A JOURNEY THROUGH PCHF POWERED BY SYBRID(PVT.)LTD. 2020 Table Of Contents

Vision Statement The Underlying Problem  Mission Statement 

 Introduction  The Story behind PCHF

Board of Directors Board Members & Background and Initiatives  Advisory Board Members 

PCHF Analytics and How To Donate  Insights  Farhan Ahmad Volunteer CEO

The first time I came to know what congenital heart defect (CHD) is, it took me a long time to even spell and pronounce the term properly. This was my level of awareness about the disease at the time. I personally call it a disease, and not a defect, because just like any other disease, CHD is an illness, a curable one. Therefore, I believe that every child born with CHD has just as much right to life as any other child without it. We, as a society, need to create awareness and educate ourselves on CHD and treat it as an illness. It is our wish to serve this cause to the best of our ability so that one day, no family in Pakistan may have to lose their child to CHD.

Misbah-Ul-Haq Board Member

Back in 2017 during my final days with the Pakistan cricket team, I was thinking about my home city Minawali, which is deprived of quality health- care facilities. I wanted to do something about that. During this time, my friend’s daughter was diagnosed with a heart disease. I witnessed their struggle and hardship during this ordeal. The fact that alarmingly scarce facilities are available to deal with this problem, was a revelation for me. In our search for better healthcare my friend’s daughter needed, I met with Mr. Farhan who talked about PCHF and their ambition to build a hospital devoted to curing children’s heart problems and carrying out research in the field. This cause inspired me to work for this noble cause, which I have come to call my life’s 2nd innings. Vision Statement Mission Statement

Pakistan Children’s Heart Foundation sees a To establish a state of the art medical facility that Pakistan in which not a single Congenital Heart provides the highest quality of care for children with Defect (CHD) patient remains untreated. Regard- heart disease, irrespective of their financial means. less of race, religion, gender, or financial back- To act as a model institute, for the training of health- ground we believe every child should be provided care professionals, education of the public at large the opportunity to receive world class medical and promote research into the causes and manage- treatment for their congenital heart defects (CHD). ment of congenital heart disease. Introduction

This report exhibits an introduction of the Pakistan Children’s Heart Foun- dation (PCHF), all its progress since inception, and detailed analytical research insights into the work that has been done by the organization. Through this report, we will delve deep into the heart of the organization and explore the motivation behind such a significant step taken bya group of driven people, who aim to rid the people of Pakistan of the pain caused by the loss of a child due to a heart disease. As the report progresses, we will shed light on the prevailing sorry state of affairs with regards to children’s heart problems rampant in Pakistan and the scarcity of available treatments for such problems. The report will also share PCHF’s vision of a children’s-heart-problems-free Pakistan, and how it aims to fulfil this vision one day through perpetual progress and struggles. Furthermore, the report will introduce the readers to the men and women behind this noble struggle i.e. the Board of Directors, Board Members, and Advisory Board Members. Other than that, a vision for a dedicated hospi- tal for Congenital Heart Defect (CHD) patients in Pakistan, Children Heart Hospital and Research Institute (CHHRI), is also shared. The- idea behind the construction of CHHRI is to provide the best treatment by the best professionals to all affected children of CHD without financially burdening parents and guardians alike.

Page 05 Board Of Directors

Mr. Farhan Ahmad Volunteer CEO

Mr. Mujtaba Bhatti Co-founder Kluchit

Mr. Muhammad Ihsan CEO ‘O’ Consulting

Mr. Muhammad Haris Naseer Director Infotech

Board Members

Mr. Misbah-Ul-Haq Head Coach, Pakistan Cricket Team

Mr. Ather Imran CEO Sybrid (Pvt.) Ltd.

Lt. Gen. (R) Syed Afzal Ahmad Principal CMH Lahore Medical College

Ms. Ammara Awais Director, OSA, The University of Lahore

Mr. Tariq H. Cheema Founder, World Congress of Muslim Philanthropists Mr. Sultan Hamdani Partner Maison Consulting & Solutions

Ms. Ana Tanveer Designer & Entrepreneur

Dr. Narjis Fatima DSS Lahore | PESSI

Maj. Gen. (R) Syed Shahid Mukhtar Shah Former DG, IT, GHQ

Project Manager Maison Consulting and Mr. Hassan Bukhari Solutions

Dr. Ajaz Ali Baloch Senior Medical Officer

Mr. Muhammad Sadiq Ex. Bank Officer - UBL

Page 06 Advisory Board Members

Medical Advisory Board Members

Pediatric Cardiologist Dean CHIH, Prof. Dr. Masood Sadiq Lahore Pediatric Cardiac Surgeon CHIH, Dr. Asim Khan Lahore Pediatric Cardiac Anesthetist Sidra Dr. Saif Ur Rehman Medical Center, Qatar

