Professional Masterclass Scotland

stroke.org.uk Professional Masterclass Scotland The Hidden Effects of Stroke Thursday 3 March 2016 10.00am to 16.00pm Stirling You are invited to attend the Itinerary Professional Masterclass Scotland Welcome Meeting Room, The Stirling Smith Art Gallery Andrea Cail, Director of Scotland, Dumbarton Road, Stirling FK8 2RQ Stroke Association Session 1 We have invited leading stroke experts to host enlightening Dr T Quinn, Assessing for memory and seminars on The Hidden Effects of Stroke. These engaging thinking problems post stroke, how and why speakers will share their knowledge, skills and experience Session 2 to aid your professional development. This is an excellent Dr F Doubal, The psychological sequelae - event designed to raise your awareness of up to date anxiety, depression, apathy and fatigue research and how you can apply this to your clinical practice. Session 3 There will also be opportunities to network with your peers Stroke survivor, Long term management and and lunch is provided. Survivorship Session 4 Cost £100 per person Dr C Chung, Perception and executive (Early bird rate of £85 if booked before 14 December 2015) function: considerations for assessment and treatment of stroke patients To book your place visit Session 5 stroke.org.uk/professional-masterclass All, Q & A or call 01527 903911 for more information. Allergan have helped to fund these meetings but have had no input into the content of the meeting. Together we can conquer stroke Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR. Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805) Isle of Man (No 945) and Jersey (NPO 369)..

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Smoking and the Risk of Stroke
Call the Stroke Helpline: 0303 3033 100 or email: [email protected] Smoking and the risk of stroke This guide looks at how stopping smoking can reduce your risk of a stroke, and offers tips and advice about quitting. What are the risks? Cigarette smoke can affect your body’s cholesterol levels. Cholesterol is a vital Smoking makes you twice as likely to die if substance in your body, but if there is too you have a stroke, and the more you smoke, much in your blood it can cause heart the greater your risk of stroke. If you smoke disease and stroke. Smoking reduces the 20 cigarettes a day, you are six times more levels of ‘good’ cholesterol (also called HDL) likely to have a stroke compared to a non- in your blood stream and increases levels of smoker. Tobacco smoke has many different ‘bad’ cholesterol (also called LDL). Having effects on the body including thickening the low levels of ‘good’ cholesterol in your body blood, increasing the risk of blood clots and increases your risk of stroke. narrowing the arteries, as well as restricting oxygen in the blood. When you inhale cigarette smoke, carbon monoxide and nicotine enter your The impact of smoking bloodstream. The carbon monoxide reduces the amount of oxygen in your blood, and the Just under 20% (one in six) adults in the UK nicotine makes your heart beat faster and are smokers. Around 96,000 people in the raises your blood pressure. This increases UK die every year from smoking-related your risk of a stroke.
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The Future of Stroke Care in Wales Report of the Inquiry Into the Implementation of the Welsh Government’S Stroke Delivery Plan
Cross Party Group on Stroke The Future of Stroke Care in Wales Report of the inquiry into the implementation of the Welsh Government’s Stroke Delivery Plan March 2020 The Cross Party Contents Group on Stroke The following Assembly Members are members of the Cross Party Group Foreword 4 on Stroke: • Dr Dai Lloyd AM (Chair) Executive summary 6 • Neil Hamilton AM • Huw Irranca-Davies AM Background 8 • Adam Price AM • Nick Ramsay AM About the inquiry 9 The Cross Party Group on Stroke is facilitated by the Stroke Association, Preventing stroke 11 which compiled this report. The Cross Party Group on Stroke would like Fast and effective acute care 18 to thank all those individuals and organisations who took part in the inquiry, particularly those who gave Life after stroke 28 either oral or written evidence. A full list of those who provided evidence can be The stroke workforce 37 found in Appendix Two. The Cross Party Group on Stroke The future of the Stroke Delivery Plan 43 can be contacted on [email protected] Appendix one: Full list of recommendations 48 Appendix two: Organisations who provided evidence 50 Foreword My fellow members and I are pleased to present the final report of the Cross A new, strengthened model of delivery and accountability accompanied by the Party Group’s inquiry into the implementation of the Welsh Government’s Stroke highest quality hyperacute stroke units would enable the other challenges set out in Delivery Plan. this report to be overcome, such as attracting the best possible staff to deliver vital rehabilitation and game-changing treatment such as thrombectomy.
