Help for Today. Hope for Tomorrow. Annual Report FY 2010-2011 Dear Friends of HDSA,

As we look back at the last year of the Huntington’s Disease Society of America’s impact and efforts to improve the lives of people with Huntington’s disease and their families, we see much success. During the 2010-11 fiscal year we ushered in new community service programs, new chapters and affiliates, and laid the groundwork for a new strategic plan that will be the blueprint for the Society’s programs of work for the next five years.

We are very proud of the year’s achievements, which include the publication of an updated Physician’s Guide for the Management of HD, a greatly expanded national website section of medical and non-medical resources, the addition of six new chapters and affiliates serving new communities of HD families, the growth of the Team Hope Walk for HD campaign to more than 70 walks and a special scholarship program that made it possible for 150 people to attend the HDSA Annual Convention for the first time.

Additionally, our voice has been sought on the global level. HDSA was recruited to provide leadership on the International Huntington Association and we are integrally involved in the new international observational study Enroll-HD.

Today we turn our attention towards implementation of the new HDSA Strategic Plan, which sets a course for growth so that we can help more families and accelerate the development of treatments and potentially a cure for this devastating disease. The Plan includes the launch of a new HDSA Research Program in addition to the expansion of many of the resources and services that you have come to depend on through HDSA.

We look forward to an exciting year and one that with your help, will expand our ability to deliver Help for Today, Hope for Tomorrow to everyone affected by Huntington’s disease. Thank you for your partnership and shared vision.

Sincerely,

Donald L. Barr Louise A. Vetter Chair, National Board of Trustees Chief Executive Officer HDSA: A YEAR IN REVIEW During the past year HDSA focused its efforts to support group during May, which is annually HD provide more information about and access to, a Awareness Month. The Diplomats are HD family greater array of services and other resources for members who have participated in clinical trials HD families. A prime example of this effort was and have gone through training to talk about their the publication of the new Physician’s Guide to the experiences to groups of their peers. Being Management of Huntington’s Disease. involved in clinical trials and studies is one of the most important opportunities for HD families Publication of the revised Guide made the most to participate in improving the understanding of current clinical guidelines available to medical the disease and accelerate the identification of professionals inside the HD community, and treatments and, hopefully one day soon, a cure. provided a comprehensive roadmap for physicians with little to no HD training but In February the HD Parity Act was reintroduced in who perhaps treat just a few people with HD. the House for consideration by the new Congress, and in March, a companion bill was introduced in Distributing the Guide was also an important the Senate thanks to the ongoing efforts of the tool for identifying physicians who see patients thousands of HDSA advocates who called, with HD, and after obtaining permission from the doctors, HDSA was able to add hundreds of new listings of medical professionals to the HDSA.org website. This is an incredible resource since we regularly receive calls from people new to HD or people with HD who have moved to a new community and are seeking a doctor who has expertise in this area.

HDSA’s Caregivers’ Corner Webinar Series continued to be one of the most valuable and popular programs with HDSA constituents. Whether participating in the live webinar or utilizing the archived programs, families were able to learn how to emailed and visited their elected officials. The improve their caregiving skills, apply for Social 14,900 HDSA advocates have helped invigorate Security and Medicare, advocate for the HD Parity activity across the entire HDSA community by Act and a host of other skillsets that helped them giving a loud and united voice to our cause. improve the quality of life of a person with HD. Perhaps no activity was more indicative of the Also excitingly in 2011, HDSA welcomed a energy and expansion of HDSA programs than National Social Worker to the staff team. In the Annual Convention in Bloomington, addition to fielding inquiries and working with Minnesota. More than 1,000 people attended families directly, he is coordinating and setting the Convention making it the largest one ever! new standards and best practices for the 36 More than 125 of these were first-time attendees HDSA social workers throughout the U.S. who were recipients of one of three scholarship programs. In addition to the annual Leadership HDSA Support Groups, which grew in numbers Training (chapter and affiliate leaders), to 160 in 2011, were the recipients of new Professional Training (social workers and other resources as well. We Are HDSA, a monthly medical professionals) and National Youth newsletter for support group members, was Alliance (NYA) pre-convention meetings, HDSA introduced, and the HDSA Clinical Trial Diplomat hosted a workshop for young adults representing program provided speakers to almost every HD organizations from 15 countries.