Pediatric Cardiac Surgeon CHIH, Dr. Salman A. Shah Lahore

Dr. Syed Najam Hyder Pediatric Cardiologist CHIH, Lahore

Pediatric Cardiac Anesthetist CHIH, Dr. Saeedah Asaf Lahore

Medical Research Advisory Board Members

Director, Research and Innovation Dr. Faisal Cheema Baylor College of Medicine, USA

Pediatric Cardiologist Aga Khan Dr. Babar Hasan University Hospital, Karachi

Business Advisory Board Members

Mr. Mazhar Hussain CEO RICI

Mr. Adnan Hafeez Head of DRM NOKIA Networks

Ms. Mahvish Khalil Operations Manager NOKIA Networks

Mr. Naveed Cheema Corporate Palnning Saudi ARAMCO

Page 07 The Underlying Problem Every developing country is marred with innumerable problems, be they social, economic, or political, which affect their healthcare system. Men and women spearheading in any of these spheres come across a multitude of challenges. What matters most is how people persevere in such circumstances and dig deep in the mountain to carve a path for the coming generations. Men and women behind PCHF are playing their role in this regard. When it comes to children with CHD, it normally takes between two to three weeks for a family with a relatively stable income to find a suitable treatment in Pakistan. One can only imagine the pain many Pakistani, mainly the underprivi- leged, go through to find a similar treatment. Every year around 50,000 and 60,000 children are born with CHD in Pakistan. However, only a lucky few get the chance to undergo surgery and get treatment. Success rate of the few who do undergo treatment is another question altogether. Moreover, for every child who gets heart surgery in Pakistan, thousands of other children are waiting for a similar operation in government and private hospitals alike. Seeing how CHD requires quick treatment for the patient to have a greater chance at life, a lot of patients on the waiting list unfortunately die due to limited resources, professionals, and hospi- tals providing suitable treatment. Pakistan’s public health system is overburdened with CHD cases and is equally underfunded to deal with such a huge challenge. Roughly 3% of the annual budget is allocated to healthcare. Of this 3%, only a meagre sum gets allocated for specific CHD requirements. People therefore, usually rely on donations to get the treat- ment they wish for their wards or children. There are only a handful of practicing paediatric cardiac surgeons for the entire burgeoning population of the country. These few doctors see hundreds of children with CHD every day. Of these hundreds of patients, a significant number require urgent operation. It is easy to imagine how many patients these doctors are able to operate on and provide suitable treatment for. The harsh reality of the prevail- ing situation is that for each child with CHD who gets the required treatment, hundreds of other children die just waiting for their turn.

Page 08 The Story Behind PCHF Some of the greatest community-driven initiatives in this world have come at a great personal cost. The story behind PCHF’s beginnings is no different. The idea of PCHF would perhaps not have materialized if Mr. Farhan Ahmad, Volunteer CEO of PCHF, had not witnessed his own daughter Ayesha Farhan go through the pains of not having timely and proper treatment back in 2011. Ayesha Farhan was diagnosed with CHD. Despite all the efforts of her family, it still took three weeks for her to get suitable treatment. Being an insightful man, Mr. Farhan Ahmad could very clearly see the sorry state of affairs within Pakistan’s health sector, especially for CHD patients. Having experienced one of the worst agonies of this world up-close, Mr. Farhan along with his family and friends decided to develop a Centre of Excellence and Hospital that would serve the needs of children born with CHD in Pakistan. In essence, the life of one beautiful soul helped spark a flame that would save the lives of countless little innocent souls – future patients of CHD. Building up on a dream to construct a specialized hospital for the treatment of and research on CHD, a preliminary feasibility for Children’s Heart Hospi- tal and Research Institute (CHHRI) was done by one of the leading consulting firms and estimated cost was established at USD 12 million in 2012. Seeing how it was impractical to arrange for such a huge amount, the PCHF team decided to run a parallel project by the name of “Mohsin”. Project Mohsin focuses on providing financial support for surgeries of children diagnosed with CHD belonging to deserving families. This helped alleviate the immediate burden from deserving people in the absence of CHHRI, which required a long term approach to be realized. Once donations started pouring in for Project Mohsin, the PCHF team noticed that the major source of donations was via Zakat. This information helped the PCHF team get in touch with religious scholars to develop guide- lines and procedures for disseminating funds accordingly among deserving cases. The entire process began to be monitored on a regular basis. The next step was to understand the need for capacity building and training to overcome the disease burden. To this end, Project Danial was initiated. The project is eponymous to Muhammad Danial Tanveer who passed away from CHD in 2014, in whose memory the project got its name.

