Cancer Prevention and 2010-2011 Treatment Fund Annual Report OUR MISSION

The mission of the Cancer Prevention and Treatment Fund is preventing cancer, improving screening for all types of cancer, and helping patients choose the best possible treatments. MESSAGE FROM THE PRESIDENT

 We testified numerous times before the FDA, state legislatures, and the U.S. Congress urging them to remove baby bottles and food containers containing chemicals linked to cancer from our supermarket shelves, and rescind approval of a breast cancer drug that shortened rather than prolonged life, and to carefully test the safety of all medical devices, including a ht yTJ Popkin T.J. by Photo surgical mesh that was harmful to prostate cancer patients.

 We developed and disseminated the first free booklet specifically for women with ductal carcinoma in situ (DCIS).

 We developed and disemminated a companion Fast Facts on DCIS for Health In 2010 and 2011, the Cancer Prevention Professionals. and Treatment Fund had a major impact on public information, public debate, and Whether we were explaining well- public policy. Our efforts were particularly established and complicated scientific effective because of our strong focus on information to families and the medical helping patients and their families, community, or making sense of improving , and our work controversial new research on vaccines, with policy leaders across the country, medications, or toxic chemicals in toys, we including state and U.S. legislators and the scrutinized research and provided useful, White House. understandable, and unbiased information to patients, consumers, policy makers, and  We helped people across the the media. Our research and advocacy work country reduce their risk of cancer and continues to represent the interests and choose the safest and most effective needs of ordinary men, women, and treatments. children, who are often left out of policy debates and life-saving public health  Through our online cancer hotline, decisions. As always, we will continue to we helped patients decide which screening advocate for you on matters that are crucial tests and treatments were best for them, to the health and well-being of adults and and which were likely to do more harm children nationwide. than good.

 We urged the FDA to require long- term studies of safety and effectiveness for all medications, implants, and HPV vaccines, so that consumers could make Diana Zuckerman, PhD well-informed decisions for themselves and their children.

 We persuaded the federal government to improve the public’s access to information about the safety and effectiveness of specific medications and medical devices, and to strengthen the safeguards that protect patients and consumers. “I sailed through the surgery, and am thrilled – a dramatic change in course for me after discover- ing your work. My gratitude to you is beyond words.” —Harriet Lerner, psychologist and best-selling author of The Dance of Anger 02

PROGRAM AND POLICY HIGHLIGHTS

Getting the Word Out as it may seem, in some parts of our are working on a new one on DCIS. Our cancer hotline enables anyone to country, medically unnecessary obtain free information about their own mastectomies are increasing, not In 2011, we completed and disseminated personal cancer concerns by contacting decreasing. the first patient booklet specifically [email protected]. But even if you targeted to women with DCIS. We also don’t write to us, we can help you. Our Some women will undergo a mastectomy wrote and disseminated a Fast Facts on web site, www.stopcancerfund.org, because the surgery is less expensive than DCIS for Medical Professionals. These free provides free information on a wide range lumpectomy—a decision made by their materials empower women and educate of topics important to anyone who wants HMO, not by them. Some will be so physicians, so that DCIS patients will to reduce their chances of getting cancer or frightened by the word "cancer" that they better understand their treatment choices increase their chances of getting effective will make a hasty treatment decision they and be less likely to undergo unnecessary treatment. Did you know, for instance, will later, and forever, regret. Fully mastectomies. These materials were that women who breastfeed their babies informed of their options and free to supported by a generous grant from the have a lower risk of ovarian cancer, or that choose, some women will decide to have a D.C. Cancer Consortium using funds from using a sleep mask can decrease your mastectomy that is not medically the D.C. Department of Health, and also chances of getting colorectal cancer? Our necessary, but thousands more will never supported by a generous grant from the web site offers everything from even be told that equally safe—and Jacob and Hilda Blaustein Foundation. descriptions of the latest research such as sometimes safer—alternatives are “Palliative Care and Pain Management for available. The Cancer Prevention and By translating research into clear, People with Late Stage Lung Cancer” and Treatment Fund is working with everyday language and making that “What are the Alternatives to Traditional Congress, health professionals, and information widely available, we can Radiation Therapy for Breast Cancer insurance companies to ensure that reduce the number of mastectomies and Patients?” to attractive, easy-to-read patients can get second opinions, and to improve cancer treatment at the same patient booklets that explain the pros and improve the quality of care available to all time. We can reach this goal by making cons of different treatments. patients. sure that women understand their treatment options, doctors communicate Cancer Screening and Helping Breast Cancer Patients Get more clearly with their patients, insurance Treatment the Best Possible Treatment companies cover the best treatments, and doctors and patients know the best ways Working to Reduce Unnecessary There are numerous larger organizations to prevent cancer. Mastectomies focused on breast cancer issues, but we are the only one committed to preventing Prostate Cancer: Screening Risks Every year, more than 250,000 women are cancer and improving treatment. Finding Outweigh the Benefits diagnosed with breast cancer or "pre- a cure for cancer will take more time, and cancerous" conditions such as ductal meanwhile, millions of dollars are spent Prostate cancer is the #1 cancer in men in carcinoma in situ (DCIS) that may never on cancer research every year, but not the United States and the #2 cause of become cancer. DCIS and other types of enough on doing what we do: making cancer deaths for men, after lung cancer. very early breast cancer sometimes will sure that scientific evidence leads to It affects one in six men, two-thirds of go away without any treatment. improved treatments for patients. We them over the age of 65, so annual Treatment is almost always necessary, disseminated thousands of copies of our screenings would seem to be a clear however, because experts cannot yet Surgery Choices for Women with Early Stage choice for men as they get older. But predict which cancers will go away and Breast Cancer booklet to women across the there is a hot debate within the medical which will become dangerous. Even so, country. We developed a popular community: do regular screenings do experts agree that more than 75% of these Continuing Medical Education (CME) more harm than good? women do not need mastectomies if they course for Medscape to help primary care have access to other, equally safe physicians and gynecologists remain up- Screening for prostate cancer can be treatment options. Yet, as unbelievable to-date on breast cancer health issues, and performed quickly and easily in a “I’m a cancer survivor myself and love to donate to the cause as much as possible. Keep up the good work and thank you. It’s your research that has saved my life.” 03 --Shane King, Wichita, Kansas

