Long Term Conditions Scribe Notes 13 September 2016

Long Term Conditions – Scribe Notes – 13 September 2016

Please not that only 1 of the 3 sessions on LTCs ran/had attendees. This session had around 8 delegates attending.

Ideas/points/concerns discussed:

 Interest in pathways of people with certain long term conditions and help to use this to redesign services

 The group was notified around the SOURCE tableau dashboards that have been created by ISD. A part of this includes maps of partnership areas with LTCs by data zone and associated costs. They can also benchmark against other areas and Scotland. There was a point raised about allowing the 3rd sector that works with people with LTCs having access to this.

 A concern was brought up around the SOURCE dashboards only focussing on hospital admissions, and there being a gap in primary care data. It was noted that SPIRE may help with this gap, but this won’t be available for another year or so. A suggestion was brought up around using prescribing data to identify those living in the community with LTCs, for example, looking for people on drugs for dementia.

 Would like to see data on carers with LTCs and how are they coping? Do they need additional support? What if the carer is hospitalised for their long term condition and the person being cared for needs support, how can they use the data to plan for this?

 A point was raised around estimating numbers of people with early onset dementia that are yet to be diagnosed, and how to account and plan for these people?

 3rd sector could help a lot with signposting people with LTCs can go to for support.

 Take away bureaucracy and build confidence in staff in one area to contact staff in another area. For example, social workers who see the patient every day having confidence to notify health/know who to contact if something deteriorates in the patient’s health.

 There is lack of data on people with neurological conditions: who are they and what are their needs? People with neurological conditions will need services in the future, when they are at crisis, but are not accessing health services in the beginning. How can they plan for this? There may be patients accessing specialist centres in health boards out with their own area, how can they find out about these patients?