Attachment 1: Table of Documents

Attachment 1: Table of documents The table provides a list of the documents, including the reference to the name and the level of representativeness (international or national) of the organisation that has produced the document, and the code assigned to the document during the process of analysis of text. Moreover, the table indicates the various types of documents selected for this study. Legenda of “Further classification”: Type of institution: Palliative Care institution: PCI; Other health/medical institution: HI Subject: End-of-life/terminality in general: EOL; Specific situation/need/symptom of end-of-life: SPEC

Representativeness Name of the Title of the document Further Document of the organization organization and date of delivery Classification code International World Health Cancer pain relief and palliative care (1990) HI; EOL; O WHO I Organization Cancer pain relief (19962) HI; SPEC; O WHO II Symptom relief in terminal illness (1998) HI; SPEC; O WHO III Cancer pain relief and palliative care in HI; EOL; O WHO IV children (1998) National cancer control programs: policies HI; EOL; O WHO V and managerial guidelines (20022) World Medical Association Declaration on HI; EOL; O WMA I World Medical Terminal Illness (2006) Association World Medical Association Declaration on HI; SPEC; O WMA II Euthanasia (1987) World Medical Association Statement on HI; SPEC; PS WMA III Physician-Assisted Suicide (1992) Type of document: Position Statement: PS; Other: O.

1 Representativeness Name of the Title of the document Type of the Document of the organization organization and date of delivery document code International Academy of Psychiatric Aspects of Excellent End-of-Life HI; EOL; PS APM Psychosomatic Care (2005) Medicine European Definition of palliative care (1989, revised in PCI; EOL; O EAPC I Association for 1998) Palliative Care Roy DJ, Rapin C-H, the EAPC Board of PCI; SPEC; O EAPC II Directors, Regarding euthanasia, European Journal of Palliative Care 1994; 1: 57-59. European Society ESMO Policy on Supportive and Palliative HI; EOL; PS ESMO for Medical Care Oncology International Nurses’ Role in Providing Care to Dying HI; EOL; PS ICN Council of Nurses Patients and their Families (2000, 2006) International ISPN Position Statement on Palliative Care HI; EOL; PS ISPN Society of Psychiatric Nurses

2 Representativeness Name of the Title of the document Type of the Document of the organization organization and date of delivery document code National Canadian Hospice Hospice Palliative Care Nursing Standards of PCI; EOL; O CANADA (CANADA) Palliative Care Practice (CHPCA Nursing Standards CHPCA I Association Committee 2002) A Model to Guide Hospice Palliative Care PCI; EOL; O CANADA (2002) CHPCA II

Canadian Nurses Position Statement. Providing Nursing Care HI; EOL; PS CANADA CNA Association at the End of Life (2008) Canadian Pain Position Statement on Pain Relief (1997) HI; SPEC; PS CANADA CPS Society National American Academy Core Principles for End-of-Life Care (2000, HI; EOL; PS USA AAFP I (USA) of Family Physicians 2006) End-of-Life Care (1997, 2006) HI; EOL; PS USA AAFP II American Academy Definitions of Palliative Care and Palliative PCI; EOL; O USA AAHPM I of Hospice and Medicine Palliative Medicine American Academy Statement on Palliative Sedation (2006) PCI; SPEC; PS USA AAHPM II of Hospice and Statement on Artificial Nutrition and PCI; SPEC; PS USA AAHPM III Palliative medicine Hydration Near the End of Life (2006) Statement on Comprehensive End-of-Life PCI; EOL; PS USA AAHPM IV Care and Physician-Assisted Suicide (1997) Statement on Clinical Practice Guidelines for PCI; EOL; PS USA AAHPM V Quality Palliative Care (2006) American Academy Palliative Care for Children (2000) HI; EOL; PS USA AAP of Pediatrics American College Statement on principles guiding care at the HI; EOL; PS USA ACS of Surgeons end of life (1998)