HDSA Annual Report FY 2010-11 3 Another indication of the growth that HDSA website to feature articles, television and radio experienced this past year was the expansion of coverage. the Team Hope Walk for HD program to 72 events, raising more than $1,000,000 to support HDSA All HDSA publications are available for free programs and services. In several cases these download on the HDSA website, and for the first walks led to the establishment of new groups that time, all of our fundraising campaigns now include evolved into HDSA Affiliates, expanding the a digital component, allowing the Society to reach Society’s reach into areas it has not previously many more supporters cost-effectively. Given the been able to serve. challenging economy, we are always looking for ways to reach more people by stretching our Three new affiliates and three new chapters were dollars as far as possible. established in 2011. The chapters evolved from affiliates that increased their calendar of events, HDSA continued its practice of participation and and developed a core of volunteer leaders leadership with other organizations to maximize committed to bringing the full range of HDSA impact for the international HD community. In support to their community. By year end, there addition to the management of HDTrials.org, were 45 HDSA chapters and affiliates spread an educational website highlighting U.S.-based across the country to bring care, support, advocacy HD-specific clinical research, senior staff, trustees and hope to families. and volunteers participated in the World Congress in Melbourne, Australia, the Clinical Research HDSA chapters and affiliates held 21 local Symposium with the Huntington Study Group, educational events during 2011. These “mini- and have worked in close partnership with the conventions” featured local experts—clinicians, CHDI, European HD Network, Huntington’s researchers and other medical and non-medical Society of Canada and the International professionals—presenting information on topics Huntington’s Association to name a few. of relevance to HD families. Themes and topics varied from meeting to meeting, but each Many HDSA publications were utilized by other contained a clinical trials session, as part of the national patient-focused organizations and links to Society’s focus on clinical trials education and the HDSA website Research Section were found on recruitment. many websites around the world. HDSA’s support of HDBuzz made it possible for this new source of Developing new HDSA programs and services easily-accessible HD research news to be available is only meaningful when HD families know on the HDSA national website, and those of other about them, and HDSA made great strides in HD organizations as well. spreading the word in 2011 to the HD community and to the general population. In addition to the expansion of the national HDSA.org website, every chapter and affiliate has a fully function- ing website maintained by trained local volunteers to keep it updated and current. Local market media coverage of HDSA events and HD- related topics also grew significantly, to the point where a new section “HD and HDSA In the News” was created on the national

HDSA Annual Report FY 2010-11 4 education event included a session on clinical trials. HDSA participated in ongoing consultations with pharmaceutical and biotech companies to help them develop protocols for future clinical trials that would be more family-friendly and therefore make participation more practical for people with HD and their caregivers.

For all of our work in 2011, we never lose sight of our vision of a world free of Huntington’s disease and we have taken specific steps to plan for this. The result is the HDSA Strategic Plan: 2012-2016, which was launched in early 2012 and will guide the work of the Society for the next five years. The creation of the plan included a community survey, months of meetings by the Strategic Planning Committee, consultation from HD leaders, and then an open comment period in which everyone Our participation in and support of the was invited to comment on a draft. Based upon NIH/NINDS-led Huntington’s iPSC Stem Cell community input, the plan was completed, and Consortium made possible the creation of over its implementation begins in 2012. The Strategic 40 new HD stem cell lines that will be available to Plan includes details of the new HDSA Research both academic and commercial scientists for Initiative, which is planned to launch in late 2012. investigation. iPSC Stem Cells are created from skin “punches” taken from volunteers. While the 2011 was a year in which HDSA was able to use of stem cells as a therapeutic is a future goal, provide more Help for Today, Hope for Tomorrow the ability to create human neurons from these to everyone affected by Huntington’s disease. cells will give researchers a valuable new tool for This was possible due to the active partnership the investigation of potential therapies. and ongoing support of everyone in the HD community who shares our mission and is Clinical trial education and recruitment remained willing to do more than just dream of the day a top priority for the Society. Every Chapter when HD is a distant memory.