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Ymunwch Â Ni | Join Us
Ymunwch â Ni | Join us Community Steps Directory Lauren Heath Community Steps South East Wales Officer Zoom Groups : South East Wales Groups South & West Working Age Group Tuesdays 14:00 – 15:00 An opportunity for working age stroke survivors across South and West Wales to connect, share experiences and receive general peer support. Sessions are planned in conjunction with members and some examples include; managing fatigue, a reading session with InterAct and the effects of stroke on partners and children. To register your interest please contact [email protected] South West referrals to be sent to [email protected] South & West Working Age EveningGroup Monday May 17th 18:00 – 19:00. If you are a stroke survivor of working age who struggles to make our early weekday group session then please join us for this evening session. This is an opportunity to chat and share experiences with other working age stroke survivors. To register your interest please contact [email protected] South West referrals to be sent to [email protected] Barry Coffee Meet Wednesday 11:30 – 12:15 (monthly) An open discussion session for stroke survivors and carers across Cardiff and the Vale to connect for peer support. For more information or to refer please contact [email protected] Cwmbran Voluntary Group – Quiz Session Wednesdays 10:30 – 11:15 A quiz session delivered in conjunction with members who each bring a set of questions to the session. Interactive fun. Open to referrals in the Gwent area. For more information or to refer please contact [email protected] Blackwood Voluntary Group Meeting Thursdays 10:00 – 10:45 Peer support opportunity for stroke survivors and their carers across Gwent who are looking to connect with stroke survivors and reduce isolation.
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We Are the Stroke Association
We are the Stroke Association We are the Stroke Association Information on how our charity can support you. Inside this leaflet We offer information and advice Page 3 We give practical support Page 8 We help people get together Page 12 We fund pioneering research Page 14 We take action Page 16 Tip: shared reading Sometimes having a stroke can make it harder to understand things. It may help to read and talk through the information in this guide with a friend or family member. Around 1 in 6 men will have a stroke in their life Around 1 in 5 women will have a stroke in their life 2 Call the Stroke Helpline on 0303 3033 100 We are the Stroke Association We offer information and advice Our Stroke Helpline One of our Helpline team will listen to you in confidence, talk through your concerns and answer any questions you have. We can explain what causes a stroke, how you can reduce the risk of it happening again, and how to deal with the physical and emotional effects. We can give you information about how to get the local help and support you need. Contact the Stroke Helpline Phone: 0303 3033 100 Email: [email protected] Textphone: 18001 0303 3033 100 If English is not your first language, please get in touch and we can arrange to speak with you using a free telephone interpreting service. stroke.org.uk 3 Jane called our helpline Jane Brooks, 47, told us how she couldn’t have got through the anxiety she felt after her stroke without our helpline.
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Take Action on Stroke
stroke.org.uk Take action on Stroke At the Stroke Association, we never stand still. Get involved and help conquer stroke. Our work would not be possible without the support of people like you. Stroke is one of the biggest health challenges of our time. It is the third largest cause of death in the UK, killing three times as many women as breast cancer and twice as many men as prostate and testicular cancer combined. We are the only UK-wide charity supporting stroke survivors of all ages, and we rely on your support to help us do this. Did you know? For every stroke patient in For survivors, stroke can have a sudden and devastating impact on their lives, leaving many disabled and dependent the UK, just £22 is spent on on others. A stroke happens in an instant but its effects can medical research each year, last a lifetime. compared to £295 for every cancer patient. At the Stroke Association we believe in life after stroke . This is why we run more than 400 Life After Stroke Services in communities up and down the UK, and campaign for better stroke care. And its why we work tirelessly to raise awareness of stroke and on stroke prevention, investing nearly £3 million in vital stroke research every year. Take action now By getting involved in one of our Join the Thames Bridges Bike Ride fantastic range of events, you Every May, our Thames Bridges Bike Ride offers a choice of three distances: 50 miles, 33 miles and can make a really big difference an 8-mile family route.
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Information, Advice and Support Service
Contact us About The Stroke Association We are working for a world where Rebecca Chatterton there are fewer strokes and all those Stroke Development Officer touched by stroke get the help they need. The Stroke Association is the Phone only UK wide charity solely 01582 891 330 concerned with helping everyone 07984 344 329 affected by stroke. Email Website [email protected] www.stroke.org.uk The Stroke Association 90 Tomlinson Avenue Stroke Helpline Luton 0303 3033 100 Beds Useful contact numbers LU4 0QQ Social Services 01582 547 660 Mon - Fri 9am - 5pm NHS Direct 0845 46 47 Pensions Service 01234 361 724 We also have provision specifically Benefits Call Centre 0800 055 6688 for the Asian and African Caribbean Age Concern 01582 456 812 communities in Luton. Information, Advice Kishore Kaler (Asian) 07951 413 915 and Support Service Tyrone Sutherland (African Caribbean) 07946 205 542 The Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke House, 240 City Road, London EC1V 2PR. Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Isle of Man (No 945) Jersey (NPO 369) and in Northern Ireland. Information, Advice and Support Service If you or someone you care about has had a stroke, our service can provide practical assistance, essential information and emotional support. We will work closely with you to set your own goals and help you achieve them, and will make sure your needs are met as you return to a What does the service offer? How does it work? life after stroke.