3 Representativeness Name of the Title of the document Type of the Document of the organization organization and date of delivery document code National American The care of the dying patients (AGS Ethics HI; EOL; PS USA AGS (USA) Geriatrics Society Committee: 2002, 2007) American Medical Statement on end-of-life care (2005) HI; EOL; PS USA AMA Association American Nurses Pain Management and Control of HI; SPEC; PS USA ANA Association Distressing Symptoms in Dying Patients (2003) American Pain Treatment of Pain at the End of Life: A HI; SPEC; PS USA APS Society Position Statement from the American Pain Society (1997, 2006) American Society Position Statement on Pain Management at HI; SPEC; PS USA ASPMN for Pain the End of Life (2003) Management Nursing American Society Cancer Care During the Last Phase of Life, HI; EOL; O USA of Clinical Journal of Clinical Oncology 1998; 16: ASCO I Oncology 1986-1996. End of Life Care (1998) HI; EOL; PS USA ASCO II Hospice & HPNA Position Statement Palliative PCI; SPEC; PS USA HPNA I Palliative Nurses Sedation (2003) Association HPNA Position Statement Pain (2003) PCI; SPEC; PS USA HPNA II HPNA Position Statement Spiritual Care PCI; SPEC; PS USA HPNA III (2006)

4 Representativeness Name of the Title of the document Type of the Document of the organization organization and date of delivery document code National National Clinical Practice Guidelines for Quality PCI; EOL; O USA NCP (USA) Consensus Project Palliative Care for Quality Palliative Care National Hospice Hospice Philosophy Statement (2000) PCI; EOL; PS USA NHPCO II and Palliative Care Preamble to NHPCO Standards of Practice PCI; EOL; PS USA NHPCO I Organization (2000) Hospice and Palliative Care Code of Ethics PCI; EOL; O USA NHPCO III (2002) Commentary and Position Statement on PCI; SPEC; PS USA NHPCO IV Artificial Nutrition and Hydration (2005) Commentary and Resolution on Physician PCI; SPEC; PS USA NHPCO V Assisted Suicide (2005) NC Board of Joint Statement on Pain Management in End- HI; SPEC; PS USA JPS I Nursing of-Life Care (1999) NC Board of Pharmacy NC Medical Board Oncology Nursing Oncology Nursing Society and Association of HI; EOL; PS USA ONS I Society Oncology Social Work: Joint Position on End- of-Life Care (2003) Nurse’s Responsibility to Patients Requesting HI; SPEC; PS USA ONS II Assistance in Hastening Death (2001, 2002, 2004, 2007) WV Board of Joint Policy Statement on Pain Management HI; SPEC; PS USA JPS II Examiners for at the End of Life (2001) Registered Professional Nurses WV Board of Medicine WV Board of 5 Osteopathy WV Board of Pharmacy Representativeness Name Title of the document Type of the Document of the organization of the and date of delivery document code organization National (UK) National Council for Palliative Care Defined PCI; EOL; O UK NCPC Palliative Care St. Christopher’s St. Christopher’s Mission Statement PCI; EOL; PS UK SC Hospice National (AUSTRALIA) Australian Medical Position Statement on the Role of the HI; EOL; PS AUSTRALIA AMA Association Medical Practitioner in End of Life Care (2007) Australian and New Joint Position Statement on Palliative PCI; EOL; PS AUSTRALIA Zealand Society of Medicine in General Practice (2001) ANZSPM Palliative Medicine College & Position Statement on Hospice Palliative Care HI; EOL; PS AUSTRALIA Association of (2005) CARNA Registered Nurses of Alberta Palliative Care Strategic Plan 2003-2006 PCI; EOL; O AUSTRALIA Australia PCA I Position statement on Voluntary Euthanasia. PCI; SPEC; PS AUSTRALIA Palliative care Practice and End of Life PCA II Decisions (2006) Carers and End of Life (Interim Position PCI; SPEC; PS AUSTRALIA Statement, 2008) PCA III Palliative Care Dealing with Dying PCI; EOL; O AUSTRALIA Council of South PCCSA Australia