PCHF attained income-tax exempt status from Federal Board of Revenue (FBR) in 2015 and then again in 2018.

In 2016, PCHF applied for certification from Pakistan Centre of Philanthropy (PCP) and successfully obtained the 3-year certification. The audit by PCP in 2019 again cleared PCHF for a further 3-year certification.

In the year 2018, PCHF collaborated with the University of Lahore Teaching Hospi- tal (UoLTH) and started their own Surgical Unit. The unit initially had the capability to serve mild complexity cases, and by 2020 it upgraded with the capability to oper- ate on mild to moderate complexity cases.

Although a year of gloom for much of the entire world, the year 2020 had a silver lining for PCHF, as it witnessed the groundbreaking ceremony for CHHRI. Tenta- tive date for operationalization of CHHRI’s Phase-1 is November 2021. Background & Initiatives

PCHF is a not-for-profit company, registered with the Securities Exchange Commission of Pakistan, as a Section 42 Company. It was established in the year 2011. PCHF provides fully funded and/or subsi- dized surgeries through partnerships to impoverished children born with CHD in Pakistan. PCHF’s value proposition is as follows:

Project CHHRI(Children’s Heart Hospital and Research Institute): Perhaps the most significant goal of PCHF is the establishment of Children’s Heart Hospital and Research Institute, a 125-bed building based in Lahore, Pakistan. CHHRI is intended to be a state-of-the-art hospital which will serve two crucial purposes; a hospital specializing in the treatment of CHD and a research centre focused on CHD for excel- lence and training in the region.

The dream of building a hospital devot- ed to CHD was motivated by a desire to improve the deteriorating pediatric cardiac healthcare infrastructure of Pakistan. Once realized, CHHRI will be Pakistan’s first dedicated Children’s Heart Hospital and Research Institute. The ground-breaking of this project was done in Lahore on 8th of May, 2020. It was performed by PCHF’s board member as well as a celebrated cricket star of Pakistan, Mr. Misbah-Ul-Haq.

CHHRI’s construction plan has been divided into 2 phases, whereby the hospital will be operational after the completion of Phase I. In that, the completion of CHHRI’s Phase I will result in a five-level structure, includ- ing a basement. The projected timeframe for completion of the project’s Phase I is 18 months from the moment construction begins. The total cost of Phase I is estimated to be PKR 1.25 billion. Post completion of Phase I of the project, the hospital will be operational with 75 beds. The following is a break-down of the hospital’s services after the completion of Phase I:

Page 11 Post Phase 1 Completion

CSSD, Lab, Blood Bank, Radiology, Basement Diagnostics (CT Scan, MRI) OPD, 15-bed ER, Echocardiography, & a Ground Floor Few Offices

First Floor CATH Lab, Hybrid Lab, 2 OTs

Second Floor 30 ICUs

Third Floor 30 Private Rooms

Project Mohsin: Patient Treatment Although the ultimate goal of PCHF is to build a state-of-the-art hospi- tal and research centre devoted to CHD in the long term, the organiza- tion could not simply turn a blind eye to the plight of parents and guard- ians watching their children or wards suffering from CHD. To this end, the PCHF came up with a solution that would alleviate the affected people’s suffering by arranging funds to finance the required treat- ments. PCHF did this without letting their work on CHHRI being affect- ed i.e. both the projects were ongoing concomitantly. The initiative to alleviate people’s suffering in the short-term was named “Project Mohsin”.

Since its inception in the year 2011, PCHF has successfully provided finan- cial and medical support to over 3,000 CHD patients at a total gross cost of over PKR 670 million, irrespective of the financial background of the fami- lies. Among this figure of over 3,000 children, over 280 of them had their cardiac surgeries carried out at PCHF’s Child Heart Centre, in collaboration with UoLTH. PCHF is pleased to announce that it operates this centre independently, with its own team of qualified nurses and medical officers. The idea behind this centre is to offer the best quality of care to the patients with the lowest possible costs.

