, Hardison & Cochran sponsored an autism awareness night at the first game of the season. “We were very excited to team up with the Autism Society of North Carolina and UNC football to raise awareness of autism,” Ben Cochran said. “It’s a great cause, and our firm is proud to be able to help them get the word out statewide about the great things they are doing.”g

28 • The Spectrum, Winter 2015

HostVolunteers a throughout Fundraiser our state host to fundraisers to benefit the Autism Society of North Carolina. They Helprally friends, Families families, and colleagues to participate in restaurant nights, donate proceeds from the sale of various items, or create a unique event. It all starts with an idea. If you are interested in hosting your own fundraiser, please contact Heather Hargrave at [email protected] or 919-865-5057.

ASNC is grateful to the many individuals and businesses that host fundraisers to help families affected by autism. We would like to thank the following for recent events:

“Yard for a Cause” Event - Phillip McHugh Greenlife Grocery Store Sanford High School’s JROTC Aaron’s Awareness Fundraiser “Donate a Dime” fundraiser Awareness Event - Aaron’s Rental H2O Tuning “V-Dub for a Cause” Shane “Hurricane” Helms’ “Loco in Joco” All Play for Autism Fundraiser Autism Awareness Event (cage fighting) Blue J Beads Iron Order MC Club – Cary Chapter Softpro Dress Down Day Fundraiser Poker Run Burlington Royals Tammie Crawford Autism Awareness Night Jake Ruggles Radio Broadcast TIPS Golf Tournament Carolina Hurricanes Jamestown Food Truck Festival Tuna Run 200 Chiquita Classic Michael William’s “2nd Chance Prom” Wakefield High School Cheerios Chuy’s Awareness Fundraiser Middle Creek High School Jeans Day Wavelengths Salon Double Barley Brewing MillBridge HOA Turkey Trot “Haircuts for Autism” Event Awareness Fundraiser OSEGA Gymnastics’ 3rd Annual Miles Wells Fargo Jeans Day Dunn Benson Ford Stangs R Us Car Show Avery Awareness Classic Wine for a Reason Peebles “30 Days of Giving” Forged Fitness Zipping for Autism Full Throttle Car Club Car Show Progress Energy Golf Tournament

Triangle Indian-American Physicians Society The TriangleCharity Indian-American Golf Physicians Tournament Society’s first annual charity golf tournament benefitted the Autism Society of North Carolina’s efforts to help Benefitsindividuals with autism Adults find and with keep meaningful Autism employment. Participants enjoyed a great day of golf at the beautiful River Ridge Golf Club in Raleigh on Sunday, June 22, followed by an awards reception and full dinner.

The TIPS tournament raised $15,000 for employment supports. ASNC believes meaningful employment is a key part of a fulfilling life, and the Triangle Indian-American Physicians Society (TIPS) is proud to back ASNC’s efforts and support the community. For information on participating in this event next year, contact Kristy White at [email protected]

www.autismsociety-nc.org • 29 The Autism Society of North Carolina would like to extend a heartfelt thank you to all of our donors. While we appreciate every gift, we have limited the donation list to Honorarium/Memoriam gifts in the interest of space and printing costs. Thank you for your tremendous support. This list reflects donations received on or between July 1, 2014, and November 30, 2014. Please contact Beverly Gill if you have any questions or corrections at 800-442-2762, ext. 1105, or [email protected].