PROGRAM AND POLICY HIGHLIGHTS physician’s office using two tests: the PSA of men over 50, men with possible unfavorable to their products. The (prostate-specific antigen) blood test and symptoms, such as blood in the urine, legislation also required the Government the digital rectal exam (DRE), a manual should be screened (or biopsied). Accountability Office (GAO) to examine exam of the prostate area. Additionally, we recommend that patients the process that allowed “substantially at higher risk—those who are overweight, equivalent” devices to be sold, even However, an infection or other minor African-American, or have a family without clinical trials or proof of safety. health problem can also elevate PSA history of prostate cancer—ask their The GAO report criticized the FDA for not levels, which tend to rise with age. In fact, doctors about screening on a regular basis, following the law, which required clinical 60% to 75% of men with high PSA levels but not necessarily every year. trials for medical devices that were life- who undergo biopsies do not have cancer. saving or life-sustaining. Now we’re Unfortunately, the biopsy itself can cause Which Diagnostic Tests and working to make sure the FDA follows infections and more serious problems. Treatments are Best? through on much-needed changes to improve the safety and effectiveness of all Until recently, experts from the U.S. Every year, the Food and Drug medical products. One by one, the FDA is Preventive Services Task Force advised Administration (FDA) reviews thousands complying with the law on the highest risk that screening was not recommended for of new diagnostic tests and other medical devices, and we are making sure that men over 75 and that there was devices and allows them to be sold— patients are being protected as they should insufficient evidence to recommend for or without first requiring clinical trials. As be. against screening men under 75 for long as the products are considered prostate cancer —whether by the PSA “substantially equivalent” to others on Meetings with New FDA Leadership blood test or by digital rectal exam (DRE). the market, a loose definition that does not require that they be made of the same As a result of our work, change is coming In October 2011, the U.S. Task Force material or use a similar mechanism of to the FDA. The FDA hired a new director revised its position and now recommends action, they can be sold in the U.S. It’s of their Center for Medical Devices and against screening healthy men of any age not surprising, therefore, that many of Radiological Health in late 2009 who is for prostate cancer. They determined that these devices are later recalled because much more concerned about public health the PSA test, with or without DRE, doesn’t they are found to be dangerous. In than his predecessor. In a spirit of being save lives and too often results in needless addition, the vast majority of open to change, the FDA commissioned a tests and treatment with life-altering prescription drugs and implanted devices report by the Institute of to consequences. For example, between 1986 are approved on the basis of short-term recommend improvements to the FDA and 2005, a million men in the U.S. were safety and may not be proven safe for review process for medical devices. When treated for prostate cancer with surgery, long-term use. We are working to the report came out in 2011, the FDA was radiation therapy, or both. According to improve these policies to prevent surprised that it concluded that new the Task Force, 5,000 of those men died products --meant to help us-- from devices which were “substantially following the surgery, as many as 70,000 harming us. equivalent” to older devices could not be had serious complications, and 200,000 to assumed to be safe or effective. The report 300,000 suffered incontinence, impotence, New FDA Safeguards recommended completely replacing the or both. system used to approve most medical When the FDA Advancement Act of 2007 devices with a system based on safety and Does that mean that PSA tests are never a became law, we succeeded in including effectiveness. We agree. But such a major good idea? No. First of all, the Task Force new safeguards and increased resources to change is politically difficult and in the is only recommending against general strengthen the safety of prescription drugs meantime, we are urging the FDA to make screening for all men, not testing for men and medical devices. These safeguards smaller changes that will protect patients. with symptoms. We scrutinized the are helping patients today. For example, Unfortunately, those changes have been research results carefully and concluded patients and doctors now have free access opposed by many members of Congress. that although annual screening does more to results of clinical trials, so that We are working with other nonprofit harm than good for the general population companies can’t hide information that is organizations to support these long “Dr. Zuckerman's pitch as it pertained to various health related issues was absolutely phenomenal. Her abil- ity to touch on very important issues of health in a small amount of time was not only informative, but con- tributed immeasurably to the success of our kickoff.”

