A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT
A spectrum disorder Special educational needs Life with autism A condition that affects How a school environment Getting the support you people in different ways can enhance development need to live independently
No. 4 / April ’13 AUTISM
WORLD AUTISM AWARENESS DAY TODAY SHOW YOUR SUPPORT CREATING A BETTER FUTURE
Anna Kennedy OBE is mother to two autistic boys and campaigns for better awareness, schooling and support for those aff ected by autism
Childhood autism Raising the profi le Understanding the Why celebrities are condition from a lining up to support parent’s perspective autism awareness PHOTO: ANNA KENNEDY 2 · APRIL 2013 A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT CHALLENGES Autism is much more common than most people think with more than half a million people living with the disability — about one in a hundred people, says Mark Lever, CEO, National Autistic Society. CONTRIBUTORS
Putting autism on the We make our readers succeed! AUTISM, 4TH EDITION, APRIL 2013 Managing Director: Chris Emberson Editorial and Production Manager: Faye Godfrey Business Developer: Lee Harrison Responsible for this issue: agenda for 2013 Project Manager: Talia Levine Phone: 020 7665 4410 f you include their fam- autism community is to contest the campaign, which led to the 2009 Au- E-mail: [email protected] ilies, autism touch- false and the damaging and to show tism Act: the fi rst UK piece of disa- Distributed with: The Independent es the lives of over two that whilst autism can be challeng- bility-specific legislation. Along Print: The Independent million people in the ing, with the right support at the with its proposals for SEN educa- Mediaplanet contact information: Phone: 0207 665 4400 UK today. And it doesn’t right time, people with the condi- tion, the government has on its Fax: 0207 665 4419 I discriminate — it af- tion are able to lead full and reward- agenda for 2013 a review of the Adult E-mail: [email protected] fects people no matter ing lives. That’s why we are delight- Autism Strategy which came about With thanks to: what their social background, sexu- ed to be working again with Media- as a result of this landmark piece al orientation or gender. planet on this special report to mark of legislation. We’ll be campaign- Yet, despite all the lives that autism World Autism Awareness Day. ing hard to ensure that the voices of touches in every corner of the coun- World Autism Awareness Day is an Mark Lever people with autism are heard. CEO, National Autistic Society try, myths about what it is and how it opportunity for the autism commu- aff ects people still abound. Every day, nity to come together and show the with autism are able to lead rela- Working together my organisation hears from people world the reality of the condition. tively ‘everyday’ lives but autism This year is going to be another with autism and their families of the This report covers the vast array of can often be a very serious disabili- busy one for the autism com- misconceptions that they face and work that the community takes on ty requiring a lifetime of specialist munity and we hope that you fi nd the struggles that result. We’ve come for and with people with autism. support. What most people with this supplement informative and a long way since the days when peo- From tackling bullying to prepar- autism have in common, however, helpful. We also hope you fi nd what ple with autism were labelled as ‘psy- ing young people for the transition are diffi culties with social interac- we have to say inspirational — there chotic’ but it’s clear that there is still to adult life, we are committed to en- tion and communication. This can are many good people doing good work to be done in challenging autism suring the best possible outcomes make everyday life confusing and work for autism up and down the stereotypes and raising awareness of for the people that we serve. disorientating, and can lead to peo- country but we need the support of what people with autism can achieve ple feeling alone and ignored or the wider community. Together, we and what they are capable of. Individual needs struggling to have their needs met. can break down barriers and ensure Find Mediaplanet UK on: Autism is a spectrum condition, The fundamental right of peo- that autism remains on the agenda. World Autism Awareness Day meaning that it aff ects diff er- ple with autism to have their needs We hope you will join us in helping The role of the National Autis- ent people, be they children or adults, met and to receive the right support more people with autism lead the Mediaplanet takes full responsibility for tic Society and others in the in different ways. Some people was one of the drivers behind our life they choose. the contents of this supplement A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT APRIL 2013 · 3 COMMERCIAL FEATURE One size doesn’t fi t a l l
■ Sue McLean, Director dream job, and for many people, it they undertake to influence local of Care Services and can simply be about creating the and national government policy. Outcomes at national social right environment which reflects It is only by collaborating with care charity, Community their needs and enables them to key academics, care professionals Integrated Care, argues that feel happier and more fulfilled in and sector bodies, that we can be all autism care providers their everyday lives. sure we are really delivering the have a responsibility to Whatever their aim, we ensure most progressive services we can. deliver services that are that the people we support are Ultimately, providing the best truly built around the needs, empowered to achieve their possible support for people with aspirations and potential of ambitions, make their own autism relies on providers seeing, the people they support. choices, maximise their skills and and helping realise, the potential ultimately, enjoy full lives which of every person they support.