Honorariums Aaron James F. Jordan, Jr. Ryan and Matthew Smith Helen Cable ATeresa Growing and Anthony Andrews Dorothy Community: and James Jordan Barbara and Crawford By Smith David LaxtonJanet David Advocacy Department Noah Joseph Judy Smithmyer Walter Gerald of ASNC Nadine and David Antonelli Diane Bell Janet and Thomas Seitz Nancy andImplications Ivan LaCross Marty Kellogg for OurHeidi Bublitz State Amanda and James Sparger Jaime Alvarez Denise McGann Grayson Stocton Russell Tyson Jean Alvarez Augaly Kiedi Gina and Jeffrey Stocton Mary Carter Davis Harris Anderson Melissa Jo Joyce and Ken Johnson Thomas Summers Nancy Pickren Margie O’Shields Sheila and David Larsen Paige Barnhill Patricia Roseman Julian Ballen Jeff Akin Miles Targosz Brian Simmons Womble, Carlyle, Sandridge & Rice Hailey Hamalainen Ellen Nielsen Terry Walton Beth Miller Cynthia and Joseph Marz BrieAnne Tarnowsky LeRoy Dawkins Jeff Bartolet James Talbot Melissa and Ralph Ripper Steward, Ingram & Cooper, PLLC Betty and Ray Ingool Anthony Little Addison Venable William Bateman Emilie Grace Beacham Colleen and John Fitzsimmons Lemon Springs Baptist Church Darla Husk Anne and Lang Anderson Jennifer Lucero Jordan Vickers David Lanier Shanlee and Paul Brown Elizabeth Rawls Mary and Michael Keown Kameron Nance Shannon and Darin Mock Jessie Lunsford Cameron Ward Lisa and Harold Sasser Alysssa Coleman Montwood Baptist Church Nancy McDermott Richard Dawkins Cristi and Larry Coleman Kathy and Lanny Vaughan Kelly Ware Gail Dawkins Tyante Craig Marvin McManus Elizabeth Catlett Betty Goble Marsha and Elijah Woods Catherine and Thomas Fox Peggy and Ira Rigsbee Elizabeth Whitton Dillon Davis Michael Milano Church of God of Prophecy Hazel Mae Hicks Grose Nancy Pickren Margie O’Shields Jesse Wills Pinnacle Church of God Lily Dwyer Michael Jacob Morris Evelyn Bond Katharine Amato and Albert Rives Sharon Phillips Melissa and Michael Morris Gail Rhodes Roberta Fry Jacob Fox Khloe Mossman Betty and Al Scarborough Janet Henry Yaidee Fox Christina and Gordon Flake Sandra and James Scarborough Bernice Harris Sara Gage Erica Nesbit Shirley Scarborough Jane and Pete Roda Robert Vaccarelli Lori Roberts Sherry and Dan Smith Dwayne Eric Holder Beverly Gill Elizabeth Phillippi Betty and Philip Staley Susan and Randy Carter Gillian Hayden Marcia Dorfman Katie and Lewis Wills Agnes and Tony Kelly Corey Green Gail and Bob Pope Barry Cooper Nancy West Samuel P. Mandell Foundation Julie and John Seibert Rudy Winter Marie Grieneisen Holleran Casey Greer Kelly and Aaron Pruner Jane and William Rountree Schneider Electric Sabrina and Jefferson Osborne Kelsey Schultheis Charles “Chuck” Hydeman Alex Griffin Andy Raxter Memorials Jane Hydeman Audrey and William Griffin Linda and Henry Raxter Rock Jolly Sam Heitman Jayden Richardson Jane Rupert Avedon Kathy and Lanny Vaughan Cathy and William Heitman Joyce Hendricks Maureen and Rob Morrell Ernest M. Cabe, Sr. Peyton Hipson Jacob Thomas Ricks Edna Bowen Piedmont Electric June Hillyer Debbie and Edward Ricks Betty Sobotka Elaine and Calvin Johnson Evan Holt Justin Rigda Ron Bumbarger Ruby and Frank Miller Julie Wright Cathie and David Blakeslee Sharon Sanden Betsy and David Parker Chris Idol Ryan Roshioru Edith Redwood Cooke Susan Toporowski Sandra and Douglas Wilson Denis Roshioru Sealed Air Corporation Karen Mauldin Sharon Jeffries-Jones David Sasser W. D. Williams Elementary School Lucille and Richard Floyd BB&T Community Development Jean and Henry Sasser Bella Adams Gregory McCrawey Leadership Team Chantelle and Robert Sipprell Pamela Alexander Ann and Robert Lucero Grayson Jones Jill Ryan Kathy Bowman Atkins Candice McDaniel Nichole Thompson Cody Smith Jo Ellen Bass Rashkis Elementary School Kaitlyn Smith Kathryn and Thomas Bass