04 —Sammy Payne, Deputy Chief of Staff G-8, United States Army PROGRAM AND POLICY HIGHLIGHTS overdue changes. For example, after Precautions You Can Take bottles until our work helped persuade NRC’s president met with the Consumer companies to stop using it. BPA is still Union’s Patient Safety Project, their Scientists recognize that most people are widely used to line almost all food and members sent more than 150,000 e-mails to not going to stop using cell phones. Here beverage cans in the U.S., however. Congress. are their recommendations on how to lower your exposure and your risks: Preventing Cancer • Limit the number and length of your calls. We Help You Use Your Cell Phones • Use hands-free devices, put the cell Safely on “speaker phone,” or hold the phone a few inches away from your ear. You love your cell phone, but is it a hazard • When speaking on your cell phone, to your health? Approximately 1 billion alternate sides. people use cell phones worldwide, with • Limit your cell phone use in rural over 110 million using cell areas or anywhere reception is poor. More We think of plastic as being solid, but BPA phones daily. These devices depend on radiation is emitted when you are farther leaches out of plastic containers and out of radio waves that were assumed to be safe, from a cell phone tower or when you’re in the linings of cans into liquids and foods. but new research tells us otherwise. a place where the signal is weak. The Centers for Disease Control and Studies indicate that using a cell phone for • Text message instead of talking (but Prevention found BPA in the bodies of 10 years or more increases the risk of never while driving!). more than 93 percent of Americans, and being diagnosed with a brain tumor on the • Avoid keeping your cell phone in children, particularly formula-fed babies, side of the head where the cell phone user your pocket or close to your body while it have the highest daily intakes. holds the phone. is on. • Go over these guidelines with your BPA mimics and interferes with estrogen, children and limit their cell phone use. which is important in reproduction and development. BPA is especially likely to We Are Helping to Ban Dangerous get into liquids from a plastic container Chemicals in Plastics that is heated, such as when one warms a baby bottle. Scientists are concerned about When we first started to examine research how BPA affects the behavior of young on plastics that affect hormones, most children, and whether it can affect the Americans didn’t know what bisphenol- prostate, breasts, and brain. For example, Since the extensive use of cell phones has A or phthalates were—or even how to BPA could potentially increase the increased dramatically in the last decade pronounce them. Over the years, we have likelihood of early puberty in girls and and since cancers usually take at least 15- explained to policy makers and breast cancer in women, or the risk of 20 years to develop, it will be years before journalists what the research showed and prostate cancer in men. Studies have also research can conclude whether cell phones why we were concerned that these found that adults with higher levels of cause cancer or not. Meanwhile, well- chemicals interfere with our body’s BPA in their urine are more than twice as designed studies indicate that the hormones and may cause cancer and likely to have heart disease or diabetes radiation from cell phones can damage other serious diseases. As a result of our than adults with lower levels, according to DNA in sperm, suppress the immune work, these chemicals are banned from the study of 1,455 people published in The system, and increase the risk of tumors, many common products today, and that Journal of the American Medical Association. including cancer. In addition, children are reduces the risk of cancer for our at higher risk than adults because of their children. With our encouragement, major stores thinner and smaller skulls, which absorb such as Walmart and Toys “R” Us more radiation. Bisphenol-A (BPA) was widely used in announced they would no longer sell baby plastic sports water bottles and baby bottles made with BPA, and several major “The American system works on checks and balances and it helps me sleep better at night knowing you all are keeping government agencies honest.”