Sue McLean are right for them as individuals. If providers think creatively, Director of Care But we don’t work in isolation. treat people as individuals and Services and Outcomes, We know that there are many act with ambition, they can truly Community other organisations out there transform the lives of people with Integrated Care who have distinct and specialist autism. expertise to offer us, and we are committed to seeking out, and being receptive to, innovation At Community Integrated Care from new sources. we support many adults and FIND OUT MORE children who have autistic Improving support spectrum conditions, including Community Integrated Care For more information on those who don’t yet have a formal enjoys successful academic Community Integrated Care diagnosis. We deliver support in partnerships with organisations and its services for people many different ways and in lots such as the National Centre for with autistic spectrum Karl Harry, 25, has been supported by Community Integrated Care to become a of different settings, but the one successful photographer, with his photographs appearing in newspapers and magazines. Autism Studies at Strathclyde conditions: constant to all of our care is our PHOTO: WWW.C-I-C.CO.UK University and the University belief that every person with of Cumbria, whose students ■ Visit: autism has their own individual with the people we support, their how the support we deliver will have helped shape, influence www.c-i-c.co.uk/autism abilities and aspirations, and families and carers, as well as help them achieve these. and improve the support we has the right to receive support other professionals and agencies, For some people, this may provide. We have also built strong ■ Email: which is as unique as they are. to create services specifically mean taking their first step into links with the National Autistic [email protected] The foundation to achieving tailored to each person’s needs. This independence by moving into Society, working with them to this always begins with eff ective involves identifying the outcomes their own home, whilst others champion autism awareness and ■ Call: support planning. We work closely that are right for them, and plotting may be looking to find their support the important research 0845 543 9911
We believe in potential. Community Integrated Care’s “I’ve found my dream job!” Autism Services Matthew, CIC Vocational We are one of the UK’s leading Our services include: Support Service. health and social care charities. U Supported Living We deliver a wide range of U Residential Care specialist support services to U Respite Services adults and children with needs U Home Care across the autism spectrum, U Community Support supporting them to live full, U Supported Employment happy and independent lives. U Transitional Planning 0845 543 9911 www.c-i-c.co.uk 4 · APRIL 2013 A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT NEWS UNDERSTANDING THE SPECTRUM
■ Question: Why is diagnosing The autism spectrum Researchers agree that a timely di- autism challenging, yet so Autism is a spectrum condition. agnosis is crucial if children and important? This means that people with autism families are to access appropriate ■ Answer: Autism is difficult share certain characteristics but are support as early as possible. to diagnose because it affects highly individual in how the condi- This is important because, al- people in various ways. But tion impacts them. Some live rela- though we don’t know what caus- early diagnosis is key to timely tively independent lives, whereas es autism, and there is currently no support and good quality of life. others face additional challenges, in- identified cure for it, with early in- cluding learning disabilities, which tervention and quality support, in- Affecting one in 100 people in the affect them so profoundly that they dividuals with autism can learn, UK, autism is currently diagnosed need lifelong specialist support. make progress and achieve. as a lifelong development disability Asperger’s syndrome lies at the characterised by difficulties in the milder end of the spectrum. It gen- Support is available way a person communicates and ex- erally manifests with fewer speech There is support available to indi- periences the world around them. development problems and learning viduals with autism and their fam- Some people with autism may disabilities. Many people with As- ilies, from different education and have problems speaking and under- perger’s syndrome show average or healthcare professionals. Parents standing tone of voice, jokes or sar- above-average intelligence. and family members may bene- casm. They may be unable to make fit from sharing their experience sense of what others say, without Early diagnosis is key with others in the same situation, the help of pictures or signs. As autism affects people in differ- through online, forums and local Some have difficulties recog- ent ways and to varying degrees, community support groups. They nising people’s feelings, or know- making an accurate diagnosis can can attend training or workshops ing how to behave socially, such as be difficult, especially if other medi- to learn how to best support their where to stand in proximity to an- cal conditions — such as dyslexia or loved one with autism. other person and when to speak attention deficit hyperactivity dis- People with autism can receive loudly or quietly. order (ADHD) — are also present. educational help, access to sup- This can make it problemat- ported employment and assistance Katy Lee ic for some people with autism Senior behaviour with practical matters, such as to have friendships and relation- analyst, Ambitious managing money or accessing ben- about Autism ships. Some people with autism efits they may be entitled to. exhibit repetitive behaviours such as rocking, twirling and flap- LORENA TONARELLI ping hands. [email protected] A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT APRIL 2013 · 5
Finding the right support is imperative to development
■ Question: How do you cope the ability to fi lter environmental ing with Brainwave Alex has learned if your child is diagnosed with information, Alex would fi nd col- to read and talk. “Because of this, Alex autism? ours and sounds distressing. Isola- has access to education, which means ■ Answer: Get support from tion was a problem, as other chil- she has potential and can achieve in- charity organisations and your dren wouldn’t play with her. Then dependence — she has a future.” school, talk with other parents and we heard about the charity Brain- be positive, says mum of eight- wave, and things changed.” School helps year-old Alex, Susan Fairchild. Brainwave helps children with A supportive school is crucial. Alex autism and their families since attends one for children with au- “I knew something was wrong from 1982. Its chief executive, Phil Edge, tism, where she found friends and is when Alex was 18 months old. I am says: “We help with diffi culties in- involved in educational and physical a scientist and could see that she volved with attention and con- activities that help her improve. had the typical signs of autism. She centration, listening and memo- “We receive regular feedback from would scream, avoid eye contact and ry skills, body awareness, as well the teachers, which is very impor- just