HDSA Annual Report FY 2010-11 5 HDSA National Board of Trustees Donald L. Barr Gerald A. Francese, Esq. Chair New York, NY Chesterland, OH Samuel Frank, MD Steven Seekins Boston, MA Vice Chair Burbank, CA Steve Ireland Wil mington, DE Larry Fisher Treasurer Barbara Jacobs Potomac, MD Stam ford, CT

Jamie Graham, Esq. Arik Johnson, PsyD Secretary Los Angeles, CA Atlanta, GA Rob Millum Jang-Ho Cha, MD, PhD El Cajon, CA Chair, Center Programs & Educational Advisory Committee Leon Tibben North Wales, PA Ando ver, MN

Theresa Hughes Daniel S. Vandivort Chair, National Field Committee River side, CT Bear, DE Roger A. Vaughan Hugh de Loayza Columbus, OH San Francisco, CA

HDSA Management Louise A. Vetter Debra Lovecky Chief Executive Officer Director of Program Services & Advocacy

Nadene Alleyne Nancy A. Rhodes Director of Financial & Director of Field Development & Operations Administrative Management Fred Taubman Jules Greenwald Director of Marketing & Communications Director of Development

HDSA Annual Report FY 2010-11 6 HDSA Fiscal Year Change

In 2010, the HDSA Board of Trustees determined that it would be advantageous for the Society to change its fiscal year from October 1 through September 30 to a calendar year, January 1 through December 31. In order to do so, HDSA had two fiscal years during calendar 2011: October 1, 2010 - September 30, 2011 and a short fiscal year October 1, 2011 - December 31, 2011, making it possible to start a new fiscal year January 1, 2012 that would run through December 31, 2012. Separate financial reports for these two fiscal years follow.

HDSA Annual Report FY 2010-11 7 Research Fundraising 7% 17%

Management & Family Services General 33% 11%

Chapter Development 14% Education 18%

Note: This chart reflects a 15-month period covering These Consolidated Statements reflect the operations the FY October 1, 2010 - September 30, 2011 and the of the Society for te fiscal years as stated and include FY October 1, 2011 - December 31, 2011. all affiliates. Please contact the National Office for a full copy of the audited financial statements.

HDSA Annual Report FY 2010-11 8 Please note that the expenses on this page for FY October 1, 2011 - December 31, 2011 are included in the pie chart on the previous page.