Page 12 Another feather in PCHF’s cap is that its Child Health Centre is one of the only three such centres in Pakistan recognized by the International Quality Improvement Collaborative (IQIC) for Congenital Heart Diseases. IQIC provides benchmarking data for healthcare professionals and guides quali- ty improvement efforts. In the spirit of offering maximum comfort and convenience to the people for CHD treatment, PCHF has entered into partnerships with hospitals and institutions around the country. This has enhanced the outreach of PCHF’s overall programme. The organization has signed a number of Memoran- dum of Understanding (MoU) in this regard:

PCHF has signed a MoU with Ittefaq Hospital Trust (IHT), Lahore until the start of its own specialized children’s heart hospital. PCHF is getting surgeries, it sponsors, done at IHT at a discounted rate. PCHF has signed similar MoU with partner hospitals across Pakistan including Aga Khan University Hospital, Karachi; Rehman Medical Institute, Peshawar; Armed Forces Institute of Cardi- ology, Rawalpindi. An MoU is signed with Transparent Hands, an NGO, as per which they will bear 50% of the cost of a treatment of deserving patients.

An MoU is signed with Hameed Latif Hospital in Lahore with the aim to boost their cardiac surgery programme. A partnership agreement was executed with Cleft Hospital, Gujrat and Pakistan Cleft Lip and Palate Association (PCLAPA) for mutual patient referral.

An MoU is under process with Liaqat National Hospital, Karachi

The concept behind initiating partnerships with all the above healthcare institutions is to improve the overall situation in terms of providing quali- ty health services for children suffering from CHD across Pakistan. Moreover, PCHF offers free Outpatient Department (OPD) services to all its patients. This encompasses pre-operative and post-operative echo- cardiography tests and cardiology consultation. In 2019 alone the PCHF executed a total of 1,122 Echocardiography tests, 762 pre-op ECHOs and 360 post-op ECHOs.

Project Daniyal: Capacity Building Improving the local pediatric cardiology and cardiac surgery infrastruc- ture in Pakistan is at the heart of PCHF’s vision. Therefore, PCHF is ardently involved in organizing capacity building workshops in collabora- tion with hospitals and institutions alike in Pakistan, where CHD treat- ment is available. PCHF organized its 1st and 2nd Annual Interventional Cardiology Workshop in September, 2018 in Faisalabad, and Septem- ber, 2019 in Multan respectively in this regard.

Page 13 In the spirit of capacity building, PCHF collab- orated with Taarey Zameen Par (TZP) Trust, a private non-profitable organization, and orga- nized an avant-garde interventional cardiolo- gy training workshop in South Punjab. PCHF invited a team of senior doctors from Sidra Medical Centre, Qatar to conduct the work- shop, which was held over a period of three days with the involvement of Chaudhry Pervaiz Elahi Institute of Cardiology (CPEIC) and Children’s Hospital, Multan. The work- shop fulfilled its purpose, in that local health- care professionals worked alongside the team of international doctors and improved their technical capabilities in the process. More- over, a maiden Multi-Functional Occluder (MFO) procedure was also executed at Children’s Hospital, Multan. During the course of the workshop, 21 children received free treatment for CHDs. PCHF’s involvement with the workshop’s arrangement was appreci- ated with gratitude by local healthcare professionals, who requested that PCHF should conduct more workshops in the future. Moreover, PCHF organized the 1st Annual Capacity Building Workshop in Lahore in December, 2018. The 2nd Annual Capacity Building Workshop was held in Lahore and Peshawar in November of 2019. The 2nd Annual Capacity Building Workshop’s topic was ‘Post-OP PCICU Care management in children after surgery.’ A team of doctors, consisting of the Director of Health Quality, Pediatric Intensivists and Respiratory thera- pists, was invited to come for the workshop. The workshop spanned over a passage of three days, with the first two days being utilized at Children’s Hospital and Institute of Child Health, Lahore and the last day at Rehman Medical Institute, Peshawar.