wouldn’t follow the usual devel- as perceptual skills and sensory tant,” says her mum. “And I made a opment path. But the doctors were awareness techniques among oth- few friends myself. It’s really nice to dismissive and Alex didn’t get diag- ers. Our therapy team has helped have this kind of support. You can nosed until she was three years old.” hundreds of children achieve ma- talk about the problems you have, jor developmental milestones.” but also share ideas and tips about Get support Alex is one of these children. Her best ways to cope with autism.” “It was hard at fi rst. We had no sup- mum says: “We went there, and they port and I couldn’t see any fu- performed exercises with Alex de- Be positive ture. Because au- signed specifi cally for her problems. “I would recommend other parents tism aff ects One day they rolled her in a blanket — to make sure they get a diagnosis as she was fi ve and had never spoken be- early as possible, because this is the fore. Her head stopped rolling around, single, most important step to fi nd she looked at me and said: ‘Mummy.’” the right support. “Autism is such a sensory condi- Significant changes tion that if you can get your child “After that, Alex showed promising calmer and focused, then their learn- signs of development. She stopped ing begins. It may seem hard at times, jumping off the furniture and put- but being positive is important, for UNDERSTANDING AUTISM Autism affects people ting objects in her mouth. She there is help out there, and each day in different ways so it is sleeps better and can walk hold- you will see improvements.” important to know the different ways of managing it ing my hand. She can com- PHOTOS: THE DISABILITIES TRUST, Susan Fairchild and eight-year-old Alex who municate her needs and con- LORENA TONARELLI BRAINWAVE, RUSKIN MILL TRUST has autism centrate longer. And since be- [email protected]
Specialist autism services 5-25 years
Specialist day and residential provision for young people with autism, learning difficulties and complex needs. Prior’s Court School Developing independence and life skills. Day, 38, 44 & 52 week specialist autism education 5-19 years. Prior’s Court Young Adult Provision A transitional step towards a more inclusive life. 52 week supportive living & learning1-25 years. Prior’s Court Training & Development Autism training for practitioners and parents. Includes 5 day TEACCH and 3 day Structured Teaching. For further details, visits and training dates please visit www.priorscourt.org.uk or email: [email protected]
Prior’s Court School, Hermitage, Thatcham, Berkshire, RG18 9NU Registered charity no 1070227 6 · APRIL 2013 A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT NEWS ENCOURAGING CHILDREN TO Facilitating learning LEARN AND PROGRESS WITHIN and development THEIR OWN BOUNDARIES through education One in five children and and progress of every pupil in their Pauline Tofts supports are not listened to and everyone is young people in our schools class. For this to happen we need to children with severe a stranger. But, when they arrive at are identified with special ensure that all teachers have the learning disabilities at our school, they realise that staff educational needs (SEN), training that enables them to iden- Lakeside School, Welwyn can speak their same language, 60 per cent of which are tify and understand the needs of the Garden City, Hertfordshire. so learning takes place and their in mainstream schools. child and offer strategies and inter- She says: “During my career, wellbeing improves. Lorraine Petersen OBE, CEO ventions to support them. I decided to do something “We had a very withdrawn pu- of Nasen, discusses the role I felt would make a real pil with autism, who turned in- of a SEN teacher. ■ What should parents expect difference to our pupils and to a calmer, confident, happy and from the SEN teacher? facilitate their learning.” sociable young person, who en- ■ What is the role of an SEN teacher The school should communi- joys belonging to a group. This and what training is required? ! cate with the parents about “My coordinator training was a change has had a knock-on effect The role will be to teach all any issues including good pro- very personal journey. I worked on all staff working with her. They ! pupils at the level of their Lorraine Petersen OBE gress. Children in Special Schools with a special little girl called Boo. became more understanding of CEO, Nasen ability. Using a variety of strategies are transported to school, often on The most important thing she her communication needs, and and interventions plan and deliver Special Educational Needs Co-or- very long journeys. This means that taught me was to allow myself to more positive about what she can the curriculum, monitor progress, dinator (SENCO) and if new to role schools do not have direct access to be drawn into her world, and to en- achieve in the future.” carry out assessments and work since 2008 they must undertake the parents in the same way they may joy the conversation that it brings. with additional support staff to National Award for SEN Co-ordina- have if parents take their children And this is what I have been doing Highly rewarding meet the individual needs of every tion which is at Masters Level. to school. Home-school diaries are a since then, with pupils and staff.” “Through my work, in a support- pupil in their class/group. great communication tool between ive environment, I experience An SEN teacher supporting a pu- ■ Why choose a career in the teacher and the home. This can Speaking the same language the most rewarding feelings I pil with autism will depend greatly SEN teaching? support pupils with autism as mes- “Over a third of the children who have ever had. And I feel privi- on the needs of an individual pupil. It is the most rewarding job in sages can be sent about the pupil’s come to Lakeside have autism. leged to witness moments of ‘awe It may be supporting speech, lan- ! the world when you see a young well-being and any challenging Many of them have difficulties and wonder’ among staff and par- guage and communication or sup- person learning and making progress situations that may have arisen at communicating, or communicate ents when pupils start communi- porting pupil behaviour. when they have difficulties and disa- home or at school. differently, and may feel totally cating and interact. I can tell by There are no specific qualifica- bilities. By supporting children with isolated on an island, where they their faces that adults and chil- tions necessary to be a SEN teacher. SEN they can learn and progress with- ■ Is there legal advice available for dren have turned a corner of un- Pauline Tofts However, they must have a quali- in their own boundaries. families if there is a problem within Lakeside School derstanding that will be pivotal in fied teacher status. There are a num- a school setting? the pupils’ learning, for life.” ber of Masters level qualifications ■ How important is the quality Parents can get support from that can be gained as post gradu- of teaching? ! independent organisations or LORENA TONARELLI ate study in SEN and disability. Eve- Every teacher is responsible and via local authorities if there are any [email protected] ry mainstream school must have a ! accountable for the learning issues within the school.