These Consolidated Statements reflect the operations of the Society for te fiscal years as stated and include all affiliates. Please contact the National Office for a full copy of the audited financial statements.

HDSA Annual Report FY 2010-11 9 Individual Major Donors

We would like to thank the Ms. Greta K. Abbott Mrs. Judith Bruning following individuals for their Dr. & Mrs. Michael W. Abdalla Mr. William Bryan generous donations of $1,000 Mr. Scott Alexander Ms.Mary S. Burton or more to the Huntington’s Mr. & Mrs. Juan Alonso Mr. & Mrs. Marc S. Byrnes Disease Society of America Mr. & Mrs. Dale Anderson Dr. W.C. Caddoo during the 2010-2011 Fiscal Ms.Katherine S. Anderson Mr. Vincent Campanella Year. Ms.Juanita L. Anderson Mr. & Mrs. Richard P. Cancelmo Mr. & Mrs. Guy Anderson Mr. & Mrs. Ned Cancelmo Mr. Scott Anderson Ms.Kathleen Canino Mr. & Mrs. Bolivar Andrews Mr. & Mrs. Scott F. Canoni Mr. Donald Charles Atherton Ms.Pamela Carter Mr. Frank Auf Der Maur Mr. Enrico Cascone Mr. Peter J. Augustin Ms.Lavonne Cashman Dr. John W. Baillie Ms.Barbara Cellini Mr. Bernays T. Barclay Dr. & Mrs. Jang-Ho Cha Mr. & Mrs. Norman Barham Mr. & Mrs. Michael D. Mr. & Mrs. Richard Barlow Chrisman Ms.Shaina Barnes Ms.Linda Clark Mr. Donald L. Barr Mr. & Mrs. Dave Clarke Mr. & Mrs. James Bashaw Mr. Michael S. Clausen Mr. & Mrs. Marshall Bauer Mr. Mike Clements Mr. Rick Baumgart Mr. Edward Cohen Mr. & Mrs. Donald Becker Mr. & Mrs. Keith Connor Mr. Russ Becker Ms.Anne Coskey Mr. Bill Bednarczyk Mr. & Mrs. Harold Covey Mr. David Bell Mr. & Mrs. James Crawford Ms.Michelle M. Bellissimo Mr. & Mrs. Jerry Cross Ms.Laura Ciriello Benedict Ms.Linda Cuccinotto Mr. & Mrs. David Bergstrom Mr. & Mrs. Michael Curry Mr. & Mrs. Steve Bergstrom Mrs. Phyllis E. Dake Mr. Raymond Bielamowicz Mr. Matthew Darrah Mr. & Mrs. David Binn Mr. William Daugherty Ms.Sara Lee Bishop Mr. & Mrs. Mark Davis Mr. & Mrs. James Bleyer Ms.Judith De Angelo Mr. Robi Blumenstein Mr. Hugh E. DeLoayza Mr. Jeff Bolitho Mr. & Mrs Guy Decker Mr. Larry W. Bonds Mr. Vincent R. DeFina Mr. Daniel Born Mr. Matt Degnan Mr. Michael Born Mrs. Elizabeth Detor Ms.Caitlin Bradfield Mr. Jason DiCola Mr. & Mrs. Steven Bradley Dr. Hung K. Do Mr. & Mrs. Ronald Branson Mr. & Mrs. Ned Doelling Mr. Drew Brees Mr. & Mrs. Lawrence Doria Ms.Amber Brock Mr. Douglas Dougherty Ms. Alma Brosio Mr. J.P. Douville Mr. & Mrs. Christopher D. Mr. David Downey Brown Ms.Dorothy A. Dudley Ms.Winnifred Brown Mr. Norm Eaker