Page 14 The workshop was an impressive success as it received more than one hundred participants each day. The workshop received an overwhelming response from the attendees, who were particularly impressed with the work- shop’s action-oriented training sessions. This was also PCHF’s maiden work- shop for Peshawar city, giving healthcare professionals in KP region access to world class information about healthcare standards. The reason behind arranging such workshops in different cities is to amplify its reach so that maximal CHD-affected children across Pakistan can get quality healthcare. To this end, PCHF is working closely with a multitude of major insti- tutions in Pakistan, depicted in the Analytics section below, involved in the treatment of CHD. PCHF’s collaboration with all these institutions is to assist them with enhancing their quality and capacity particularly for CHD treatment. This collaboration is further intended to build and strengthen a devoted infra- structure that can meet the currently insurmountable challenges, which CHDs present in Pakistan. In this respect, PCHF has also provided a complimentary Surgical Headlight to the pediatric cardiac surgery department at Faisalabad Institute of Cardiology.

Awareness and Advocacy on CHDS In order to present a solution to a problem, the most important prerequisite is for people to understand the existence of the problem. Similarly, one of the most significant obstacles in improving availability and access of quality CHD-related healthcare in Pakistan is lack of awareness. As a result, PCHF has been working tirelessly towards spreading awareness about CHD in Pakistan on multiple platforms, both national and international. Concurrent- ly, PCHF is also working towards making people aware of the woeful state of facilities available for CHD treatment in Pakistan, which result in count- less deaths year on year.

Page 15 Some of PCHF’s efforts for raising awareness of CHDs in Pakistan are exhibited as follows:

International tours and events with Misbah-Ul-Haq for raising funds & creating awareness for CHDs in Pakistan.

Talk show segment with Misbah-Ul-Haq on ‘Qutb Online’, SAMAA TV.

Morning talk show segment on Roohi TV channel.

Patient experience and survivor stories on social media channels (Facebook, Instagram, Twitter).

PCHF Stall at Akhuwat Diabetes Family Festival at Racecourse Park, Lahore.

PCHF Stall at Annual ‘Haryali’ market.

Television infomercial campaign on major national news channels.

Page 16 PCHF Analytics & Insights This section of the report exhibits detailed analytics regarding PCHF’s activities since the organization came into existence. It will shed light on different aspects of when, where, and how it helped the people of Paki- stan. Here’s a glimpse of the statistics detailing our impact:

Total number of patients who contacted PCHF from different regions of Pakistan:

Balochistan

The above map demonstrates the total number of patients who reached out to PCHF to seek help. The statistics exhibited in the map depict the region-wise segregation of the total number of patients who have reached out to PCHF since its inception in 2011. Although PCHF extends its services to every deserving person across Paki- stan wherever and whenever it can; it is overtly evident from the statistics that people from Punjab and Khyber Pakhtunkhwa contacted PCHF the most.

Page 17 Annual trend of patients who contacted PCHF:

The graph above shows the trend in terms of the recorded number of patients who contacted PCHF per year. In the year 2011, only 2 patients contacted the organization and requested assistance. For the following three years up to 2014, this figure rose but at a humble rate. Since then, however, the number of people reaching out to PCHF each year rose drastically, resulting in a perpetual upward trend with ever greater number of patients contacting the organization each year.

Distribution of patients’ treatment who contacted PCHF for CHD:

This pie chart classifies the total number of patients, i.e. 3,358, who contacted PCHF for assistance regarding CHD treatment into three groups. PCHF completely funded the treatment of 2,058 patients. Whereas, 1,273 patients were provided financial assistance on need-ba- sis who were registered with different hospitals. However, only 27 patients managed to fund their CHD treatment entirely by themselves.

Page 18 Number of patients registered and total operations done:

1852

1126

90 203

The above graph exhibits the total number of recorded patients with the PCHF against patients associated with different age groups. These age groups have been categorized as follows:

Infant From birth to 1 year of age Child Between 1 and 12 years of age Adolescent Between 12 and 18 years of age Adult Above 18 years of age

Based on the categorization, the total number of recorded patient entries with PCHF accounts for 1,126 infants, 1,852 children, 203 adolescents, and 90 adults, as exhibited in the graph. Out of this figure, patients who were operated on were 658 infants, 1,209 children, 135 adolescents, and 55 adults.

Page 19 Number of days CHD patients spent in hospital:

This graph displays the number of days CHD patients registered with PCHF spent in hospitals since its inception. According to the insights displayed, a great majority of PCHF’s recorded CHD patients i.e. 1,106 and 642 patients, highlighted in red colour, spent between 2-5 days and 6-10 days in hospitals respectively. Whereas 133 patients spent 1 day at the hospital, 107 patients spent between 11-15 days, and 66 patients spent more than 15 days in a healthcare facility. However, 4 patients were not hospitalized at all. Age-wise distribution of number of days spent in hospitals:

This graph projects data on PCHF’s registered CHD patients from different age groups, i.e. infant, child, adolescent, and adult, according to the number of days they spent in hospitals for their treatments. Simi- larly, patients from each respective age group have been represented by a designated colour in the chart. In the above chart, infants are repre- sented by purple colour, children by red colour, adolescent by yellow colour, and adults by pink colour. According to the statistics, a great majority of CHD patients from any age group spent between 2-5 days and 6-10 days at hospitals for their respective treatments and surgeries.