www.intensiveinteraction.co.uk SENlegal MAKE A STATEMENT Intensive Interaction helps people who WITH SEN LEGAL Autism Advance have autism to learn some very basic but Special Educational Needs Specialist provision for Legal Service for Children very important things: learners with autism. Intensive Interaction Institute Working with you to achieve Help for you and your family eye contacts your life goals. Legal Guidance on learning to connect Assessments facial expressions Statementing Social Services Provision non-verbal communication Core Assessments & Care Plans vocalisations Appeals Tribunals turn-taking School Admissions/Exclusions enjoying being with others Deputyship Orders Access to Work interacting concentrating & attending Affordable fees Find out more today Realise the unimagined you www.senlegal.co.uk Courses, information and publications at: 01623 499186 Tel: 01284 723 952 www.intensiveinteraction.co.uk www.portland.ac.uk Fax: 01284 702 008 Email: [email protected] Registered Charity 214339 Combining expertise, driving excellence in SEN-D
Autistic Spectrum Conditions (ASC) touch the lives of over 200 million people every day. For further information contact our SEN-D Division today on Although regarded as incurable, with the right support at the right time Capita Education Resourcing believes we can make the world of difference to people’s lives. Whether required for specialist 1:1 teaching, supporting transition or within a specialist AUTISM environment, we aim to not only to help young people grow, but also to develop those adults who are committed to making this difference day by day. 0800 731 6873 Our teachers and support workers have collaborated with Special Education providers for the last 15 years to provide the schooling parents believe would best support their children. Setting the standard in SEN-D recruitment With additional professional development during their employment through Capita Education Resourcing, we ensure candidates: -
< Tailor the curriculum to meet the needs of the individuals; < Encourage pupils to apply their learning in different situations; < Are developed in the use of technology which is particularly effective for pupils with Autism; Recently announced as a Top 10 Recruitment Agency for < Have the training to manage challenging behaviours. Quality of Service and Candidate Care by Jobsite, why not give Capita Education Resourcing the chance to fill your next Finding the best specialist talent to meet the needs of pupils with Autism is vital to give the children the best start in life and here at Capita Education Resourcing we ensure our breed of vacancy or find your next role and let us know if you agree! teachers and support staff are employed by desire, and not through chance. WINNER Top 10 Recruitment www.capitaeducation.co.uk Agency
Creating positive futures for special people
Hillcrest is dedicated to helping children and young adults devel- Anna Kennedy – believing in RSWKHVNLOOVDQGFRQÀGHQFHQHFHVVDU\WRKHOSWKHPIXOÀOWKHLUSR- a better future for those with ASC WHQWLDO2XUVWDIIKDYHJUHDWVNLOODQGFRPPLWPHQWLQGHOLYHULQJLQ- :KHQKHUWZRVRQVZHUHGLDJQRVHGZLWKDXWLVPEDFNLQ $QQD.HQQHG\UHVSRQG- dividualised and child centred approaches to care and education, HGLQDUHPDUNDEOHZD\E\VLPSO\QRWDFFHSWLQJWKDWKHUFKLOGUHQVKRXOGEHSODFHGDW ZLWKWKHHPSKDVLVRQORQJWHUPJRDOVDQGSODQQLQJIRUWKHIXWXUH WKHEDFNRIWKHFODVVDQGHIIHFWLYHO\IRUJRWWHQEHFDXVHWKH\ZHUHWRRGLIÀFXOWWRWHDFK 6KHEDWWOHGVRKDUGWKDWVKHHYHQWXDOO\KDGWRFUHDWHKHURZQVSHFLDOVFKRRO+LOO- +LOOFUHVW$XWLVP6HUYLFHVRIIHUVVSHFLDOLVWHGXFDWLRQIRUFKLOGUHQ LQJGRQ0DQRUZKLFKZDVWREHWKHVWDUWRIDJUHDWHGXFDWLRQDOLQLWLDWLYHIRUDXWLVWLF ZLWKDQDXWLVWLFVSHFWUXPFRQGLWLRQ $6& DQGIRULQGLYLGXDOVZLWK FKLOGUHQE\+LOOFUHVW$QQDKDVFRQWLQXHGWRÀJKWIRUDEHWWHUIXWXUHIRUHYHU\RQH learning disabilities. We also provide residential care and day ZLWKDXWLVPDQGWKUHH\HDUVDJRVHWXS$QQD.HQQHG\2QOLQHZKHUHSDUHQWV SODFHVDWDVSHFLDOLVWFROOHJHIRUDGXOWVZLWK$6&2XUVSHFLDOLVW IDPLOLHVDQGFDUHUVFDQJHWKHOSDQGSUDFWLFDOVXSSRUWWRLPSURYHWKHLUOLYHV schools are: $QQD·VHQWKXVLDVPDQGGULYHLVVHHQLQWKHQXPEHUDQGYDULHW\RIHYHQWV Part of the Hillcrest Family DQGLQLWLDWLYHVVKHFUHDWHVWRUDLVHIXQGVIRUWKHFKDULW\ Autism’s Got Talent Hillingdon Manor – an independ- 2Q6DWXUGD\WK0D\DWWKH0HUPDLG7KHDWUH/RQGRQ$QQD.HQQHG\ HQW VSHFLDO VFKRRO FDWHULQJ IRU XS WR 2QOLQHSUHVHQWVZLWK3LQHDSSOH3HUIRUPLQJ$UWV¶$XWLVP·V*RW7DOHQW· FKLOGUHQ DJHG EHWZHHQ DQG D KDOI DQG 7KHHYHQWZLOOEULQJWRJHWKHUDGLYHUVHJURXSRISHRSOHZKRDUHDOORQWKH \HDUVRIDJH7KHVFKRROLVEDVHGLQWKH $XWLVWLF6SHFWUXPWRFRPHDQGVKRZHYHU\RQHMXVWKRZWDOHQWHGWKH\DUH /RQGRQ%RURXJKRI+LOOLQJGRQDQGVXSSRUWV Contact details to book tickets surrounding Local Authority areas. All pupils [email protected] tel 01895 619734 DWWKHVFKRROKDYHDGLDJQRVLVRIDQ$6&$ ZLGHUDQJHRIDELOLW\OHYHOVPD\EHH[SHFWHG Dance the day away on April 26th DORQJZLWKDGLYHUVLW\RIFKDOOHQJLQJDWWULE- 2Q$SULOWK$QQD.HQQHG\ZDQWVHYHU\RQHWRMRLQLQWKH utes. event and hold a dance literally anywhere! ,WFRXOGEHDORWRIIXQDQGLI\RXUDLVHPRQH\IRUDXWLVPLQWKH 1HZLQQRWLYHZHEVLWHFRPLQJVRRQ process it will be very worthwhile as well. www.hillingdonmanorschool.org.uk /RWVRISHRSOHKDYHEHHQLQWRXFKZLWKXVWRVD\WKH\GLGQ·WJHWWKH Baston House – situated in a beauti- FKDQFHWRZDWFK¶7HVFR0XP2I7KH Supporting children, young people and adults with autistic spectrum conditions through specialist care pathways Adam still comes home twice My transition has been less This is a once in a lifetime Community Support weekly overnight and we have stressful than others. I have opportunity, and I am ready Services settled into a lovely routine that been given choices as to what to spread my wings and live For people aged 18+ keeps us all happy. Contact and I want my flat to look like. semi-independently. I am Bredon House - support is excellent as always (Young person transitioning optimistic about the entire Worcestershire from school and residential staff. from AALPS Midlands to thing, I am so happy. Applegate House - Bredon House) (Young person, Bredon House) (Parent, Barton School) North Lincolnshire Online for free Options Group’s specialist services and care pathways Specialist Schools AALPS Services Adult Residential Services For young people aged 8-19 Transitions Services for For people aged 18+ starting people aged 16+ Watermill House - Barton School - AALPS North - North Lincolnshire North Lincolnshire North Lincolnshire The Thicket - 3rd April 2013 