HDSA Annual Report FY 2010-11 10 Individual Major Donors

Ms.Judith Edelstein & Mr. & Mrs. Harold Harden Mr. & Mrs. Theodore Larsen Ms. Diane McGrath Mr. & Mrs. Robert J. Hartig Mr. & Mrs.Howard F. Lederer Mr. & Mrs. Gary Ellias Ms.Claire Hiam-Telford Ms.Daine Lee Mr. & Mrs. Donald Ellingson Mr. & Mrs. Brian Holloway Mr. & Mrs. James Lee Mr. Fernando Fajardo Mr. & Mrs. William Holmes Mr. George Letchworth Mr. Michael Favreau Mrs. Kay Hopkins Ms.Norma J. Levett Mr. & Mrs. Robert Fazio Mr. Eric Horton Mr. & Mrs. William Levy Ms.Marjorie Featheringill Mr. & Mrs. Daniel J. Hostetler Mr. Joel Lewin Mr. Umberto Fedeli Mr. & Mrs. David Hughes Mr. & Mrs. Clyde H. Lewis Mr. & Mrs. Mark Felman Mr. Joseph Hughes Mr. Frank Lewis Mr. Jonathan Feuer Mr. & Mrs. Thomas Imbriglio Mrs. Evelyn Lieberman Ms.Karen Fish-Will Mr. Steven Ireland Mrs. Kristy Lopresti Mr. Lawrence Fisher Ms.Barbara Jacobs Mrs. Dorothy Lucy Mr. Stephen Flagg Mr. & Mrs. Martin Jacobson Mr. & Mrs. Alex Lyakhov Ms.Victoria Fletcher Mr. & Mrs. Bruce Jarosz Mr. & Mrs. Kevin Marsh Mr. & Mrs. Dan Flournoy Mr. Parker Johnson Ms.Carol Marshall Mr. & Mrs. Edward Folisi Mr. Wesley Johnston Mr. Petronilo T. Martinez Mr. Peter Foresman Ms. & Mrs. John Joyce Ms.Gertrude H. Marvin Mr. & Mrs. Gerald A. Francese Mrs. Liza Judd-Salimbeni Mrs. Nicole Mawby Mr. Stephen Frazier Mr. Larry Jurica Ms.Dorla Mayer Mr. Gary French Mr. & Mrs. Lawrence Justin Ms.Shanna McBurney Mr. & Mrs. David Friedman Mr. & Mrs. Rand Kaiser Mr. John McCaffrey Mr. Stephen Fugate Ms.Elizabeth A. Kaplan Mr. Donald McCauley Mr. Christopher Furbee Mr. Ted Kaplan & Mr. Luke McConn Ms.Louise George Ms. Roberta Woronow Mr. Hugh E. McGee Mr. & Mrs. LaRue Gibson Mrs. Ziona Kaplan-Weber Mr. Claude McGinnis Mr. John Mark Gidley Mr. Mark Karasek Mr. James McKenna Mr. Joseph A. Gietl Dr. Richard R. Karlen Mr. Chris McKenzie Ms.Clare Glassell Mr. & Mrs. Robert J. Karrow Mrs. Doris McKibbin Mr. Marc Glassman Dr. Kenneth Kast Mr. & Mrs. Kenneth McKinley Ms.Valy T. Goepfrich Mr. Glenn W. Kaun Mr. & Mrs.Arnold Meier Ms.Margaret Farrell Goggins Mr. John W. Keith Mrs. Vivian Middleman Mr. Alan Goldberg Dr. & Mrs. Irwin A. Keller Ms.Jane Miller Mrs. Nancy Goldring Mr. & Mrs. Alan A. Kenney Ms.Kendall Miller Mr. Les Golembo Ms.Jean D. Kinda Mr. Thomas Mills Mr. Justin Gonzalez Ms.Sue Kinder Mr. & Mrs. Robert Millum Ms.Jennifer R. Gornto Mr. & Mrs. John Alexander Kirk Mr. Mike Mogan Mrs. Bernice Gotlieb Mr. John Klarer Mrs. Erika Moore Ms.Jamie L. Graham Mrs. Diane Knapp Mr. & Mrs. Donald Murray Ms.Pamela Gray Mr. & Mrs. Willy D. Kollmeyer Dr. Martha Nance Mr. Thomas Greene Ms.Denice Korcal Mrs. Betty Neese Mr. & Mrs. Paul Griffith Mr. Mark Kuchik Ms.Marjorie S. Nelson Mr. & Mrs. Kurt Grigsby Dr. Roger Kurlan Mr. & Mrs. Joseph Nemec Ms.Ann Griswold Mr. & Mrs. Douglas N. LaBelle Ms.Nancy Nicholson Mr. Merrill Hafner Mr Jamaal LaFrance Ms.Ginger Niemann Mr. Ian C. Hague Dr. & Mrs. Barry Landau Mr. Andrew Nowka Mr. & Mrs. Brock R. Hajdik Mr. & Mrs. Wayne Langen Ms.Susan Nyberg Ms. Rosalie Hamilton Mr. & Mrs. Felix LaPonte Mr. Matthew Ocko