30 • The Spectrum, Winter 2015 John J. McGovern PublicJean and Mark Calkin Policy Ruby Nabors Laura Clark Kathleen Salmons Patterson Edwards Metal Shop Inc. Lougunda Patterson Jane and John Stanley We want to help you keep your loved one Arlene Price Randall Hinds with Autism Spectrum Disorder safe. Joan Regan Clare Hall The Safe in the Community section of our website, at http://bit.ly/ASNCSafetyKit, Ira Rigsbee includesSafe many resources in that thecan help with Community wandering and other safety concerns. Peggy Rigsbee • social narratives to teach individuals • ID card you can print or order Reece “Sandy” Albright how to be safe Robertson • links to other resources and products Caviness and Cates Building and • tips sheet on wandering prevention such as ID labels Development Co. Louise and Sidney Brooks • printable “personal information • “Person with Autism” decals or clings Mary Chaplin record” for you to fill out and share you can order for your home or vehicle W. Galen Hobbs with first responders James Raynor Mildred and Dillard Teer PERSON WITH PERSONAL INFORMATION RECORD

Name of child or adult with autism: ______Michael Smith AUTISM Nickname: ______Date of birth: ______Age: ______Linda Bass WANDERING: Height: ______Weight: ______MAY NOT RESPOND TO Eye Color: ______Hair Color: ______Tips for Keeping Loved Ones with Autism Safe Attach recent VERBAL COMMANDS Identifying marks or scars: ______Parent(s)/Guardian(s) Name: ______photo here ismsociet Address: ______ut y-n .a c w .o Primary phone number:______r w g w Dorothy Clemmons Secondary phone number: ______Do not isolate yourself: Talk to neighbors about children or family members with Autism Spectrum Disorder (ASD) and their challenges, in case they wander out of your home or yard. Give them your contact information. Consider asking Email address: ______them, and any other friends and family who live nearby, whether they would be willing to help you search for your child in Summerlin ADDITIONAL CAREGIVER an emergency situation. Keep a list handy of names and phone numbers for those who agree. Name: ______Tips for On-Scene Caregivers and Emergency Personnel for the Address: ______Meet first responders: Go to your local police station, fire station, and EMS to talk about your loved one withDirections: autism Print this page out, cut along the dotted line, and fold where indicated. Care of Children and Adults with Autism Pier Pointe Phase Four Property Primary phone number: ______and give officials a current photo and a personal information handout. (We have an example you can usehere .) If possible, • Might NOT UNDERSTAND what you say, appear Secondary phone number: ______bring children with autism so they can see people from whom it would be safe to seek help. Adults with ASD and those with to be deaf, be unable to speak, or speak with Owners Name: Email address: ______difficulty. high-functioning autism or Asperger’s Syndrome may have sophisticated spoken language but still not respond properly to ______• Might appear INSENSITIVE TO PAIN. officers. It is important to teach these individuals what to say if they are lost or hurt and to self-advocate. You can let first Nickname, if any: EMERGENCY CONTACT responders know that ASNC also offers training sessions for them if they would like to learn more about how to interact with • Might DART AWAY from you unexpectedly. ______Name: ______individuals with ASD. Our Autism Resource Specialists have found that when requests come from families, rather than our Height: • Might WANDER ANYWHERE AT ANY TIME. Ron Zoby Tours, Inc. ______Address: ______Wanderers are often attracted to water sources organization, first responders are much more receptive to having the training. Weight: Parent(s)/Guardian(s) Name:______Age: Primary phone number:______such as pools, ponds, and lakes. Drowning is a ______leading cause of death for a person with autism. Eye Color: Secondary phone number: ______Register your child: NC counties keep special-needs registries, and families can register their loved one. If a 911 call Address: • Might become UPSET FOR NO APPARENT ______Email address: ______Lewellyn and James Bradshaw comes in from the family’s home, the registry automatically pulls up important information for first responders. Hair Color: REASON. Primary phone number: ______• Might engage in SELF-STIMULATING METHOD OF COMMUNICATION: if nonverbal (e.g. sign language, picture boards, written word ) BEHAVIORS such as hand flapping or rocking. In your home: Consider putting safety items in place such as a home security alarm system, window locks, and alarms ______Anne and John Forsythe on windows and doors to alert you if someone is trying to open them. For some children, a simple lock is effective if it EMERGENCY CONTACT • Might NOT be able to make EYE CONTACT. is out of their reach. Sometimes putting a “stop” sign on doors and windows can prevent a person with ASD from going ID ON PERSON: (e.g. jewelry, clothing tags, printed card, or tracking device) Check with the local 911 center to see whether