Higford School - AALPS Midlands - West Yorkshire Shropshire Worcestershire Watermill Lodge opening in Kinsale School - Flintshire AALPS Cymru - Flintshire North Lincolnshire May 2013! For further information about the specialist services we provide please call For more information visit 08442 487187, e-mail [email protected]. www.AmbitiousAboutAutism.org.uk www.optionsgroup.co.uk. A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT APRIL 2013 · 9 NEWS Enhancing vocational skills and independence “Supporting young people in London branches of PAUL Bak- with autism to transition into ery for an hour a week. A helping hand for young adults employment is important One pupil, William (pictured), because we believe that each really enjoys his work experience level of support needed by some- o er the same courses as anyone organisations, for example the Na- person has the ability and right and has progressed to working one with autism who embarks on else, but with the added benefi t of tional Autistic Society, which ad- to make informed choices two shifts a week. He is predomi- a chosen academic or career path. specialist support, enabling stu- vise on employment, and o er po- about their future,” says Amy nantly independent and travels But there is help. dents to gain qualifi cations and tential employers training in the Temple, vocational specialist on public transport to PAUL Bak- Howes says: “Specialist schools, reach their full potential. recruitment and retention of peo- (catering and hospitality) at ery, prepares food and serves cus- such as Heathermount, run by The “Support in fi nding apprentice- ple with autism. Ambitious About Autism’s tomers. I worked with him for two Disabilities Trust, have education, ships is also available. In fact, some “Continued and appropriate sup- TreeHouse School. years to break down these skills training and vocational placement educational organisations provide port can have a signifi cant positive into manageable steps so the tran- programmes for young adults with apprenticeships or internships impact on the quality of life and “At TreeHouse School I support 15 sition to this real-life setting was autism aged up to 25 years. They themselves, as well as residential ac- wellbeing of young adults with au- young people with autism in Key successful. He looks forward to commodation. With support given tism, and will be cost e ective for Stages 4 and 5 to develop their vo- going to work and his confi dence Leesa Howes Specialist placement outside of college hours the young services in the long term.” cational skills on site and through and skills are developing. manager, The person can learn about housekeep- graduated work placements in Teaching young people with Disabilities Trust ing and budgeting, which enables the community. A year ago I cre- autism vocational skills helps de- them to become independent.” LORENA TONARELLI ated an employment partnership velop their independence and en- “There are also national and local [email protected] with PAUL Bakery to enhance pu- ables them to remain in and con- pils’ vocational skills by working tribute to their local community.” We helped Conor and his family to cope after he was diagnosed with autism. Transforming the lives of people and families living with autism The National Autistic Society is the leading charity supporting people with autism and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism. If you need our help or would like to support us, please get in touch today. Visit www.autism.org.uk or call our helpline on 0808 800 4104 (Mon-Fri,10am-4pm). Registered as a charity in England and Wales (269425) and in Scotland (SC039427)) 983_WAAD Supplement advert_258mm x 112mm_1pp_4 Color_FINAL ARTWORK_210313.indd 1 21/03/2013 09:36:56 10 · APRIL 2013 A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT INSIGHT Alan, 51, has an autistic spectrum condition and a moderate learning disability. His autism and associated conditions affect him in ways he finds difficult to cope with in certain areas of life. INDEPENDENT LIVING Having these diff erences has af- With support, people fected the way he interacts with with autism can often lead independent lives. others and his quality of his life in Trusts like the Ruskin the past. When he lived with other Mill Trust offer work placements to encourage people in a residential home, shar- skills and experience for ing communal areas and tasks those with autism PHOTO: RUSKIN MILL TRUST / proved diffi cult for Alan. Due to his DISABILITIES TRUST anxieties about things ‘being right’, his behaviour could sometimes be physically challenging to those around him. Eighteen months ago an individ- ualised package of support was set ‘Freedom is a feeling up for Alan, who had lived in many places before, including residential placements and warden controlled buildings, which had not worked that no amount of for him. This resulted in many stays within three diff erent assess- ment units and two diff erent res- pite placements. money can buy’ The Behaviour Support Team within Alan’s new support provid- ■ David Robinson is 33 despite having applied for many Sadly, the organisation he worked after what had been a difficult er focused on Autism training and years old and from South over the years. Until recently, he for recently had its funding cut. year. I find it extremely fulfill- put in place a person centred Pos- Ribble in Lancashire. was a part time volunteer, which David spends a lot of his spare ing as it offers me an outlet for itive Behaviour Support Plan, im- With 21 hours a week helped him to get out and about, time painting and an exhibition my feelings and emotions, and plementing strategies which aim of help from a support get some exercise, meet new peo- of his work was recently held in through my exhibitions it also to eliminate or minimise chal- worker, he is able to live ple, work as a team and acquire Chorley Library. “I began paint- enables me to bring in a small in- lenging behaviour and enhance independently. new skills and qualifications. ing as a pastime in late 2006 come in the absence of being able quality of life. to find a paid job.” This approach allows for positive He is, as he acknowledges, for- THE AUTISM ACT outcomes for individuals, and can tunate, “I think I’m lucky com- Social challenges also reduce costs. The technique al- pared to a lot of