HDSA Annual Report FY 2010-11 11 Individual Major Donors

Ms.Colleen M. O'Donnell Ms. Kathie Ayres Mr. David Thuleen Mr. Thomas O'Grady Mr. Alan Rotberg Ms.Kaylan Tildsley Mr. & Mrs. Kevin Osborn Mrs. Mary Rotter Mr. Schuyler Tilney Mr. & Mrs. David A. Oss Dr. Robert Rowney Mr. & Mrs. George Timmons Mr. Gerald Owens Mr. Charles Royce Ms.Patricia Tobey Mr. G.S. Pallegar Mr. & Mrs. Joel Rubinson Dr. Ramona Torgenson Mr. Nacy Panzica Mr. & Mrs. Ira Rubtchinsky Mr. & Mrs. Joseph Turner Mr. Andrew Parrucci Mr. Craig Runcie Mr. & Mrs. Pat Turner Ms.Nancy Patterson Mr. David Russell Mrs. Amy Upjohn-Vandenberg Mr. Odis Peavy Mr. Steve Russell Mr. & Mrs. Daniel S. Vandivort Mr. Gregg Peckham Mr. Jeff Rynearson Mr. James Vaughan Mr. Charles J. Philippin Mrs. Rachel Sanborn Mr. B.J. Viau, Jr. Mr. & Mrs. Harold Pilskaln Mr. Kaveh Sartipi Mr. Bryan Viau Mr. & Mrs. Michael Pimental Mr. & Mrs. James Sault Mr. & Mrs. Anthoni Visconsi, II Mr. & Mrs. Kenneth E. Poland Mr. & Mrs. Russell Scarborough Mr. Dominic Visconsi, Jr. Mr. & Mrs. Robert M. Pope Dr. Eric P. Schneider Mr. Dominic Visconsi, Sr. Mr. & Mrs. Frank J. Porto Mrs. Marianne R. Schneider Mrs. Marilyn A. Walker Mrs. Alice Evans Pratt Mr. William Schroer Ms.Karen Waller Ms.Anne Pratt Ms.Elizabeth Schultz Dr. Bill Walsh Ms.Jennifer Pratt Mr. & Mrs. Joseph C. Mr. David E. Waltermire Mr. & Mrs. Peter Pratt Schwanebeck Mr. & Mrs. Don Warmington Mr. & Mrs. Steven Primeau Mr. Ned Schwing Mr. & Mrs. James Warner Mr. & Mrs. Dean Putzbach Ms.Karen Selzer Mr. & Mrs. Albert A. Wassberg Ms.Anne Pyle Mr. Robert Serpentini Mr. & Mrs. Walter Weber Mr. William Pyle Mr. Jerry Setten Mr. Scott Wegmann Ms.Kathleen Quinn Dr. Kathleen Shannon Mr. George Wenk Mr. Michael S. Quinn Mr. & Mrs. Robert Sharp Mrs. Sherri West Ms.Joyce Quisenberry Mr. Earl N. Sheehy Mr. Keith Westerfield Ms.Marie Rapanti Mr. & Mrs. Steven Seekins Ms.Ann C. Weston Ms.Lisa Raspanti Ms.Ann Marie Shephard Dr. Vicki Wheelock Mr. & Mrs. John Rathmell Mr. Faryar Shirzad & Mrs. Raye White Mr. Tom Reich Ms. Nancy Woodward Mrs. Melissa Whitley Mr. Brian Reiff Mrs. Florence Siegel-Lotker Mr. Alexander Will Ms.Gretta Reineck Mr. Gary Skarke Ms.SallyAnne Wilson Ms.Leslie Rich Mr. Jed Skeete Ms.Leslie Wiseman Mr. Gordon Richardson Mr. David Smith Mr. & Mrs. Blair Wood Mr. Todd Ricker Mr. Kenneth Smolanoff Ms.Joan Woodward Ms.Aleta E. Riewe Mr. & Mrs. Charles Smythe Mr. & Mrs. Charles Wosaba Mrs. Laura Roberts Mr. & Mrs. Michael R. Soland Ms.Cora Dee Wright Mr. Mike Roberts Mr. & Mrs. Craig Srajer Dr. Anne B. Young Mr. Troy Roe Mr. David Stickles Ms.Marlene Zalutsky Dr. Mary Katharine Roff Mr. & Mrs. Brian L. Stiff Mr. Don Ziemski Ms.Marian Roffman Ms.Nancy Succop Ms.Michelle Zschech Mr. & Mrs. Edward Roffman Mrs. Irene C. Swanson Mr. Mike Rogers Mr. & Mrs. Kenn Synek Ms.Jenny Rogers Mr. Jack Taylor Mr. & Mrs. Jack Rohrbach Ms.Joanne Thier Mr. Ted Ross & Mr. Mark Threlfall

HDSA Annual Report FY 2010-11 12 Individual Major Donors

Heritage Club Estate of Alfred A. Curtis Estate of Betty North Estate of Patricia A. Bauman Estate of Geraldine Dixon Estate of Elizabeth Price Estate of Barbara L. Bell Estate of John Heidelmeier Estate of Gladys M. Rich Estate of Eric Blake Estate of Katrin Heidelmeier Estate of Helen B. Rostetter Estate of Charlotte F. Calhoun Estate of Robert L. Hiller, Sr. Estate of Clifton A. Smithson