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The Next Welsh Government: a New Plan for Stroke in Wales Wales Must Not Fall Behind the Rest of the UK When It Comes to Stroke Care
The next Welsh Government: A new plan for stroke in Wales Wales must not fall behind the rest of the UK when it comes to stroke care. The Stroke Association calls on the next Government to develop a new national plan for stroke, to save and transform the lives of the 7,400 people who experience a stroke each year in Wales. When it comes to preventing and treating strokes, the key focus for the next Welsh Government should be a new five-year national plan for stroke to ensure consistent action is taken across the country to improve services. Without this, Wales will be the only nation in the UK without a plan for improving stroke services. This will mean preventable strokes continue to happen, patients miss out on life-saving treatments and stroke survivors are left unable to rebuild their lives. About stroke in Wales We are at a pivotal time for stroke services in Wales. There are almost 70,000 stroke We are at a pivotal time for stroke services in Wales. There are almost 70,000 stroke survivors living in Wales, with an estimated 7,400 people having a stroke every year. survivors living in Wales , with an estimated 7,400 people having a stroke every year. The current Stroke Delivery Plan, which was extended by a year, expires in 2021. A new The current Stroke Delivery Plan, which was extended by a year, expires in 2021. A new clinical lead for stroke will be appointed later in 2020. clinical lead for stroke will be appointed later in 2020.
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Communication Support Service - Camden and So Does a Part of You
When stroke strikes, part of Contact us your brain shuts down. Communication Communication Support Service - Camden And so does a part of you. Life changes and Islington instantly and recovery is tough. But Support Service the brain can adapt. Our specialist support, research and campaigning Group name and/or location Mobile 07717 275 828 are only possible with the courage and determination of the stroke community. Rebuilding lives after stroke With more donations and support from Email you, we can rebuild even more lives. [email protected] or [email protected] (secure email for referrals from professionals) Donate or find out more atstroke.org.uk We’re here for you. Stroke Helpline: 0303 3033 100 From a textphone: 18001 0303 3033 100 Email: [email protected] Rebuilding lives after stroke Get involved We'd love to welcome you as part of our volunteer team. To find out more, please contact us using the details above. JN 1819.176 © Stroke Association 2019 The Stroke Association is registered as a charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in the Isle of Man (No. 945) and Jersey (NPO 369), and operating as a charity in Northern Ireland. What is our How does it work? Communication If you or someone you know has a Support Service? communication difficulty after a stroke, we can help. You'll have the opportunity The communication difficulty known as to meet and share experiences with aphasia affects over 400,000 people others in a similar situation. We can help in the UK.
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STROKE SUPPORT ORGANISATION TOOLKIT Published by Stroke Association Stroke Association House 240 City Road London EC1V 2PR
The World Stroke Organisation STROKE SUPPORT ORGANISATION TOOLKIT Published by Stroke Association Stroke Association House 240 City Road London EC1V 2PR E-mail: [email protected] stroke.org.uk Item Code: A12UKSF05 Stroke Association is a Company Limited by Guarantee, registered in England and Wales (No 61274). Registered office: Stroke Association House, 240 City Road, London EC1V 2PR. Registered as a Charity in England and Wales (No 211015) and in Scotland (SC037789). Also registered in Northern Ireland (XT33805) Isle of Man (No 945) and Jersey (NPO 369). 2 STROKE SUPPORT ORGANISATION TOOLKIT CONTENTS 1 INTRODUCTION & FOREWORD 4 8 OTHER CASE STUDIES 39 1.1 Introduction 4 8.1 Develop staff with the right 39 1.2 Why an SSO is essential 4 skills 1.3 Foreword from Professor Norrving 5 8.2 Legal issues 39 8.3 Service user representation 39 2 OBJECTIVES OF TOOLKIT 6 8.4 Consulting stroke survivors 40 8.5 Country Case Studies 40 3 KEY FACTS 7 9 WHERE TO GO FOR HELP 43 4 RESEARCH FOR THE TOOLKIT 8 9.1 Join the World Stroke 43 4.1 How we collected our information 8 Organisation 4.2 How were the organisations 9 9.2 Join Stroke Alliance For Europe 43 selected? 9.3 Key Contacts and Useful 44 4.3 Response Level 10 Resources 5 HOW TO USE THE TOOLKIT? 11 10 ACKNOWLEDGEMENTS 45 6 HOW TO START 12 11 DISCLAIMERS 46 6.1 What makes a good SSO? 12 Glossary 46 6.2 Finding people to help 13 6.3 The First Meeting 15 APPENDIX I 47 6.4 After the First Meeting 16 Stroke Association UK Factsheets 6.5 Contents of your first Plan 17 6.6 End of the ‘Start’ 21 APPENDIX
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Stroke Association: Historical Perspective 1898