Name: ______any farther. Consider putting a fence around your home with locked gates. If you have a pool, make FOLD sure the pool is not ______the affected person is “red-flagged” in the accessible without supervision. Teaching your child to swim is important, but it isn’t a guarantee that it will save someone database. Primary phone number: MEDICAL CARE PROVIDERS: from drowning. Judy and Jerry Goodman Physician: ______Phone number:______Dentist: ______Phone number:______At school/day care: Discuss with your teachers your concerns about your child’s safety. Make sure they and any other Other: ______Phone number:______caregivers know what to do if your child wanders. Make safety part of Individualized Education Program (IEP) goals. Terri Lancaster Current prescriptions, including dosage: ______Teaching your loved one: Teach your child how to safely cross the street; the meaning of street signs, such as “STOP”; “SAFE IN THE COMMUNITY” ______and who is a safe person and who is a stranger. Talk to your child about safe places to go if they are lost or hurt: police AUTISM SPECTRUM DISORDER Sensory, medical, allergy, or dietary issues and requirements: ______stations, fire stations, schools, etc. Consider using social stories or picture schedules to teach them what to do in dangerous ______Linda and Reid Pittman situations that they might encounter once they wander. SAFE IDENTIFICATION CARD Inclination for wandering and any atypical behaviors or characteristics that might attract attention: ______

______Identification information: Consider a wearable ID such as a bracelet, tags in their clothing or on their shoes, or even FOLD ______

Paul Pittman electronic tracking devices. For sources, click here. autism) with person of (name Favorite attractions and locations where person might be found: ______(name of person with autism) ______Linda and Bobby Rouse Likes and dislikes, including approach and de-escalation techniques: ______

______SAFE IDENTIFICATION CARD IDENTIFICATION SAFE ______

William Shrago FOLD DISORDER SPECTRUM AUTISM FOLD

“SAFE IN THE COMMUNITY” THE IN “SAFE ______number: phone Primary

______Kimberly and Robert Smith Name:

Myrtle Summerlin CONTACT EMERGENCY ______number: phone Primary

______Address:

______

Michelle and John Whitfield Our Autism Resource Specialists offer a workshopName: Parent(s)/Guardian(s) titled “Staying Two Steps Ahead: ______Color: Hair ______Color: Eye ______Weight: ______Height:

______Age: ______any: if Nickname,

______Rosemarie Totaro Safety Considerations for Caregivers,” which covers howName: autism can affect safety, how to Donna Hosley be proactive, and safety-related resources. Find the schedule for all of our workshops at

Georgianne Kraft http://bit.ly/ASNCWorkshopCalendar. Charles Mitchel Turner, Jr. indicated. where fold and line, dotted the along cut out, page this Print Directions: William Blount Our trainers also conduct workshops for first responders across the state, teaching Terry Warner them how to interact with individuals with autism. Let us know if you would like us to Sarah Kramer collaborate with your local officials. LuAnne Denson West Crowe Dreambuilders Partnership We can work together to keep our loved ones safe. If we can help you in any way, please Edmondson Accounting Service contact us at 919-743-0204 or [email protected], or find an Autism Resource Linda and Tilmon Keel Specialist near you: http://bit.ly/AutismResourceSpecialists. Nancy McDermott

www.autismsociety-nc.org • 31 Non-Profit Org. U.S. Postage PAID 505 Oberlin Road, Suite 230 Raleigh, NC Raleigh, NC 27605-1345 Permit No. 2169

Spring 2015 Events

Carolina Hurricanes Autism Awareness Night Surry County Chapter Walk for Autism Raleigh – March 14 Mount Airy – April 25 Cabarrus County Chapter Puzzle Camp Royall Classic Golf Tournament Concord – March 14 Chapel Hill – May 4 Eastern Run/Walk for Autism Crystal Coast Chapter Run/Walk for Autism Greenville – April 18 Beaufort – May 16 Coastal NC Run/Walk for Autism Zipping for Autism Wilmington – April 25 Asheville – June 7

Stay tuned for dates for Catwalk to Camp - Raleigh & Charlotte Events

For more information about these events, please contact Heather Hargrave at 919-865-5057 or [email protected]

2015 Annual Conference Autism: Lifelong Learning March 27-28, 2015 • CHARLOTTE Keynote speakers: Drs. Lynn & Robert Koegel, creators of Pivotal Response Treatment For more information, see pages 4-5