05 —John H. Powers, III M.D., Olney, Maryland

PROGRAM AND POLICY HIGHLIGHTS companies announced they would no alter human sperm DNA and semen HPV is the name for a group of viruses longer make baby bottles with BPA. quality. that cause cervical cancer, as well as cancer However, it is still legal to sell baby bottles of the vulva, anus, penis, head and neck and sippy cups with BPA in stores in the As a result of our meetings with Members (tongue, throat, etc.). It can also cause U.S., and it is still in the lining of nearly all of Congress and their staff to explain our genital warts and several other diseases. canned food and beverages. In response to concerns about phthalates and to ask them The good news is that in 90% of cases, our work, the FDA announced in 2010 that to protect our children, a law passed to HPV clears up on its own within 2 years, it was reconsidering whether BPA was ban phthalates from children’s toys and and often much sooner. In 2012, safe and is funding new studies and child care products sold in the U.S (such as approximately 12,000 women in the U.S. working with manufacturers to discover teething rings and plastic books) as of will be diagnosed with cervical cancer, and ways to reduce BPA in food containers. February 2009. However, testing to ensure an estimated 4,000 women will die from The results of those studies are not yet these products are actually phthalate-free cervical cancer. public. did not begin until January 2012, in order to give small businesses time to comply Phthalates are synthetic chemicals found with the new law. Meanwhile, thanks to in soft plastic and many everyday our work, major retailers such as Wal- products—including plastic toys and mart, Target, and Babies "R" Us have shampoos. They are used to make plastic removed children's products containing flexible and to add fragrances to soap, phthalates from their shelves. room fresheners, and other personal products. Unfortunately, these chemicals Despite this progress, children and adults don't just stay in the products, and in the U.S. are still exposed to phthalates in Gardasil and Cervarix are two vaccines phthalates have been found in indoor air many other products, including shampoo, approved to protect girls and women, ages and dust and in human urine, blood, and soap, lotions, food packaging, 9 through 26, from the two types of breast milk. Levels are highest in women pharmaceuticals, and medical devices and Human Papillomavirus (HPV) infection and children ages 6 to 11. tubing. We are now working with state that are responsible for most cervical and city legislators, the FDA, and the cancer. The vaccines have very limited media to explain the risks and persuade effectiveness, however, against other types government officials to require clear labels of HPV that cause approximately 30% of or restrict phthalates in those products. cervical cancers. For that reason, all women, whether they are vaccinated with We Are Urging FDA to Require Gardasil or Cervarix or not, still need Long-term Studies of HPV Vaccines regular Pap smears to detect cervical cancer in its early stages, when treatment Research indicates that boys exposed to We were pleased when the first cancer is most effective. phthalates may be more likely to develop vaccine, Gardasil, was approved by the smaller genitals and undescended testicles. Food and Drug Administration (FDA) in Gardasil is also approved by the FDA for Boys who are born with undescended June 2006. Since that time, however, we boys and men ages 9 through 26 to prevent testicles are more than twice as likely to have become concerned that not enough genital warts. In 2011, the CDC develop testicular cancer when they are is known about the safety and long-term recommended that boys 11 and 12 be teenagers or young men. Phthalates are effectiveness of the vaccine. Now that routinely vaccinated with Gardasil to also believed to affect girls' hormones and another HPV vaccine, Cervarix, is reduce the spread of HPV and to prevent recent studies show a link between available, we are urging the FDA to anal, oral and penile cancers. children’s exposure to phthalates and the compare the risks and benefits of the two risk of asthma, allergies, and bronchial vaccines for 5-10 years and make that Gardasil is the most expensive vaccine obstruction. Studies by Harvard information public as soon as possible. ever recommended for school-age researchers have shown phthalates may children, and an important unanswered “Hopefully, every woman finds her way to your Web site. Your article has helped me arm myself with information I will need to select the right surgeon.” 06 —Annamaria Picollo, Prospect, Oregon