adults with au- ■ 2009 was a landmark year for the forward in some areas, progress As a spectrum disability, autism lows people to move away from tra- tism in that I am able to live inde- autism community with the passing remains very patchy. This means affects people differently but the ditional settings to personalised pendently with the help of a sup- the fi rst ever disability specifi c piece that most adults with autism are still one thing that all people have in support in the community. In re- port worker who comes in most of legislation in the shape of the not getting the support they need. common are social and commu- sponse to the Winterbourne View days through the week to help me Autism Act. And this means often very basic nication difficulties. Something report, authorities must ensure with things like cooking, cleaning ■ Through the act the government needs remain unmet – some need that David is very much aware of, this happens by 2014. and fi nances. Living by myself is was committed into publishing an help to get washed or dressed, “my condition has affected my Since Alan began being support- an important factor in my life, be- adult autism strategy in order to some need support with daily tasks ability to form friendships and re- ed in this way, there has not been cause I’ve seen what’s happened to transform services for adults with like laundry or shopping, and others lationships with people through- one incident deemed as challeng- my friends when they’re unable to autism, as well as placing specifi c need support to fi nd a job. Some out my life. I don’t think it’s a case ing behaviour. The staff team that live independently and end up in duties on local authorities and the NHS simply need someone to talk to. of ‘the more friends the better’, he personally recruited still work care. To be independent requires to achieve this. These duties included ■ Everyone with autism is different rather having quality friends who with him. They have helped Alan both free choice and responsibil- improving autism understanding and so are their needs. are there for you when you need to replace negative experiences, ity. Freedom is a feeling that no among professional, making it easier ■ The government will be reviewing them, so you can be there when which gained him a reputation, amount of money can buy.” for adults to get an autism diagnosis, the strategy and its progress this they need you.” with a more positive view that Alan and improving the support people year and the National Autistic is a friendly, happy and caring man. need to live independently and access Society will be launching a major Work life Story provided by Dimensions, a national Whilst David is able to lead a rel- employment. campaign this spring to help ensure Read more not-for-profi t support organisation for ■ people with learning disabilities and atively independent life, he has Four years on, we know that that the needs of all adults with ! on the web: autism. www.dimensions-uk.org never held down a full time job — whilst there have been steps autism are met. www.autism.org.uk Resources for Autism provide high quality practical services for children and adults with a diagnosis of autism in Greater London and the West Midlands. These include ǡǡ . All our staff are autism trained and contracted to us. Groups are differentiated by age and ability and our emphasis is on ǡ . We can help individuals join together to make the best use of their budgets and set up new groups alongside parents and carers where this is practical. For more information visitǤ ǤǤ or phone020 8458 3259 MacIntyre, a leading national charity providing education and support to children, young people and adults with disabilities and/or complex needs has established MacIntyre Academies to oversee its new education provision. MacIntyre Academies works in partnership with families, councils and aspiring schools to deliver local flexible and responsive education to children and young people with autism and/or learning difficulties through Special Academies andFree Schools committed to: Ǧ Outcome focused education and support Ǧ Ǧ For more information on this exciting new venture or to register an interest email ǀȇǀ or visit ǀǀ 12 · APRIL 2013 A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT INSPIRATION 2 HIGH PROFILE SUPPORT 1. West Ham goalkeeper Jussi Jääskeläinen is a supporter of Kennedy’s anti-bullying campaign 2. Kennedy won Tesco’s 2013 Mum of the Year award 3. Actress Kate Winslet pledged her support for Kennedy’s efforts for better awareness of autism 4. Best-selling novelist Barbara Taylor Bradford is a keen supporter of Kennedy’s work 1 3 PHOTOS: PRIVATE 4 teracting hrough Tackling bullying echnology Living with autism isn’t easy; whether as an individual with autism or as a parent, day-to- in schools day living can be challenging. ■ Question: How can we stop of Cruelty to Children (NSPCC). in the morning so they can Products and services that ca- the bullying of children with We placed the results on their write what happens during the ter for an individual’s needs can autism in our schools? website during autism week, plus day. So it’s almost a 24-hour be the difference between them ■ Answer: By raising facts and videos about bullying. curriculum.” staying at home, afraid to go awareness, offering playtime They said that, during that week, Other useful interven- out, and being able to interact activities, and having parents they had the most hits ever from tions might include week- with society. and teachers communicate schools wanting to know more. ly meetings where parents Products can help them deal effectively with each other. This shows that teachers are hun- and teachers update each with the sensory world that gry for information, so raising other on issues that need can normally overload them to awareness works.” to be addressed, as well the point of meltdown. Prod- CHANGE as informing parents ucts can help with a person’s Bullying against children with au- Activities can help immediately if inci- ability to communicate how tism is a major, widespread problem Playtime is when children with au- dents occur. they’re feeling and what they with many serious consequences. tism are the most vulnerable to being “The good thing need. Technology is also a valua- “We conducted a national sur- bullied, so running lunchtime activ- is