stroke.org.uk Stroke Association: History perspective 1898−2012 Written by Anna Ritchie Part 2 Contents Part 2 1.‘We dream of a seamless service’: stroke services in the 1990s 44 Snap shot from the 1994 Annual Report 44 Snap shot from the1995 Annual Report 45 Snap shot from the 1996 Annual Report 46 2. A financial turning point 4 8 Snap shot from the 1997 Annual Report 48 Snap shot from the 1998 Annual Report 49 Snap shot from the 1999 Annual Report 50 Snap shot from the 2000 Annual Report 51 3. ‘A hundred years of caring’ 50 Snap shot from the 2001 Annual Report 53 4. A new vision for the Stroke Association 54 Snap shot from the 2002 Annual Report 54 Snap shot from the 2003 Annual Report 55 Snap shot from the 2004 Annual Report 56 Snap shot from the 2005 Annual Report 57 Snap shot from the 2006 Annual Report 59 Snap shot from the 2007 Annual Report 60 Snap shot from the 2008 Annual Report 61 5. Expansion across the United Kingdom 62 Snap shot from the 2009 Annual Report 62 42 Stroke Association: History perspective 1898−2012 | Part 2 6. The Stroke Association in Northern Ireland 63 7. The Stroke Association in Scotland 64 Snap shot from the 2010 Annual Report 65 8. The Stroke Association in Wales 67 Snap shot from the 2011 Annual Report 67 9. The Isle of Man and Jersey 69 10. Europe and the wider world 70 11. Stroke Association Community Services 2004 to 2012 71 Snap shot from the 2012 Annual Report 72 12.
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Supporting World-Class Research in Scotland
stroke.org.uk Supporting world-class stroke research in Scotland Stroke research saves lives and transforms care Stroke is a sudden and devastating condition which can take and transform lives in an instant. Scotland has the highest stroke incidence of all the UK nations - about 15,000 strokes every year – and the highest proportion of its population living with stroke of all the UK nations – about 117,500 people. In fact, stroke is the fourth commonest cause of death in Scotland. Research has been instrumental in driving forward developments in stroke care across the UK. These include: • the wide implementation of stroke units in hospitals, which has had a significant role in reducing deaths and improving recovery • the development of clot-busting drugs which can significantly reduce the disability associated with a stroke • guidelines supporting the use of leg compression devices (IPCs) to prevent deep vein thrombosis (DVT). This could help about 60,000 stroke patients in the UK each year. • the increasing prospect of mechanical devices to remove blood clots immediately after someone has a stroke, thus preventing further damage. 2 Our investment in stroke research in Scotland We are extremely proud to have supported high quality research in Scotland which has made truly outstanding contributions to clinical practice. Over the past 10 years, we have invested £4.2 million in Scotland to fund 30 research grants. We have also leveraged a further £2.4 million in matched funding. Scotland has strength in the breadth and depth of its stroke
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Ceri Dunstan, Head of Communications and External Affairs, Wales, on 029 2052 4420 [email protected]
Stroke priorities for the next Welsh Government November 2015 Together we can conquer stroke Introduction Stroke is a devastating condition. It strikes in a moment, but its effects can last a lifetime. In Wales, around 7,000 people every year have a stroke, while nearly 65,000 people are living with the long term effects of stroke.1 Stroke kills twice as many women in the UK as breast cancer and more men than prostrate and testicular cancer combined.2 3 4 Fortunately, more people now survive stroke, but this brings its own significant challenges in terms of rehabilitation and long-term care; stroke is the largest single cause of complex disability, and half of all stroke survivors have a disability. 5 6 Despite this, research into stroke treatment and care lags very far behind other major conditions. For every cancer patient in the UK, £241 is spent each year on medical research compared with just £48 a year for every stroke patient. 7 At the Stroke Association, we want to see a future where fewer people have strokes and those who do are given the treatment and support they need to enjoy life, be active in their communities, and contribute to society. To achieve this, we call on all political parties in Wales to support the following priorities for the next Welsh Government for the prevention and treatment of stroke. 2 Stroke priorities for the next Welsh Government 1. Ensuring the best stroke care and support The National Stroke Delivery Plan sets out two clear outcomes for stroke prevention and care in Wales: • People of all ages to have the lowest possible risk of having a stroke and, where it does occur, to have an excellent chance of surviving, returning to independence as quickly as possible • Stroke services in Wales to be of a standard comparable with the best in Europe While progress has been made, the Royal College of Physicians’ Sentinel Stroke National Audit Programme (SSNAP) shows that improvements are still needed in some areas of stroke care in Wales to bring them up to the best clinically recognised standards.
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