Page 20 Open-Heart vs. Closed-Heart surgeries:

Closed-Heart 12%

Open-Heart 88%

The pie chart above outlines the two broad types of surgeries performed on recorded CHD patients under PCHF’s care. These are namely open-heart surgeries and closed-heart surgeries. As per the statistics, most of the patients required open-heart surgeries whereas only 12% patients needed closed-heart surgeries.

Distribution of Funding:

Pa�ents Contribu�on PKR 391,305,606

PCHF Funding PKR 532,304,853

The chart above projects the total funding PCHF has generated to treat CHD patients over the years, as well as patients’ own contribution to the overall funding of those treatments since PCHF’s inception. According to the statistics available, around PKR 532,304,853 were contributed by PCHF, whereas patients’ own contribution account for PKR 391,305,606.

Page 21 Year-wise PCHF funding and patients’ contribution trends:

The above chart showcase specific year by year contributions by PCHF and patients registered with the organization towards CHD treatment from the year 2011. All of the figures are in millions of rupees. The red bars represent PCHF’s funding and the blue bars represent contributions by patients. According to the chart, from 2011 to 2014 PCHF and patients registered with it contributed almost equally. This is primarily due to PCHF being in its infancy period. However, the year 2015 witnessed a sharp rise in funding generated by PCHF. Moreover, apart from the years 2016 and 2017, PCHF managed to generate more funds to treat CHD patients than the patients’ own contributions. In fact, PCHF funds generation has been witnessing an upward trend ever since its inception, with the year 2019 witnessing the highest ever fund generation by PCHF to help treat CHD patients.

Average amount spent on operations against each age group according to the number of days spent in hospitals:

This chart reveals information about the amount spent on operation on different age groups and the number of days they spent in hospitals. All the figures exhibited in the chart are in thousands of rupees.

Page 22 It is clear from the chart that the average expense on operations of CHD patients increased with an increase in the number of days they spent in hospitals. Hence, average total expense is directly proportional to the number of days spent in hospitals by patients for their treatment. Another insight derived from this chart is that the age group incurring the highest average expense on operations is adults, depicted by the colour red. Regardless of whether adult patients spent 1 day at the hospital, 2-5 days, 6-10 days, 11-15 days, or more than 15 days, the average amount spent on their operations is the highest.

Main illnesses:

This chart exhibits total recorded data of patients against a set of 18 different CHDs since 2011. The figures against each illness represent the total number of patients diagnosed with the respective illness. Among all these illnesses, five stand out with the most number of patients having been diagnosed with them. These are namely VSD, TOF, TGA, PDA, and ASD. They are highlighted in red colour.

Ventricular septal defect (VSD) is basically a hole in the heart. It is also a very common CHD. This can also be witnessed in the figures projected in the chart above, whereby 801 of all the patients’ registered with PCHF were diag- nosed with it.

Tetralogy of Fallot (TOF) is a cardiac oddity, which, as the name suggests, refers to a combination of four related heart defects that commonly occur together. This is the second most common illness found among registered patients – accounting for 659 patients.

Page 23 ASD, short for Atrial septal defect, is a hole in the wall (septum) between the two upper chambers of the heart (atria). This condition is also congenital. By far, it is the third most common illness among patients registered with the PCHF, amounting to 341.

TGA, or Transposition of Great Arteries is another serious CHD, whereby the two main arteries leaving the heart are reversed (transposed). Accord- ing to PCHF’s records, 281 patients have been diagnosed with TGA so far.

PDA, short for Patent Ductus Arteriosus is a persistent opening between the two major blood vessels leading from the heart. The opening is a normal phenomenon in a baby’s circulatory system before birth, provided it close shortly after birth. However, if that does not happen, the baby suffers from PDA. It is also by far the fifth most common illness among recorded patients with PCHF. They amount to 179.