PROGRAM AND POLICY HIGHLIGHTS question is how long does it last. The FDA weight gain and obesity that could the long-term safety and effectiveness of did not require long-term studies of increase the risk of cancer. lap bands, but in the past the FDA has not Gardasil, and we have demanded that they Obesity is caused by eating more calories enforced those requirements. We are finally do so. Meanwhile, it is not known than you burn up from physical activity. urging them to do so now, especially as if a booster shot is needed, and if so when. But some popular prescription obese and overweight teenagers are now That means that girls and boys and medications drastically increase appetite getting lap bands. women and men who received Gardasil and obesity. Some of the drugs that are several years ago may no longer be especially likely to cause obesity are Congressional Testimony, protected. In comparison, the FDA “atypical antipsychotics,” which are taken Briefings, College Lectures, required longer-term studies of the HPV by more than 30 million Americans each and Speeches vaccine Cervarix than it did of Gardasil, year. which was approved on less than 5 years The Cancer Prevention and Treatment of data. Our President, Dr. Diana Zuckerman, Fund provides policymakers, health testified before FDA Advisory Committees professionals, and other opinion leaders Like any public health intervention, a several times over the last few years to with an unbiased explanation of scientific vaccine's risks must be weighed against its point out the risks of atypical data so that they can make educated benefits. This is why it is so important to antipsychotics such as Seroquel, Zyprexa, decisions that affect everyone in our determine the vaccine's efficacy and how Risperdal, Geodon, and Abilify. These nation. Our research and advocacy work long it lasts. In addition, the FDA is drugs were originally approved for the represents the interests of ordinary women currently asking for studies of the risk of treatment of delusions, hallucinations, and and families, who are often left out of blood clots from Gardasil. If the vaccine is other forms of psychosis that are policy debates. We educate leaders in our offering minimal protection or instilling a symptoms of schizophrenia and manic nation’s capital and across the country. false sense of immunity, almost any risk or depression. However, most of the • Dr. Zuckerman and Mr. Paul Brown, adverse reaction becomes unacceptable. prescriptions filled each year in the U.S. Government Relations Manager, are for other symptoms such as advocated stronger safety standards for Did You Know: Obesity Increases the depression, anxiety, insomnia, or behavior prescription drugs and medical devices at Risk of Several Types of Cancer problems typical of ADHD or Alzheimer’s the monthly FDA meetings about the disease. These drugs have serious risks, reauthorization of the Prescription Drug Everyone knows about the obesity including sudden death, but the most User Fee Act (PDUFA V) and the Medical epidemic and its impact on diabetes, but common risk is rapid weight gain, which Device User Fee Act (MDUFA). They also obesity causes other health risks as well. increases the risk of diabetes and also met with Hill staffers throughout 2010 and Girls and boys are starting puberty as increases the risk of breast cancer, prostate 2011 on this topic. early as 8 years old, and one reason is that cancer, and other cancers. With more than • Brandel France de Bravo, obesity affects hormones—and that could 35 million prescriptions filled each year, Communications Director, testified about also increase the risk of breast cancer, the impact of these drugs on cancer rates the cancer risks of tanning devices at a colorectal cancer, endometrial cancer, could be substantial. FDA General and Plastic Surgery Devices cancer of the esophagus, and other Panel in March 2010. cancers. The risk of obesity may be What kind of medical products can reduce • Brandel France de Bravo testified on increased by BPA, phthalates, and other the risk of obesity and therefore also the cancer risks of menthol cigarettes at a chemicals that influence hormones and reduce the risk of cancer? Gastric lap FDA Tobacco Products Scientific Advisory fat cells. bands are a surgical product that can result Committee meeting in March 2010. in substantial weight loss within 6 to 12 • Dr. Zuckerman spoke about the lack In addition to our activities regarding BPA months. Unfortunately, little is known of information on the long-term efficacy of and phthalates described in the previous about how effective these products are for Gardasil, an HPV vaccine, at the DC Public section, the Cancer Prevention and the kind of permanent weight loss needed Oversight Committee Hearing in April Treatment Fund scrutinized new research to reduce the risk of cancer. The FDA has 2010. Ms. France de Bravo testified about to determine other potential causes of required long-term studies to determine these concerns at a FDA Advisory “You are a champion of many and I appreciate all you do.”