none of these in- ble enabler for a person with au- vey through my social website two ity clubs could also help address the terventions is ex- tism to help them interact with years ago,” says Anna Kennedy OBE, problem, according to Kennedy. pensive or diffi cult the world around them. founder of the autism charity Anna “We conducted another survey to implement,” Specifically, communication Kennedy Online. “Within weeks, 900 asking mainstream schools what says Kennedy. “It’s aids such as those that sup- families with children with autism they do at playtime for children all about people port the use of PECS (Picture Ex- responded. Of these families, 61 per- with autism and what they find communicating, change Communication System) cent said that their children were be- works best. The results will give so that there is are very popular with families. ing bullied at mainstream schools, schools across the country ideas constant contact, These aids can be a great tool for and that bullying was affecting on how to help children with au- which is really those with autism to communi- their child’s confi dence, learning tism, which hopefully will inspire important. And cate eff ectively with others. and ability to make friends as well as them to act.” it’s about par- Over the years the range of their family. More than 60 percent of ents and teachers what is available to support fam- parents reported that bullying had a Effective communication ‘singing the same ilies with autism has grown in negative impact on their marriage.” “The connection between families song,’ to prevent line with increased awareness. Most worryingly, the survey’s re- and the school should be strong. It’s the child from Switched on businesses are now sults show that 73 percent of main- important that teachers listen to getting mixed becoming ‘Autism Friendly’ and stream schools do little or nothing the parents, because the latter are messages.” learning about autism so that they address the situation. the experts on their children. can better serve their customers. “There should be a home-school Lack of awareness is partly book, where the parents write what NADINE HONEYBONE the problem kind of evening the child had as Founder, The Autism Directory “After the survey, I approached the well as other relevant information. LORENA TONARELLI Registered Charity 1143855 National Society for the Prevention The book is handed to the teachers [email protected] Together for autism 5V,QUGRJŏU5RGEKCNKUV 5EJQQN%QNNGIG Making a difference YYYUVLQUGRJUETCPNGKIJUWTTG[UEJWM for people with autism spectrum conditions Matthew has autism. Prior to him joining us he was Education, Therapy and Residential a victim of bullying and had been out of mainstream Care for children and young people school for a year. At first nobody knew how to help Matthew overcome his problems with friendships up to 19 years with Autism, and understanding the world he found himself in. However, we listened. We did understand. Our moderate, complex and severe specialist teams were able to help Matthew find his voice, his confidence was restored and eventually learning difficulties across 52 weeks he returned to mainstream school. He went on to higher education, employment and became a of the year. mentor for students who’d suffered bullying at the Come and see our fantastic hands of others. He still has autism however, his facilities . Contact the school on world is now a better place to be. 01483 272449 to arrange a visit Embracing the culture of autism: The TEACCH approach Introducing the world’s smallest Delivered by former Director of Division TEACCH dedicated text-to-speech device Professor Gary Mesibov from The University of North Carolina Three day introductory workshop – 8th, 9th, and 10th July 2013 ® One day advanced course – 11th July 2013 SWIFT at Together Trust Centre, Schools Hill, Cheadle, Cheshire SK8 1JE Giving a voice To find out more please contact us to those with little or www.togethertrust.org.uk [email protected] 0161 283 4801 no ability to speak facebook.com/SupportTogetherTrust twitter.com/TogetherTrust Available now from 01954 281 210 www.toby-churchill.com ID0313 Registered charity number 209782 YWh[[ZkYWj_edikffehji_dY['.-& 031319 Start May 2013 Teachers, tutors and managers places available – gain Autism expertise as you work now and deliver vital support You want to give children and young people with autism the support they need in your setting - but how do you find the time to acquire the skills to do it? At last, a high-quality, expert-led course is available that can help you to deliver that support while minimising time out to study. The Real Training Autism Spectrum Conditions - Skills & Knowledge (30 masters credits) module equips you with the tools you need. 3 Practice-led - learn as you work 3 Identify needs early 3 Implement effective interventions 3 Recognise when a specialist is needed 3 Demonstrate pupil progress 3 Communicate effectively with parents 3 Deliver for Ofsted The course is led by leading ASC expert Dr Sue Sheppard and is part of the Real Training SEND Programme, a unique range of practice-led blended learning modules. Take modules singly or in combination and build towards a PGCert, PGDip or MEd (SEND) at your own pace. The programme is designed by Real Training and quality assured by Middlesex University. Book now at www.realtraining.co.uk/send or call Rachel or Hayley on 01273 35 80 80 to find out more 14 · APRIL 2013 A SUPPLEMENT BY MEDIAPLANET DISTRIBUTED WITHIN THE INDEPENDENT INSPIRATION CELEBRITY SUPPORTERS “As Vice Patron of The Disabilities Trust, I am proud “I’m ambitious about autism to represent Autism Spectrum Partners, the division because for 40 years I’ve worked which supports people with autism and Asperger’s in a day centre with vulnerable syndrome. The Trust has a continuum of service which includes a school and independently tailored and homeless teenagers — a residential and community-based support, with the disproportionate number being aim of empowering individuals to live their lives as on the autism spectrum. It has they choose and making the transition from child- hood to adulthood as stress-free as possible. raised my awareness of the acute When visiting services across The Disabilities need for support, opportunity and Trust, I have always been delighted and encouraged greater understanding