Corporate and Foundation Contributors

We would like to thank the $500 - $4,999 Services, Inc. following corporations and Acosta Sales & Marketing Co. Burr Family Foundation foundations for their generous Advanced Financial Co. Cadillac Mountain Sports donations of $500 or more to Aggregate Recycling Corp. California Bank & Trust the Huntington’s Disease Soci- Albany Molecular Research, Inc. Calvert Social Investment ety of America during the 2010- Alberici Constructors Foundation 2011 Fiscal Year. Allergan Foundation Carpet USA, Ltd. Algar Construction Corp. CDC-ELT Operations All Family Care Center for Spiritual Living Alpha Natural Resources Morristown Amelia Foundation Centerplate Amgen Centric Health Resources Altria Group, Inc. Channel Lumber American Endowment Chap's Tap, Inc. Foundation Chartway Ann Arbor Annuity Exchange Choctaw Nation of Oklahoma Antioch Building Materials Christen Elizabeth Clement Aon Foundation Foundation Apple Growth Partners Christus Health Archdiocese of Galveston- Chula Vista Women's Club Houston Clear Channel ATS Equipment, Inc. Cleveland Clinic Baker Hughes Foundation Cleveland Foundation Bank of NY Mellon Cliff Swisher Custom Concrete Bare Escentuals/ A Squared CMS Mechanical Services, Inc. Group CNA Foundation Bates Ford Commercial Development Biofilmd Company Biotechnology Industry Org. Conco Companies Black Box Network Services Cornell & Company, Inc. B'laster Corporation Cornerstone Restoration, Inc. Blue Thunder Services Cox Media Bob Baker Toyota Crescent Manor Care Centers Booze Fighters Motorcycle Club Crossroads Hospice Boris Realtors CVS Corporation Boston Sand & Gravel Dance Factory, Inc. Bravo Foundation Dayton Andrews, Inc. Brentwood Fine Meats Del Mar Toroughbred Club Bridgepoint Education Demoulas Super Markets, Inc. BrookBridge Consulting Discovery Bay Lions Club

HDSA Annual Report FY 2010-11 13 Corporate and Foundation Contributors

Duchense High School J. Calnan & Associates, Inc. Morgan Adhesives Company E.I. Franchise Company, LLC. Jackson Lewis, LLP. Municipal Employees Civic East Coast Slurry Co., Inc. Jewish Federation of Cleveland Responsibility Organization East Hartford Restaurant JFK Hartwyck at Cedar Brook NBC San Diego Group, Inc. John Daugherty Realtors NE Resins & Pigments Corp. Enbridge Energy, LP. John R Goodall Charitable New Car Dealers Assoc. Entergy Foundation Next Entertainment Entertainment Industry Johnson & Johnson Nitco Materials Handling Foundation Kaiser Permanente Solutions Evotec Kappa Alpha Order NMTW Community FancyHeat Corporation Kappa Alpha Theta Credit Union Federal Savings Bank Karoun Dairies, Inc Novartis First Church of God at Kid's Store Nurture Foundation Mount Juliet KFMB FM 100.7 Jack FM NuVasive First International Bank Kindred Healthcare Operating NStar Electric & Gas Corp. and Trust Kingston Veterans Club O'Donald Law Offices Florida Health Sciences Center Klein Tools Charitable Oasis Sports Medicine Florissant Garage & Radiator Foundation Ohio Wetlands Foundation Floyd Hall Enterprises, LLC. Koret Foundation Painting Plus Franklin Templeton Investments L. Suzio Concrete Co., Inc. Partners Health Care/MGH G. D. Gaedcke Interests La Frontera Center, Inc. Party of Gold, LLC. Gabco Ladies Landscaping, LLC. Pepsi Gamma Phi Beta LBL Health Solutions Performance Business Forms Gate City Bank Lathrop Construction and Specialty Products General Electric LeHigh Hanson PG&E Gene Therapy Systems Liddel Brothers, Inc. Phil Richards & Assoc. Georgian Gardens Lights of Jewish Special Needs Insurance, Inc. Good Samaritan Society - Links for Life Foundation Piccerelli, Gilstein & Co.. LLP University Specialty Center Locher Construction PJM Interconnection Greater St. Louis Golf Charities Lowell Health Care Center Pleasantville Community Green Mountain Coffee Lorenz Advertising & Synagogue Roasters, Inc. Design, Inc Poseidon Productions H & L Care Center, Inc. Lorraine Roy Fine Apparel, LLC. Premier Golf Property Mgmt. Harding Metals, Inc. Luce Forward, Hamilton & Procopio Harry and Beatrice Sley Scripps, LLP. Quality Control Manufacturing Foundation M.O.N Landscaping, Inc. Rels Settlement Services Harvard Medical School Mack-Cali Realty, LP. Reno's TV, Inc. Harvest Park Bowl MacKenzie Ventures, Inc. Ripon College Hinton, Kreditor & Gronroos Manuel Designs Ripon Medical Center Horan and McConaty Martin Foundation Rodman Ford Sales, Inc. Icon Builders Mason McDuffie Mortgage Ronald Nunn Farms In Motion Menasha Corporate Roofing Sales Associates Industrial Mold & Machine Mes Bon Amis Salon S&F Concrete Contractors, Inc. Innovative Employee Solutions Minneapolis Foundation S.M. Lorusso & Sons, Inc. Iona College Minnesota Community Safety Training Resources Invest in Others Charitable Foundation Salah & Pecci Leasing Co., Inc. Foundation Mission City Rebar, Inc. San Diego County Credit Union J & M, Inc. Moen San Diego Fire Fighters Assoc.