07 —Jackie Lombardo, Charlottesville, Virginia

PROGRAM AND POLICY HIGHLIGHTS

Committee meeting in December 2010. the Virginia legislature in Richmond in Cancer Prevention and • Dr. Zuckerman was a guest lecturer February 2011. Treatment 5K Run/Walk on cell phone safety and cancer risk in a • Dr. Zuckerman testified in favor of class at George Washington University’s the FDA’s plan to rescind approval of We held three 5K Run/Walk events in School of Public Health in September 2010. Avastin for Stage 4 breast cancer at a FDA 2010 and 2011 to raise money for our In September 2011, Dr. Dana Casciotti also Advisory Committee meeting in June 2011. online cancer hotline, which provides free lectured on this topic to the 2011 class. Research shows that Stage 4 breast cancer information to anyone who contacts us our • Dr. Zuckerman gave an invited patients who took Avastin died sooner and onl ine hotline. speech to the Department of Energy and had worse complications than other Stage Federally Employed Women at their 4 patients. Our first 5K Run/Walk was in March 2010, annual Cancer Awareness program in • Dr. Zuckerman testified at a FDA on the beautiful Washington & Old October 2010. That same month, Dr. Advisory Committee meeting on the Dominion Trail in Arlington in Virginia. Zuckerman also spoke about cancer possible risks of dapagliflozin, a diabetes Our second and third races were held in prevention to employees of the Security drug that may increase the risk of cancer, the fall of 2010 and 2011 at the same and Exchange Commission. in July 2011. location. Now held every September, our • Mr. Paul Brown met with senior staff 5K attracts a diverse group of members of the Consumer Product Safety Our staff actively participated in meetings participants—former track stars, Commission to discuss the risks of of the D.C. Cancer Consortium, an occasional joggers, parents with their kids phthalates in children’s toys and their association of all Washington, D.C. cancer and dogs in tow—ranging in age from 7 to impact on cancer in October 2010. groups and service providers. We offered 65. The Cancer Prevention and Treatment • Dr. Zuckerman testified about the free technical assistance throughout the 5K is a wonderful way for people to need for safer anemia medication for year and disseminated information on celebrate cancer survivors and honor those cancer patients in October 2010 at a FDA cancer prevention and treatment at the who have lost their lives to cancer, either Advisory Committee meeting. Cancer Survivor Jubilee in Washington, by running, sponsoring or pledging. To • Dr. Zuckerman attended a meeting in D.C. We also assisted in developing read more about this event, see photos, October 2010 with White House staff and strategic plans for breast cancer, cervical and view finish times and rankings from child nutrition advocates and spoke about cancer and obesity prevention. our most recent race, please visit the latest research showing that obesity www.cancer5k.com. increases the risk of cancer, especially for In Unity There is Clout women. Friday Luncheon Series and • We held a working conference at The Cancer Prevention and Treatment the Annual Health Policy Hero George Washington University School of Fund has a primary role in coordinating Awards Luncheon Public Health on the diagnosis and the Patient, Consumer, and Public Health treatment of DCIS, which provided Coalition, which includes well-respected On select Fridays throughout the year, the continuing medical education credit for nonprofit organizations such as Cancer Prevention and Treatment Fund breast cancer health professionals in Consumers Union, the Union of hosts a luncheon devoted to the latest November 2010. That same month, Dr. Concerned Scientists, the National cancer prevention, treatment strategies, Zuckerman and Ms. France de Bravo Women’s Health Network, Center for and other issues. We invite medical provided similar training to doctors and Medical Consumers, the National experts to provide objective and useful other medical professionals at Howard Consumer League, Title II Community information. Held at the conference room University on DCIS. AIDS Action Network, Our Bodies of the Washington offices of Reed Smith, • Dr. Zuckerman and Ms. France de Ourselves, Breast Cancer Action, and U.S. the luncheons are free and open to the Bravo delivered a presentation to patient PIRG. We hosted numerous coalition public. In 2011, CapitalOne bank became navigators about DCIS and our new meetings, strategy sessions, and our luncheon sponsor. patient booklet in April 2011. nationwide efforts to help consumers • Dr. Zuckerman testified in support of understand new health information in a bill to ban BPA in children’s products at 2010 and 2011. “I am immensely grateful to you and Dr. Zuckerman for your thorough, succinct and clear response to my query -- and for providing it so very promptly.” 08 --Ernest Herman, New York, NY

COMMUNITY OUTREACH AND EDUCATION

In 2011, we honored FDA Commissioner undergraduate at Hamilton College. Dr. Margaret Hamburg as a Health Policy Hero who has worked to strengthen the FDA and protect all of us from unsafe foods, drugs, and devices. Thanks to her work, the FDA is ensuring that life-saving medical products get to the patients who ht yGe Lewis Gwen by Photo need them.