of autism.” by what I have seen, experienced and learnt.” Gabby Logan, presenter Jon Snow, Channel 4 presenter “Try to imagine how diffi cult it must be to live in a world in which everything you see, hear and expe- “I am ambitious about rience is processed through a confusing array of fi l- ters making every moment of every day a challenge. autism as I am the father A challenge to communicate, to fi t in, to belong. That’s of a child with autism and what life is like for over half a million people living in the UK. People like my sister. Like so many others with I have seen how far a child autism, she struggles every day, bravely determined to with autism can progress fi nd her niche in the world, to fi nd a purpose and to be understood in a society whose communication, struc- with the appropriate ture and meanings are completely lost on her. The National Autistic Society provides a wide range support, time and love.” of resources to help people living with autism fulfi l these cores needs. I am proud of the work they do and Keith Duff y, actor/musician will be cycling from London to Brussels in June to raise funds to support them.” Francis Boulle, TV personality “There’s no question that awareness of autism has in- creased over the thirty odd years I’ve been involved “Any child can be bullied, for being too with the National Autistic Society, but the understand- tall, too clever, or for no reason at all. But ing of its symptoms and of the fact it is life-long is still children and young people with autism very poor. Without understanding there is little hope are even more vulnerable, because of the lives of those aff ected being lived in dignity and their disability can aff ect the way they with purpose. Our neuro-typical world can be very in- communicate and respond. It is crucial tolerant of diff erence, and it will take fi rm action by all that teachers and other staff recognise those in positions of power to ensure that this changes that vulnerability, and make sure the radically in my lifetime.” whole school community unites to stamp out bullying wherever it occurs.” Jane Asher, President, National Autistic Society Esther Rantzen, presenter “I am delighted to open Baston House “People with autism don’t have a visible disability School. I have great admiration for but that doesn’t mean they don’t need and deserve Anna Kennedy’s determination our help, starting with stamping out the bigotry that to help people aff ected by autism excludes people with disabilities from mainstream and I’m pleased to celebrate this life. I don’t like the terms ‘normal’ or ‘abnormal’. I landmark opening with her.” prefer ‘ordinary’ and ‘extraordinary’. And these ex- traordinary people have so much to off er. It’s up to us Samantha Cameron offi cially opened to help them fl ourish.” Baston House School in Bromley, a school designed to help support children aff ected Kathy Lette, author and mother of by an autism spectrum condition a son with Asperger’s syndrome Are you interested in specialist fostering? Simply email your name Our 20-page and postal address to [email protected] FREE guide to claim your free guide to becoming a Credo Carer tĞĂƌĞĐƵƌƌĞŶƚůLJƌĞĐƌƵŝƟŶŐŶĞǁĨŽƐƚĞƌĐĂƌĞƌƐ across London, the South East and The Midlands, ĨŽƌĐŚŝůĚƌĞŶǁŝƚŚĐŽŵƉůĞdžŵĞĚŝĐĂůŶĞĞĚƐ͘ The Good and Bad Science of Autism Autism West Midlands has published a pioneering book about autism research. The Good and Bad Science of Autism is an easy-to-use book Residential Outreach & Information designed to introduce the reader to autism research. Care Community & Advice Care Helpline Written by geneticist Dr. Neil Walsh and neuroscientist Dr. Elisabeth Hurley, the book brings together scientific research from multiple disciplines including neuroscience, genetics and psychology. It examines the Employment Training Family validity of different areas of autism research and helps the reader to draw & Student Outreach & conclusions about the current scientific knowledge of autism. Support Short Breaks This book discusses topics such as autism and the MMR vaccine, the search for tests to diagnose autism and some of the interventions available for people with autism. The book gives readers Social & Befriending Awareness guidance on how to differentiate between good and bad science and how to interpret recent Support Projects & autism research findings. Groups Volunteering This exciting book is designed to be easily accessible. Thanks to its colour-coded pages, readers We are the leading charity in the West Midlands can choose to read either a summary of the chapter or the full text. There are also pages focusing for people affected by autism. We exist to enable on particular aspects of autism research.Finally, it provides a list of useful resources that readers can all people with autism, and those who love and access to find out more about autism science research. care for them to lead fulfilling and rewarding lives. Dr. Elisabeth Hurley, co-author of the book said “The Good and Bad Science of Autism is an easy- Visit us at www.autismwestmidlands.org.uk to-read book that we hope will introduce autism research and the science behind it to a wider audience.” Find us on Facebook: Search “Autism West Midlands” A free electronic copy can be downloaded at www.autismwestmidlands.org.uk/science. Hard copies can be purchased online at www.autismworld.co.uk. Follow us on Twitter: @autismwestmids Registered Charity Number: 517077 Registered Company Number: 1953344 (England and Wales) Understanding Autism Contact Us For Expert The Institute of Child Education & Psychology, Europe provides high quality online Advice courses and university validated diploma programmes in special educational needs and psychology. We have short CPD courses and University Accredited modules in Autism run in partnership with the National Autistic Society and Leeds Metropolitan University. Benefits to you: - Develop skills to help meet the needs of people with autism - Control when and where you study - Easily accessible online training - Quality learning assured - Moderated and facilitated by leading practitioners University Accredited Online Course with Leeds Metropolitan University Certificate HE/Advanced Diploma in Special Educational Needs Terms Commencing: April 2013 and September 2013 For Further Information or to Enrol 0208 354 7592 [email protected] W www.icepe.co.uk