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AANE Journal Spring 2012 5-31 Copy.Indd AANE JOURNAL ’ I! "# S $#"$ Charlie Remy, MLS, discusses Asperger Syndrome and Employment. See page 4. Before and After LifeMAP for Our Son by an AANE parent ¡ ¢ £ ¤ ¡ ¥ ¦ ¢ ¡ § ¨ © ¥ ¦ ¢ ¡ § ¨ © £ ¦ ¨ ¡ ¤ ¥ ¦ ¢ ¡ § ¨ © Had employer/managers who did not under- Has employer/owner who knows strengths and ! " # $ " %& ' ( stand or appreciate his strengths and mocked his challenges and willing to work with both. & & %) # * + # , - . ' / %# & * - 0 ( - . challenges $ %& ' ( 1 * 2 $ ' - " %# - 0 * 3 * 2 # 4 # * ( - " 0 * * 4 2 Did not have supportive coworkers because % Has some supportive coworkers because the ( & %# ) * # - - 2 * 4 5 2 - . $ % % 4 5 - . $ 4 ' 1 % % 4 5 4 - - 2 # manager was not supportive " owner is supportive 1 # * 6 $ 2 ( & * # / ( 4 2 - . 1 2 7 0 - 2 - # * 4 # * ( $ 8 # 4 $ , # 0 2 Was in constant stress due to work * Is happy and feels useful at work $ * $ - # 4 ' , # * 2 ) 4 ' * ( & %# ) ( 4 2 9 Lost job in humiliation due to Asperger type Employed at a job where he feels successful issues ; < = < > ; = ? After job loss, had no income at all : Has a regular fulltime paycheck ! " # $ " %& ' ( # * 6 # 4 $ , 0 ' 5 2 $ 4 ' & * # * 8 @ 9 Was being supported totally by parents 1 Is self-supporting " # $ " %& ' ( $ 6 " # 4 2 $ " 2 2 * % 5 $ % $ - - - 2 $ 4 " # 4 $ 4 Was thousands of dollars in debt 1 Has $13,000 in savings - - 0 2 $ 2 , * # 0 5 2 4 2 A B C . D D D $ 2 - 4 # 1 4 - $ / 4 5 - 9 Was not able to prioritize with money 2 Lives within means and on a budget Would have been homeless if not for parents E Has own apartment and pays own bills with ! " # $ " ( 2 - $ 2 # 0 * and his sister sister’s oversight - # 4 F- $ & $ * 2 ( 4 2 . - # $ - 2 $ 2 # 4 " # 0 * $ 5 ( 2 # 5 2 2 & % $ " Could not keep an area clean or clear 2 Working on keeping apartment in livable $ ' ) 9 * condition Unable to take care of himself, he was unable to Has a rescued cat that gets needed care and care of a pet shares home G H I J Had not had a medical exam in about 20 years Has regular checkups and is being treated for ! " # $ " %& ' ( due to no health insurance a serious heart issue that he never would have & & %) # * $ % 2 4 - 0 * $ 4 " - $ 4 ' $ known he had or been able to treat before 4 " # 0 * $ 5 ' ( 2 # 5 2 %# 4 5 # / * ' 0 " " 6 0 & - 9 K 0 2 # 2 - . $ - # 0 4 ' 1 2 $ % 2 * $ 2 4 4 5 Had no dental care in about 20 years due to no 1 Has regular dental care and checkups $ * 2 - - 0 2 $ 2 4 / * 1 # 0 %' dental insurance $ / $ ' ' $ 5 4 # - ' 9 L $ %- # $ - 4 # M " $ % - & * 5 * F- ' $ 5 4 # - - 9 Was never offi cially diagnosed with Asperger’s $ Has a diagnosis that is so detailed that our son Syndrome and others can read about his great strengths and his limitations at a glance ?P O Was unhappy, bitter, angry N Is happy and forgiving to those who treated him ! " # $ " - 2 0 ' ' 1 2 poorly ( 2 # %& ( 0 4 ' * - 2 $ 4 ' $ 4 ' & & * " $ 2 ( - % 9 ) 1 # * 6 # 4 Was deeply depressed (at times on family sui- $ Has become a well-rounded, outgoing, active, % Q - 2 ( $ 4 ' & * - # 4 $ % - - 0 - 9 cide watches) and was often extremely reclusive - young man with friends L - 4 / # %/ ' 4 R S $ " 8 / 8 - . * # 0 & - . $ 4 ' " # 4 * 4 " - 9 L Did not understand himself, was down on self, 5 Understands better why he is himself and has - 5 % $ ' 2 # - $ * 2 $ 2 $ - - & * 5 * F- T ) 4 ' * # ( $ 4 ' $ %% 2 $ 2 and embarrassed by self pride in his many strengths and abilities ( $ 4 - 4 - 2 * 4 5 2 - $ 4 ' % ( 2 $ 8 # 4 - 9 1 # * 6 - # 4 ) 5 4 $ 4 ' - # " $ % Did not show personal hygiene care or take L Takes better care of himself because he respects 6 % % - $ 4 ' - 2 $ 4 ' - 0 & # * ( - % care of himself well - self better 1 4 %- 1 * # 4 5 ' 9 I truly believe he would not be alive without parents, sister, and LifeMAP. Now he has a life! See another LifeMAP story on page 18. I AANE J : S Message from Executive Director Dania Jekel, MSW Dear Friends of AANE, results, please rest assured that AANE is determined to continue delivering our current programs, and to keep Can you believe that AANE is approaching sixteen years old? developing new ways to serve our community’s many Clearly, this is a good time for refl ection and goal-setting. Ac- and varied needs. cordingly, over the past year, AANE board and staff members have focused a lot of energy on a strategic planning process. On behalf of AANE’s board, staff, and mem- One result which I would like to share with you right now is our bership, I want to extend my warmest thanks to revised mission statement: Nancy Schwartz for her outstanding