Frequency of main illnesses in operated patients:

This graph depicts total number of operations funded by the PCHF in terms of the frequency for all illnesses requiring operations. Among all operating procedures carried out under the care of PCHF to date, the most frequent illness doctors came across was VSD, followed by TOF, ASD, TGA, and PDA. Short explanations of all the mentioned illnesses in the explanation to the previous graph. The five illnesses have been highlighted in red colour in the graph in order to distinguish them from the other, less common illness- es operated on by the doctors as per PCHF’s data. These five illnesses have been highlighted in red colour in the graph in order to distinguish them from the other, less common illnesses operated on by the doctors as per PCHF’s data.

Page 24 Average amount spent for treating 5 major illnesses according to number of days spent in hospital:

This graph here depicts the average amount spent for the treatment of each of the five major illnesses i.e. ASD, PDA, TGA, TOF, and VSD, under PCHF’s care. The figures exhibited in the graph are in thousands of rupees. Segregation has been carried out in terms of the number of days spent at the hospital for treatment of each of the five stated illnesses. As such, aver- age expenditure on operations of the mentioned illnesses is exhibited for 1 day spent at the hospital for the treatment, 2-5 days, 6-10 days, 11-15 days, more than 15 days, and 0 days. For instance, the average amount spent on the treatment of ASD is Rs. 316,000 if the patient spends 1 night at the hospital. On the other hand, if the patient spends between 6 to 10 days at the hospital for treatment of ASD, the average amount spent on his/her treatment is Rs. 344,000. Maximum amount spent on any patient for treating 5 major illnesses according to number of days spent in hospital:

As the previous graph exhibited average amount spent on any patient for treating any of the 5 major illnesses conditional to the number of days spent at the hospital, so this graph exhibits the maximum amount spent on any patient for treating any of the 5 major illnesses conditional to the number of days spent at the hospital. The figures exhibited in the graph are in thousands of rupees. Each of the 5 major illnesses i.e. ASD, PDA, TGA, TOF, and VSD are depicted by the colours red, blue, green, yellow, and purple respectively. For instance, the maximum amount spent on the treatment of TGA by PCHF whereby the patient spent more than 15 days at the hospital is Rs. 2,044,000. Whereas the average amount spent on the treatment of TGA by PCHF under the same conditions is Rs. 699,000, as exhibited in the previous graph.

Page 25 Success rate of operations: The following table showcases the success rate of surgical procedures carried out by the PCHF on CHD patients across all four provinces i.e. Sindh, Khyber Pakhtunkhwa, Punjab and Balochistan, the Federally Administered Tribal Areas (FATA), Azad Kashmir, and the overall country. A graphical representation of this data is exhibited below as well.

Success Rate of operations in Khyber Success Rate of operations in Pakhtunkhwa Balouchitan

Success Rate of operations in Punjab Success Rate of operations in Sindh

Success Rate of operations in Azad Success Rate of operations in FATA Kashmir

Overall Success Rate

Page 26 Number of surgeries carried out by respective hospitals:

This graph represents all the hospitals which have cooperated with PCHF over the years with regard to executing surgeries on CHD patients. Among all the projected 14 hospitals, Ittefaq Hospital; Lahore, and PCHF – UoLTH Cardiac Care Unit; Lahore offered the greatest support in terms of carrying out surgeries. Ittefaq Hospital, to this date, has carried out 1,586 surgeries, whereas PCHF – UoLTH Cardiac Care Unit has carried out 306 surgeries. Both the hospitals have been represented with distinguishing red colour. Top 25 cities in terms of highest number of patients:

Since its inception, the PCHF has extended its services to more than 150 cities across Pakistan. This graph exhibits top 25 cities with themost number of CHD patients utilizing PCHF’s help. Even among these 25 cities, Lahore is house to 550 PCHF patients, which are morethan patients from the next 4 cities combined. Similarly, Peshawar is ranked 7th and Karachi is ranked 18th in terms of having the most number of patients utilizing PCHF’s aid.

Page 27 Data represented in blue depict patients from each country whose opera- tional procedures were catered for entirely by the PCHF. Data in orange depicts registered patients, whereas data in gray depicts patients who bore all the surgical expenses themselves. Distribution of 25 cities with most patients of 5 major illnesses:

The above graph depicts a tabular rundown of the top 25 cities with the most number of patients of the 5 major CHD illnesses, namely ASD, PDA, TGA, TOF, and VSD. The illnesses have been distinguished from each other in the graph through the use of different colours, with ASD in purple, PDA in yellow, TGA in pink, TOF in blue and VSD depicted in red. Each of these cities carries the highest number of patients of the top 5 illnesses according to PCHF data. Among them, the most frequent CHD in patients’ diagnosis of all these cities is VSD.