Internships

The Cancer Prevention and Treatment Fund was assisted by impressive interns in Dr. Catherine DeAngelis Tiffanie Hammond 2010-2011, including Gayani Weerasinghe, On the Friday before Mother’s Day, we a graduate student working at NIH; The Lenora Moody Lung Cancer hold an awards luncheon to honor a Padma Ravichandran, a public health Fellowship Health Policy Hero. In 2010, we gave our undergraduate student from the Health Research Policy Hero Award to Dr. University of Maryland; Megan Cole, a As the Lenora Moody Fellow in 2011, Catherine DeAngelis, Editor-in-Chief of graduate student at Yale’s School of Public Tiffanie Hammond analyzed current and the prestigious medical journal JAMA Health; Sarah Miller, a nurse and graduate potential medical recommendations and (Journal of the American Medical student in health policy at the University health policy issues pertaining to lung Association). We honored her for her of California, San Francisco; Margaret cancer. Ms. Hammond’s focus was on tireless efforts to ensure the integrity of Aker, an undergraduate at the University how to improve prevention, screening, research that influences America’s medical of California at Santa Barbara; Blossom treatment, and quality of life for women care, including cancer treatment. Her Paravattil, a graduate student from Florida with lung cancer. This fellowship was insistence on independent statistical International’s School of Public Health; made possible by the family of Lenora analyses of studies financed by Sarah Romano, an undergraduate at Smith Moody, especially her daughter Jaime pharmaceutical companies and other College; Jessica Becker, an undergraduate Moody and son-in-law Todd Cregar. medical product manufacturers will bring at William in New York; Lenora had never smoked in her life and greater objectivity and accuracy to medical Jacqueline Britz, an undergraduate at lived a healthy lifestyle. Unfortunately, articles that oncologists and radiation James Madison University in Virginia; women who are non-smokers are at a oncologists rely on. Sarah Bushman, a graduate student at much higher risk of lung cancer than their George Washington University; Kiren male counterparts, so we are trying to Chauhan, an undergraduate at Smith increase awareness on this issue. ht yGe Lewis Gwen by Photo College; Jennifer Shapiro, a community health undergraduate student at In addition to her fellowship position, Ms. University of Maryland; Lexi Smith, a Hammond serves as the Research and graduate student from Johns Hopkins Operations Coordinator for the National School of Public Health; Sarah Pedersen, a Lung Screening Trial and the Prostate, graduate student in public policy at the Lung, Colorectal and Ovarian Cancer University of Maryland; Krista Brooks, a Screening Trial at the Lombardi graduate student at Tulane University Comprehensive Cancer Center at School of Public Health and Tropical Georgetown University. She is currently Medicine; Caroline Novas, an completing her Master’s degree in Health undergraduate at Hamilton College; Promotion, at the George Washington Dr. Margaret Hamburg and Juliana Stebbins, a graduate of Barnard University School of Public Health. Dr. Diana Zuckerman College; and Marghuerita Scott, an “Thank you so much for your rigorous attention to and proactive dissemination of informed analysis about these issues. I’m sure many women appreciate having you as an advocate. 09 —Shari Graydon, Author of In Your Face: The Culture of Beauty and You