leadership as Board President, as her term comes to a close. The Asperger’s Association of New England (AANE) works Fortunately, she will continue to share her wis- with individuals, families, and professionals to help people with dom and caring as a board member. Asperger Syndrome and similar autism spectrum profi les build meaningful, connected lives. I would also like to thank four other board members: Barbara Rosenn, Judy Gooen, and Melinda Miller, who are rotating off To learn more about the fruits of the strategic planning the board for now, and Ryan Lewis, who is moving. We will process, and the main objectives we have set for the three miss Ryan, and wish him every success in his new life in Texas. years beginning July 1, 2012, I encourage everyone to read our Barbara and Judy have used their professional expertise to guide 2011-2012 Annual Report, which we will post online during the AANE’s development since our very early days. Melinda joined month of June. the board following her participation in the early days of the Please be assured that, as we change and grow, we will Gala, where her artistry helped transform it into the polished continue to act as strong advocates on behalf of our Asperger and delightful event we know today. community. Thank you for being part of our community during 2011-12, • •We will continue to advocate for benefi cial legislation and for supporting AANE’s mission. I look forward to seeing and for changes in state agencies guidelines in Massachu- you at many of our events, workshops, and conferences in the setts. months to come. • •We will continue to monitor and respond to the proposed changes in the DSM-5 (fi fth edition of the Diagnostic and Sincerely, Statistical Manual). No matter what new nomenclature Dania Jekel, MSW R TABLE OF C ONTENTS AS & Employment: Research & Refl ections ..................... 4 Does a Degree Guarantee a Job? .......................................9 Discovering AS in the Family .............................................11 Throw Away the Yardstick ................................................ 12 Disclosure in College ..........................................................14 ! Poetry .................................................................................. 15 Call for AANE Artists ........................................................16 Fulfi lling a Dream .............................................................. 17 LifeMAP; Teens; New Book on Air Travel ...................... 18 ! Special Advertising Section, pp. 18-24 " " Living in Oz ........................................................................ 25 # # Current Research conference notes ..................................26 $ %% A donde el silencio nos lleve .............................................. 27 % Being a Father to Someone with AS ................................. 28 !"# Thank you to our Donors! ............................................29-33 &'' '( ' ( ( ( AANE Board & Staff & Volunteers ................................. 34 ) & " # $ *+,-.--/01# &+. $ 2 3 AANE Gala .........................................................................35 AANE J: S I Asperger Syndrome and Employment: Research and Refl ections by Charlie Remy, MLS Assistant Professor/Electronic Resources and Serials Librarian, University of Tennessee at Chattanooga Introduction differences. I could begin to pursue coursework that was more In recent years popular culture has brought about an increase in aware- aligned with my special interests, and not be forced to take ness of the higher functioning end of the autism spectrum, particularly courses in areas in which I struggled (particularly math and when it comes to children. Unfortunately, there is less understanding science) beyond a few core requirements. of the realities faced by adults on the spectrum and even less regarding Depending on our organizational skills and executive func- their employment or lack thereof. Far too many adults with Asperger tioning, some of us with AS can easily lose focus and get lost in Syndrome (AS) are either underemployed or completely unemployed. the details, particularly when it comes to our special interests. Hendricks (2010, p. 127) estimates that between 50 to 75 percent of It is important to maintain a strong sense of direction so that adults with AS are unemployed. The purpose of this article is to combine we can more easily achieve our life goals. At the same time, we insights gained from my personal experience in the world of work with must be fl exible enough to accommodate
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