HDSA Annual Report FY 2010-11 14 Corporate and Foundation Contributors

San Diego Gas & Electric - Whitehead Institute Cymer, Inc Sempra Willdan Group, Inc. Fred J. Brotherton Charitable San Diego Municipal Employees Winchester Neurological Foundation Assoc. Consultants John C. and Eunice B. Morrison Sands Investment LTD Wireless Zone Foundation for Charitable Foundation Sanford Medical Center Fargo Giving, Inc. McMaster-Carr Supply Co. Schottenstein, Zox & Dunn Co. Woody Guthrie Publications Medivation SGS Petroleum Svc. Corp. XTO Energy Medtronic South Placer Hertiage Zion, Synek & Associates, Inc. MetLife Foundation NeuroSearch Southern California Edison $5,000 - $9,999 Samuels & Associates Southworth-Milton, Inc. Alnylam Pharmaceuticals Third Federal Foundation Sovereign Bank Boeing Employees Community Union Bank of California Specialty Lubricants, Corp. Fund Wal-Mart Spectex, LLC. BP Foundation, Inc. Wilcox Pipe & Supply Co. Spectra Energy Foundation Case Western Reserve Univ. Sports Basement Disney VoluntEARS $25,000 - $49,000 SSM De Paul Hospital Heavy Construction Systems William & Margaret Fern SSM Health Care St .Louis Specialists, Inc. Holmes Family Foundation St. John's Preparatory School Isis Pharmaceuticals Sterling-Turner Foundation Sundt Construction Jack in the Box Robert A. Vaughan Fund Superior Felt & Filtration, LLC. Jenny Craig Warren Family Foundation Symonds Kilroy Companies Taft Stettinius & Hollister, LLP Kilpartick Townsend $50,000 Plus TD Bank, N.A. Kohl's Chrysopolae Foundation Temple Inland Foundation Liquid Investments, Inc First Northern Bank Tiffiny Decorating Co. Martha Washington Straus- Gies Foundation Trailer Depot, LLC. Harry H. Straus Foundation Griffin Foundation Toyota Microsoft Lundbeck Inc. Town of Danvers Palomar Pomerado Health Zynga Game Network, Inc. Travaglini Eisenberg Kiley, LLC. Proflowers Trench Plate Rental Co. Qualcomm Trinity United Methodist Raptor Pharmaceuticals Women San Diego Chargers Turbine Trend Analysis Scott Laboratories UBS Strake Foundation Unique Image Corp. Sundt Construction, Inc. United Natural Foods, Inc. Vertex Pharmaceuticals United We Stand for Jason, Inc. We Move University of Medicine & Wells Fargo Dentistry of New Jersey University of Rochester $10,000 - $24,999 Valero Energy Corp. A.A. Will Corporation W.R. Grace Foundation Ace in the Hole Foundation, Inc. Watermark Foundation B&M Excavating Company, LLC. Wedgewood Gardens Bess Spiva Timmons Care Center Foundation Inc. Weirs Beach Go-Kart Track, Inc. Capital Group Companies

HDSA Annual Report FY 2010-11 15 Our Vision: A world free of Huntington’s disease. Our Mission: To improve the lives of people with Huntington’s disease and their families. 505 Eighth Avenue Suite 902 New York, NY 10018 212 242 1968 Helpline: 888 HDSA506 www.hdsa.org [email protected]