MEDIA AND COMMUNICATIONS

In 2010 and 2011, the media turned to 01/12/11, Diana Zuckerman, The New 07/29/11, ABC World News with Diane the Cancer Prevention & Treatment York Times, “Playing with the Band” Sawyer, “Experts Say FDA Should Fund for timely cancer-related health Abandon Approval Process” and medical information from a 01/15/11, Barry Meier, The New York credible source. We responded to Times, “Recalled Devices Mostly 09/01/11, Gardiner Harris, The New frequent requests from reporters and Untested, New Study Says” York Times, “FDA Affirms Safety of producers across the country for Breast Implants” information, comments and 01/26/11, ABC News, “Breast Implants interviews. In 2011, Dr. Zuckerman Linked to Cancer? FDA Alerts Women 09/01/11, Saundra Young, CNN.com, became a regular blogger for there is a Link Between Implants and a “FDA Panels Put Silicone Breast Rodale.com’s Voices. The following is Rare Blood Cancer” Implants Back Under Microscope” just a small sample of our coverage from 2010 and 2011: 01/27/11, Jennifer Corbett Dooren 09/08/11, Ricardo Alonso-Zaldivar, and Alicia Mundy, The Wall Street , “FDA Advisers Urge 01/16/10, Denise Grady, The New York Journal, “Implants, Cancer May Be Closer Scrutiny of Pelvic Mesh” Times, “U.S. Concerned About the Linked” Risks from a Plastic: A Shift from Bush 09/13/11, Rob Stein, The Washington Era” 02/18/11, Jonathan D. Rockoff, The Post, “Bachmann Questions Safety of Wall Street Journal, “J&J, FDA Clash HPV Vaccine for Girls” 01/16/10, Meg Kissinger, Journal Over Device” Sentinel, “FDA Does About-Face on 9/14/11, Diana Zuckerman, Exposure to BPA” 04/11, Dr. Oz Show, “Dr. Mehmet Oz Rodale.com Voices, “Breast Implant on Lap Band Surgery: FDA Says You Victims Testify.” 03/29/10, Leah Zerbe, Rodale.com, Could be Eligible” “The Health Care Bill Passed…Now 9/26/2011, Diana Zuckerman, What?” 06/05/11, Andrew Pollack, The New Rodale.com Voices, “Reasonably Safe?” York Times, “Drug Offers a Safer 03/31/10, , “Cigarette Makers Option in Preventing Breast Cancer, 11/01/11, Emily Main, Rodale.com, Defend Menthol to U.S. FDA Panel” Researchers Say” “The Mobile Phone-Cancer Link: What the Research Doesn’t Tell” 08/22/10, Diana Zuckerman, The 06/23/11, Rob Stein, The Washington Washington Post, Letters to the Editor, Post, “Silicone Breast Implants 11/03/11, Leah Zerbe, Rodale.com, “Sparks from a Cancer Drug” Reasonably Safe, FDA Says” “Why a Yearly Mammogram May be a Bad Idea” 10/04/10, NBC Nightly News with 06/28/11, NBC Los Angeles, “Breast Brian Williams, “Safety of Hip Cancer Patients Beg FDA to Keep 12/12/11, Leah Zerbe, Rodale.com, Implants” Drug on the Market” “President’s Cancer Panel: Eat Organic, Avoid Plastics” 10/29/10, Andrew Pollack, The New 07/14/11, Christine Mai-Duc, Los York Times, “With Safety Concerns Angeles Times, “FDA Cites Risks of Growing, FDA Rejects Another Diet Implant” Pill” 07/26/11, Rita Ruben, MSNBC.com, 12/04/10, Andrew Pollack, The New “Risky Pelvic Mesh Highlights York Times, “Panel Votes to Expand Worries About FDA Process” Surgery for Less Obese” The Cancer Prevention and Treatment Fund is a program of the National Research Center for Women & Families. NRC Board members in 2010 and/or 2011 are listed below.

BOARD OF DIRECTORS NATIONAL ADVISORY BOARD

George Thomas Beall, Managing Director Arthur L. Caplan, PhD Global Social Marketing Practice, Ogilvy Public Director, Center for Bioethics Relations Worldwide University of Pennsylvania School of Medicine

Stephen Bozzo, JD The Honorable Rosa DeLauro (CT)

Ann Braun, Mark Frankel, PhD, AAAS Senior Associate Dean of Development Keck School of Medicine, Pat Hendel, Commissions for Women University of Southern California Phyllis Katz, PhD Ben Gitterman, MD Institute for Research on Social Problems Associate Professor of Pediatrics and Public Health Children’s National Medical Center Sally Kenney, PhD Univ. of Minnesota Center for Women & Public Mary G. Hager, MA, Writer Policy

Nancy Hardt, MD Rebecca Klemm, PhD Professor and Associate Dean Klemm Analysis Group University of Florida College of Medicine Irene S. Levine, PhD Judith L. Harris, JD NYU School of Medicine Partner, Reed Smith Lisa Lopez, JD, Haemonetics Areta Kupchyk, JD Partner, Reed Smith Mary McDonough Actress and Director Alan Mendelson, LLD Axion Venture Partners Shari Miles, PhD, American Psychological Association Omega Logan Silva, MD Former President, American Medical Women’s The Honorable Olympia Snowe (ME) Association Judy Woodruff Scott Parven, JD PBS NewsHour Partner, Akin Gump, Strauss, Hauer and Feld

Susan F. Wood, PhD George Washington University

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