Names of Major Illnesses

VSD Ventricular Septal Defect

TOF Tetralogy of Fallout

ASD Atrial Septal Defect

TGA Transposition of Great Arteries

PDA Patent Ductus Arteriosus

Page 28 How To Donate Donations Bank A/C # IBAN Branch Habib Bank Ltd. 24447106489603 PK93HABB0024447106489603 Liberty Branch, Lahore Faysal Bank Ltd. 3048301900220666 PK31FAYS3048301900220666 I8 Markaz, Islamabad Bank Islami 201100154070002 PK47BKIP0201100154070002 PECO Road, Lahore Sindh Bank Ltd. 06705135501000 PK56SIND0006705135501000 Wapda Town, Lahore Tameer Bank 151058003636001 PK58TMFB0151058003636001 Garden Town, Lahore

Zakat Bank A/C # IBAN Branch Habib Bank Ltd. 24447106489403 PK61HABB0024447106489403 Liberty Branch, Lahore Faysal Bank Ltd. 3048301900220583 PK41FAYS3048301900220583 I8 Markaz, Islamabad Bank Islami 201100154070001 PK74BKIP0201100154070001 PECO Road, Lahore Sindh Bank Ltd. 06705135501002 PK02SIND0006705135501002 Wapda Town, Lahore

Hospital Construction Bank A/C # IBAN Branch Habib Bank Ltd. 24447106489703 PK12HABB0024447106489703 Liberty Branch, Lahore Faysal Bank Ltd. 3048301900220584 PK14FAYS3048301900220584 I8 Markaz, Islamabad Sindh Bank Ltd. 06705135501001 PK29SIND0006705135501001 Wapda Town, Lahore

Foundation Charity Bank A/C # IBAN Branch Meezan Bank Ltd. 02470104470539 PK25MEZN0002470104470539 Johar Town, Lahore Faysal Bank Ltd. 3048301900228183 PK93FAYS3048301900228183 I8 Markaz, Islamabad Bank Islami 201100154070003 PK20BKIP0201100154070003 PECO Road, Lahore

Contact Info

[email protected] [email protected] +92 3177951113 (021) 111 792 743 House# 342, Block D, Johar Town, B-701 702, 7th Floor, Lakson Lahore Square,Civil Lines, Karachi

Page 29 #1LakhPakistani4Misbah

Misbah-ul-haq Thank you to all my family, friends & well wishers for supporting me throughout my career. And especially now in my @secondinnings as well. We need all your support and prayers in building Pakistan’s first Children’s Heart Hospital.#1LakhPakistani4Misbah @CHDHospital #Donatenow

Zohaib Hussain I have joined @captainmisbahpk & @CHDHospital’s call to support the construction of dedicated Children’s Heart Hospital and Research Institute. #1LakhPakistani4Misbah Request everyone to join this noble cause! Azhar Ali Proud to be part of @captainmisbahpk’s second innings, building Pakistan’s first dedicated Children’s Heart Hospital and Research Institute. We need 100,000 BIG HEARTS to help these little HEART warriors! Come and join us in this noble cause.

Muhammad Amir I am proud to be with @captainmisbahpk in the making of Children’s Heart Hospital in Pakistan.

Muhammad Hafeez I just joined @captainmisbahpk’s appeal for 100,000 Pakistanis to support his efforts to build Pakistan’s first dedicated Children’s Heart Hospital and Research Institute. Help us so that we can help these little heart warriors.

Shadab Khan Be a HEARTBEAT for all these children being born with congenital heart disease every year, join me and @captainmisbahpk in this noble cause of building Pakistan’s first dedicat- ed Children’s Heart Hospital and Research Institute.

Shan Masood Proud to be part of @captainmisbahpk’s second innings, building Pakistan’s first dedicated Children’s Heart Hospital and Research Institute. We need 100,000 BIG HEARTS to help these little HEART warriors! Come and join us in this noble cause.

Sarfaraz Ahmed I fully support @captainmisbahpk in his efforts to build Pakistan’s first dedicated Children’s Heart Hospital and Research Institute. We need your support too.#1LakhPaki- stani4Misbah @CHDHospital

Shoaib Malik I am proud to be with @captainmisbahpk in the making of Children’s Heart Hospital in Pakistan.

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