These Websites Have Reliable, Up-To-Date Information

Pathfinders: Where to find information about children’s rheumatologic disorders

Chronic Recurrent Multifocal Osteomyelitis (CRMO)

These websites have reliable, up-to-date information. If you have questions about your child’s condition or care, please speak with a member of the health care team.

Pediatric Rheumatology International Trials Organization – PRINTO (Europe) www.printo.it/pediatric-rheumatology/information/UK/pdf/13_4_CRMO_UK.pdf  Provides information about symptoms, diagnosis and treatment.  Answers practical questions in way that is easy to understand.  Few references or links to other organizations related to CRMO.

Great Ormond Street Hospital and UCL Institute of Child Health (United Kingdom) http://www.ich.ucl.ac.uk/gosh_families/information_sheets/chronic_recurrent_mul tifocal_osteomyelitis/chronic_recurrent_multifocal_osteomyelitis_children.html  Provides an overview of CRMO with information sheets in many languages.

BoneTumour.org (United States) www.bonetumor.org/tumors/pages/CRMO.htm  This website is written by an orthopedic surgeon.  Provides an overview of CRMO and up-to-date information about symptoms, diagnosis, treatments (medical and surgical) and prognosis. Includes examples of X-ray and MRI results with CRMO.  Some medical knowledge is needed to understand the information on this website.

“Prepared for the Pediatric Rheumatology and Immunology clinic by Karen Wang”

May 2010